Re: Emu oil (and a few other things!)

March 6, 2006

I've never heard of Emu oil being used for joint pain, but I suppose I would

try it. I use Emu oil on my dog's to grow coat! LOL. It's expensive stuff,

but very good. I'll try rubbing some oil on my joints and let you know if I

feel anything different.

As for jaw pain, yes I used to suffer really bad from jaw pain, but since

I've had the majority of my teeth pulled, the jaw pain has dissipated. The only

problem I have nowadays with my jaw is grinding my bottom eight teeth into my

bare naked gums. Not fun and I'm going to have to get a mouth protector to

prevent myself from making my gums bloody.

Which leads me to the possibility that those of us with jaw pain and that

have not been dx with TMJ, I have a sneaking suspicion that we have the tendency

to grind our teeth when we are asleep and that would be part of the reason

we have the joint pain in the first place. It makes sense to me. When we deal

with so much pain, it maybe that we are taking it out with our mouths and

jaws. Anyone else agree?

Much love,

Terry

March 6, 2006

Hi Katy

I've had TMJ pain for a past few years. My dentist made me a mouth

guard which worked well. My jaw hurt a lot for the first 2 years, but

now just clicks in and out if I bite hard or open my mouth too wide.

It's not as painful, perhaps because it's slipped in and out so often

that it's worn down. I am told that TMJ pain is common with Stills,

or Lupus, as I have.

Can't help with the other questions, although I do have twitching/

jerking in my hands etc, but I have recently found out it is due to

syndrome, which means the blood doesn't flow as efficiently as

it should to my brain, amongst other places. Aspirin has helped, but

I don't advise you start without seeing you doctor.

Love to all

Caroline no. 2 (UK)

> Hello all,

>

> Firstly, welcome to all the new people. I don't tend to post much but

> I 'lurk' regularly and keep up to date with all the news. This is a

> great place to pick people's brains. Talking of which.......has

> anyone tried Emu Oil for joint pain? I've been reading lots about it

> recently and it seems that many people have found relief with it when

> rubbed on their joints. I bought some to satisfy my curiosity but I

> have to say it's a great moisturiser but not a lot more at the

> moment! Am I just too impatient?!

>

> My second brain picking question is about jaw pain. I'm having real

> problems chewing for any length of time as it really hurts. Is the

> jaw a fairly common place for Stills to 'attack' or is it something

> totally unrelated maybe?It hurts right up near my ear but is

> definitely my jaw rather than the ear if that makes any sense. It

> actually hurts a bit to touch there. Any thoughts anyone?

>

> One more for the road if i may......weak hand! You may remember me

> posting before about shaking in my hands. Well, I've still got the

> shakes badly in both my hands but recently my left hand feels very

> strange...kind of 'tight' and I can't seem to grip anything properly

> with it. I can't hold a fork in it for example and I'm dropping

> things. I've got an appointment with the neurologist but not until

> the end of may. It was supposed to be at the end of March but the

> hospital haven't got any staff so they've put my appointment back 2

> months! Good old NHS! Is this all pred related maybe?

>

> I had a pretty good few weeks after the IV pred but unfortunately

> was 'too well' when it came to my assessment for enbrel. I

> know...barmy or what! Anyway, the RD knows how bad things get without

> the pred so she's re-assessing me on 15th March. Things are flaring

> badly again at the moment so I'm hopeful that I'll get

> enough 'points' to qualify this time. I've got a session of

> acupuncture booked next week. I'm not sure whether it will help but

> I'll give anything a go at this stage. Anyone tried it?

>

> Hope you're all hanging in there. Take care everyone.

>

> Love

> Katy (UK)

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

> The materials and information contained in this message are not

> intended to replace the services of a trained health professional

> or to be a substitute for medical advice of physicians and/or other

> health care professionals. The International Still's Disease

> Foundation is not engaged in rendering medical or professional

> medical services. You should consult your physician on specific

> medical questions, particularly in matters requiring diagnosis or

> medical attention. The International Still's Disease Foundation

> makes no representations or warranties with respect to any

> treatment, action, application, medication or preparation by any

> person following the information offered or provided within this

> support form.

>

> ion by any person following the information offered or provided

> within this support form.

>

March 6, 2006

Katy,

Have not heard of emu oil used for joint pain, but know it is used for

inflammation elsewhere.

As for jaw pain, many of us have that. MY PT has been doing massage on my

jaw to help loosen it up, I get terrible headaches from the jawpain too.

Let us know how the acupuncture goes, I have always wanted to try it but

cannot afford it, I have heard it can take several sessions so you might

have to give that time too,

Lynn

-- Emu oil (and a few other things!)

Hello all,

Firstly, welcome to all the new people. I don't tend to post much but

I 'lurk' regularly and keep up to date with all the news. This is a

great place to pick people's brains. Talking of which.......has

anyone tried Emu Oil for joint pain? I've been reading lots about it

recently and it seems that many people have found relief with it when

rubbed on their joints. I bought some to satisfy my curiosity but I

have to say it's a great moisturiser but not a lot more at the

moment! Am I just too impatient?!

My second brain picking question is about jaw pain. I'm having real

problems chewing for any length of time as it really hurts. Is the

jaw a fairly common place for Stills to 'attack' or is it something

totally unrelated maybe?It hurts right up near my ear but is

definitely my jaw rather than the ear if that makes any sense. It

actually hurts a bit to touch there. Any thoughts anyone?

One more for the road if i may......weak hand! You may remember me

posting before about shaking in my hands. Well, I've still got the

shakes badly in both my hands but recently my left hand feels very

strange...kind of 'tight' and I can't seem to grip anything properly

with it. I can't hold a fork in it for example and I'm dropping

things. I've got an appointment with the neurologist but not until

the end of may. It was supposed to be at the end of March but the

hospital haven't got any staff so they've put my appointment back 2

months! Good old NHS! Is this all pred related maybe?

I had a pretty good few weeks after the IV pred but unfortunately

was 'too well' when it came to my assessment for enbrel. I

know...barmy or what! Anyway, the RD knows how bad things get without

the pred so she's re-assessing me on 15th March. Things are flaring

badly again at the moment so I'm hopeful that I'll get

enough 'points' to qualify this time. I've got a session of

acupuncture booked next week. I'm not sure whether it will help but

I'll give anything a go at this stage. Anyone tried it?

Hope you're all hanging in there. Take care everyone.

Love

Katy (UK)

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

The materials and information contained in this message are not intended to

replace the services of a trained health professional or to be a substitute

for medical advice of physicians and/or other health care professionals. The

International Still's Disease Foundation is not engaged in rendering medical

or professional medical services. You should consult your physician on

specific medical questions, particularly in matters requiring diagnosis or

medical attention. The International Still's Disease Foundation makes no

representations or warranties with respect to any treatment, action,

application, medication or preparation by any person following the

information offered or provided within this support form.

ion by any person following the information offered or provided within this

support form.

March 6, 2006

Please, do keep us posted on this! I've been trying Reiki. It's very

relaxing but doesn't seem to be helping with the Still's. I've been

thinking about acupuncture...haven't heard from anyone who has tried

it, but my local acupuncturist says she has worked with a lot of

patients with Lupus with great success.

in Maine

I've got a session of

> > acupuncture booked next week. I'm not sure whether it will help but

> > I'll give anything a go at this stage. Anyone tried it?

March 6, 2006

Hi ,

I know of a person here locally that is having Acupuncture to help her be

more managed with RA.

She says it is helping her so much with the pain and stiffness. I would do

this too if my health insurance paid for it but it won't.

in Oregon

>

> Please, do keep us posted on this! I've been trying Reiki. It's very

> relaxing but doesn't seem to be helping with the Still's. I've been

> thinking about acupuncture...haven't heard from anyone who has tried

> it, but my local acupuncturist says she has worked with a lot of

> patients with Lupus with great success.

>

> in Maine

>

> I've got a session of

> > > acupuncture booked next week. I'm not sure whether it will help but

> > > I'll give anything a go at this stage. Anyone tried it?

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

> The materials and information contained in this message are not intended

> to replace the services of a trained health professional or to be a

> substitute for medical advice of physicians and/or other health care

> professionals. The International Still's Disease Foundation is not engaged

> in rendering medical or professional medical services. You should consult

> your physician on specific medical questions, particularly in matters

> requiring diagnosis or medical attention. The International Still's Disease

> Foundation makes no representations or warranties with respect to any

> treatment, action, application, medication or preparation by any person

> following the information offered or provided within this support form.

>

> ion by any person following the information offered or provided within

> this support form.

>

March 6, 2006

Agreed, Terry! I have TMJ, and didn't begin grinding my teeth until after

becoming sick. Perhaps it is how we deal with pain at night while sleeping.

During the day, I believe we may clench our teeth during the day without

realizing it, too.

Massage does help. So does a mouth guard fitted, usually, to the lower teeth.

As for acupunture, I tried it for several months once. It didn't provide any

relief for me, but was incorrectly diagnosed at the time. I wouldn't discount

acupuncture. Just because no relief was found here doesn't mean it will not

help others.

In Peace,

Barbara

March 7, 2006

In a message dated 3/6/2006 11:33:36 P.M. Eastern Standard Time,

bgard@... writes:

As for acupunture, I tried it for several months once. It didn't provide

any relief for me, but was incorrectly diagnosed at the time. I wouldn't

discount acupuncture. Just because no relief was found here doesn't mean it

will

not help others.

I almost forgot to talk about acupuncture. Thanks for reminding me Barb.

LOL. I have had acupuncture when my shoulder and elbow were really bad. When my

rheumy administered acu, he also followed up with physical therapy. In fact,

he would insert the needles into various parts of my arm and then attach them

to electrodes where electric stimulation was administered. For me, it worked

really well and I was out of acute pain very quickly.

However, when I first began this journey with the good old dragon, my rheumy

would not allow me to have acupuncture because of something to do with my

muscles. I can't remember the exact reason. I can remember being very

disappointed, but since my rheumy is from China, I figured he knew best. I trust

his

judgment and the man has kept me together pretty well over the last eight

years. I don't know what I would do without him.

So, that's my take on acupuncture. Take care.

Much love,

Terry

March 15, 2006

, just wanted to remind you I'm thinking of you in all your misery. Hope

you are getting your mom to bake you a cake over there! Hugs and love, Tammi

Emu oil (and a few other things!)