Guest guest Posted May 13, 1999 Report Share Posted May 13, 1999 Kenny, My palms peel and grow new skin at a slow pace, so you're not alone! It can be so frustrating because my hands feel so rough no matter how much cream, ointment or lotion I put on them. Sometimes it is hard to feel what I am doing with my fingertips, and I have to be careful not to snag the fine needlework I like to do. Not to mention not messing it up with residue from the creams,etc. MY feet are the same way. Sometimes they crack and bleed, but this is usually during a flare. Lynn >hi i'd like to know if anyone out there who has the palms of there hands >that peel and grows at a slow pace new skin it's very strange to me >thanks ken Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 1999 Report Share Posted May 13, 1999 KENNYV33@... writes: > hi i'd like to know if anyone out there who has the palms of there hands > that peel and grows at a slow pace new skin it's very strange to me > thanks ken I've had a mild case of it on my palms for the last couple of years. If I didn't have psoriasis in other places I wouldn't know what it was. It seems kind of strange to me since the flakes don't build up. I assume that's because my palms are almost constantly rubbing against things. Mine doesn't bother me at all and I hardly notice it, but I could image that it would be a real handicap if it were worse. Rick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 1999 Report Share Posted May 14, 1999 Rick, You are lucky that yours seem to rub off. I wish mine would. Right now, I'm having a mild flare - peeling and flaking all over the place! During a bad flare my hands swell, hurt, crack and bleed before finally deciding to peel. And yes, it can be a real handicap during those times. Lynn >I've had a mild case of it on my palms for the last couple of years. If I >didn't have psoriasis in other places I wouldn't know what it was. It seems >kind of strange to me since the flakes don't build up. I assume that's >because my palms are almost constantly rubbing against things. Mine doesn't >bother me at all and I hardly notice it, but I could image that it would be a >real handicap if it were worse. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 1999 Report Share Posted July 23, 1999 Dear Phyllis, I can totally relate to the distress the hands can be. I too have severe palmar psoriasis most of the time, accompanied with severe arthritis of each digit and knuckle- more so in my right or dominant hand. Right now the Arava is the best drug ever for my hand. Unfortunately, my back, neck and shoulders are getting intolerable. I am afraid that if I drop my Arava that I will lose the use of my hands... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2000 Report Share Posted February 19, 2000 Hi, I get trigger fingers whenever my arthritis is bad in my hands. I have found that exercise will make them go away. constantly bending your fingers as if to make a fist, both with the fingers together and with fingers apart will positively help them after awhile. Do this with your hands turned away from you and also with your hands turned palms toward you (this hurts me because of my wrists, but I know it will help). At first your trigger finger will not bend with the rest of them, so you can help it by putting the side of your other hand against the inside of the fingers of the hand with the trigger finger. Put your hand against you fingers right below the sticking joint and then practice bending all the fingers over that hand. Can anyone understand a word of this? I know it works but I don't describe well. The more you clinch the fingers and squeeze a soft rubber ball, the more your hands will be normally functioning. Mine came back from really bad (all the fingers leaning far to the outside and no pincher grasp at all). By the way, squeezing the ball and bending your fingers a million times a day really hurts the next day and right then, for that matter. This goes away as they get stronger. Gloria ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2000 Report Share Posted February 19, 2000 Gloria, The Physio Therapist that designed an exercise program for me told me to get one of those stress balls and squeeze it. I also do the exercises that twist the wrist while your arms are at your sides and also make the fist. There is a round lattice like circular rubber net they have there too that you fit your fingers in and squeeze to make a fist and the rubber resists because it is strung tight. I find it makes a huge difference in my flexibility but I was so exhausted the next day I had to rest. Also, for bad knees, she had me back up against a wall and have your feet about a foot apart, about four inches out from the wall, and gradually slide down the wall, while leaning against it. This will build your thigh muscles up without putting a lot of stress on the knees. Bev > > Hi, > I get trigger fingers whenever my arthritis is bad in my hands. I have > found that exercise will make them go away. constantly bending your > fingers as if to make a fist, both with the fingers together and with > fingers apart will positively help them after awhile. Do this with your > hands turned away from you and also with your hands turned palms toward > you (this hurts me because of my wrists, but I know it will help). > At first your trigger finger will not bend with the rest of them, so you > can help it by putting the side of your other hand against the inside of > the fingers of the hand with the trigger finger. Put your hand against > you fingers right below the sticking joint and then practice bending all > the fingers over that hand. > Can anyone understand a word of this? I know it works but I don't > describe well. > The more you clinch the fingers and squeeze a soft rubber ball, the more > your hands will be normally functioning. Mine came back from really bad > (all the fingers leaning far to the outside and no pincher grasp at all). > By the way, squeezing the ball and bending your fingers a million times a > day really hurts the next day and right then, for that matter. This goes > away as they get stronger. > Gloria > ________________________________________________________________ > YOU'RE PAYING TOO MUCH FOR THE INTERNET! > Juno now offers FREE Internet Access! > Try it today - there's no risk! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 0.0% > Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! > 1/911/0/_/_/_/951010597/ > ------------------------------------------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2001 Report Share Posted March 2, 2001 Hi Everyone, I just wanted to say that way back then about 14 yrs ago I was diagnosed with Raynauds, and my hands and feet were very bad and its been yrs, now since that time and not only did my RA go but so did the Raynauds. So the treatment is good for both at least in my case. Maybe some other people out here had the same thing happen. I was diagnosed at the Cleveland Clinic, so I am sure I had it. The Best from Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2001 Report Share Posted March 2, 2001 Roni, are you doing the clindamycine iv's? If I remember correctly, you are not yet and this is one thing I would recommend for you. After I did the clindy, my hands became warm and stayed warm; however, I do know other SDers whose hands are still cold. Since I did not have renayds like you do I cannot really give you much advice in that department but just remember that it is normal (and I know normal is scarey) for us to have a worsening of symptoms before getting better. I will be anxious to see what all is posted from the others to you. I am sending you warm hugs and hope someone can relieve your anxieties. Love, rb09322@... wrote: > Hello everyone.... > > I need some more help! I've been on the minocin since > November and just started the Biaxin this week for > Tuesday and Thursdays. It seems since I've been on the > AP that my circulation in my hands is worse. When I was > first diagnosed with CREST Scleroderma the Raynaud's was > terrible to the point that my finger tips were almost > black. They got better with the juicing and > supplements. Now I find my hands are light purple and > very cold again. Has this happened to anyone else? Any > suggestions? Thanks everyone! > Roni > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2001 Report Share Posted March 3, 2001 Roni, I don't know your economic situation but I do know othat usually, travel is something we all have to sacrifice for. What I would do were I you, and certainly advice is pretty easy to give out, is to sacrifice somewhere and spend the money going to Sinnott or one of the many, many really known doctors who will do the clindy iv's for five days straight for you to jump start you and then because you absolutely have no resource locally for the clindy iv's is then to use a script for oral clindy in between the doctor visits. I would see Sinnott once every six months and he would probably still work with you via long distance with oral prescriptions (he was always good to give me a prescription for zithromax when my sinuses were involved, etc.) via telephone. I think one good long distance a year with someone who will give you the needed prescritions far outweighs the time you are spending and getting worse. Maybe the Bioxin or just Minocin will do it for you but this is not what I am hearing for most of us sclerodermas. You will discover that the small town where Sinnott practices is very, very cheap compared to the big city. Of course, if you are not driving, there is a rental car involved which you must figure in. I hope this helps you some or at least gives you something to consider. Love, SAndra > Hi : > > Thanks for your speedy reply. Not sure if you remember > that my doctor and my rheumatologist ABSOLUTELY REFUSE > to give me IV treatments. Unless I can magically give > myself the IV's I'm stuck. > > That is why I started on the Biaxin. I talked with the > rheumatologist and he won't budge but would give in to > the Biaxin. I guess that is better than nothing. I > asked him if HE read the protocol. I've read it many > times, he said yes, but wouldn't go further, cited that > the clindamycine could cause some major problems, etc. > Doesn't want to do it. > > He also wanted me to do the minocin every day, 200 mg. > for a year straight, I refused. If the protocol works > why chagne it? Talk about frustration. Don't wish this > disease on anyone but I think someone with this disease > needs to go into practice for us. > > Thanks again! > Roni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2002 Report Share Posted October 9, 2002 So true. Thanks Geoff. Dee rheumatic Hands Hi Gang! Geoff here. socjog wrote: "I remember one time being at home alone and wanting a Pepsi so bad. I got out the bottle and couldn't open it. I remember trying so hard but just couldn't grip the bottle and then I started crying. It was because I was too ashamed to ask for help so I just cried." Some years ago I went to some Promise Keepers conferences, events where a bunch of men get together to hear about God. After attending these I realized something, something so simple, so straightforward, that it made me feel totally and completely ignorant. There is nothing that befalls you that is not common to man. Interesting concept. With that I realized something else, that old issue of pride is so invasive it slimes everything. Then the epiphany: There is no shame in needing, nor soliciting help; Shame exists only in refusing it or in refusing to ask for it when honestly needed. A few days later I was in a fast food place with my family. My youngest was just beginning baby food then and I couldn't open the jar to feed her. Now picture this: Male, 6'4, 205 lbs, apparently strong and healthy viewed by the untutored eye -- can't open baby food jar. I looked around the restaurant and there was a young man, early 30's, with his young son about 11 ready to eat. I walked over to him and asked if he would open the jar for me, no other explanation. He looked up, said sure, and opened it. I thanked him, took the jar back and fed my little girl. Seven people at least learned something that day, my family of 5, the man and his son: There is no disgrace in asking for help when needed; There is honor in aiding one who needs help; and Love will conquer pride in providing for your child Never had I been hesitant to give help, but I had been terribly reluctant to ask. In fact, the only times I remember asking for help were in truly life-threatening situations. That man gave aid without a second thought; his son learned to help those in need and saw immediately the reward of that effort by seeing the needy use the aid to feed an infant; my kids and my bride saw that self-pride has no place in life, best effort and humility do; and I had the honor of being an instrumentality of those lessons. I no longer feel the need to weep inside at things I cannot do, I search for someone who can. There is no shame in asking for help, the shame is in our misplaced pride. Geoffsoli Deo gloria www.HealingYou.org - Your nonprofit source for remedies and aids in fightingthese diseases, information on weaning from drugs, and nutritional kits forrepairing damage; 100% volunteer staffed.To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2005 Report Share Posted February 8, 2005 Rob, I, too, have 'hand' problems. I use a Remington Spa Therapy Paraffin Wax Heat Treatment System for hands, feet and elbows. (That came off the Use & Care Guide.) I bought it for $20 a couple of year ago and it does help with the flexibility issue. I also use " Super " Blue Stuff which, as long as I use it properly, helps the pain and makes it easier to exercise them.. I hope this can help you. For me, it's all I've found so far. suzanne > > > MY hands are seriously screwed,I cant even touch my palms with the > tips of my fingers. I cannot make a fist....Does anyone have any > suggestions on some home remedies?......do hot wax treatment spas > work?.....Im going to try some physical therapy as soon as my pre > existin clause runs out on my insurance....thanks guys...I really > appreciate any suggestions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2005 Report Share Posted February 8, 2005 My hands were like that, before diagnosis, and also after, until I was put on some good medication. I was sent to physical therapy, and the assistant would give my hands the hot wax treatment, then massage them until I could almost make a fist. But then the next day they were back the way they had been. I bought my own hot wax machine and used it at home. It provided temporary relief; in other words, it felt good at the time but had no lasting effect. What medications are you on? Do you have a good rheumy? I sympathize with you, because I know how it feels. My hands are almost back to normal now, but it's because of the meds. Sue On Tuesday, February 8, 2005, at 05:30 PM, Rob X wrote: > > MY hands are seriously screwed,I cant even touch my palms with the > tips of my fingers. I cannot make a fist....Does anyone have any > suggestions on some home remedies?......do hot wax treatment spas > work?.....Im going to try some physical therapy as soon as my pre > existin clause runs out on my insurance....thanks guys...I really > appreciate any suggestions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Rob, I'd talk to your physician about this. What meds are you taking? Maybe you need a change. I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] HANDS > > > > MY hands are seriously screwed,I cant even touch my palms with the > tips of my fingers. I cannot make a fist....Does anyone have any > suggestions on some home remedies?......do hot wax treatment spas > work?.....Im going to try some physical therapy as soon as my pre > existin clause runs out on my insurance....thanks guys...I really > appreciate any suggestions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 gina... i so much wanted to ask a question at the support group, but i did not... this is it: even when i am on enbrel and my hands are not deformed, yet... will the get deformed or will the medication keep them straight?? i was thinking that if the pain is gone then the things that do the damage are not there and so my hands will not get deformed... there were ladies that with deformed hands and are only taking mtx... i wondered why they are not taking something else... oh well... thanks gina.. you always have so much info for us.. i love it.. these ladies were older than me and hve had it for a long time... rae [ ] HANDS > > > > MY hands are seriously screwed,I cant even touch my palms with the > tips of my fingers. I cannot make a fist....Does anyone have any > suggestions on some home remedies?......do hot wax treatment spas > work?.....Im going to try some physical therapy as soon as my pre > existin clause runs out on my insurance....thanks guys...I really > appreciate any suggestions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Rae - As I have noted here before ...I have been dealing with this along time (16 year since positively diagnosed as RA - and long before as an " inflammatory disorder " - which affected the joints)...and my hands may become swollen and stiff and have some characteristic puffiness over the joints...but my fingers and joints are NOT crooked. That is why agressive treatment early is important. I do finger and hand excercises; treat myself to occassional manicures which involves massages- when I can afford - which isn't too often; I have done physical therapy and parrafin baths ( don't own one- but mostly because of curious black persian named Clancy) and I use my hands. The Remicade has done great things for me- I can even make a fist- something I hadn't been able to do for a long time. Each case is different - but severe crippling isn't a given. My feet and ankles- well I am still working on that but some of the swelling is down. You do what you have to do- and trust in God and the docs- which sometimes take practice. Do not borrow trouble. The pain and the disfigurement can be controlled - which is an important part of the physical therapy and the medication- to keep things from progressing. BIG hugs, --------- [ ] HANDS > > > > > > > > > > MY hands are seriously screwed,I cant even touch my palms with the > > tips of my fingers. I cannot make a fist....Does anyone have any > > suggestions on some home remedies?......do hot wax treatment spas > > work?.....Im going to try some physical therapy as soon as my pre > > existin clause runs out on my insurance....thanks guys...I really > > appreciate any suggestions. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 thanks, karen for the response.. i always massage my hands, because it feels so good and i am a manicurist so i have a hot wax unit so i am going tostart using it daily if not a couple of times a day... and the enbrel is taking some of the pain out of my hands, too... it has taken a lot of pain and stiffness from this old body... haha ha ha ha ha... i am eating very healthy, trying to lose some of this weight, i have gained on the prednisone.. so far so good, lost 4 pounds...) and it will help my knee! too rae [ ] HANDS > > > > > > > > > > MY hands are seriously screwed,I cant even touch my palms with the > > tips of my fingers. I cannot make a fist....Does anyone have any > > suggestions on some home remedies?......do hot wax treatment spas > > work?.....Im going to try some physical therapy as soon as my pre > > existin clause runs out on my insurance....thanks guys...I really > > appreciate any suggestions. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Rae, first, not everyone will develop deformities. Unfortunately though, nobody is able to predict exactly who will. Even if you have no pain or swelling, erosions can occur. And there are no guarantees that the medications will prevent deformities, but DMARDs are the best defense against them. So, the approach is to form a partnership with an excellent physician, preferably a rheumatologist, who will treat and monitor you aggressively - not wait until the damage has already happened. Some rheumatologists argue that there should be no evidence of disease, neither outwardly nor via labs or imaging studies. Methotrexate is an excellent drug, but it doesn't work for everyone. The biologics don't work for everyone either. Sadly, there may be a lot of trial and error before the right combination of drugs is found for a given individual. I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org Re: [ ] HANDS > > gina... i so much wanted to ask a question at the support group, but i did > not... this is it: > even when i am on enbrel and my hands are not deformed, yet... will the > get deformed or will the medication keep them straight?? i was thinking > that if the pain is gone then the things that do the damage are not there > and so my hands will not get deformed... there were ladies that with > deformed hands and are only taking mtx... i wondered why they are not > taking something else... oh well... thanks gina.. you always have so much > info for us.. i love it.. these ladies were older than me and hve had it > for a long time... > > rae Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 thanks, gina... i will talk to both of my doctors, they are both really great... so we can watch for these things... rae Re: [ ] HANDS > > gina... i so much wanted to ask a question at the support group, but i did > not... this is it: > even when i am on enbrel and my hands are not deformed, yet... will the > get deformed or will the medication keep them straight?? i was thinking > that if the pain is gone then the things that do the damage are not there > and so my hands will not get deformed... there were ladies that with > deformed hands and are only taking mtx... i wondered why they are not > taking something else... oh well... thanks gina.. you always have so much > info for us.. i love it.. these ladies were older than me and hve had it > for a long time... > > rae Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2005 Report Share Posted February 10, 2005 In the mid-70's I bought a house 2 blocks away for my mother and moved her into it. In the meantime she lived with me and my family. Naturally, family can't live together for any period of time without problems. Most of the problems we had were products of her pain and suffering. Back then the best pain relief she had was prescription Motrin. Her right leg was almost at 45 degrees from straight and she couldn't close her hands, among other things. I walked into her house one evening and she was using a cigarette lighter, trying to burn the cap off a medicine bottle! She couldn't get easy-open caps or anything else to make her life better. She didn't last too much longer, her body was not in a position for operations she needed, and there was a doctor that operated anyhow. He botched it! I count my blessings every day because I can get out of bed most mornings and type with both hands, among other things. When I'm feeling low, I remember people that are worse off than me. Early in my experience, I had a hard time with my hands and was prescribed to use a wax bath with plastic gloves and I carried it a step further by also wearing heavy gloves with the wax. It didn't seem to make much difference at the time, but I think it did make a difference long-term. I even used it on other joints, like elbows, feet and knees. I was desperate enough to try anything back then. For body parts that wouldn't fit, we spooned it on, and that worked almost as well as dipping. If your hands are that bad, I think you'll need more than a wax bath. If you haven't seen a doctor for it, you should, and as soon as possible. There are much better treatments than before, and you still might have a good chance. Dennis [ ] HANDS > > > > MY hands are seriously screwed,I cant even touch my palms with the > tips of my fingers. I cannot make a fist....Does anyone have any > suggestions on some home remedies?......do hot wax treatment spas > work?.....Im going to try some physical therapy as soon as my pre > existin clause runs out on my insurance....thanks guys...I really > appreciate any suggestions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2006 Report Share Posted August 3, 2006 anyone? anyone? > > I've had psoriatic spondylitis for years and I'm used to it and all > the overall body aches that come with it. But noted on more recent > years x-rays were arthritic changes in hands, knees and toes. > Pretty sure it's in my jaw too, but diagnosed as TMJ. > > But back to my hands. I've always had horrible nails, real bad > onkylosis (spelling?)you know, where the nails have completely come > off and always at least halfway down the nail bed. Major pitting. > But I would have to say the arthritis in my hands as far as damage > has been mild. I have bad days where opening doors, turning keys in > locks and the like are almost impossible but for the most part, I'd > say they are pretty good hands. > > The good news is that, I've been on MTX for almost a couple decades > and I think that has been a life saver for my bones. I've also been > on biologics for the last few years. Remicade for over a year. > > Back to my hands. In the last few months I've had quite dramatic > changes from bad to good, good to bad, in my hands as far as > swelling, bumps on the distal and middle joints and stiffness, it's > not really painful but more visable than it ever has been. Now here > is the odd part, it comes and goes very fast and seems to coorelate > with if am due for my infusion or mtx. > > What happened this week was that I didn't take my mtx. Now, I'm only > three days late for it, but it's towards the end of my remicade > cycle and here comes the symptoms with my hands. Now with > psoriasis, it happens just that fast, with the pain in my neck and > back it can happen just that fast. But I've never experienced it > happening that fast with my hands. > > So for those of you with PA in your hands, do you notice if you miss > a dose of your meds? Is it that fast for you? Perhaps, I'm > developing another sort of PA in my hands from what I've previously > had? > > The bioligics made all the pitting and onkyloses in my nails go > away. MTX never took it away by itself. So I figured I would have > even less problems with joint destruction in my hands , not more. I > have noticed that I am getting some pitting back in the fingers > (index and middle fingers) that are most affected by these > fluctuating changes. > > I hope someone knows what I'm talking about. It's so hard for me to > explain my symptoms. I can talk to my rhuemy about it, but I don't > think he really knows that much about this disease. I'm just glad > he has worked with me on getting the meds I need. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2006 Report Share Posted August 3, 2006 If you are looking for rhyme or reason...I just don't think there IS any with this disease. You explained your syptoms pretty well I think. It sounded alot like other things I read on here. We get worse for no reason and we get better for no reason sometimes. Maybe no one has replied yet because we don't have an answer if answers are what you are looking for. I think we all have the abilty to encourage you to hang in there...never give up....keep reporting these changes to your doctor...keep being thankful that your doctor listens to you and TRIES to help you....realize that a good doctor is probably frustrated about your symptoms too....keep in the group and encourage others whenever you can so that you can bring good out of your misfortune....be thankful for every little tiny thing that IS going right in your life....laugh and love and give as often as you can...these are things we can all do. Understanding the disease and predicting it are things we cannot do. I guess that's why these groups are called " support groups " rather than " answer groups " although we DO have suggestions sometimes about things that work for us. I had problems with my nails flaking off and my toe nails FALLING off and deep ridges but the Enbrel made that so much better than now my finger nails are weapons and I scratched my cornea just pulling up the covers around my neck this week so Enbrel can help with that. Hope you get some help here...-Betz > > > > I've had psoriatic spondylitis for years and I'm used to it and > all > > the overall body aches that come with it. But noted on more recent > > years x-rays were arthritic changes in hands, knees and toes. > > Pretty sure it's in my jaw too, but diagnosed as TMJ. > > > > But back to my hands. I've always had horrible nails, real bad > > onkylosis (spelling?)you know, where the nails have completely > come > > off and always at least halfway down the nail bed. Major pitting. > > But I would have to say the arthritis in my hands as far as damage > > has been mild. I have bad days where opening doors, turning keys > in > > locks and the like are almost impossible but for the most part, > I'd > > say they are pretty good hands. > > > > The good news is that, I've been on MTX for almost a couple > decades > > and I think that has been a life saver for my bones. I've also > been > > on biologics for the last few years. Remicade for over a year. > > > > Back to my hands. In the last few months I've had quite dramatic > > changes from bad to good, good to bad, in my hands as far as > > swelling, bumps on the distal and middle joints and stiffness, > it's > > not really painful but more visable than it ever has been. Now > here > > is the odd part, it comes and goes very fast and seems to > coorelate > > with if am due for my infusion or mtx. > > > > What happened this week was that I didn't take my mtx. Now, I'm > only > > three days late for it, but it's towards the end of my remicade > > cycle and here comes the symptoms with my hands. Now with > > psoriasis, it happens just that fast, with the pain in my neck and > > back it can happen just that fast. But I've never experienced it > > happening that fast with my hands. > > > > So for those of you with PA in your hands, do you notice if you > miss > > a dose of your meds? Is it that fast for you? Perhaps, I'm > > developing another sort of PA in my hands from what I've > previously > > had? > > > > The bioligics made all the pitting and onkyloses in my nails go > > away. MTX never took it away by itself. So I figured I would > have > > even less problems with joint destruction in my hands , not more. > I > > have noticed that I am getting some pitting back in the fingers > > (index and middle fingers) that are most affected by these > > fluctuating changes. > > > > I hope someone knows what I'm talking about. It's so hard for me > to > > explain my symptoms. I can talk to my rhuemy about it, but I don't > > think he really knows that much about this disease. I'm just glad > > he has worked with me on getting the meds I need. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2006 Report Share Posted August 4, 2006 Some other things (besides missing a dose of med or being near time for the next dose) that may cause a worsening of symptoms are worse than usual stress levels, pushing yourself too hard physically, or infection of any kind. It sounds like you're wondering if the biologics are actually *causing* the worsening? I would doubt that, although anything's possible. I think it's more likely that, as you theorized, missing a dose might trigger it or either of the other 3 triggers I listed above. I agree with Betz, though. Bottom line is that you should *definitely* mention it to your doctor. Not just mention, but let him know that it's really troubling to you. Even though he might not know much about PA, it's HIS job to find out more and help you. It may be that a change to a different biologic would help, or some additional treatment. You won't know until you investigate it with him. Keep us informed on how this goes for you! sherry z > > > So for those of you with PA in your hands, do you notice if you > miss > > a dose of your meds? Is it that fast for you? Perhaps, I'm > > developing another sort of PA in my hands from what I've > previously > > had? > > > > The bioligics made all the pitting and onkyloses in my nails go > > away. MTX never took it away by itself. So I figured I would > have > > even less problems with joint destruction in my hands , not more. > I > > have noticed that I am getting some pitting back in the fingers > > (index and middle fingers) that are most affected by these > > fluctuating changes. > > > > I hope someone knows what I'm talking about. It's so hard for me > to > > explain my symptoms. I can talk to my rhuemy about it, but I don't > > think he really knows that much about this disease. I'm just glad > > he has worked with me on getting the meds I need. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 > > > > I've had psoriatic spondylitis for years and I'm used to it and > all > > the overall body aches that come with it. But noted on more recent > > years x-rays were arthritic changes in hands, knees and toes. > > Pretty sure it's in my jaw too, but diagnosed as TMJ. > > > > But back to my hands. I've always had horrible nails, real bad > > onkylosis (spelling?)you know, where the nails have completely > come > > off and always at least halfway down the nail bed. Major pitting. > > But I would have to say the arthritis in my hands as far as damage > > has been mild. I have bad days where opening doors, turning keys > in > > locks and the like are almost impossible but for the most part, > I'd > > say they are pretty good hands. > > > > The good news is that, I've been on MTX for almost a couple > decades > > and I think that has been a life saver for my bones. I've also > been > > on biologics for the last few years. Remicade for over a year. > > > > Back to my hands. In the last few months I've had quite dramatic > > changes from bad to good, good to bad, in my hands as far as > > swelling, bumps on the distal and middle joints and stiffness, > it's > > not really painful but more visable than it ever has been. Now > here > > is the odd part, it comes and goes very fast and seems to > coorelate > > with if am due for my infusion or mtx. > > > > What happened this week was that I didn't take my mtx. Now, I'm > only > > three days late for it, but it's towards the end of my remicade > > cycle and here comes the symptoms with my hands. Now with > > psoriasis, it happens just that fast, with the pain in my neck and > > back it can happen just that fast. But I've never experienced it > > happening that fast with my hands. > > > > So for those of you with PA in your hands, do you notice if you > miss > > a dose of your meds? Is it that fast for you? Perhaps, I'm > > developing another sort of PA in my hands from what I've > previously > > had? > > > > The bioligics made all the pitting and onkyloses in my nails go > > away. MTX never took it away by itself. So I figured I would > have > > even less problems with joint destruction in my hands , not more. > I > > have noticed that I am getting some pitting back in the fingers > > (index and middle fingers) that are most affected by these > > fluctuating changes. > > > > I hope someone knows what I'm talking about. It's so hard for me > to > > explain my symptoms. I can talk to my rhuemy about it, but I don't > > think he really knows that much about this disease. I'm just glad > > he has worked with me on getting the meds I need. > > >I was also wondering about the midle finger,it swells up so bad sometimes that it scares me that it will burst.The nail on that finger is the only one that is going to come off the nail bed gets shorter every week.I just started on enbrel and it is already in the first making me feel better.Lets just keep praying for a cure or at least something that doesnt have bad side affects. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2007 Report Share Posted January 30, 2007 Does anyone else have this problem...my hands are tingling and numb a lot when I wake up. I don't know if I sleep on them strange or what. Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2007 Report Share Posted January 30, 2007 Hi Joy, I've had that problem before my carpel tunnel surgery. Have you had an ultrasound or EMG of your wrists lately? That would be helpful in diagnosing the problem. Sometimes my hands tingle at night when I sleep with my arms above my head, maybe it slows the circulation. Joanne [ ] hands > Does anyone else have this problem...my hands are tingling and > numb a lot when I wake up. I don't know if I sleep on them strange > or what. > Joy > > > Quote Link to comment Share on other sites More sharing options...
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