Re: Swollen Ankles

[Guest guest]

Please ask the doc first here are just some of my thoughts.....Driving in

the car causes a decrease in circulation so swelling may increase.

....Also..eating out has so much more salt than we normally eat ,so your body

may have

extra fluid in it. If the doctor agrees maybe you can try to walk a bit every

hour or so...and eat some apples and home made sandwhiches...Ok that's just a

thought. Travel although fun ,causes stress and may make the disease poke

its face out the window....grrrrrrrr...Hugs Liz NJ

[Guest guest]

Sam

this happens to me any time I do a lot of walking and the hotter it is out

side the worse they get . my kids used to call me elephant or say I had

elephant feet from it . I also if seatting a long time as on a drive to the

SF area or Idaho get the same thing . some times it happens more then others

and the only thing I can find is heat and some stime my salt intake

were in the vally do you live I am out here in the Fresno area?

hugs all and lets kick some dragon butt okay!

Marty

-- Swollen Ankles

Hello one and all...

We've just returned from a whirlwind trip down south to San Diego, up

through Orange County, a stop in Morro Bay and on home to the central

valley. I am wondering if anyone else has experienced really swollen

ankles?

[Guest guest]

Ok Sam when you find out let me know .My ankles have been like that for about

three months now. I showd one of my doctors and he said it might be water

retension. I don't think so. Sometimes they don't hurt but feel funny and other

times they hurt alot.

When yours gets better, let me know what you did.

hugs; paulette

Sam Rocci wrote:

Hello one and all...

We've just returned from a whirlwind trip down south to San Diego, up

through Orange County, a stop in Morro Bay and on home to the central

valley. I am wondering if anyone else has experienced really swollen

ankles? They seem to have swelled up while we were driving. It's

weird because I was able to keep up with the kids through LegoLand,

the museums, the beach and all without too much pain (a vicodin here

and there)... it was the sitting in the car that got me... They

really hurt and are still very puffy. My hands are a bit puffy as

well. I thought maybe it was not drinking enough water so I stopped

at Costco and bought a case of arrowhead bottles and have been

powering them down. Any suggestions for getting them to un-swell?

Thanks!

Sam

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professional medical services. You should consult your physician on specific

medical questions, particularly in matters requiring diagnosis or medical

attention. The International Still's Disease Foundation makes no representations

or warranties with respect to any treatment, action, application, medication or

preparation by any person following the information offered or provided within

this support form.

ion by any person following the information offered or provided within this

support form.

[Guest guest]

Hi Sam and others;

I have been plagued with swollen ankles while traveling and on my feet a lot for

years. Ask your doctor what may be causing it because there are several reasons

not to scare you, but DVT or (clot) among them.

I was perscribed to put them up above my heart and also I wear those adorable

white stockings at times, called ted hose.

The most important thing is not to self diagnose but ask your doctor and putting

them up can't hurt.

Hope this helps, Melt

----- Original Message -----

From: Sam Rocci

Hello one and all...

We've just returned from a whirlwind trip down south I am wondering if anyone

else has experienced really swollen

ankles?

[Guest guest]

Hi Sam,

I have a lot of problems with swollen ankles. Partly due to breaking both of

them. Partly due to permanent tendinitis. Elevating helps and so do the white "

lovely looking " compression stockings (hose). I use them while elevating my feet

when they are swollen. The ankle swelling goes down faster with them. They also

make some that look more like regular hosiery and trouser socks. It is also good

to wear them when you going to be on your feet a lot and especially when

traveling by airplane to help prevent DVT (Deep Venous Thrombosis). I learned a

lesson the hard way about not being embarrassed to wear them. I developed

blood-clots in a long plane flight. So between high doses of prednisone making

me more susceptible to blood clots and the long plane trip, I developed

avascular necrosis in both hips with edema in the bone marrow. I would wear

those hose any day now. You don't have to be elderly to need them. Maybe check

with your doctor. And you can get the hose at a medical supply

store or through a travel clothing catalogue. Mandy

Sam Rocci wrote:

Hello one and all...

We've just returned from a whirlwind trip down south to San Diego, up

through Orange County, a stop in Morro Bay and on home to the central

valley. I am wondering if anyone else has experienced really swollen

ankles? They seem to have swelled up while we were driving. It's

weird because I was able to keep up with the kids through LegoLand,

the museums, the beach and all without too much pain (a vicodin here

and there)... it was the sitting in the car that got me... They

really hurt and are still very puffy. My hands are a bit puffy as

well. I thought maybe it was not drinking enough water so I stopped

at Costco and bought a case of arrowhead bottles and have been

powering them down. Any suggestions for getting them to un-swell?

Thanks!

Sam

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

The materials and information contained in this message are not intended to

replace the services of a trained health professional or to be a substitute for

medical advice of physicians and/or other health care professionals. The

International Still's Disease Foundation is not engaged in rendering medical or

professional medical services. You should consult your physician on specific

medical questions, particularly in matters requiring diagnosis or medical

attention. The International Still's Disease Foundation makes no representations

or warranties with respect to any treatment, action, application, medication or

preparation by any person following the information offered or provided within

this support form.

ion by any person following the information offered or provided within this

support form.

[Guest guest]

Thank you Melt,

I doubt it's a blood clot because they don't hurt but just get really big.

Hugs; ginger

mellymelt wrote:

Hi Sam and others;

I have been plagued with swollen ankles while traveling and on my feet a lot for

years. Ask your doctor what may be causing it because there are several reasons

not to scare you, but DVT or (clot) among them.

I was perscribed to put them up above my heart and also I wear those adorable

white stockings at times, called ted hose.

The most important thing is not to self diagnose but ask your doctor and putting

them up can't hurt.

Hope this helps, Melt

----- Original Message -----

From: Sam Rocci

Hello one and all...

We've just returned from a whirlwind trip down south I am wondering if anyone

else has experienced really swollen

ankles?

[Guest guest]

I'm sorry to disagree Ginger. Mine hurt like I had pulled a muscle in the calf

of the leg. This is why it's so important to see a doctor for diagnoses. Melt

Re: Swollen Ankles

Thank you Melt,

I doubt it's a blood clot because they don't hurt but just get really big.

[Guest guest]

Sorry what I ment to say was mine doesn't hurt but my legs do swell too at

times. If I keep walking on the ankles then it will go up the leg too but

mostley it's just the ankles and they don't hurt just get big.

I will call my doctor anyway. I don't need another thing to come on me as I

have too many already.

Hugs; ginger

mellymelt wrote:

I'm sorry to disagree Ginger. Mine hurt like I had pulled a muscle in the

calf of the leg. This is why it's so important to see a doctor for diagnoses.

Melt

Re: Swollen Ankles

Thank you Melt,

I doubt it's a blood clot because they don't hurt but just get really big.

[Guest guest]

Hi Sam;

Sincere apologies for the late response. I'm glad you had a fun vacation,

but so sorry it was punishing. Travel is hard on me, too, even when I spend

most of the trip sleeping. As Melt said, be sure to talk to your doctor.

Swollen ankles may be a sign of Congestive Heart Failure (CHF). The chance of

that being the problem is unlikely.

When one has CHF there may be narrowing of the arteries, heart valve

disease due to Rheumatic Fever in childhood, or an overload of fluid in the

system and the heart can't pump effectively. Because the heart can't keep up

with the overload, fluid leaks out and creates edema (swelling) in the

extremities. Walking is good, as is limiting intake of fluid, and your

physician may prescribe a diuretic. Talk to your physician first. Many people

live with CHF for decades. I take a diuretic, but don't have CHF.

This is just one possibility for edema in the extremities, and an unlikely

one. When our son got married 16 years ago, it was in the desert during the

summer. No air conditioning in the church, and the reception was in his Aunt's

backyard. Back then, I wore heels for those occasions. Not good for a bad

back, bad hips, or bad knees. Before the end of the day I was swollen badly in

my feet, ankles, lower legs, hands, and wrists. I didn't have CHF, the

traveling, heat, and walking (especially in heels) was just too much for me.

The cold is very difficult for some Stills victims, for me, and many others, it

is the heat.

Wearing the right shoes is very important for many of us, too. It took me

forever to find a couple of good brands, finally did, and I stick with those

brands. They aren't always the most attractive shoes, and are expensive, so I

make them last for years.

If you can, keep your legs elevated when resting. Let us know what your

physician has to say after your appointment. Be kind to yourself!

Much love,

Barbara Gardner

Ventura, CA