New to the Group

[Guest guest]

Hi,

I have been reading many of your messages and can relate to so much

of all of them. I have had Lupus for 28 years diagnosed when I was

17. It was no picnic. So many ups and Downs with higher and higher

doses of prednisone to keep it under control. I know medicine has

come far and there are so many new drugs out there but unfortunately

for me the years of prednisone has already done its damage.With my

lupus came Kidney complications as well. Whenever I would have a

flare my kidneys got worse. In Aug of 1994 I had a Kidney transplant

that was a great success. My youngest brother donate his kidney. All

had gone well up until last year when I found out I am going into

chronic rejection and will be needing a new kidney once again. Its

strange ever since I had my transplant it seems like my Lupus kinda

burned itself out. Granted the med's I take for anti -rejection are

very similar to what I would take for lupus. I sometimes feel like I

do not belong in a Lupus support group because the acutual lupus

part of my disease has done its damage and I am now dealing more

with Kidney issues. Which ever way it stinks!! I amnot looking

forward to another transplant. I guess i know too much of what to

expect since having one already.

But I have still managed to push on and make something of my life.

I finished college with many stops and starts do to Lupus. I married

and have two beautiful adopted children. Its just nice to be able to

moan and groan aboutthis to others that truely know and feel its OK

to say sometimes life just doesn't seem fair!!

Thanks for listening.