Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 No one is telling you that you should accept her physical illnesses. But autism is part of her brain make up, it is who she is. Just because someone is so called " recovered " doesn't mean that they no longer have autism. It seems that you think that we that " accept " our kids do nothing to help them better themselves or to give them a better way of life. We are all advocates for our children, we can all write a better IEP then the schools can. Some here do diets, some do ABA. We do what we do to suit each of our child's needs. We are not telling you to sit back and do nothing. But do not make it sound like we all sit on our butts while our girls suffer with gut issues or seizures or whatever the problems may be. I am able to say that I accept my daughter for who she is and I will love her no matter what. Our kids sense our emotions, they know if we think of them as broken. There is a difference in advocating for someone and making her feel like she is damaged goods. As for recovery I am not really sure what you mean. Abby started out with NO language, tons of sensory issues and delays in many area's. After years of hard work she is now an honor role student with straight A's. She plays viola and has friends. But let me assure you this, her autism is still there and ALWAYS will be. I see it every day. So because she can function in society does that make her recovered? No, it means that she has learned to adapt to an NT way of life. Abby will never be made to feel that her autism is a bad thing. It is part of who she is and I will always accept her for that and be there every step of the way to help her. Pennie Abby's Mom **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 No one is telling you that you should accept her physical illnesses. But autism is part of her brain make up, it is who she is. Just because someone is so called " recovered " doesn't mean that they no longer have autism. It seems that you think that we that " accept " our kids do nothing to help them better themselves or to give them a better way of life. We are all advocates for our children, we can all write a better IEP then the schools can. Some here do diets, some do ABA. We do what we do to suit each of our child's needs. We are not telling you to sit back and do nothing. But do not make it sound like we all sit on our butts while our girls suffer with gut issues or seizures or whatever the problems may be. I am able to say that I accept my daughter for who she is and I will love her no matter what. Our kids sense our emotions, they know if we think of them as broken. There is a difference in advocating for someone and making her feel like she is damaged goods. As for recovery I am not really sure what you mean. Abby started out with NO language, tons of sensory issues and delays in many area's. After years of hard work she is now an honor role student with straight A's. She plays viola and has friends. But let me assure you this, her autism is still there and ALWAYS will be. I see it every day. So because she can function in society does that make her recovered? No, it means that she has learned to adapt to an NT way of life. Abby will never be made to feel that her autism is a bad thing. It is part of who she is and I will always accept her for that and be there every step of the way to help her. Pennie Abby's Mom **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 I guess we will just have to agree to disagree. You have said your take and I have said mine. Our girls are what is important and we will each do what we have to help our girls be all that they are capable of being. Pennie Abby's Mom **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 I guess we will just have to agree to disagree. You have said your take and I have said mine. Our girls are what is important and we will each do what we have to help our girls be all that they are capable of being. Pennie Abby's Mom **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 That is beautiful and you are so right. My daughter Breanna has high Functioning Autism. She is 9 years old. The other day she found me on my laptop (yet again) and she said, " Why are you reading about Autism again. I know I have Autism.... but Im just a kid. " I vowed that from now on I will just be her mum.....of course I am still an advocate, a researcher and at times it seems I am her therapist but most of all I am mummy. > > I suppose like all of you, I have put up with the angry, disapproving stares of strangers when my princess is in a meltdown because she was brushed up against. You know. Its the look of " Why can't you control your child?' I've even been told by relatives (mark you, I do not call them family) not to come back any more because my childs unpredictability is " unfair to the other children. " I've even been told that " You are using your child's autism as an excuse for her behavior. " > > I choose not to be angry about this, because my emotions are my choice. > > I've wathed other parents drop their kids off at birthday parties, supervised by adults, when I know that my child needs my constant attention to prevent mayham. > > I've seen her entire class invited to birthday parties, and not my child, knowing that the parents just can't handle her behavior. > > So What! > > I spend my free time looking at clouds with Evalyn, with her seeing shapes that I can not imagine. I watch her while she gives unknown status to her dolls as we play family. Sometimes, I just cuddle her, when she permits, because like every parent should know, its not about me any more. Its about her. > > Some times, she talks, and sometimes she does not. Sometimes she growls and pushes me away, and that is okay, because when I chose to have a child, I chose to make her life about her, and not about me. > > I spent the first two years of her diagnosis studying every article I could. From pharmacology to nueroscience. Then it occured to me, she needs a daddy, not another doctor. > > Tomorrow I don't know what will happen. Maybe good and maybe bad, but I don't really care, because I will spend it with the greatest gift I have ever been given. > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 That is beautiful and you are so right. My daughter Breanna has high Functioning Autism. She is 9 years old. The other day she found me on my laptop (yet again) and she said, " Why are you reading about Autism again. I know I have Autism.... but Im just a kid. " I vowed that from now on I will just be her mum.....of course I am still an advocate, a researcher and at times it seems I am her therapist but most of all I am mummy. > > I suppose like all of you, I have put up with the angry, disapproving stares of strangers when my princess is in a meltdown because she was brushed up against. You know. Its the look of " Why can't you control your child?' I've even been told by relatives (mark you, I do not call them family) not to come back any more because my childs unpredictability is " unfair to the other children. " I've even been told that " You are using your child's autism as an excuse for her behavior. " > > I choose not to be angry about this, because my emotions are my choice. > > I've wathed other parents drop their kids off at birthday parties, supervised by adults, when I know that my child needs my constant attention to prevent mayham. > > I've seen her entire class invited to birthday parties, and not my child, knowing that the parents just can't handle her behavior. > > So What! > > I spend my free time looking at clouds with Evalyn, with her seeing shapes that I can not imagine. I watch her while she gives unknown status to her dolls as we play family. Sometimes, I just cuddle her, when she permits, because like every parent should know, its not about me any more. Its about her. > > Some times, she talks, and sometimes she does not. Sometimes she growls and pushes me away, and that is okay, because when I chose to have a child, I chose to make her life about her, and not about me. > > I spent the first two years of her diagnosis studying every article I could. From pharmacology to nueroscience. Then it occured to me, she needs a daddy, not another doctor. > > Tomorrow I don't know what will happen. Maybe good and maybe bad, but I don't really care, because I will spend it with the greatest gift I have ever been given. > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 You are so refreshing...this morning I am struggling, and to read this , it really helps...I had the worst morning with Paisley...she goes to PPCD, and I call mornings like these bad mornings..on these mornings, light is definitely the enemy, so to appease my daughter, I get her dressed in the dark, but she doesn't want me to touch her and begins having a meltdown of sorts, kicking screaming hitting and just crying her heart out...and of course, I go to another room to cry, because it is hard sometimes to deal with still for me..because I don't know how else to react other than to let my emotions come to surface...so I go back in..and I have her shoes and of course, she still doesn't want me to get her dressed, so she is just crying and yelling no, and I just hold her and hug her and love her no matter how many times she slams the back of her head into me, or hits me or kicks me...because I am suppose to love her...and I do. I know she has to get dressed and go to school so no matter how big the meltdown, I have to get it done...but all morning has been like this today, and we have them a few times a week...it's just today hit me especially hard, because I have been searching for childcare for her and haven't been able to find it because of her diagnosis, not that anyone has blatantly said no..I get the run around, like, " I am not sure we have anything to offer her, but we will try " , or " We will see if we can handle her. " So you see I will not take her to these places...and then...yesterday I asked her PPCD teacher if they had a lists of childcares who pick up at the school because I was having a hard time finding daycare because of her having Autism...and she says, don't you remember in the ARD that the school system dropped her dx??? And I said, yeah, but her doctors still haven't...so anyway...she just told me to go look, and I am sorry I am rambling..but I am..It just got to me. If these school diagnosticians saw what really goes on with my child, they wouldn't drop the dx...and how can they??? The dx who did her eval isn't a doctor...anyway...not to get to into stupid school officials...I am just saying...how can they help if they can't see??? But anyway, Mr Belcher..I appreciate your sight into your child and not into everyone else, sometimes it's hard to see the forest for the trees.... Belcher wrote: I suppose like all of you, I have put up with the angry, disapproving stares of strangers when my princess is in a meltdown because she was brushed up against. You know. Its the look of " Why can't you control your child?' I've even been told by relatives (mark you, I do not call them family) not to come back any more because my childs unpredictability is " unfair to the other children. " I've even been told that " You are using your child's autism as an excuse for her behavior. " I choose not to be angry about this, because my emotions are my choice. I've wathed other parents drop their kids off at birthday parties, supervised by adults, when I know that my child needs my constant attention to prevent mayham. I've seen her entire class invited to birthday parties, and not my child, knowing that the parents just can't handle her behavior. So What! I spend my free time looking at clouds with Evalyn, with her seeing shapes that I can not imagine. I watch her while she gives unknown status to her dolls as we play family. Sometimes, I just cuddle her, when she permits, because like every parent should know, its not about me any more. Its about her. Some times, she talks, and sometimes she does not. Sometimes she growls and pushes me away, and that is okay, because when I chose to have a child, I chose to make her life about her, and not about me. I spent the first two years of her diagnosis studying every article I could. From pharmacology to nueroscience. Then it occured to me, she needs a daddy, not another doctor. Tomorrow I don't know what will happen. Maybe good and maybe bad, but I don't really care, because I will spend it with the greatest gift I have ever been given. --------------------------------- Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 You are so refreshing...this morning I am struggling, and to read this , it really helps...I had the worst morning with Paisley...she goes to PPCD, and I call mornings like these bad mornings..on these mornings, light is definitely the enemy, so to appease my daughter, I get her dressed in the dark, but she doesn't want me to touch her and begins having a meltdown of sorts, kicking screaming hitting and just crying her heart out...and of course, I go to another room to cry, because it is hard sometimes to deal with still for me..because I don't know how else to react other than to let my emotions come to surface...so I go back in..and I have her shoes and of course, she still doesn't want me to get her dressed, so she is just crying and yelling no, and I just hold her and hug her and love her no matter how many times she slams the back of her head into me, or hits me or kicks me...because I am suppose to love her...and I do. I know she has to get dressed and go to school so no matter how big the meltdown, I have to get it done...but all morning has been like this today, and we have them a few times a week...it's just today hit me especially hard, because I have been searching for childcare for her and haven't been able to find it because of her diagnosis, not that anyone has blatantly said no..I get the run around, like, " I am not sure we have anything to offer her, but we will try " , or " We will see if we can handle her. " So you see I will not take her to these places...and then...yesterday I asked her PPCD teacher if they had a lists of childcares who pick up at the school because I was having a hard time finding daycare because of her having Autism...and she says, don't you remember in the ARD that the school system dropped her dx??? And I said, yeah, but her doctors still haven't...so anyway...she just told me to go look, and I am sorry I am rambling..but I am..It just got to me. If these school diagnosticians saw what really goes on with my child, they wouldn't drop the dx...and how can they??? The dx who did her eval isn't a doctor...anyway...not to get to into stupid school officials...I am just saying...how can they help if they can't see??? But anyway, Mr Belcher..I appreciate your sight into your child and not into everyone else, sometimes it's hard to see the forest for the trees.... Belcher wrote: I suppose like all of you, I have put up with the angry, disapproving stares of strangers when my princess is in a meltdown because she was brushed up against. You know. Its the look of " Why can't you control your child?' I've even been told by relatives (mark you, I do not call them family) not to come back any more because my childs unpredictability is " unfair to the other children. " I've even been told that " You are using your child's autism as an excuse for her behavior. " I choose not to be angry about this, because my emotions are my choice. I've wathed other parents drop their kids off at birthday parties, supervised by adults, when I know that my child needs my constant attention to prevent mayham. I've seen her entire class invited to birthday parties, and not my child, knowing that the parents just can't handle her behavior. So What! I spend my free time looking at clouds with Evalyn, with her seeing shapes that I can not imagine. I watch her while she gives unknown status to her dolls as we play family. Sometimes, I just cuddle her, when she permits, because like every parent should know, its not about me any more. Its about her. Some times, she talks, and sometimes she does not. Sometimes she growls and pushes me away, and that is okay, because when I chose to have a child, I chose to make her life about her, and not about me. I spent the first two years of her diagnosis studying every article I could. From pharmacology to nueroscience. Then it occured to me, she needs a daddy, not another doctor. Tomorrow I don't know what will happen. Maybe good and maybe bad, but I don't really care, because I will spend it with the greatest gift I have ever been given. --------------------------------- Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 First of all, I have known many kids who are now indistinguishable in a classroom full of typical peers...that doesn't mean they are not autistic, just that you can't tell right away. Many of these kids would no longer be diagnosed if they were tested today, but no one knows what the future holds, and I don't know anyone who considers them to be autism free. All of them had ABA (which is how I met them), some had biomedical intervention and some did not. I also know many, many more kids who have had every biomedical intervention under the sun with little or no improvement. I'm thrilled for your daughter that she is making so much progress. That is wonderful news. However, I hope that you don't talk to her like you talk about her here. You continually use words like " ruined " and " damaged. " Just because she doesn't use the words doesn't mean she doesn't understand the feelings behind them. Also, there are many, many people with autism that grow up to live independently, go to college, get married, and have families. There are some on this board. I have an uncle with autism who is a successful music therapist. He went to college and lives independently and has since he was 20, just like all his siblings. He's not married, but that's because he's gay...he has had long term relationships. Being autistic does not prevent those things. It is perfectly possible to accomplish all that without " recovery. " I just hope that if your daughter does grow up to be a happy, independent, and still autistic, adult, that you will be able to accept her and be happy for her. In my experience, that is a much more likely scenario than recovery. Amnesty > I suppose like all of you, I have put up with the angry, disapproving stares of strangers when my princess is in a meltdown because she was brushed up against. You know. Its the look of " Why can't you control your child?' I've even been told by relatives (mark you, I do not call them family) not to come back any more because my childs unpredictability is " unfair to the other children. " I've even been told that " You are using your child's autism as an excuse for her behavior. " > > I choose not to be angry about this, because my emotions are my choice. > > I've wathed other parents drop their kids off at birthday parties, supervised by adults, when I know that my child needs my constant attention to prevent mayham. > > I've seen her entire class invited to birthday parties, and not my child, knowing that the parents just can't handle her behavior. > > So What! > > I spend my free time looking at clouds with Evalyn, with her seeing shapes that I can not imagine. I watch her while she gives unknown status to her dolls as we play family. Sometimes, I just cuddle her, when she permits, because like every parent should know, its not about me any more. Its about her. > > Some times, she talks, and sometimes she does not. Sometimes she growls and pushes me away, and that is okay, because when I chose to have a child, I chose to make her life about her, and not about me. > > I spent the first two years of her diagnosis studying every article I could. From pharmacology to nueroscience. Then it occured to me, she needs a daddy, not another doctor. > > Tomorrow I don't know what will happen. Maybe good and maybe bad, but I don't really care, because I will spend it with the greatest gift I have ever been given. > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 First of all, I have known many kids who are now indistinguishable in a classroom full of typical peers...that doesn't mean they are not autistic, just that you can't tell right away. Many of these kids would no longer be diagnosed if they were tested today, but no one knows what the future holds, and I don't know anyone who considers them to be autism free. All of them had ABA (which is how I met them), some had biomedical intervention and some did not. I also know many, many more kids who have had every biomedical intervention under the sun with little or no improvement. I'm thrilled for your daughter that she is making so much progress. That is wonderful news. However, I hope that you don't talk to her like you talk about her here. You continually use words like " ruined " and " damaged. " Just because she doesn't use the words doesn't mean she doesn't understand the feelings behind them. Also, there are many, many people with autism that grow up to live independently, go to college, get married, and have families. There are some on this board. I have an uncle with autism who is a successful music therapist. He went to college and lives independently and has since he was 20, just like all his siblings. He's not married, but that's because he's gay...he has had long term relationships. Being autistic does not prevent those things. It is perfectly possible to accomplish all that without " recovery. " I just hope that if your daughter does grow up to be a happy, independent, and still autistic, adult, that you will be able to accept her and be happy for her. In my experience, that is a much more likely scenario than recovery. Amnesty > I suppose like all of you, I have put up with the angry, disapproving stares of strangers when my princess is in a meltdown because she was brushed up against. You know. Its the look of " Why can't you control your child?' I've even been told by relatives (mark you, I do not call them family) not to come back any more because my childs unpredictability is " unfair to the other children. " I've even been told that " You are using your child's autism as an excuse for her behavior. " > > I choose not to be angry about this, because my emotions are my choice. > > I've wathed other parents drop their kids off at birthday parties, supervised by adults, when I know that my child needs my constant attention to prevent mayham. > > I've seen her entire class invited to birthday parties, and not my child, knowing that the parents just can't handle her behavior. > > So What! > > I spend my free time looking at clouds with Evalyn, with her seeing shapes that I can not imagine. I watch her while she gives unknown status to her dolls as we play family. Sometimes, I just cuddle her, when she permits, because like every parent should know, its not about me any more. Its about her. > > Some times, she talks, and sometimes she does not. Sometimes she growls and pushes me away, and that is okay, because when I chose to have a child, I chose to make her life about her, and not about me. > > I spent the first two years of her diagnosis studying every article I could. From pharmacology to nueroscience. Then it occured to me, she needs a daddy, not another doctor. > > Tomorrow I don't know what will happen. Maybe good and maybe bad, but I don't really care, because I will spend it with the greatest gift I have ever been given. > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 I don't know what " biomedicine " is. Amy, what you need to realize is that there are LOTS of people who have done everything McCarthy has and then some; their kids are not responders. It's very painful for those families to continually hear how they could " cure " their kid if they just did biomedical. It's just not true in most cases. I'm a big believer in biomedical treatment for symptoms of autism. Thankfully, Allie has responded physically to a lot of stuff we've tried. In fact, we've done nearly everything McCarthy did years before she did it. Allie still has autism. I think it's great that 's son is doing so well, but that just isn't the case for everyone and some sensitivity is needed, IMO. I have a dear friend who used to drive from TN to Bradstreet's clinic once/mo to get her daughter IVs & other treatments. They helped some but not completely. She did/does a lot of other stuff. She still has horrible behavior problems. I cannot tell you how painful it is when she's told she hasn't done enough for her daughter. I would suggest you take time to get to know the parents on this board before assuming the people have not tried anything to help their kids/selves. Parents & those with autism need support and encouragement, maybe it's just me, but I get the increasing feeling of an offensive tone in your postings. If it's just me, I apologize. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 I don't know what " biomedicine " is. Amy, what you need to realize is that there are LOTS of people who have done everything McCarthy has and then some; their kids are not responders. It's very painful for those families to continually hear how they could " cure " their kid if they just did biomedical. It's just not true in most cases. I'm a big believer in biomedical treatment for symptoms of autism. Thankfully, Allie has responded physically to a lot of stuff we've tried. In fact, we've done nearly everything McCarthy did years before she did it. Allie still has autism. I think it's great that 's son is doing so well, but that just isn't the case for everyone and some sensitivity is needed, IMO. I have a dear friend who used to drive from TN to Bradstreet's clinic once/mo to get her daughter IVs & other treatments. They helped some but not completely. She did/does a lot of other stuff. She still has horrible behavior problems. I cannot tell you how painful it is when she's told she hasn't done enough for her daughter. I would suggest you take time to get to know the parents on this board before assuming the people have not tried anything to help their kids/selves. Parents & those with autism need support and encouragement, maybe it's just me, but I get the increasing feeling of an offensive tone in your postings. If it's just me, I apologize. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 One of the best things about this group has always been about celebrating our girls accomplishments. This group is different because for the most part we don't focus on any individual therapies or treatments. Do we discuss them at times? Yes, But our focus always comes back to the accomplishments and life skill needs that our girls have. Sometimes it's something small, sometimes it's something big. I can only speak for myself here but I think that many would agree with me when I say that I like to read about what makes up the young lady that is now part of our group. What are her dislikes and likes, activities and whatever other info helps me to get a picture in my mind of what she may be like. I don't really care about what therapy or treatment has been tried on her. When the treatments become our main focus then we have lost focus on what is important and that is our girls and who they are inside. While there is nothing wrong with seeking out therapies, autism should never consume our lives. When it does, then there is a problem. A deep problem. Pennie Abby's Mom **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 One of the best things about this group has always been about celebrating our girls accomplishments. This group is different because for the most part we don't focus on any individual therapies or treatments. Do we discuss them at times? Yes, But our focus always comes back to the accomplishments and life skill needs that our girls have. Sometimes it's something small, sometimes it's something big. I can only speak for myself here but I think that many would agree with me when I say that I like to read about what makes up the young lady that is now part of our group. What are her dislikes and likes, activities and whatever other info helps me to get a picture in my mind of what she may be like. I don't really care about what therapy or treatment has been tried on her. When the treatments become our main focus then we have lost focus on what is important and that is our girls and who they are inside. While there is nothing wrong with seeking out therapies, autism should never consume our lives. When it does, then there is a problem. A deep problem. Pennie Abby's Mom **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 The school district has 30 days from the time you sign the consent form to do a formal evaluation and then set up an IEP and get the ball rolling. What state are you in now? Pennie Abby's Mom **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 The school district has 30 days from the time you sign the consent form to do a formal evaluation and then set up an IEP and get the ball rolling. What state are you in now? Pennie Abby's Mom **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 My daughter was dx at 2, and since that time all she has had are OT/PT/ST She is 6 now, she is verbal, she reads, she writes, she understands. She still does B/M in a pull up but she is Potty trained (for # 1). Will she ever tie her shoes hmmm I don't know, but she can look at a plant and say " The plant is wilting, in needs water. " I have not done any biomedical treatments on her not because I have not wanted to but because I don't have the money to. I thank God everyday that my daughter can say " I LOVE YOU TOO MOMMY " (Nevaeh's mom) > I don't know what " biomedicine " is. > > Amy, what you need to realize is that there are LOTS of people who > have done everything McCarthy has and then some; their kids are > not responders. It's very painful for those families to continually > hear how they could " cure " their kid if they just did biomedical. It's > just not true in most cases. > > I'm a big believer in biomedical treatment for symptoms of autism. > Thankfully, Allie has responded physically to a lot of stuff we've > tried. In fact, we've done nearly everything McCarthy did years > before she did it. Allie still has autism. I think it's great that > 's son is doing so well, but that just isn't the case for > everyone and some sensitivity is needed, IMO. I have a dear friend who > used to drive from TN to Bradstreet's clinic once/mo to get her > daughter IVs & other treatments. They helped some but not completely. > She did/does a lot of other stuff. She still has horrible behavior > problems. I cannot tell you how painful it is when she's told she > hasn't done enough for her daughter. > > I would suggest you take time to get to know the parents on this board > before assuming the people have not tried anything to help their > kids/selves. Parents & those with autism need support and > encouragement, maybe it's just me, but I get the increasing feeling of > an offensive tone in your postings. If it's just me, I apologize. > > Debi > > > > > > > Chef Amy > Reel Thyme Cooking, LLC > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 My daughter was dx at 2, and since that time all she has had are OT/PT/ST She is 6 now, she is verbal, she reads, she writes, she understands. She still does B/M in a pull up but she is Potty trained (for # 1). Will she ever tie her shoes hmmm I don't know, but she can look at a plant and say " The plant is wilting, in needs water. " I have not done any biomedical treatments on her not because I have not wanted to but because I don't have the money to. I thank God everyday that my daughter can say " I LOVE YOU TOO MOMMY " (Nevaeh's mom) > I don't know what " biomedicine " is. > > Amy, what you need to realize is that there are LOTS of people who > have done everything McCarthy has and then some; their kids are > not responders. It's very painful for those families to continually > hear how they could " cure " their kid if they just did biomedical. It's > just not true in most cases. > > I'm a big believer in biomedical treatment for symptoms of autism. > Thankfully, Allie has responded physically to a lot of stuff we've > tried. In fact, we've done nearly everything McCarthy did years > before she did it. Allie still has autism. I think it's great that > 's son is doing so well, but that just isn't the case for > everyone and some sensitivity is needed, IMO. I have a dear friend who > used to drive from TN to Bradstreet's clinic once/mo to get her > daughter IVs & other treatments. They helped some but not completely. > She did/does a lot of other stuff. She still has horrible behavior > problems. I cannot tell you how painful it is when she's told she > hasn't done enough for her daughter. > > I would suggest you take time to get to know the parents on this board > before assuming the people have not tried anything to help their > kids/selves. Parents & those with autism need support and > encouragement, maybe it's just me, but I get the increasing feeling of > an offensive tone in your postings. If it's just me, I apologize. > > Debi > > > > > > > Chef Amy > Reel Thyme Cooking, LLC > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 > > **Amnesty....since you work in the ABA field....in your opinion....obviously speech, and other therapies help. Do you think that since I have brought my daughter this far at home, would adding those to her regimen bring about even greater change? My goal is to have her enter a regular kindergarten this fall. Something to work towards! > Yes. The more early intervention kids get, the more time they spend in regular ed classrooms. Amnesty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 > > **Amnesty....since you work in the ABA field....in your opinion....obviously speech, and other therapies help. Do you think that since I have brought my daughter this far at home, would adding those to her regimen bring about even greater change? My goal is to have her enter a regular kindergarten this fall. Something to work towards! > Yes. The more early intervention kids get, the more time they spend in regular ed classrooms. Amnesty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 Thank you for that story. Sometimes miracles come in five word packages. nevaehlopez6 wrote: My daughter was dx at 2, and since that time all she has had are OT/PT/ST She is 6 now, she is verbal, she reads, she writes, she understands. She still does B/M in a pull up but she is Potty trained (for # 1). Will she ever tie her shoes hmmm I don't know, but she can look at a plant and say " The plant is wilting, in needs water. " I have not done any biomedical treatments on her not because I have not wanted to but because I don't have the money to. I thank God everyday that my daughter can say " I LOVE YOU TOO MOMMY " (Nevaeh's mom) > I don't know what " biomedicine " is. > > Amy, what you need to realize is that there are LOTS of people who > have done everything McCarthy has and then some; their kids are > not responders. It's very painful for those families to continually > hear how they could " cure " their kid if they just did biomedical. It's > just not true in most cases. > > I'm a big believer in biomedical treatment for symptoms of autism. > Thankfully, Allie has responded physically to a lot of stuff we've > tried. In fact, we've done nearly everything McCarthy did years > before she did it. Allie still has autism. I think it's great that > 's son is doing so well, but that just isn't the case for > everyone and some sensitivity is needed, IMO. I have a dear friend who > used to drive from TN to Bradstreet's clinic once/mo to get her > daughter IVs & other treatments. They helped some but not completely. > She did/does a lot of other stuff. She still has horrible behavior > problems. I cannot tell you how painful it is when she's told she > hasn't done enough for her daughter. > > I would suggest you take time to get to know the parents on this board > before assuming the people have not tried anything to help their > kids/selves. Parents & those with autism need support and > encouragement, maybe it's just me, but I get the increasing feeling of > an offensive tone in your postings. If it's just me, I apologize. > > Debi > > > > > > > Chef Amy > Reel Thyme Cooking, LLC > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 Thank you for that story. Sometimes miracles come in five word packages. nevaehlopez6 wrote: My daughter was dx at 2, and since that time all she has had are OT/PT/ST She is 6 now, she is verbal, she reads, she writes, she understands. She still does B/M in a pull up but she is Potty trained (for # 1). Will she ever tie her shoes hmmm I don't know, but she can look at a plant and say " The plant is wilting, in needs water. " I have not done any biomedical treatments on her not because I have not wanted to but because I don't have the money to. I thank God everyday that my daughter can say " I LOVE YOU TOO MOMMY " (Nevaeh's mom) > I don't know what " biomedicine " is. > > Amy, what you need to realize is that there are LOTS of people who > have done everything McCarthy has and then some; their kids are > not responders. It's very painful for those families to continually > hear how they could " cure " their kid if they just did biomedical. It's > just not true in most cases. > > I'm a big believer in biomedical treatment for symptoms of autism. > Thankfully, Allie has responded physically to a lot of stuff we've > tried. In fact, we've done nearly everything McCarthy did years > before she did it. Allie still has autism. I think it's great that > 's son is doing so well, but that just isn't the case for > everyone and some sensitivity is needed, IMO. I have a dear friend who > used to drive from TN to Bradstreet's clinic once/mo to get her > daughter IVs & other treatments. They helped some but not completely. > She did/does a lot of other stuff. She still has horrible behavior > problems. I cannot tell you how painful it is when she's told she > hasn't done enough for her daughter. > > I would suggest you take time to get to know the parents on this board > before assuming the people have not tried anything to help their > kids/selves. Parents & those with autism need support and > encouragement, maybe it's just me, but I get the increasing feeling of > an offensive tone in your postings. If it's just me, I apologize. > > Debi > > > > > > > Chef Amy > Reel Thyme Cooking, LLC > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 Thank you, I do feel blessed. Don't get me wrong she has her days but just remembering the past. I really feel for te parents that are just starting out. My daughter said the basics " Bye Bye " , " MaMa " , " PaPa " . She waived clapped hands. But then right at around 18 months, she regressed. Stopped walking, talking you know the usual. But I really give a lot of credit to the Miami Dade County Early Intervention and Public school system. They have a great program for children with autism, and they helped us out a lot. I am a single parent, worked all day and had no one to watch them at night. My daughter was in the public school system at almost 3 and that is where she has received all of her therapys. No GFCF Diet, biomedics, just therapys. Don't get me wrong I do want to try the GFCF Diet because she doesn't eat anyhing healthy just pancakes, mac & cheese and jelly. Oh with Strawberry milk. But she is above average on height and weight. I don't get it. > > I don't know what " biomedicine " is. > > > > Amy, what you need to realize is that there are LOTS of people who > > have done everything McCarthy has and then some; their kids > are > > not responders. It's very painful for those families to continually > > hear how they could " cure " their kid if they just did biomedical. > It's > > just not true in most cases. > > > > I'm a big believer in biomedical treatment for symptoms of autism. > > Thankfully, Allie has responded physically to a lot of stuff we've > > tried. In fact, we've done nearly everything McCarthy did > years > > before she did it. Allie still has autism. I think it's great that > > 's son is doing so well, but that just isn't the case for > > everyone and some sensitivity is needed, IMO. I have a dear friend > who > > used to drive from TN to Bradstreet's clinic once/mo to get her > > daughter IVs & other treatments. They helped some but not > completely. > > She did/does a lot of other stuff. She still has horrible behavior > > problems. I cannot tell you how painful it is when she's told she > > hasn't done enough for her daughter. > > > > I would suggest you take time to get to know the parents on this > board > > before assuming the people have not tried anything to help their > > kids/selves. Parents & those with autism need support and > > encouragement, maybe it's just me, but I get the increasing feeling > of > > an offensive tone in your postings. If it's just me, I apologize. > > > > Debi > > > > > > > > > > > > > > Chef Amy > > Reel Thyme Cooking, LLC > > > > > > --------------------------------- > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. > Try it now. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 Thank you, I do feel blessed. Don't get me wrong she has her days but just remembering the past. I really feel for te parents that are just starting out. My daughter said the basics " Bye Bye " , " MaMa " , " PaPa " . She waived clapped hands. But then right at around 18 months, she regressed. Stopped walking, talking you know the usual. But I really give a lot of credit to the Miami Dade County Early Intervention and Public school system. They have a great program for children with autism, and they helped us out a lot. I am a single parent, worked all day and had no one to watch them at night. My daughter was in the public school system at almost 3 and that is where she has received all of her therapys. No GFCF Diet, biomedics, just therapys. Don't get me wrong I do want to try the GFCF Diet because she doesn't eat anyhing healthy just pancakes, mac & cheese and jelly. Oh with Strawberry milk. But she is above average on height and weight. I don't get it. > > I don't know what " biomedicine " is. > > > > Amy, what you need to realize is that there are LOTS of people who > > have done everything McCarthy has and then some; their kids > are > > not responders. It's very painful for those families to continually > > hear how they could " cure " their kid if they just did biomedical. > It's > > just not true in most cases. > > > > I'm a big believer in biomedical treatment for symptoms of autism. > > Thankfully, Allie has responded physically to a lot of stuff we've > > tried. In fact, we've done nearly everything McCarthy did > years > > before she did it. Allie still has autism. I think it's great that > > 's son is doing so well, but that just isn't the case for > > everyone and some sensitivity is needed, IMO. I have a dear friend > who > > used to drive from TN to Bradstreet's clinic once/mo to get her > > daughter IVs & other treatments. They helped some but not > completely. > > She did/does a lot of other stuff. She still has horrible behavior > > problems. I cannot tell you how painful it is when she's told she > > hasn't done enough for her daughter. > > > > I would suggest you take time to get to know the parents on this > board > > before assuming the people have not tried anything to help their > > kids/selves. Parents & those with autism need support and > > encouragement, maybe it's just me, but I get the increasing feeling > of > > an offensive tone in your postings. If it's just me, I apologize. > > > > Debi > > > > > > > > > > > > > > Chef Amy > > Reel Thyme Cooking, LLC > > > > > > --------------------------------- > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. > Try it now. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 Has your daughter had ANY therapy??? Any early intervention of any kind? Preschool? Are you in the US? I'm just wondering, because it seems like for a mom who claims she will do anything and everything to recover her daughter, you would have at least started with the stuff that is actually proven (and backed up with data) to help. Are services not available in your area? Amnesty > > I don't know what " biomedicine " is. > > > > Amy, what you need to realize is that there are LOTS of people who > > have done everything McCarthy has and then some; their kids > are > > not responders. It's very painful for those families to continually > > hear how they could " cure " their kid if they just did biomedical. > It's > > just not true in most cases. > > > > I'm a big believer in biomedical treatment for symptoms of autism. > > Thankfully, Allie has responded physically to a lot of stuff we've > > tried. In fact, we've done nearly everything McCarthy did > years > > before she did it. Allie still has autism. I think it's great that > > 's son is doing so well, but that just isn't the case for > > everyone and some sensitivity is needed, IMO. I have a dear friend > who > > used to drive from TN to Bradstreet's clinic once/mo to get her > > daughter IVs & other treatments. They helped some but not > completely. > > She did/does a lot of other stuff. She still has horrible behavior > > problems. I cannot tell you how painful it is when she's told she > > hasn't done enough for her daughter. > > > > I would suggest you take time to get to know the parents on this > board > > before assuming the people have not tried anything to help their > > kids/selves. Parents & those with autism need support and > > encouragement, maybe it's just me, but I get the increasing feeling > of > > an offensive tone in your postings. If it's just me, I apologize. > > > > Debi > > > > > > > > > > > > > > Chef Amy > > Reel Thyme Cooking, LLC > > > > > > --------------------------------- > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. > Try it now. > > > > Quote Link to comment Share on other sites More sharing options...
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