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Re: Restless Legs info

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I think if you truly have RLS, you KNOW it.

It probably will be the first time in your life that you feel totally out of

control with your muscles, Your legs move on their own, there is no way to

stop it by using your muscles.

It is very annoying and scary.

Pris

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In a message dated 1/25/07 5:01:44 PM, res0bh3k@... writes:

> n my case, RLS displays itself a little differently. It feels like my

> muscles have been in a cramped position for a long time -- like how it

> would feel if you were stuck in a small box. It feels like I need to

> shake out my muscles or stretch them to get them " uncramped. " It's

> extremely uncomfortable.>>>>

>

Yes, I have that too, in addition to the kicking legs. I think it could be

from lack of potassium in the leg problem, do you take prednisone? It can

cause this lack.Also my doc told me it is from carpel tunnel in my hands.

They " freeze up " and hurt.....can't shake the legs out, but can shake the

wrists out.

So, I wear braces....

But consult your doc..

Pris

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In my case, RLS displays itself a little differently. It feels like my

muscles have been in a cramped position for a long time -- like how it

would feel if you were stuck in a small box. It feels like I need to

shake out my muscles or stretch them to get them " uncramped. " It's

extremely uncomfortable. But no matter how much I shake out or stretch

them, they continue to feel that way. There's no way I can sleep like

that -- it usually affects both my legs and my arms. A few years ago

after I'd tried everything to get some sleep, after several sleepless

nights, I went to my doctor's office and camped out on her doorstep

until she got there, and I started crying -- I was really out of it from

the lack of sleep.

> I think if you truly have RLS, you KNOW it.

> It probably will be the first time in your life that you feel totally

out of

> control with your muscles, Your legs move on their own, there is no

way to

> stop it by using your muscles.

> It is very annoying and scary.

> Pris

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I also have Restles Leg Syndrome. My mom who is 84 has it also and she read the

vitamin E helps. We both tried it and it is amazing how much better we both

are. You do have to take it everyday but it did work for us. Also it is

inexpensive to purchase.

MeMom

-------------- Original message --------------

From: " susan100250 " <res0bh3k@...>

In my case, RLS displays itself a little differently. It feels like my

muscles have been in a cramped position for a long time -- like how it

would feel if you were stuck in a small box. It feels like I need to

shake out my muscles or stretch them to get them " uncramped. " It's

extremely uncomfortable. But no matter how much I shake out or stretch

them, they continue to feel that way. There's no way I can sleep like

that -- it usually affects both my legs and my arms. A few years ago

after I'd tried everything to get some sleep, after several sleepless

nights, I went to my doctor's office and camped out on her doorstep

until she got there, and I started crying -- I was really out of it from

the lack of sleep.

> I think if you truly have RLS, you KNOW it.

> It probably will be the first time in your life that you feel totally

out of

> control with your muscles, Your legs move on their own, there is no

way to

> stop it by using your muscles.

> It is very annoying and scary.

> Pris

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ok, i do get restless leg syndrom real bad. But, does anyone else get

restless BODY syndrom??? I'm not joking. Sometimes it feels like

the restless leg issue, only it's all over my body. I am so envious

of my cat with the way she can stretch. It just looks sooo satisfying

to her. I want to be able to stretch that way. Maybe that would help

with the restless body!!....marina

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Yes! I've had " restless body " before, too. It's EXTREMELY uncomfortable!

>

> ok, i do get restless leg syndrom real bad. But, does anyone else get

> restless BODY syndrom??? I'm not joking. Sometimes it feels like

> the restless leg issue, only it's all over my body. I am so envious

> of my cat with the way she can stretch. It just looks sooo satisfying

> to her. I want to be able to stretch that way. Maybe that would help

> with the restless body!!....marina

>

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--- In , " marina_troi " <marina_troi@...>

wrote:

>

> ok, i do get restless leg syndrom real bad. But, does anyone else

get

> restless BODY syndrom??? I'm not joking. Sometimes it feels like

> the restless leg issue, only it's all over my body. I am so envious

> of my cat with the way she can stretch. It just looks sooo

satisfying

> to her. I want to be able to stretch that way. Maybe that would

help

> with the restless body!!....marina

>

I also suffer from restless leg syndrom but maybe not as bad. I can

stretch out my legs and try to see if it helps, sometimes I do have to

get up out of bed when that happens. I do not get restless Body syndrom

but I am sure that is terrible. Bonnie

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It's also important to know what the side effects are for the meds

we are taking, because some of them can actually cause RLS. I had

severe RLS for several years. Nothing helped. Then I got a new

doctor. She took me off of Paxil, because one of the side effects

can be RLS. Six months on now, I have no sign of RLS. Don't let

the side effect list scare you, because not everyone gets side

effects from their meds. But sometimes it's good to know what the

possibilities are.

>

> Thank you !

>

> The information you provided is very helpful. I do walk often,

take

> yoga and do light weight training. Today I will make an appt with

my

> neuro to see if I do have Restless Leg Syndrome.

>

> In the past when I had insomnia I also was very itchy. Allergy

tests

> were negative. It's good you listed itchy as a symptom! I have the

most

> trouble on Saturday night. Maybe because I don't exercise on

Saturday.

> We only do laundry and errands. Insomnia makes my fibromyalgia

symptoms

> worse.

>

>

>

> Debbie L

>

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