Re: Upset and need support! Holly

[Guest guest]

Holly:

I am sorry to hear that you are having so much pain

still, even though you are on multiple medications.

With the RA and lupus and kidney involvement, I would

advise you to start disability filings as soon as

possible. It may take a while to get disability

status, so don't hesitate. Your health is at stake if

you continue to push yourself to continue working, and

no job is worth your life. I believe that there is a

file regarding SSD in the group - and I know there are

others with invaluable advice for you regarding this.

This will be my advice - you cannot continue to work

at this time without putting your life at jeopardy.

What would your family do without you? Please

consider the seriousness of this. My prayers are with

you.

Kathe in CA

--- Holly <hollybgroovin2003@...> wrote:

> I am in a very upseting position and don't know what

> to do. I came

> back from short term disabilty about 3 months ago.

> My doctor didn't

> approve but signed my release anyway. I am in a

> full blown flare,

> which I have never fully recovered from that started

> a year ago this

> month. I am a Computer Operator for a payroll

> company. I continue to

> flare despite trying many different medications. I

> am on

> Methotrexate, Volteran, Prednisone, and Lortabs for

> the pain. But I

> have been on Remicade, Sulfasalazine as well.

> Meanwhile the

> inflammation in my body continues to rise. My

> doctor says I am a very

> difficult case, but who among us isn't. My

> medications don't seem to

> work. I will be starting a study soon with metho

> and Rituxan and am

> very hopeful. I also have lupus with kidney

> involvement. I was

> informed 2 weeks ago that my kidneys are starting to

> go into failure.

> I am scared and depressed as I am moving into a new

> apartment next

> week, and fear I will not be able to work as I will

> be starting

> dialysis soon. Any suggestions? I am trying to

> keep my head up as

> this is not new to me, but I fear the financial

> burden I will be

> putting on my family due to leaving my job. Thanks

> Holly

>

>

>

>

>

>

>

__________________________________________________