Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 sorry you hads such a rough and challenging morning and yes as had many of them when my childrens were of little and had of tears too because of the expectations and the law says have to send of them to school but how do a mom on spectrum get of 4 kids ready for school that are of also on the spectrum and each having thier own issues. it was like of a domino effect if one was upset it caused the rest to go out of sync and by the time I to getted them all off to the school buses and such I to locked ofmy doors and sat with my blankets and just sat for a long time to recoup of the drained mental and emotionals states of me. Sometimes I to worked it off by to clean and clean and organize but mostly I to just say and rocked or watched of my TV more for the noise than the actions of people but that was of then. Now all of then can get of ready by of themselves with minimal prompts and or cues and all are of in their teen years. One day will just share of a one day of my life back then of the kids. many will be of to read and relate to it all and some will be to laugh and some will just wonder. but like jon and kate say this is a crazy life but it of our life. Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 --- Cassie Zupke wrote: > Amnesty -- > > Thanks for your explanation. I've seen a celebrity > (not McCarthy, > someone earlier who I don't remember her name now) > tell everyone that > her child had recovered from autism. But if you buy > and read her book > you'll see that he still needs an aide in the > classroom. I'm sure that > all her hard work has helped her child tremendously > -- but I felt she > was really misleading people by saying " If you do > these things your > child will recover too. " I would probably have > hailed her as a real > help if instead she'd said " Try these things -- a > lot of autistic kids > benefit from them. " > > Thanks also for reminding us (thanks to all of you > who have recently) > not to let autism be all we see in our kids -- for > us to treasure them, > autism and all. Some days that's harder than > others!! :-> I've known > many adults who now would have been diagnosed > Asperger's or autistic who > have gone on to have very successful lives. (Ever > visited the engineers > & computer programmers & scientists in NASA's space > program? It's like > Chucky Cheese's for adult aspies!) We all want to > make our kids' lives > easier. Thanks to you all for reiterating that we > are all working to > help our kids. I'd imagine folks who want to just > sit on their behinds > probably don't stay on this message board long -- > this place is all > about " what can you do to help your kid " . That's > one of the things I > like about it! > > -- Cassie > > Amnesty wrote: > > > First of all, I have known many kids who are now > indistinguishable in > > a classroom full of typical peers...that doesn't > mean they are not > > autistic, just that you can't tell right away. > Many of these kids > > would no longer be diagnosed if they were tested > today, but no one > > knows what the future holds, and I don't know > anyone who considers > > them to be autism free. All of them had ABA (which > is how I met them), > > some had biomedical intervention and some did not. > I also know many, > > many more kids who have had every biomedical > intervention under the > > sun with little or no improvement. > > I'm thrilled for your daughter that she is making > so much progress. > > That is wonderful news. However, I hope that you > don't talk to her > > like you talk about her here. You continually use > words like " ruined " > > and " damaged. " Just because she doesn't use the > words doesn't mean she > > doesn't understand the feelings behind them. > > Also, there are many, many people with autism that > grow up to live > > independently, go to college, get married, and > have families. There > > are some on this board. I have an uncle with > autism who is a > > successful music therapist. He went to college and > lives independently > > and has since he was 20, just like all his > siblings. He's not married, > > but that's because he's gay...he has had long term > relationships. > > Being autistic does not prevent those things. It > is perfectly possible > > to accomplish all that without " recovery. " > > I just hope that if your daughter does grow up to > be a happy, > > independent, and still autistic, adult, that you > will be able to > > accept her and be happy for her. In my experience, > that is a much more > > likely scenario than recovery. > > Amnesty > > > > > > > I suppose like all of you, I have put up with > the angry, > > disapproving stares of strangers when my princess > is in a meltdown > > because she was brushed up against. You know. Its > the look of " Why > > can't you control your child?' I've even been told > by === message truncated === ________________________________________________________________________________\ ____ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 Amnesty -- Thanks for your explanation. I've seen a celebrity (not McCarthy, someone earlier who I don't remember her name now) tell everyone that her child had recovered from autism. But if you buy and read her book you'll see that he still needs an aide in the classroom. I'm sure that all her hard work has helped her child tremendously -- but I felt she was really misleading people by saying " If you do these things your child will recover too. " I would probably have hailed her as a real help if instead she'd said " Try these things -- a lot of autistic kids benefit from them. " Thanks also for reminding us (thanks to all of you who have recently) not to let autism be all we see in our kids -- for us to treasure them, autism and all. Some days that's harder than others!! :-> I've known many adults who now would have been diagnosed Asperger's or autistic who have gone on to have very successful lives. (Ever visited the engineers & computer programmers & scientists in NASA's space program? It's like Chucky Cheese's for adult aspies!) We all want to make our kids' lives easier. Thanks to you all for reiterating that we are all working to help our kids. I'd imagine folks who want to just sit on their behinds probably don't stay on this message board long -- this place is all about " what can you do to help your kid " . That's one of the things I like about it! -- Cassie Amnesty wrote: > First of all, I have known many kids who are now indistinguishable in > a classroom full of typical peers...that doesn't mean they are not > autistic, just that you can't tell right away. Many of these kids > would no longer be diagnosed if they were tested today, but no one > knows what the future holds, and I don't know anyone who considers > them to be autism free. All of them had ABA (which is how I met them), > some had biomedical intervention and some did not. I also know many, > many more kids who have had every biomedical intervention under the > sun with little or no improvement. > I'm thrilled for your daughter that she is making so much progress. > That is wonderful news. However, I hope that you don't talk to her > like you talk about her here. You continually use words like " ruined " > and " damaged. " Just because she doesn't use the words doesn't mean she > doesn't understand the feelings behind them. > Also, there are many, many people with autism that grow up to live > independently, go to college, get married, and have families. There > are some on this board. I have an uncle with autism who is a > successful music therapist. He went to college and lives independently > and has since he was 20, just like all his siblings. He's not married, > but that's because he's gay...he has had long term relationships. > Being autistic does not prevent those things. It is perfectly possible > to accomplish all that without " recovery. " > I just hope that if your daughter does grow up to be a happy, > independent, and still autistic, adult, that you will be able to > accept her and be happy for her. In my experience, that is a much more > likely scenario than recovery. > Amnesty > > > > I suppose like all of you, I have put up with the angry, > disapproving stares of strangers when my princess is in a meltdown > because she was brushed up against. You know. Its the look of " Why > can't you control your child?' I've even been told by relatives (mark > you, I do not call them family) not to come back any more because my > childs unpredictability is " unfair to the other children. " I've even > been told that " You are using your child's autism as an excuse for her > behavior. " > > > > I choose not to be angry about this, because my emotions are my choice. > > > > I've wathed other parents drop their kids off at birthday parties, > supervised by adults, when I know that my child needs my constant > attention to prevent mayham. > > > > I've seen her entire class invited to birthday parties, and not my > child, knowing that the parents just can't handle her behavior. > > > > So What! > > > > I spend my free time looking at clouds with Evalyn, with her seeing > shapes that I can not imagine. I watch her while she gives unknown > status to her dolls as we play family. Sometimes, I just cuddle her, > when she permits, because like every parent should know, its not about > me any more. Its about her. > > > > Some times, she talks, and sometimes she does not. Sometimes she > growls and pushes me away, and that is okay, because when I chose to > have a child, I chose to make her life about her, and not about me. > > > > I spent the first two years of her diagnosis studying every article > I could. From pharmacology to nueroscience. Then it occured to me, she > needs a daddy, not another doctor. > > > > Tomorrow I don't know what will happen. Maybe good and maybe bad, > but I don't really care, because I will spend it with the greatest > gift I have ever been given. > > > > --------------------------------- > > Never miss a thing. Make Yahoo your homepage. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 Amnesty -- Thanks for your explanation. I've seen a celebrity (not McCarthy, someone earlier who I don't remember her name now) tell everyone that her child had recovered from autism. But if you buy and read her book you'll see that he still needs an aide in the classroom. I'm sure that all her hard work has helped her child tremendously -- but I felt she was really misleading people by saying " If you do these things your child will recover too. " I would probably have hailed her as a real help if instead she'd said " Try these things -- a lot of autistic kids benefit from them. " Thanks also for reminding us (thanks to all of you who have recently) not to let autism be all we see in our kids -- for us to treasure them, autism and all. Some days that's harder than others!! :-> I've known many adults who now would have been diagnosed Asperger's or autistic who have gone on to have very successful lives. (Ever visited the engineers & computer programmers & scientists in NASA's space program? It's like Chucky Cheese's for adult aspies!) We all want to make our kids' lives easier. Thanks to you all for reiterating that we are all working to help our kids. I'd imagine folks who want to just sit on their behinds probably don't stay on this message board long -- this place is all about " what can you do to help your kid " . That's one of the things I like about it! -- Cassie Amnesty wrote: > First of all, I have known many kids who are now indistinguishable in > a classroom full of typical peers...that doesn't mean they are not > autistic, just that you can't tell right away. Many of these kids > would no longer be diagnosed if they were tested today, but no one > knows what the future holds, and I don't know anyone who considers > them to be autism free. All of them had ABA (which is how I met them), > some had biomedical intervention and some did not. I also know many, > many more kids who have had every biomedical intervention under the > sun with little or no improvement. > I'm thrilled for your daughter that she is making so much progress. > That is wonderful news. However, I hope that you don't talk to her > like you talk about her here. You continually use words like " ruined " > and " damaged. " Just because she doesn't use the words doesn't mean she > doesn't understand the feelings behind them. > Also, there are many, many people with autism that grow up to live > independently, go to college, get married, and have families. There > are some on this board. I have an uncle with autism who is a > successful music therapist. He went to college and lives independently > and has since he was 20, just like all his siblings. He's not married, > but that's because he's gay...he has had long term relationships. > Being autistic does not prevent those things. It is perfectly possible > to accomplish all that without " recovery. " > I just hope that if your daughter does grow up to be a happy, > independent, and still autistic, adult, that you will be able to > accept her and be happy for her. In my experience, that is a much more > likely scenario than recovery. > Amnesty > > > > I suppose like all of you, I have put up with the angry, > disapproving stares of strangers when my princess is in a meltdown > because she was brushed up against. You know. Its the look of " Why > can't you control your child?' I've even been told by relatives (mark > you, I do not call them family) not to come back any more because my > childs unpredictability is " unfair to the other children. " I've even > been told that " You are using your child's autism as an excuse for her > behavior. " > > > > I choose not to be angry about this, because my emotions are my choice. > > > > I've wathed other parents drop their kids off at birthday parties, > supervised by adults, when I know that my child needs my constant > attention to prevent mayham. > > > > I've seen her entire class invited to birthday parties, and not my > child, knowing that the parents just can't handle her behavior. > > > > So What! > > > > I spend my free time looking at clouds with Evalyn, with her seeing > shapes that I can not imagine. I watch her while she gives unknown > status to her dolls as we play family. Sometimes, I just cuddle her, > when she permits, because like every parent should know, its not about > me any more. Its about her. > > > > Some times, she talks, and sometimes she does not. Sometimes she > growls and pushes me away, and that is okay, because when I chose to > have a child, I chose to make her life about her, and not about me. > > > > I spent the first two years of her diagnosis studying every article > I could. From pharmacology to nueroscience. Then it occured to me, she > needs a daddy, not another doctor. > > > > Tomorrow I don't know what will happen. Maybe good and maybe bad, > but I don't really care, because I will spend it with the greatest > gift I have ever been given. > > > > --------------------------------- > > Never miss a thing. Make Yahoo your homepage. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 Amy I to mean of no disrespect but you say you see of recovcered kids daily , can you share pictures and or names of all these recovered kids. Because from my knowing there is of not a cure for autism and if there were of kids recovering from autism daily, then I to think the DAN conferences should stop all the research and begin to start doing panels of nothing but the recovered kids. I to been to a few dan conferences and do take of heed to the research but so far none of the researches use the same protocals and each have of their theories and such but there is not a cure yet that cures all autism. and if so many were of being recovered then the truth be the number of autism willnot be rising it would be decreasing due to these recovered kids no longer being considered of autism. Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 Amy I to mean of no disrespect but you say you see of recovcered kids daily , can you share pictures and or names of all these recovered kids. Because from my knowing there is of not a cure for autism and if there were of kids recovering from autism daily, then I to think the DAN conferences should stop all the research and begin to start doing panels of nothing but the recovered kids. I to been to a few dan conferences and do take of heed to the research but so far none of the researches use the same protocals and each have of their theories and such but there is not a cure yet that cures all autism. and if so many were of being recovered then the truth be the number of autism willnot be rising it would be decreasing due to these recovered kids no longer being considered of autism. Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 No, most of it is not covered by insurance. I've seen absolutely no reaction with Bradstreet protocol. I gave her a little DMSA twice with Cutler protocol, both times she got pneumonia; I decided she was one of those who cannot tolerate DMSA, she had never even had antibiotics prior to that. Yes, I contribute metals to vaccination, but maybe not all. Paxil is in the SSRI class of selective seratonin reuptake inhibitors. It is also used with positive results of about 30% of those with autism who have completed the ARI parent survey. No sluggishness at all, in fact, she seems more alert and " with it " than without the med, but I also give her a tiny dose, I believe for those who are benefitted by meds, many are probably given too high a dose. I also do not believe in medications until more natural approaches have been exhausted. Since I followed Cutler protocol, I've followed his suggestions. I have given her some liver products, primarily milk thistle and selenium, as he suggested. I think I prefer the IV method more because Allie seems to prefer it and she has significant food aversions that make regular oral administration of chelation products every 3-4 hrs difficult; we also know exactly how much of what she's getting, and when I was doing Cutler it was before I had DAN assistance to ensure proper lab testing, that gives me mental relief. Debi > > Is all of this covered by insurance? I know that we use every penny to keep her doing what we are doing with her. What kind of reactions, if any, is she having with chelation? Do you contribute the metals in her body to vaccinations? Isn't Paxil for depression, anxiety, etc.? Does it seem to make her sluggish...tired alot? Did they recommend that you do a liver cleanse prior to chelation? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 No, most of it is not covered by insurance. I've seen absolutely no reaction with Bradstreet protocol. I gave her a little DMSA twice with Cutler protocol, both times she got pneumonia; I decided she was one of those who cannot tolerate DMSA, she had never even had antibiotics prior to that. Yes, I contribute metals to vaccination, but maybe not all. Paxil is in the SSRI class of selective seratonin reuptake inhibitors. It is also used with positive results of about 30% of those with autism who have completed the ARI parent survey. No sluggishness at all, in fact, she seems more alert and " with it " than without the med, but I also give her a tiny dose, I believe for those who are benefitted by meds, many are probably given too high a dose. I also do not believe in medications until more natural approaches have been exhausted. Since I followed Cutler protocol, I've followed his suggestions. I have given her some liver products, primarily milk thistle and selenium, as he suggested. I think I prefer the IV method more because Allie seems to prefer it and she has significant food aversions that make regular oral administration of chelation products every 3-4 hrs difficult; we also know exactly how much of what she's getting, and when I was doing Cutler it was before I had DAN assistance to ensure proper lab testing, that gives me mental relief. Debi > > Is all of this covered by insurance? I know that we use every penny to keep her doing what we are doing with her. What kind of reactions, if any, is she having with chelation? Do you contribute the metals in her body to vaccinations? Isn't Paxil for depression, anxiety, etc.? Does it seem to make her sluggish...tired alot? Did they recommend that you do a liver cleanse prior to chelation? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 I don't post often. I homeschool and am a single parent and don't often have the time. BUT I do have to say I PERSONALLY agree or believe that no one that has autism is ever really " recovered " . I just don't believe it and perhaps thats my own problem? I think many can learn and be able to live in the NT world. But thats just my personal opinon and how I view autism in general. My daughter is 6, homeschooled. She potty trained at 3 1/2. She only recently began talking in sentences, maybe its from what I do and maybe not. She wasn't fine and then got a vaccine and became autistic. She academically is great. She can read, spell, add, subtract, count, etc ( won't bore you with the details, I'm saying it to state where she is at) She shows affection and pretend plays. She has days I call 'autistic days " and days she is less autistic. Some that have seen us in the community for a few years never " KNEW " she had autism. I guess she doesn't always " appear " . She couldn't always do these things. She continues to grow and change much like many children. Every child with autism is different, things that work for my daughter, probably won't work for a diff child the same way. I think we need to step back and breathe. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 I don't post often. I homeschool and am a single parent and don't often have the time. BUT I do have to say I PERSONALLY agree or believe that no one that has autism is ever really " recovered " . I just don't believe it and perhaps thats my own problem? I think many can learn and be able to live in the NT world. But thats just my personal opinon and how I view autism in general. My daughter is 6, homeschooled. She potty trained at 3 1/2. She only recently began talking in sentences, maybe its from what I do and maybe not. She wasn't fine and then got a vaccine and became autistic. She academically is great. She can read, spell, add, subtract, count, etc ( won't bore you with the details, I'm saying it to state where she is at) She shows affection and pretend plays. She has days I call 'autistic days " and days she is less autistic. Some that have seen us in the community for a few years never " KNEW " she had autism. I guess she doesn't always " appear " . She couldn't always do these things. She continues to grow and change much like many children. Every child with autism is different, things that work for my daughter, probably won't work for a diff child the same way. I think we need to step back and breathe. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 Amy maybe you and me have of different research but the things one does to work the core is done though biomedical medicines and diets and things , boimedical is not the same as medications but is of repairing areas that are deficient and such it is of often many of the things parents have pursued. Medications too are of sometimes needed and yes are and can be bandaides because the core biomedically has not been to found to reduce that certain symptom that is of interferring with their daily life. You want of positive stories and if you really read you will find this list is full of them. Because many of the kids here are not recovered so to speak and so the families have come to a place in life of celabraint their daughters success. Such if you just read of Beth the little one in her potty training sucess. that was a great success for that little girl and we other moms and dads here were happy to be a part of that progress of reading of Beths success. This list is of full of many success and real life things among autism. If you do not find these as success then maybe you need to seek out the recovered kids list and or other such lists as there are a few lists like that . i to be of sorry to be of so blunt and I to tried of to be of nice but I to feel anxiety building because it seems you are not here to really learn or know of us but are of here to preach to us and if we do not heed you are of upset to us for not seeking you path . many of us had already been of you path for years..... we are now on a new part of the journey. please try to respect where we are at and not assume that we do not hear of you words it just comes off to forceful and demanding , closed off and I to feel you are of not hearing what many members here who have been in this joureny for many years, and to those of us who do have of autism and were not of recovered adults and we have learned much painful how to adpat to this world and it hurts to see of words of ruined and broken or damaged. soceity makes us feel that enough and for me this is of a safe place and not like seeing clutter of painful words here that seem to try to reflect a negative in regards to us here who are still with autism. we are of here to help of the families from our perspectives. we are not perfect humans, we are though human like all the rest here are not perfect humans. Sondra Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 Don't believe the " deadlines. " Progress is ALWAYS possible, at any age! Yes, early intervention is important, but intervention at ANY age is important. Don't let anyone tell you otherwise. We are ALL learning, developing, and progressing at every point of our lives, and your daughter will too. Amnesty > > You are very correct on alot of points Sondra. Since I just found out that she has autism...6 months ago (knew something was wrong because of her reaction to the shots but wasnt sure exactly) I hear everyone talking about a timeframe on getting your child better. It scares me that now that she is 5, I am running out of time. I feel like I have one chance to correct this, and jumped in with both feet. I truly know that in my heart, she will overcome this....if not as expected, will still continue. Just like you Sondra, I too have dealt with alot of serious issues in my life. I was told at the age of 24 that I would never see 25. I just turned 40 in June. I have dealt with things that most people will never deal with in a lifetime. This has made me a fighter. I have seen the impossible turn around, and this is where I get my strength. So, I may be new to autism, but I'm not new to fighting hard to get what you want. Before we moved 3 weeks ago, my husband worked 4 jobs and > went to school full-time so that I can stay home with my girls (my 2 little ones). We have made some serious sacrifices, but I guess that is what you do as parents. I appreciate your realism...I think that way also. But I know from the things that I have already been through in my life....this will be another success story in my life. LOL...I would love to take a day off from the world...what a great idea! I also have an older daughter with Crohns disease from the vaccinations. I have seen my oldest daughter very sick with this....it will eventually shorten her life if not taken care of. I have an ice cream truck....I am going to sell funnel cakes and gourmet coffees out of it to raise money for their protocols. I can't lose any time...you surely understand that I have been disappointed in the medical profession (injury) and now in the school systems...seems like your on your own sometimes. Thats ok though...we will get through this! > Amy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 Amy -- I used to feel the same way you do about time running out. Then I started reading some of Temple Grandin's books. She talked about how much she learned between 40 and 60 yrs old and I realized that our kids are like everyone else -- they keep learning! Early intervention is critical, but so is all the stuff that comes after it. Breathe. You're going to be doing this stuff for many years -- don't wear yourself out. Parents of NT kids get tired of taking care of their kids -- that's why we're kinda happy when they grow up and move out, as much as we miss 'em. I often hear, though, of parents of kids with special needs who end up absolutely physically and emotionally trashed. Then they're less effective giving their kids the help they need then. I don't mean to slow you down -- you're doing great stuff! Just don't feel like your failing if she's not " cured " by the time she's 7 or 10 or 20. You're obviously working as hard as you can to help your daughter -- good for you! Don't bag on yourself though if and when she still has difficulties. Instead focus on all the positive growth she's made. That will give you the energy you need to support her throughout her life -- just like parents of NT kids do. Good job! -- Cassie Amy Wittman wrote: > You are very correct on alot of points Sondra. Since I just found out > that she has autism...6 months ago (knew something was wrong because > of her reaction to the shots but wasnt sure exactly) I hear everyone > talking about a timeframe on getting your child better. It scares me > that now that she is 5, I am running out of time. I feel like I have > one chance to correct this, and jumped in with both feet. I truly know > that in my heart, she will overcome this....if not as expected, will > still continue. Just like you Sondra, I too have dealt with alot of > serious issues in my life. I was told at the age of 24 that I would > never see 25. I just turned 40 in June. I have dealt with things that > most people will never deal with in a lifetime. This has made me a > fighter. I have seen the impossible turn around, and this is where I > get my strength. So, I may be new to autism, but I'm not new to > fighting hard to get what you want. Before we moved 3 weeks ago, my > husband worked 4 jobs and > went to school full-time so that I can stay home with my girls (my 2 > little ones). We have made some serious sacrifices, but I guess that > is what you do as parents. I appreciate your realism...I think that > way also. But I know from the things that I have already been through > in my life....this will be another success story in my life. LOL...I > would love to take a day off from the world...what a great idea! I > also have an older daughter with Crohns disease from the vaccinations. > I have seen my oldest daughter very sick with this....it will > eventually shorten her life if not taken care of. I have an ice cream > truck....I am going to sell funnel cakes and gourmet coffees out of it > to raise money for their protocols. I can't lose any time...you surely > understand that I have been disappointed in the medical profession > (injury) and now in the school systems...seems like your on your own > sometimes. Thats ok though...we will get through this! > Amy > > sondra <hfa2@... <mailto:hfa2%40columbus.rr.com>> wrote: > > Amy no one is of disagreeing with what you chose for you daughter and > many here are of doing the same.....seeking answers to make of their > childs life better, some are of seeking to mend the medical > infractions as what parent would not want of thier child to be of > healthy. > > You are of new to this joureny and I to been in it all of the life of > me and researched of it the last 10 years. You shared for every one > that does not get a cure that one will and from that, that means you > believe that 50% will recover, I to disagree as I to shared I to know > many , mnay families who are or have done the same route and you and > went bankrupt trying and the child did not recover. I to just want of > to share to you because it fears me that the outcome may not be as > you seek just as the many hundreds of families before you. I to also > am not to say dont seek but do not do it to the exclusion of loving > you and hte rest of you family. I to also know of some wonderful > familes who seeked another route to teh exclusion and advocates so > strongly for years for thier child but because they did not love of > themselves and to excluded balancing out the life of them ended of > themselves with cancers and such diseases and were of not able to > live out long enough to see of thier child grow in adult life. I to > say this not to discourage but to encourrage of you. > > Also in this one might benefit to research greif and its cycles and > it is of healthy to cycle in and out of various staged but if one > stays in one stage it is very unhealthy. > > hte gains you see are of good but also some have maked this same sort > of developmental leaps without the use of any biomedical simply do to > natural maturation but again not all will make of those gains without > some sort of intervention. there are a number of kidos on the > spectrum who maked of this same sorts of gains via ABA or RDI and > other similar sorts of therapy. > > So whgile you are new to this journey and are of in the strong fix it > stage of this journey please for you and you daughter take a nice > break and enjoy a day out somewhere that isof mutally a calm and > shared place for you both. > > Also to note if one seen of me as a child from all the little things > shared to me from family and the birth mother of me, it was of very > evident my life journey was of a classical presentaion of autism and > over the life of me had growed and gained and got of marriage and > kids and a life independent of the birth parents of me. there is > quite a few of us who do again this is not the same outcome for all > in autism, as some do not make the gains expected or seeked no matter > what intervention was of used because no one tapped into the secret > hidden code of sommunication for that individual person which left > them misunderstood and isolated from getting their true inner needs > met. > Sondra > > Chef Amy > Reel Thyme Cooking, LLC > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try > it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 I hope it works! Debi > > Actually that is exactly what we are about to do. I have been dealing with a man that seems to really know his stuff. He grew up sick all of his life and into adulthood. He went to multipe doctors to no avail. He finally took it upon himself to find a solution. He turned hinself around. He became an atty, then decided that he wanted to pursue helping others get well also. I am going to do his program for both of the girls since they are both very familiar. He was telling me about how important it is to cleanse your liver. He said that our liver get congested and then malfunctions. It is like a traffic jam, that no matter how fast you go, you will never get through any faster. So he told me to cleanse both of their livers first, then start chelation. My autistic child is already on the GFCF diet, but he said that my oldest needs to be on it also..and he designed a specific menu for her. Here is his info if anyone is interested. We will see what happens shortly on how well it > works. > www.bioray2000.com > www.createvibranthealth.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 In a message dated 1/8/08 5:48:17 PM Eastern Standard Time, reelthymecooking@... writes: So I got frustarted and moved 15 hours away to a wonderful system that jumped right on her situation. That was only three weeks ago, so I haven't actually got her into the school yet. That was the same with my girl...dada, bye bye, mama, etc....then it all went away...what a devasting ordeal for everyone...especialSo I go good for you for moving. doing what ever it takes. it is devasting. knowing they hear and feel but cant express it nor now how to react. keep loving them the way you do. they understand that weather they can show it or not eric abbys dad **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 In a message dated 1/8/08 7:57:43 PM Eastern Standard Time, czupke@... writes: this place is all about " what can you do to help your kid " . That's one of the things I like about it! -- Cassie very true eric abbys dad **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 On the naltrexone thing debi - my husband and I have both been on it for quite some time with no apparent effects for good. I have had none for bad either, but he had a horrible reation, while he was on naltrexone and they introduced a new medacine to him while he was in the hospital called Mercapetepurine(6mp for short). When he had the reaction, they gave him Ativan to help him calm down and regulate his heart and such and it sent him into a terrible epesode. It was very scary. He does not remember any of it, but it took nearly 24 hours for him to even know who he was or were he was and to respond appropriately to questions asked of him. I almost had a heart attack, thinking of the possibility of loosing my husband or almost worse yet, having to care for him being crazy and not knowing who I am in addition to raising my 3 with autism. Of course I would do it, but I definately think I would have needed some help. I am not that strong. I honestly had 3 grey hairs the next morning and I am only 27, he is only 27 too Anyhow, not sure whether this epesode had anything to do with anything other than mixing the wrong meds, but it was very aweful! The rest of your post was very nicely written, and I could not have said this part better myself, " you would find that many/most of us as well have experienced what " most people will never deal with in a lifetime. " Some of us here are sexual & physical abuse survivors, cancer survivors, Crohn's Disease, diabetes, other major health problems, divorced, remarried, orphaned/given up for adoption,neglected, drug addicted, bankrupt, etc. " That was soooooooooo true and wonderfully stated, I truly did used to feel uttely alone in this world and like I had to fight the whole world and like NO ONE could understand me, until I found this list and realized that I was NOT alone and others have had to walk in very similar shoes! Esther --- Debi wrote: > If you would take the time to get to know everyone > here before > thinking you know us, you would find that many/most > of us as well have > experienced " most people will never deal with in a > lifetime. " Some of > us here are sexual & physical abuse survivors, > cancer survivors, > Crohn's Disease, diabetes, other major health > problems, divorced, > remarried, orphaned/given up for adoption, > neglected, drug addicted, > bankrupt, etc. It's common to think one has problems > no one else has > experienced until you take time to listen to others. > > > There is no time frame!!! you do what you can do, > when you can do it. > My daughter was dxed at 23 mos; we've been doing all > sorts of stuff > since then, including therapy and biomed. She's now > 8 1/2, doing > better than ever and still improving. Like the > cancer commercial, > there are no expiration dates stamped on any child's > foot that on a > given date they stop progressing. It's a horrible > myth. It's just not > true. I'm 36 & learn new things every day, I come > into new awarenesses > about myself and my actions that I didn't comprehend > before. It's > human nature to grow and learn throughout life, even > people with autism!!! > > You mentioned your want your daughter in a typical > kindergarten. Guess > what, she doesn't have to be typical to be in a > typical > kindergarten!!! The law requires that the child be > in the least > restrictive setting that is most appropriate. Have > you attended any > IDEIA workshops? I would highly recommend if you > have not. In TN we > have www.tnstep.org, they might be able to refer you > to a similar > program in NC. I know the Autism Society of NC has > all sorts of stuff, > I'd recommend you give them a call for sped > workshops. > > have you tried any special diet like gfcf for your > daughter with > Crohn's? I don't know that much about it, but I have > read that > naltrexone is showing some benefit as an immune > modulator. Have you > tried vitamin A or D3 for it? I've read that can > sometimes help those > with Crohns, as well. > > HTH, > Debi > > > > ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
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