Re: Re: Missy - my personal story - Kathe Toni

[Guest guest]

Hi Toni:

You are very right, these special children are such

fighters, and truly are a blessing in our lives, even

with all the pain and worry. At 2 pounds, and very

sick, my son fought with such strength to live, that I

was amazed and humbled. Your daughter is in my

prayers, as are you, and all children with special

needs, and their parents.

Kathe in CA

--- Ms radar <aclavern33@...> wrote:

> It does strike a cord that only parents with special

> needs kids can

> understand. My daughter was born with sickle cell

> anemia, Its very

> hard to watch her go through all the pain,

> procedures constant

> hospitalizations and in the back of my mind I know

> that some

> day...this disease may kill her.

>

> All it will take is a blood clot to her lungs heart,

> kidneys or brain.

>

> At the same time these children show us the strong

> the human will to

> like really is. No matter what they seem to bounce

> back somehow when

> as an adult I don't think I could.

>

> Toni

>

>

>

> > >

> > >

> > >

> > > In a message dated 1/5/2006 12:18:40 PM Central

> > > Standard Time,

> > > mtbargeman30@y... writes:

> > >

> > > Hi, guys. My name is . I was dx'ed with RA

> on

> > > Monday. I wonder if

> > > anyone can give me suggestions about how to take

> > > care of myself and

> > > fight fatigue. (I know that sounds whiny, but I

> > > really feel like

> > > roadkill). Also, should I tell my kids now, or

> wait

> > > til I get my

> > > regular meds for this? Does any one have any

> info or

> > > suggestions?

> > >

> > > Any info at all is appreciated.

> > >

> > >

> > >

> > > Hi and Welcome! I'm I'm fairly new

> > > here too and this group has

> > > been so helpfull! Please dont hesitate to vent,

> > > whine whatever youneed to

> > > do, we understand. here is a link to the main

> site

> > > that was given to me:

> > >

> > > _http://arthritissupport.info/_

> > > (http://arthritissupport.info/)

> > >

> > > there is tons of info and links on this site.

> Have

> > > you seen a Rheumatologist

> > > yet? Have they given you any meds? Tell your

> > > children if you feel they need

> > > to know. Hugs take care talk soon

> > >

> > >

> > >

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

In a message dated 1/10/2006 6:44:50 PM Central Standard Time,

i_am_catsy@... writes:

oh...dear i must apologize here..to all the ones who don't know me...i tend

to be very wordy at times...so please forgive me...i try but sometimes the

words just tumble out.

Oh please dont apologize! its ok, honest. I know i can go on and on

sometimes myself. we all do. HUGS

[Guest guest]

Toni...i will second Kathe on that these special children are real

fighters...she has heard my daughter's story before and the story has run sort

of parallel with her son's. The struggles did not end with just being born 3

months premature...they continued with the two year battle of in and out of the

hospital with pneumonia and with the onset of seizure disorder (which she

finally outgrew and even spent 3 years in the Army and has had two sons)...and

other stumbling stones. Now at 31, she still has things to overcome....but she

is overcoming obstacles almost daily as that is how she takes them. One of my

biggest fears is that she has FMS...because a couple of years ago a list of 150

things that usually precede a diagnosis of FMS was posted here...she is already

meeting a majority of them.....and now with the AS i have...from what i read

some of those things could be a predecessor of AS...

....and oh by the way, Kathe....my daughter is a TA in a charter school now

with the dream of becoming a kindergarten teacher....and with special needs

children if she can find the right school eventually. When she first became a

TA (just before the Army)...she was a TA one on one to a 7th grade austistic boy

who would not let anyone near him....in the semester she had him....he came to

love her..and it was very traumatic for both him and his parents when the

funding for the TA's that year was removed in San Diego. She also spent one

year TAing at a state run school here in AZ with special needs children...she

only left because taking the new position last August afforded her more time at

home with the work/school load but she misses the school and i would not be

surprised if she returns..(they want her back any way they can get her...so we

will see..)

...oh...dear i must apologize here..to all the ones who don't know me...i tend

to be very wordy at times...so please forgive me...i try but sometimes the words

just tumble out.

Love, Prayers, HUGGS, and positive thoughts....always

CAT/Jan =^..^=

Kathe Sabetzadeh <lv2ryd@...> wrote:

Hi Toni:

You are very right, these special children are such

fighters, and truly are a blessing in our lives, even

with all the pain and worry. At 2 pounds, and very

sick, my son fought with such strength to live, that I

was amazed and humbled. Your daughter is in my

prayers, as are you, and all children with special

needs, and their parents.

Kathe in CA

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[Guest guest]

In a message dated 1/11/2006 5:37:46 AM Central Standard Time,

aclavern33@... writes:

god does place anything on us that we can not

handle. Even though we feel at times we are overburdened...god knows!

i wish i could believe that.