IF you were denied BRM therapies by your Insurance

[Guest guest]

I need to hear from the people here who have ever been denied BRM's by their

insurance companies to treat their case of Stills Disease. These drugs include

Remicade, Enbrel, Kineret and Humira. Please also tell me the name of the

Insurance company that denied you the medication and the reason for the denial.

I would also like to know if you currently are still unable to obtain your

medication in this drug class despite your doctors prescription for the drug.

Also, do I have your permission to use this information for a research

document as in, can any or all of your facts presented in an email to me (except

things like names and email addresses) be used to help make some needed changes

that will benefit ALL Stills Disease patients?

I need this information immediately if not sooner. LOL Thanks. This

information is very important for a research project I am currently working on.

Smiles, Caroline

Empress of CUS

(Beautiful Southern Oregon, USA)

We may not be able to change the direction of the wind, but we can adjust our

sails.

May you have enough happiness to make you kind, enough trials to make you

strong, enough sorrow to keep you human, enough hope to make you happy.

---------------------------------

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Got holiday prints? See all the ways to get quality prints in your hands ASAP.

[Guest guest]

OOPs, I forgot to tell you to reply to me in person, not to the group. My email

is blacklionent@.... Thanks. Smiles, C-1

C J wrote: I need to hear from the people

here who have ever been denied BRM's by their insurance companies to treat their

case of Stills Disease. These drugs include Remicade, Enbrel, Kineret and

Humira. Please also tell me the name of the Insurance company that denied you

the medication and the reason for the denial. I would also like to know if you

currently are still unable to obtain your medication in this drug class despite

your doctors prescription for the drug.

Also, do I have your permission to use this information for a research

document as in, can any or all of your facts presented in an email to me (except

things like names and email addresses) be used to help make some needed changes

that will benefit ALL Stills Disease patients?

I need this information immediately if not sooner. LOL Thanks. This

information is very important for a research project I am currently working on.

Smiles, Caroline

Empress of CUS

(Beautiful Southern Oregon, USA)

We may not be able to change the direction of the wind, but we can adjust our

sails.

May you have enough happiness to make you kind, enough trials to make you

strong, enough sorrow to keep you human, enough hope to make you happy.

---------------------------------

Yahoo! Photos

Got holiday prints? See all the ways to get quality prints in your hands ASAP.

[Guest guest]

Caroline,

The only treatment My insurance company denied me was/is Rituxan. They said

that there isn't enough info for its use on RA and Still's Disease. That I

needed to try Remicade, and if that fails to work then my DR can resubmit for

Rituxan to see if they will then approve it.

Rituxan is the treatment they use for Non-Hodgkins Lympoma, it is administered

to RA sufferers at almost the same dose, in some instances higher than the

Cancer treatment. Of all the studies I have read it has done amazing things, but

as we all know Stills disease does not work like other illnesses, and our bodies

respond differntly than that of people who are suffering from RA alone.

I don't know if this info will help you but it is all I have to give you.

Thanks,

Lara

[Guest guest]

Hey Brett....I was on Enbrel from 5/04 until 12/04. I must admit I did notice

a huge difference with it, at least in regards to joint pain and such. I even

was able to work a little bit while on it. (I was an Auto Tech. and my job was

incredibly physical)

What stopped me from having it any longer were a bunch of neurological

problems I developed that all of my Dr.s think was related to Enbrel.

I have much less neuro problems now, but have too many others, such as the

joint pain, swelling, inability to move at times, etc... So Enbrel must have

been doing some good, and quite possibly in my case, some bad.

I have had the headaches since Stills started, and they were no different

with Enbrel. The problems I developed were double/quadruple vision, slurred

speech, my legs would " go out " ...among others.

Since then I was on Gold, but that did nothing. The whole time I was never

able to get below 12.5 mg/Prednisone per day, and currently am at 17.5 mg/day.

My Rd wants me to start Kineret, but I have an appt. @ s Hopkins

upcoming (the SOB(s) made me wait a bit better than 2 months for it!!!) and they

want him to hold off on starting it until they see me.

As far as fishing goes, I can't wait until spring as I am going nuts as I

DESPISE this time of year. It isn't helping matters that save for a day here and

there I have felt like s*** since October and have gained way too much weight. I

am praying that I will feel better with warmer weather and will be able to

become somewhat active again, and fishing is about the only thing left that I

enjoy that I am able to still do.

Catch you later, Kirk.