Re: Hope Floats....so does you know what!!!!

[Guest guest]

In a message dated 1/26/2007 12:02:02 P.M. Eastern Standard Time,

bp101_brat@... writes:

I need to get off of here so I can do my favorite

activity right now....LAY DOWN AND REST!! Hehehe that must be a joke

with a four and six yr old in the house and me here alone. Thanks to

you all who read this and is still reading this and not thinking what

a wacko!!! I am beginning to question my own sainity; not a good

thing huh??

i would seek a different doctor, she seems not to care at all. HUGS

hope you can get some relief soon.

[Guest guest]

--- In , " bp101_brat " <bp101_brat@...>

wrote:

>

> I am having such a terrible time right now! This is probably the

> worst flare Ihave had since last year. It has been almost a week

now

> and I managed to get my Rhuemy to call in a pain med to get me

> through till I get up to see her!! She is just being so non

commital

> to me; MAKES ME WANNA SCREAM!! In fact that is all I have been

doing

> since they put me on Vicodin. Screaming at the kids I am soo

> grumpy!!! I have never had a med react that way with me?? But at

the

> same time beteewn all the screaming I am crying becuase I am in soo

> much pain. So I continue to take the pain med. I did get an appt

with

> her on Monday; but we ALL know that those red hot swollen joints

are

> going to be " normal " on appt day!! I am also working on second and

> third opinions at 's Hopkins and U of Penn. So hopefully I will

> find some help. I am so tired of her pushing me off and telling me

to

> just take the Plaquenil and things will settle and then keep

putting

> my prednisone up UP UP UP!! She now has me on 30 mg!!! I have been

on

> it almost a yr and I will never get off of it now. AND she has me

> walking with a cane! I am having a hard time with that since my

hands

> are soo sore too. I need to get off of here so I can do my favorite

> activity right now....LAY DOWN AND REST!! Hehehe that must be a

joke

> with a four and six yr old in the house and me here alone. Thanks

to

> you all who read this and is still reading this and not thinking

what

> a wacko!!! I am beginning to question my own sainity; not a good

> thing huh??

>

>

Hi my name is Bonnie. I can relate to you there are very

many mornings that I get the same way. I usually have to take advil

in the morning and Advil P.M. at night or just regular Advil at

night. The Advil does help me, I do not like taking it everyday but

if it helps I will.

I have many mornings and evenings that all I feel like crying too.

So you are not alone. Also I do not think that you are a wacko, or

insane you can not help how you feel. Hope things go better. Bonnie

[Guest guest]

Mellissa,

I am so sorry your are in such pain, I wish your doctor could feel what you

go through for a day and you would see her whip out her subscription pad in a

minute. We all understand and would never think you do not have every right to

vent especially when you are in such pain!!

Hugs

Marsha

bp101_brat <bp101_brat@...> wrote:

I need to get off of here so I can do my favorite

activity right now....LAY DOWN AND REST!! Hehehe that must be a joke

with a four and six yr old in the house and me here alone. Thanks to

you all who read this and is still reading this and not thinking what

a wacko!!! I am beginning to question my own sainity; not a good

thing huh??

[Guest guest]

HI ,

I'm so sorry to hear that you're having so much pain. Can you take a

photo of your swollen red joints and show it to your doctor on Monday?

I've needed to do that because every time I see the doctor my joints

look normal, even though they might be bad just a few days before my

appt.

Take care,

[Guest guest]

Hello !

I'm sorry you are having such a hard time. I also know what you mean about

those red, swollen joints going away just in time for your doctor's appointment!

I'm also the mother of 4 and 6 year old girls, so I know what challenge it is to

manage your pain and the children. Don't beat yourself up over it - this is not

an easy disease to deal with and you are only human. Keep pursuing your 2nd and

3rd opinions. I've been on plaquenil for over 3 months and Methotrexate for

almost 1.5 months and I'm still waiting to see some improvement, so I understand

your despair. Hang in there, because I'm sure things will get better for you

soon. Prednisone can effect your mood, so you might want to see if that is

causing you to loose your patience.

Lori

[ ] Hope Floats....so does you know what!!!!

I am having such a terrible time right now! This is probably the

worst flare Ihave had since last year. It has been almost a week now

and I managed to get my Rhuemy to call in a pain med to get me

through till I get up to see her!! She is just being so non commital

to me; MAKES ME WANNA SCREAM!! In fact that is all I have been doing

since they put me on Vicodin. Screaming at the kids I am soo

grumpy!!! I have never had a med react that way with me?? But at the

same time beteewn all the screaming I am crying becuase I am in soo

much pain. So I continue to take the pain med. I did get an appt with

her on Monday; but we ALL know that those red hot swollen joints are

going to be " normal " on appt day!! I am also working on second and

third opinions at 's Hopkins and U of Penn. So hopefully I will

find some help. I am so tired of her pushing me off and telling me to

just take the Plaquenil and things will settle and then keep putting

my prednisone up UP UP UP!! She now has me on 30 mg!!! I have been on

it almost a yr and I will never get off of it now. AND she has me

walking with a cane! I am having a hard time with that since my hands

are soo sore too. I need to get off of here so I can do my favorite

activity right now....LAY DOWN AND REST!! Hehehe that must be a joke

with a four and six yr old in the house and me here alone. Thanks to

you all who read this and is still reading this and not thinking what

a wacko!!! I am beginning to question my own sainity; not a good

thing huh??

[Guest guest]

,

I'm so sorry that you're going through such a rough time.

I don't know if the pain meds are making you scream or if it's just the fact

that you are in

constant pain with little ones to take care of. I'd be screaming too!

Here's an idea about those red swollen joints. Take pictures and have someone

else feel

those joints while they're hot. I constantly am waving my hands in front of my

husband

saying " feel how hot they are'. He's a good sport about it and an excellent way

to confirm

what I'm going through during my doctor's appointment.

Paige

[Guest guest]

, I can empathize with you. I walk with a fore-arm crutch

and some times I have to use two. But, that is so difficult because

of the pain in my hands and shoulders. I do know, however, that the

fore-arm crutch is a lot more stable to walk with and less painful

than a cane. I'm glad you are getting that second opinion. I did

that and ended up staying with my second opinion!!! He actually

tries to help me, unlike the doctor I went to first. She was a

waste of time, she just brushed me off as if I was an inconvience

for her. That just made me so angry. Sometimes you feel like you

need to scream, then scream as loud and as long as you can. Get the

emotions out. Don't stress out. It will only make your pain

worse. I know it's difficult with kids around. Don't let your doc

keep upping your prednisone. I was up to 100mg a day by the time I

got to my second opinion. The emotions you described are the ones I

felt when I was on the prednisone. The higher they upped my dose,

the worse the emotions got. Be careful with it. I hope your

appointment goes well for you. I will keep you in my

prayers....Gentle hugs, Marina

--- In , " bp101_brat " <bp101_brat@...>

wrote:

>

> I am having such a terrible time right now! This is probably the

> worst flare Ihave had since last year. It has been almost a week

now

> and I managed to get my Rhuemy to call in a pain med to get me

> through till I get up to see her!! She is just being so non

commital

> to me; MAKES ME WANNA SCREAM!! In fact that is all I have been

doing

> since they put me on Vicodin. Screaming at the kids I am soo

> grumpy!!! I have never had a med react that way with me?? But at

the

> same time beteewn all the screaming I am crying becuase I am in

soo

> much pain. So I continue to take the pain med. I did get an appt

with

> her on Monday; but we ALL know that those red hot swollen joints

are

> going to be " normal " on appt day!! I am also working on second and

> third opinions at 's Hopkins and U of Penn. So hopefully I

will

> find some help. I am so tired of her pushing me off and telling me

to

> just take the Plaquenil and things will settle and then keep

putting

> my prednisone up UP UP UP!! She now has me on 30 mg!!! I have been

on

> it almost a yr and I will never get off of it now. AND she has me

> walking with a cane! I am having a hard time with that since my

hands

> are soo sore too. I need to get off of here so I can do my

favorite

> activity right now....LAY DOWN AND REST!! Hehehe that must be a

joke

> with a four and six yr old in the house and me here alone. Thanks

to

> you all who read this and is still reading this and not thinking

what

> a wacko!!! I am beginning to question my own sainity; not a good

> thing huh??

>

>

[Guest guest]

Hello. U sound just like me. I have no kidding been in a flare from my RA

for a month now. I was sent to the ER nine weeks ago because everything and

I mean everything hurt. They ended finding through an MRI that I also have

arachnoids, a spinal steno sis like condition. basically I have the tumor like

cysts and lesions from the bottom of my spine all the way up. TRYING TO

KEEP MYSELF SANE WHEN I WAS ON VICODIN WAS HARD. THE MOOD ARSWINGS WERE

HORRIBLE. I DECIDED THAT THE SIDE EFFECTS WERE TOO HARD AND I HAVE BEEN OFF

VICODIN AND ON HYDROMORPHONE. FOR ME, THE EFFECTS ARE BETTER AND THE PAIN IS

BETTER

MANAGED.

[Guest guest]

Sorry to hear you are still in so much pain... hugs to you.. remember

take pictures.

oooxxxooo