Re: Upset and need support!

[Guest guest]

Holly,

Sorry for your problems with your new medical problem, meds and

financial. I can imagine how you feel. I would still try to stay

positive about and hope things turn around with the proper

treatment. Fear attracts the things we fear in the first place.

Just remember when you are going through these things you have a lot

of people here rooting for you.

Many of us are there where you are or have been there. There aren't

easy answers as each situation is unique to you and the way your

condition presents itself or respond to treatment.

I was in a similar situatiion and had to leave work. I took many of

what you mentioned, the remicade, enbrel, predn., pain patches,

mtx.flonase, skelaxin, and others all at once trying to continue

working. I had to go back home eventually. Maybe the study you are

doing will bring answers for your current situation. Have you tried

the biologics along with mtx? I know it can be extremely frustrating

trying to keep your job when the work of 2 people is expected from 1

person and you are just trying to keep up.

However, maybe you can get the job to approve long term disability,

apply for ssd and train for something you could do w/your conditions

sitting or little stress to the body. OR maybe can you transfer to a

less demanding job in your company.

Hang in there.

Ebony

--- In , " Holly " <hollybgroovin2003@...>

wrote:

>

> I am in a very upseting position and don't know what to do. I came

> back from short term disabilty about 3 months ago. My doctor didn't

> approve but signed my release anyway. I am in a full blown flare,

> which I have never fully recovered from that started a year ago this

> month. I am a Computer Operator for a payroll company. I continue

to

> flare despite trying many different medications. I am on

> Methotrexate, Volteran, Prednisone, and Lortabs for the pain. But I

> have been on Remicade, Sulfasalazine as well. Meanwhile the

> inflammation in my body continues to rise. My doctor says I am a

very

> difficult case, but who among us isn't. My medications don't seem

to

> work. I will be starting a study soon with metho and Rituxan and am

> very hopeful. I also have lupus with kidney involvement. I was

> informed 2 weeks ago that my kidneys are starting to go into

failure.

> I am scared and depressed as I am moving into a new apartment next

> week, and fear I will not be able to work as I will be starting

> dialysis soon. Any suggestions? I am trying to keep my head up as

> this is not new to me, but I fear the financial burden I will be

> putting on my family due to leaving my job. Thanks Holly

>

[Guest guest]

Hi Holly,

Sorry to hear about your sitation. Fingers crossed

that some positive things will come your way.

You mentioned a new apt. Any chance you could move in

with family (even on a short term basis)? Might help

save on rent costs.

-Parrish

--- Holly <hollybgroovin2003@...> wrote:

> I am in a very upseting position and don't know what

> to do. I came

> back from short term disabilty about 3 months ago.

> My doctor didn't

> approve but signed my release anyway. I am in a

> full blown flare,

> which I have never fully recovered from that started

> a year ago this

> month. I am a Computer Operator for a payroll

> company. I continue to

> flare despite trying many different medications. I

> am on

> Methotrexate, Volteran, Prednisone, and Lortabs for

> the pain. But I

> have been on Remicade, Sulfasalazine as well.

> Meanwhile the

> inflammation in my body continues to rise. My

> doctor says I am a very

> difficult case, but who among us isn't. My

> medications don't seem to

> work. I will be starting a study soon with metho

> and Rituxan and am

> very hopeful. I also have lupus with kidney

> involvement. I was

> informed 2 weeks ago that my kidneys are starting to

> go into failure.

> I am scared and depressed as I am moving into a new

> apartment next

> week, and fear I will not be able to work as I will

> be starting

> dialysis soon. Any suggestions? I am trying to

> keep my head up as

> this is not new to me, but I fear the financial

> burden I will be

> putting on my family due to leaving my job. Thanks

> Holly

>

>

>

>

>

>

>