Confused

[Guest guest]

Hi, Cheryl.

You can have a positive rheumatoid factor, but no have RA. Is it very high?

If you were RF+ and anti-CCP+, then it would be easier to make the RA

diagnosis.

Did the rheumatologist take any x-rays or MRIs of your hands and/or feet?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] confused

>I got some blood results back from my rheumatologist yesterday. He

> said I tested positive for the rheumatoid factor, but negative for the

> Anti-CCP. He is keeping me on Mobic for another month to see what

> happens? They took more blood. I guess both he and I are confused

> whether I have RA or not.

>

> Cheryl

[Guest guest]

Yeah I read it can be other things as well. For right now he wants

to see if another month on Mobic plus up to four Tylenol a day will

cut it plus see what the results of the bloodwork from yesterday tell

if anything. But if he doesn't mention it next visit I will

definitely mention about the MRI. Thanks for the suggestion.

Cheryl

--- In , " " <Matsumura_Clan@...>

wrote:

>

> Hi, Cheryl.

>

> You can have a positive rheumatoid factor, but no have RA. Is it

very high?

>

> If you were RF+ and anti-CCP+, then it would be easier to make the

RA

> diagnosis.

>

> Did the rheumatologist take any x-rays or MRIs of your hands and/or

feet?

>

>

>

> Not an MD

>

> I'll tell you where to go!

>

> Mayo Clinic in Rochester

> http://www.mayoclinic.org/rochester

>

> s Hopkins Medicine

> http://www.hopkinsmedicine.org

>

>

> [ ] confused

>

>

> >I got some blood results back from my rheumatologist yesterday. He

> > said I tested positive for the rheumatoid factor, but negative

for the

> > Anti-CCP. He is keeping me on Mobic for another month to see what

> > happens? They took more blood. I guess both he and I are confused

> > whether I have RA or not.

> >

> > Cheryl

>

[Guest guest]

Hi this is again. I am confused. I went to the pain management clinic to

find out results of my MRI of my chest. The doctor said there was no

inflammation and no sign of infection. I told him my rheumy doctor diagnosed me

with fibromyalgia based on 12 tender points and pain in my body. I told him I

was in a lot of pain. He just looked at me and said there was nothing he could

do for me. It was like he thought I was lying about my pain. I am on Fexeril but

the pain is still really bad . What should I do now? Thanks for the time.

Please help me. Chris

---------------------------------

Everyone is raving about the all-new beta.

[Guest guest]

That is strange. I am not sure did you call your rheumie back and let them

know what the pain clinic told you?

Joy

Hamilton <hammy412000@...> wrote:

Hi this is again. I am confused. I went to the pain management

clinic to find out results of my MRI of my chest. The doctor said there was no

inflammation and no sign of infection. I told him my rheumy doctor diagnosed me

with fibromyalgia based on 12 tender points and pain in my body. I told him I

was in a lot of pain. He just looked at me and said there was nothing he could

do for me. It was like he thought I was lying about my pain. I am on Fexeril but

the pain is still really bad . What should I do now? Thanks for the time. Please

help me. Chris

---------------------------------

Everyone is raving about the all-new beta.

[Guest guest]

Find a new clinic for starters! I take Ultram or Tramadol as it is called for

pain. It is the only non-narcotic pain reliever that works for me. I was on

Flexeril for a while too and it did little to nothing for me. Ultram is given

for pain. I started taking in for back pain at first and now for my RA. I wish

you well.

Hamilton <hammy412000@...> wrote:

Hi this is again. I am confused. I went to the pain management

clinic to find out results of my MRI of my chest. The doctor said there was no

inflammation and no sign of infection. I told him my rheumy doctor diagnosed me

with fibromyalgia based on 12 tender points and pain in my body. I told him I

was in a lot of pain. He just looked at me and said there was nothing he could

do for me. It was like he thought I was lying about my pain. I am on Fexeril but

the pain is still really bad . What should I do now? Thanks for the time. Please

help me. Chris

---------------------------------

Everyone is raving about the all-new beta.

[Guest guest]

i was on an anti-seizure med called neurontin for

awhile. it really helped my fibro. if you have

insurance, it is worth it. it changes how your brain

processes pain signals. generic was even expensive

though.

also, i've found cymbalta works very well. i've tried

just plain ssri's but cymbalta works a little

different and seemed to help more. elevil and that

class help also and they are cheaper, but i find i

lose my short-term memory.

check out arthritis.org - conditions and treatments.

this will give you something to talk about with dr.

they will have a link to a drug guide that

specifically deals with fibro meds.

and i agree w/you on flexeril, once my muscles are

knotted, flexeril won't touch it with a 10 ft pole.

but if its bad enough that you're willing to accept

more pain for a temporary solution til meds work, find

a doc who is willing to do a cortizone injection right

into the knot (trigger point). hurts like hell, but

the pain will be gone soon! i've only ask for one

twice in my life, thats how rheumy knew it was bad!

Sincerely,

kelley s.

May you have grace and peace in your life and the lives of those you love.

cajunsahms/

sulphurmoms/

________________________________________________________________________________\

____

Cheap talk?

Check out Messenger's low PC-to-Phone call rates.

http://voice.

[Guest guest]

although fibromyalgia can cause pain in your chest, fibromyalgia

wouldn't cause any changes that would be detected by an MRI. Your physicians

were trying to rule out other or additional causes, inflammatory or

infectious, of your chest pain.

It would be worth looking for another pain management clinic since there are

many ways to treat fibromyalgia pain.

Welcome to the group!

Not an MD

[ ] Confused

> Hi this is again. I am confused. I went to the pain management

> clinic to find out results of my MRI of my chest. The doctor said there

> was no inflammation and no sign of infection. I told him my rheumy doctor

> diagnosed me with fibromyalgia based on 12 tender points and pain in my

> body. I told him I was in a lot of pain. He just looked at me and said

> there was nothing he could do for me. It was like he thought I was lying

> about my pain. I am on Fexeril but the pain is still really bad . What

> should I do now? Thanks for the time. Please help me. Chris

[Guest guest]

Cheese has lots of milk fat. Casein is a protein. Cheeses have less casein

and more fat than milk. Maybe the cheese you are referring two below has all

the casein extracted.

Technically, as I understand it, cheeses and butter shouldn't have much

casein, but not all is removed in production so that is why they are

avoided.

_____

From: [mailto: ] On Behalf Of Robyn

& Greg Coggins

Sent: Wednesday, April 14, 2010 9:23 AM

Subject: Re: Confused

I'm a little confused. I went to and Everret's website and all their

cheese is made from cow's milk, which does have casein in it.

Robyn

________________________________

From: ashley <neidhardtashley@ <mailto:neidhardtashley%40>

>

groups (DOT) <mailto:%40> com

Sent: Tue, April 13, 2010 5:09:15 AM

Subject: Confused

I think the answer is no but Can you eat cheese if it does not have casien?

There is a cheese from & Everret that it does not have casien (made

from milk)

[Guest guest]

I couldn't find anything on their website that indicated they removed the

remainder of the casein, so I can't imagine it would be acceptable on the diet.

All the best,

Robyn

________________________________

From: Robyn & Greg Coggins <rngcoggs@...>

Sent: Wed, April 14, 2010 9:22:40 AM

Subject: Re: Confused

I'm a little confused. I went to and Everret's website and all their

cheese is made from cow's milk, which does have casein in it.

Robyn

____________ _________ _________ __

From: ashley <neidhardtashley>

groups (DOT) com

Sent: Tue, April 13, 2010 5:09:15 AM

Subject: Confused

I think the answer is no but Can you eat cheese if it does not have casien?

There is a cheese from & Everret that it does not have casien (made from

milk)

[Guest guest]

Guys

You need to stop focusing on Casien. The protocol is no bovine Dairy

Period. If your child is allergic to bee stings it mean one sting not a hive

full. Peanut allergies are deadly in trace amounts.There is no better or worse

cheese, low casein or not. A little causes the same reaction as a lot. It can

take weeks to overcome an immune reaction so every once in a while will make the

effort useless!

Bill

From: Robyn & Greg Coggins <rngcoggs@...>

Subject: Re: Confused

Date: Wednesday, April 14, 2010, 1:32 PM

 

I couldn't find anything on their website that indicated they removed the

remainder of the casein, so I can't imagine it would be acceptable on the diet.

All the best,

Robyn

____________ _________ _________ __

From: Robyn & Greg Coggins <rngcoggssbcglobal (DOT) net>

groups (DOT) com

Sent: Wed, April 14, 2010 9:22:40 AM

Subject: Re: Confused

I'm a little confused. I went to and Everret's website and all their

cheese is made from cow's milk, which does have casein in it.

Robyn

____________ _________ _________ __

From: ashley <neidhardtashley>

groups (DOT) com

Sent: Tue, April 13, 2010 5:09:15 AM

Subject: Confused

I think the answer is no but Can you eat cheese if it does not have casien?

There is a cheese from & Everret that it does not have casien (made from

milk)

[Guest guest]

Bill has a point...

A long time ago Dr. Goldberg told me that casein wasn¹t the only thing he

was worried about in cow¹s milk. We didn¹t really go into it further (so I

can¹t elaborate), but from what I¹ve read, cow¹s milk contains over 25

different molecules which can elicit a reaction.

So unfortunately, even if the casein was out of the cheese, Dr. G would

surely say no. He told me once that cow¹s milk was the ONE thing he thought

these kids should probably never have again (when I asked ³What if they were

able to recover... could they eat everything?²).

I envy those families who can have Kraft Macaroni and Cheese once in a

while! I know it¹s full of junk, but I loved it so much when I was young...

my mom (who made EVERYTHING from scratch) would buy it once in a great while

because we were so wild about it. A kid delicacy.

My youngest boy has never even been out for ice cream... we do cones at

home, but the experience of going into Baskin Robbins (or wherever) and

picking out a scoop of anything you want is such a treasure of childhood.

It¹s just a different life.... sigh.

Caroline

[Guest guest]

What kind of milk? Cow's milk? If so, how can that be? I thought it was

impossible to remove all casein from mammalian cheese?

Maybe mislabeled?

>

> I think the answer is no but Can you eat cheese if it does not have casien?

There is a cheese from & Everret that it does not have casien (made from

milk)

>