Re: Picked apart

[Guest guest]

Very nicely worded.

Thank you,

Rebekah

--- tonimariesmommy wrote:

> I have watched the posts and have been very troubled

> at times, when I

> joined this list I was under the belief that the

> mission statement was

> that this was a place for, Parents and Providers,to

> discuss treatments

> for autistic girls, an area to discuss all of the

> questions that keep

> us all awake at night, when I saw that there were

> autistic females

> that were members of the list, I was overjoyed, I

> was so hoping for

> guidance, I wanted to listen and learn all that You

> were willing to share.

>

> This seemed a wonderful thing to me, as I am the

> mother of a 5 year

> old little girl that happens to have a diagnosis of

> autism, I struggle

> daily as I watch my beautiful little girl, I see the

> beauty in the

> disorder as well as seeing the fact that I will not

> be here forever

> and knowing that I obviously want to do my absolute

> best to make sure

> that she makes as many gains as God sees fit.

>

> I have been surprised by the amount of anger that I

> have seen, the

> fact that a simple post by a member can bring an

> onslaught of

> profanity or that someone questioning bio medical

> can be sliced off at

> the knees as though they are committing child abuse.

>

> I think that obviously there are always two sides to

> every subject,

> and yet I believe that ANYONE that is here on behalf

> of their child,

> obviously loves that child and is trying to find the

> right way, for

> that very reason they should be shown every bit of

> respect that we

> all can muster.

>

> Even if we do not agree with what they are

> saying...........

> Dont we all face enough in our lives, to not have to

> worry about being

> picked apart here?

>

>

Rebekah

Phil 4:8

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[Guest guest]

Very nicely worded.

Thank you,

Rebekah

--- tonimariesmommy wrote:

> I have watched the posts and have been very troubled

> at times, when I

> joined this list I was under the belief that the

> mission statement was

> that this was a place for, Parents and Providers,to

> discuss treatments

> for autistic girls, an area to discuss all of the

> questions that keep

> us all awake at night, when I saw that there were

> autistic females

> that were members of the list, I was overjoyed, I

> was so hoping for

> guidance, I wanted to listen and learn all that You

> were willing to share.

>

> This seemed a wonderful thing to me, as I am the

> mother of a 5 year

> old little girl that happens to have a diagnosis of

> autism, I struggle

> daily as I watch my beautiful little girl, I see the

> beauty in the

> disorder as well as seeing the fact that I will not

> be here forever

> and knowing that I obviously want to do my absolute

> best to make sure

> that she makes as many gains as God sees fit.

>

> I have been surprised by the amount of anger that I

> have seen, the

> fact that a simple post by a member can bring an

> onslaught of

> profanity or that someone questioning bio medical

> can be sliced off at

> the knees as though they are committing child abuse.

>

> I think that obviously there are always two sides to

> every subject,

> and yet I believe that ANYONE that is here on behalf

> of their child,

> obviously loves that child and is trying to find the

> right way, for

> that very reason they should be shown every bit of

> respect that we

> all can muster.

>

> Even if we do not agree with what they are

> saying...........

> Dont we all face enough in our lives, to not have to

> worry about being

> picked apart here?

>

>

Rebekah

Phil 4:8

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Toni I ot understand you words but wanted of to clarify of my own . I

to not be against of biomedical at all as do support of it but my

questioning was of more out of confusion . A father shares of a post

regarding of where he is in this journey of autism and how much hims

daughter if of a blessing to him and he loves of who she is to be in

this life and woukd not want of life to be of different than this,

and then one posts and wants to see if he has seeked out cure or

recovery for her. My confusion was why she asked of that when he gave

of no words that gave of any clues he was of seeking or wanted of

that for hims daughter.

Giving biomedical advice is of accepted her much so as a few moms are

like the data queens for this , and they do teach in very respectful

ways and are ever so much good at teaching when asked of the infor by

members. I to respect of the way they teach of it because for me it

gives me a safe to learn of it.

Not sure if you were of sharing of me or not but wanted of to clarify

of my words. I to have no ill feelings towards Amy at all. Just was

of confused by the words is all.

I to understand of you fears for you child much so. As I to also be

of a parent to 4 kids on the spectrum and in the early years had of

the same fears as you in thier future outcomes. this journey is not

easy I to udnerstand of that too. but for all things to be of healthy

there needs to be of balanced ways to do them. I to meaned of no

offense at all. those who know of me well know that is of not my

heart ways at all.

Sondra

[Guest guest]

Toni I ot understand you words but wanted of to clarify of my own . I

to not be against of biomedical at all as do support of it but my

questioning was of more out of confusion . A father shares of a post

regarding of where he is in this journey of autism and how much hims

daughter if of a blessing to him and he loves of who she is to be in

this life and woukd not want of life to be of different than this,

and then one posts and wants to see if he has seeked out cure or

recovery for her. My confusion was why she asked of that when he gave

of no words that gave of any clues he was of seeking or wanted of

that for hims daughter.

Giving biomedical advice is of accepted her much so as a few moms are

like the data queens for this , and they do teach in very respectful

ways and are ever so much good at teaching when asked of the infor by

members. I to respect of the way they teach of it because for me it

gives me a safe to learn of it.

Not sure if you were of sharing of me or not but wanted of to clarify

of my words. I to have no ill feelings towards Amy at all. Just was

of confused by the words is all.

I to understand of you fears for you child much so. As I to also be

of a parent to 4 kids on the spectrum and in the early years had of

the same fears as you in thier future outcomes. this journey is not

easy I to udnerstand of that too. but for all things to be of healthy

there needs to be of balanced ways to do them. I to meaned of no

offense at all. those who know of me well know that is of not my

heart ways at all.

Sondra

[Guest guest]

When bullying and questioning people's diagnoses comes

into it, it isn't that simple. And questioning biomed

for some people is questioning their religion, it

seems. And anyone is going to take offense if you say

that who they are isnt an acceptable way to be. If

they lose language under stress, it may NOT seem that

they're playing nice.

Sometimes people are willfully mean sometimes they

aren't. It isn't a matter of let's pretend (and I

wrote a wholly ignored post about that not 3 days

ago).

It just isn't that simple.

Kassiane

who has been flamed here probably more than any 5

other people put together

--- tonimariesmommy wrote:

> I have watched the posts and have been very troubled

> at times, when I

> joined this list I was under the belief that the

> mission statement was

> that this was a place for, Parents and Providers,to

> discuss treatments

> for autistic girls, an area to discuss all of the

> questions that keep

> us all awake at night, when I saw that there were

> autistic females

> that were members of the list, I was overjoyed, I

> was so hoping for

> guidance, I wanted to listen and learn all that You

> were willing to share.

>

> This seemed a wonderful thing to me, as I am the

> mother of a 5 year

> old little girl that happens to have a diagnosis of

> autism, I struggle

> daily as I watch my beautiful little girl, I see the

> beauty in the

> disorder as well as seeing the fact that I will not

> be here forever

> and knowing that I obviously want to do my absolute

> best to make sure

> that she makes as many gains as God sees fit.

>

> I have been surprised by the amount of anger that I

> have seen, the

> fact that a simple post by a member can bring an

> onslaught of

> profanity or that someone questioning bio medical

> can be sliced off at

> the knees as though they are committing child abuse.

>

> I think that obviously there are always two sides to

> every subject,

> and yet I believe that ANYONE that is here on behalf

> of their child,

> obviously loves that child and is trying to find the

> right way, for

> that very reason they should be shown every bit of

> respect that we

> all can muster.

>

> Even if we do not agree with what they are

> saying...........

> Dont we all face enough in our lives, to not have to

> worry about being

> picked apart here?

>

>

________________________________________________________________________________\

____

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

[Guest guest]

When bullying and questioning people's diagnoses comes

into it, it isn't that simple. And questioning biomed

for some people is questioning their religion, it

seems. And anyone is going to take offense if you say

that who they are isnt an acceptable way to be. If

they lose language under stress, it may NOT seem that

they're playing nice.

Sometimes people are willfully mean sometimes they

aren't. It isn't a matter of let's pretend (and I

wrote a wholly ignored post about that not 3 days

ago).

It just isn't that simple.

Kassiane

who has been flamed here probably more than any 5

other people put together

--- tonimariesmommy wrote:

> I have watched the posts and have been very troubled

> at times, when I

> joined this list I was under the belief that the

> mission statement was

> that this was a place for, Parents and Providers,to

> discuss treatments

> for autistic girls, an area to discuss all of the

> questions that keep

> us all awake at night, when I saw that there were

> autistic females

> that were members of the list, I was overjoyed, I

> was so hoping for

> guidance, I wanted to listen and learn all that You

> were willing to share.

>

> This seemed a wonderful thing to me, as I am the

> mother of a 5 year

> old little girl that happens to have a diagnosis of

> autism, I struggle

> daily as I watch my beautiful little girl, I see the

> beauty in the

> disorder as well as seeing the fact that I will not

> be here forever

> and knowing that I obviously want to do my absolute

> best to make sure

> that she makes as many gains as God sees fit.

>

> I have been surprised by the amount of anger that I

> have seen, the

> fact that a simple post by a member can bring an

> onslaught of

> profanity or that someone questioning bio medical

> can be sliced off at

> the knees as though they are committing child abuse.

>

> I think that obviously there are always two sides to

> every subject,

> and yet I believe that ANYONE that is here on behalf

> of their child,

> obviously loves that child and is trying to find the

> right way, for

> that very reason they should be shown every bit of

> respect that we

> all can muster.

>

> Even if we do not agree with what they are

> saying...........

> Dont we all face enough in our lives, to not have to

> worry about being

> picked apart here?

>

>

________________________________________________________________________________\

____

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

[Guest guest]

I agree with you.Sometime people are so passionate about what has worked for

their child ,that can appear unbending to other people way of dealing with their

child autism.

I do not post much ,but I try read on this list several times a week.

My daughter is fourteen and we could not afford many of the treatments for

autism or when we found out about some we could do,she was too old.

Now we pray and move forward. She doing great in school and doing pretty good

in social situations. Could she be better,maybe.Could we have done more,I sure

we missed something.But I am thankful for the progress we see and know with the

proper help her life will be fine.

What ever anyone is using to to help their child recover from autism and is

working I applause you . But we must keep in mind Everyone has a right to choose

what is best for their child and it should be respected.When we try to make

someone do things our way ,then we are taking away choice.

Debbie,'s Mom

tonimariesmommy wrote:

I have watched the posts and have been very troubled at times, when I

joined this list I was under the belief that the mission statement was

that this was a place for, Parents and Providers,to discuss treatments

for autistic girls, an area to discuss all of the questions that keep

us all awake at night, when I saw that there were autistic females

that were members of the list, I was overjoyed, I was so hoping for

guidance, I wanted to listen and learn all that You were willing to share.

This seemed a wonderful thing to me, as I am the mother of a 5 year

old little girl that happens to have a diagnosis of autism, I struggle

daily as I watch my beautiful little girl, I see the beauty in the

disorder as well as seeing the fact that I will not be here forever

and knowing that I obviously want to do my absolute best to make sure

that she makes as many gains as God sees fit.

I have been surprised by the amount of anger that I have seen, the

fact that a simple post by a member can bring an onslaught of

profanity or that someone questioning bio medical can be sliced off at

the knees as though they are committing child abuse.

I think that obviously there are always two sides to every subject,

and yet I believe that ANYONE that is here on behalf of their child,

obviously loves that child and is trying to find the right way, for

that very reason they should be shown every bit of respect that we

all can muster.

Even if we do not agree with what they are saying...........

Dont we all face enough in our lives, to not have to worry about being

picked apart here?

Debbie Townley

[Guest guest]

I agree with you.Sometime people are so passionate about what has worked for

their child ,that can appear unbending to other people way of dealing with their

child autism.

I do not post much ,but I try read on this list several times a week.

My daughter is fourteen and we could not afford many of the treatments for

autism or when we found out about some we could do,she was too old.

Now we pray and move forward. She doing great in school and doing pretty good

in social situations. Could she be better,maybe.Could we have done more,I sure

we missed something.But I am thankful for the progress we see and know with the

proper help her life will be fine.

What ever anyone is using to to help their child recover from autism and is

working I applause you . But we must keep in mind Everyone has a right to choose

what is best for their child and it should be respected.When we try to make

someone do things our way ,then we are taking away choice.

Debbie,'s Mom

tonimariesmommy wrote:

I have watched the posts and have been very troubled at times, when I

joined this list I was under the belief that the mission statement was

that this was a place for, Parents and Providers,to discuss treatments

for autistic girls, an area to discuss all of the questions that keep

us all awake at night, when I saw that there were autistic females

that were members of the list, I was overjoyed, I was so hoping for

guidance, I wanted to listen and learn all that You were willing to share.

This seemed a wonderful thing to me, as I am the mother of a 5 year

old little girl that happens to have a diagnosis of autism, I struggle

daily as I watch my beautiful little girl, I see the beauty in the

disorder as well as seeing the fact that I will not be here forever

and knowing that I obviously want to do my absolute best to make sure

that she makes as many gains as God sees fit.

I have been surprised by the amount of anger that I have seen, the

fact that a simple post by a member can bring an onslaught of

profanity or that someone questioning bio medical can be sliced off at

the knees as though they are committing child abuse.

I think that obviously there are always two sides to every subject,

and yet I believe that ANYONE that is here on behalf of their child,

obviously loves that child and is trying to find the right way, for

that very reason they should be shown every bit of respect that we

all can muster.

Even if we do not agree with what they are saying...........

Dont we all face enough in our lives, to not have to worry about being

picked apart here?

Debbie Townley

[Guest guest]

Debbie thank you as I to feel of the same. I to be of not against of

biomedical as I to not questioned of that at all. I to even in my

speaks when people ask on the biomedical offer support but wisdom and

make of sure they are of aware to see out a speicalized doctor in the

field of autism and biomedical and not to EVER EVER do it on you own

without the care of medical, because we really do not know the extent

of things without testing. and yes it can bring better outcomes for

some because if they are in pain and you fix that part and the pain

is gone then they can finally feel more able to learn.

I to have enough gut issues and if they were of removed i to think my

attending to others would be of increased and such. I to think would

be of less agitated if could be to sleep more and stay sleeping, and

or not with so much tummy aches and other pains. so yes I to pursue

of things for self to make of my quality of life more for self.

But if one comes to me strong and tells me I to need to do this or

that and this is the only way and whatever other words one might say

that will causes me to feel threatened and overloaded and not able to

learn. I to loearn best by cathy and debi and some of the other

approaches of the families here.

I too also for the last 10 years have done nothing but research and

research and so feel much strong in the things I to learned over time

or comprehended in words but the problems with me is transfering that

knowledge to actions for self as can read and read but lack when ,

where or how to begin for self. so I to most respect the guidance of

the families here who are pateint and reteach of me over and over and

never make me feel bad to reask of the same questions. I to need to

hear things many times and think on them and such and then need to

hear of them again to gain more insight to it. for me I to do that

because it takes a long time for the whole mesage to be clear to me.

I to been to this list for years and love of this list. I to ahve

only a few lists I to frequently read multiple times a day if able

to/

I to met just a few like and he is of to me someones I to admire

much because of hims voice and stance in autism, he gets it.... even

if he does chose to pursue later the biomedical route and seeks to

find recovery he is of one who does it with dignity and grace and at

a pace hims daughter will be of calm in the process.

sondra

Sondra

[Guest guest]

Debbie thank you as I to feel of the same. I to be of not against of

biomedical as I to not questioned of that at all. I to even in my

speaks when people ask on the biomedical offer support but wisdom and

make of sure they are of aware to see out a speicalized doctor in the

field of autism and biomedical and not to EVER EVER do it on you own

without the care of medical, because we really do not know the extent

of things without testing. and yes it can bring better outcomes for

some because if they are in pain and you fix that part and the pain

is gone then they can finally feel more able to learn.

I to have enough gut issues and if they were of removed i to think my

attending to others would be of increased and such. I to think would

be of less agitated if could be to sleep more and stay sleeping, and

or not with so much tummy aches and other pains. so yes I to pursue

of things for self to make of my quality of life more for self.

But if one comes to me strong and tells me I to need to do this or

that and this is the only way and whatever other words one might say

that will causes me to feel threatened and overloaded and not able to

learn. I to loearn best by cathy and debi and some of the other

approaches of the families here.

I too also for the last 10 years have done nothing but research and

research and so feel much strong in the things I to learned over time

or comprehended in words but the problems with me is transfering that

knowledge to actions for self as can read and read but lack when ,

where or how to begin for self. so I to most respect the guidance of

the families here who are pateint and reteach of me over and over and

never make me feel bad to reask of the same questions. I to need to

hear things many times and think on them and such and then need to

hear of them again to gain more insight to it. for me I to do that

because it takes a long time for the whole mesage to be clear to me.

I to been to this list for years and love of this list. I to ahve

only a few lists I to frequently read multiple times a day if able

to/

I to met just a few like and he is of to me someones I to admire

much because of hims voice and stance in autism, he gets it.... even

if he does chose to pursue later the biomedical route and seeks to

find recovery he is of one who does it with dignity and grace and at

a pace hims daughter will be of calm in the process.

sondra

Sondra

[Guest guest]

I agree with you, but I would like to point out one thing. Some people

on here have autism, and that makes it difficult to disagree in a

socially correct way. From my time on here, what I've gathered is that

we're all a work in progress and we all need to learn better ways of

sharing thoughts in respectful ways, both those of us with autism and

without.

HTH,

Debi

[Guest guest]

I agree with you, but I would like to point out one thing. Some people

on here have autism, and that makes it difficult to disagree in a

socially correct way. From my time on here, what I've gathered is that

we're all a work in progress and we all need to learn better ways of

sharing thoughts in respectful ways, both those of us with autism and

without.

HTH,

Debi