Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 Oh, as far as myself... I am in at least moderate pain all the time. I had a few days last week when I really felt GOOD, and it was _fantastic_. But in a year, that's the longest I've gone without pain. At least it gave me hope that it it _might_ actually be possible. > >> > >> You know, every one of us is going through tough times. And, short > > of a miraculous healing from the Almighty or a revolutionary > > breakthrough in science, it's not like the road ahead is looking better > > for any of us. We all live with pain on a daily basis > > > > > > I have to disagree with your comments above. Many of us with RA are > > doing very well, thanks to interventions of all sorts. I don't live > > with pain on a daily basis. Not any more. > > > > Sierra > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 Thanks Marina. My dd is trying to talk me into becoming a veggie too. She has been following it for over a year now. She had her cholesterol checked and it was great and she is o.k. with her iron level which I was worried about. So good for you and her. I dont think I have the will power to follow a diet like that. Joy marina_troi <marina_troi@...> wrote: Joy, you are not being too emotional. It gets to me, as well. My own family didn't get it until they saw just how sick I was getting. My dad keeps telling me that it's because of my diet. He thinks that just because I'm a vegetarian that I get sick all the time!! Truth is, I've been a vegetarian for nearly 25 years. This is the sickest I've ever been. He gave me that same song and dance when I had to have a hysterectomy. The fact that I had endometriosis, just as my grandmother did at my age, had absolutely nothing to do with it. His answer to everything is a good steak and a glass of wine will cure all. Of course, I'm the only one in the family with an excellent cholesterol level!! LOL Don't ever let someone think that you are being too emotional or that it's all in your head. Just reading the posts on this site should show you that it's not the case at all. When I feel like the world is crashing down on me and I have no support, I come here and see that I DO have support. THIS family understands. Take care, Marina > > Marina > I have had extreme pain and mild to moderate pain in RA. But I told my > Mom once that I just felt like crying like a baby when it was extreme. One > day I couldn't even sit still in church and had to leave and wait for my family in > the car. > And you are right while we may not look sick we may feel like death warmed > over. I am happy that there are people out there who can control their RA with > meds and get on with their lives but sometimes the drugs aren't the miracle > cure they claim to be on the commercials and that can be misleading > to the public. > One time I was at a reception hall and my sister said, so and so has RA and > they do fine and have a great outlook. She introduced me and the lady went on > and on about exercise and how it is all a state of mind and that you can't let it get you > down. Now my sister hears this > and she probably compares me to this other lady and it just broke my heart > and made me feel like the pain it was all in my head. Maybe I am just too emotional > but it hurt my feelings instead of making me feel better. > Joy Joy ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Visit Joy's Homepage and Reading Room! http://jhoormann-ivil.tripod.com Come see My Dog Salsa! http://www.geocities.com/jhoorm01/Salsa.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 I > I have it for years now. After initially diagnosed as bursitis and > having had prednisolone treatments it did not cure. After an MRI it > appeared to be coming from the lower back! > worn out cartilage on the discs lead to less space between the > vertebrae, and so less space for the nerves going down to hip and > leg.>>>>>>> > Exactly. I (after hip bursitis so bad I could not sit) had two discs removed and decompression surgery for the spine (stenosis). Scar tissue filled up the spaces and more Finally, because of all the back problems, I was diagnosed as having arthritis of the spine..... I wonder if this is true in your case? Something to ask.... right now it is KILLING me to sit on my right " buttock " at the computer. Last week I had a steroid shot. So far, it made me better for a couple of days.. I can't stand, I have stenosis. Gosh, it has to get better. At least with RA, it gets better as the day goes on...NOT so with my hip bursitis. Complain, complain....(grin) Pris ************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Hi everyone Especially everyone struggling with hip pain. I just joined this group, because I was recently diagnosed with RA. The first thing that got me on this group were the postings about hip pain. I have it for years now. After initially diagnosed as bursitis and having had prednisolone treatments it did not cure. After an MRI it appeared to be coming from the lower back! worn out cartilage on the discs lead to less space between the vertebrae, and so less space for the nerves going down to hip and leg. Sometimes the pressure is severe, causing stabbing pain in my right hip. (seldomly going down to the inside of the knee) Strengthening the lower back muscles, hip, glutes and hamstrings improves it quit a bit. Sitting and/or sleeping with a pillow under the knee helped, too. But sometimes it seems like " they " are stabbing me with a screw driver... This info is for all of you still trying to figure out what is causing the hip pain. I hope to find some answers about doctors, and diagnostic tests, diets, etc. take care > I have moderate to severe RA. I have very little pain to moderate pain. > However I am one of these people with an extremely high pain threshold. So I > rarely take any pain meds. If I do I am in bed!! Today is one of those days!! > > For the past two months my right hip has been bothering me. Went to see the > new rheummy and she blew me off and told me I did not have RA but I did have > bad bursitis. Did labs and scheduled me to return in a month to see the > Nurse Practitioner for an injection into my hip. I left with a script for > Lodine XL and that's it!! > > When I went for my next appnt, it was a mess..spent 2 hrs in financial > office cause this medical center sucks and can't seem to bill right. Then they > said I do not have ins....which I do...my plan changed the first of the year. > So after all this I missed my appnt!!! So I rescheduled and it will be > another month! > > In the meantime my right knee started swelling and huring three days ago. > The knee calmed down today...but now the right ankle, left elbow and left > wrist are starting to act up!! I would call the rheummy.....but hate to waste > gas driving there to get nothing but BS from these people. > > Toni > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.