Regarding orencia and hello to the board, welcome to newcomers also...

[Guest guest]

Jeanine,

I have been waiting to hear from others on Orencia. 6 or 7 on the

pain scale is bad for you?? Honey, that is heaven for me. My pain

level is usually borderline flare ( 9 to 9.5). I can actally feel

like a human being with 6 or 7 level but 8 is no good, we all want

Zero!! LOL! And we deserve to go in remission once in a while for a

long while, right? Orencia is good. Not be all, end all but it's

okay. I am not dreading taking it or anything, but leery of

increased health risks and not listening to anyone telling me

different. All meds have a health risk including aspirin the most

common medicine there is. Many of us can't stomach it. Nonetheless,

will stick it out until recommended time and go from there. What

other alternatives did your doc mention if the orencia turns out not

to be your thing? The one! Wishing you relief soon on it.

I have been away from the boards and will probably be away for awhile

longer trying to keep up with the healthy people on my typing job for

as long as the crooked fingers will allow. LOL! The fingers do turn

numb, cold, and blue at times, but typing with them may keep

circulation going I am hoping. I have to try at least.

Hope all is well with every one. Do at least one thing you

absolutely adore today and everyday to bring peace and joy into your

life. Singing in the shower, dancing, painting, sitting by the

beach, being out in nature, watching comedy, telling a joke, teaching

someone to read, etc., only make sure it's legal and if your

enjoyable thing involves someone else make sure it's consentual.

Many blessings!

" To thine ownself be true... "

>

> Wow, after several months of hemming and hawing and trying Immuran,

I

> finally started my Orencia 2 weeks ago. I had my second infusion

yesterday.

> So far so good. I have had no adverse reactions, although I also

have had

> no relief. I know that it takes time (don't they all!) but, this is

the

> worst flare I have ever had. My pain sits around a 6-7 and my

fatique

> around a 9-10. I am hopeful though that the Orencia will work.

There isn't

> anything else out there for me right now. I can't even take

prednisone for

> breakthrough pain because I have begun to develop cataracts with

the small

> doses we used the first couple of years after my diagnosis.

>

> I am getting my Orencia infusions done at an Oncologists office.

It is

> really relaxed and they are very efficient. I am there for less

than an

> hour, 30 minutes of that is actually receiving the medication. The

rest is

> waiting for a chair and getting hooked up and un-hooked up. I go

straight

> from there to work. Not as convenient as doing the injections

myself, but

> after the next injection it will only be once a month, and if it

works it

> will be well worth it!

>

>

>

> Jeanine

>

> Florida

>

>

>

>