Re: Tired of being Sick and Sore

[Guest guest]

Hi ,

I am so sorry that you are going through this. Could you call your doctor

to get pain meds? I use them at night when I know I am having a bad day it

helps me sleep and feel human the next day. Do not know if you can do this with

having your girls but that is the only thing I can do. I had my meds changed

just recently when my legs were hurting so bad and it has helped alot.

Hang in there we know you are in pain, other people just don't get it. I

can look good but still feel like crap.

Hugs

Marsha

bp101_brat <bp101_brat@...> wrote:

It is 3:30 am EST and I am sitting here just miserable as ever. I am

in

the middle of a terrible flare and getting no relief even with my

increase of prednisone. I am so tired of everyone telling me I look

good when inside I feel like I am dying. There is nothing anyone can do

and I know that; but I wish there was sometimes. I feel badly for my

girls they dont really understand what it means when " mommy is having a

bad day " . I am having trouble even getting out of bed; and the simple

fact that I can type right now is amazing!!! Does anyone have any ideas

of what I can do to relieve some of this pain and get some sleep. I am

so tired and just cant get any sleep with the pain in my joints right

now. I would appreicate any feedback possible.

Thanks,

aka *drama queen* LOL

[Guest guest]

--sorry........but i know how you feel.......i am the same

way.......i have gotten sleeping aids from doc but they seemed to

make me feel like crap the next day and dident really make me sleep

all night.......i now take the cheep over the counter tylenol pm or

anything like that and it helps better......give it a try......- In

, " bp101_brat " <bp101_brat@...> wrote:

>

> It is 3:30 am EST and I am sitting here just miserable as ever. I

am in

> the middle of a terrible flare and getting no relief even with my

> increase of prednisone. I am so tired of everyone telling me I look

> good when inside I feel like I am dying. There is nothing anyone

can do

> and I know that; but I wish there was sometimes. I feel badly for

my

> girls they dont really understand what it means when " mommy is

having a

> bad day " . I am having trouble even getting out of bed; and the

simple

> fact that I can type right now is amazing!!! Does anyone have any

ideas

> of what I can do to relieve some of this pain and get some sleep. I

am

> so tired and just cant get any sleep with the pain in my joints

right

> now. I would appreicate any feedback possible.

> Thanks,

> aka *drama queen* LOL

>

[Guest guest]

,

You are not a drama queen. You are a woman in pain who is not getting proper

relief. I've

been there. I'm sure many of us have been.

Please tell us more about your pain. Is it FMS? RA? What medications are you

on besides

prednisone.

Here's my example: I've had FMS for the past 3 years and RA for the past 3

months. For

whatever reason, this past month has been one of my worst. I have one good day,

one

bad day... I take methotrexate for my RA which my rheumatologist has just

increased. She

has put me on a lose dose of Flexeril at night for my Fibromyalgia and Ambien CR

so I

sleep well. For pain, I take Tramadol 4 times per day, although I have

Vicoprofen for really

bad days.

My doctor also wants me to get some exercise - walking, nothing drastic but

enough to

get my body moving.

I hope you feel better.

Paige

>

> It is 3:30 am EST and I am sitting here just miserable as ever. I am in

> the middle of a terrible flare and getting no relief even with my

> increase of prednisone. I am so tired of everyone telling me I look

> good when inside I feel like I am dying. There is nothing anyone can do

> and I know that; but I wish there was sometimes. I feel badly for my

> girls they dont really understand what it means when " mommy is having a

> bad day " . I am having trouble even getting out of bed; and the simple

> fact that I can type right now is amazing!!! Does anyone have any ideas

> of what I can do to relieve some of this pain and get some sleep. I am

> so tired and just cant get any sleep with the pain in my joints right

> now. I would appreicate any feedback possible.

> Thanks,

> aka *drama queen* LOL

>

[Guest guest]

Hi ,

Sorry to hear about your pain. If it is localized, like shoulder, hip,

etc., ask your RA if you can get some shots in those areas. It's not a

cure, but it should help alleviate the pain. Also ask for meds to help you

sleep through the pain. Best of luck.

Joanne

----- Original Message -----

> ................................

> Does anyone have any ideas

> of what I can do to relieve some of this pain and get some sleep. I am

> so tired and just cant get any sleep with the pain in my joints right

> now. I would appreicate any feedback possible.

> Thanks,

> aka *drama queen* LOL

>

[Guest guest]

Paige~

Thanks for your support. I was very tired and I feel like sometimes

that makes things worse. I havent been sleeping due to the pain;

which has seemed to get worse over the last week. I have seronegative

RA and questioning Lupus. Out of the eleven criteria I have six of

them; but I have been on Prednisone for almost a yr and my labs are

normal. I have pain in the small joints of my hands and feet and my

knees are terrible. I had my six year old tie my shoes this morning

so I could go to an eye doctor appt for my VF test! That really

helped my hands. I am also on Plaquenil which heeds the testing and

eye exam every 6mths. Also with all the autoimmune I have been

diagnosed with epilepsey; so I am on lots of meds for that too. I am

jst so sick of feeling soo bad. And besides me suffering so do my

wonderful little girls. I just wish I could be like I was a few years

ago; running, skiing, and just out enjoying life. Now I dont have

enough spoons to get through lunch most days. Thanks for your

concern;it means alot to have support.

> >

> > It is 3:30 am EST and I am sitting here just miserable as ever. I

am in

> > the middle of a terrible flare and getting no relief even with my

> > increase of prednisone. I am so tired of everyone telling me I

look

> > good when inside I feel like I am dying. There is nothing anyone

can do

> > and I know that; but I wish there was sometimes. I feel badly for

my

> > girls they dont really understand what it means when " mommy is

having a

> > bad day " . I am having trouble even getting out of bed; and the

simple

> > fact that I can type right now is amazing!!! Does anyone have any

ideas

> > of what I can do to relieve some of this pain and get some sleep.

I am

> > so tired and just cant get any sleep with the pain in my joints

right

> > now. I would appreicate any feedback possible.

> > Thanks,

> > aka *drama queen* LOL

> >

>

[Guest guest]

Joanne,

I just put a call into my Rhuemy; begging for relief and help. She

has to think I am nuts!!!!LOL Somedays I wonder????? So we will see

what happens. Thanks for your advice.

>

> Hi ,

>

> Sorry to hear about your pain. If it is localized, like shoulder,

hip,

> etc., ask your RA if you can get some shots in those areas. It's

not a

> cure, but it should help alleviate the pain. Also ask for meds to

help you

> sleep through the pain. Best of luck.

>

> Joanne

>

> ----- Original Message -----

> > ................................

> > Does anyone have any ideas

> > of what I can do to relieve some of this pain and get some sleep.

I am

> > so tired and just cant get any sleep with the pain in my joints

right

> > now. I would appreicate any feedback possible.

> > Thanks,

> > aka *drama queen* LOL

> >

>

[Guest guest]

I don't know if this works, but, I was told to get one of those

memory foam mattresses, Walmart has them, and as soon as I can get

the money saved up, I am getting one for me. I already got the

memory foam pillows and I love them, and they do make a difference,

so I think the mattress will too.

I sometimes alternate a moist heating pad with an ice pack, and this

will help me a little.

I wish with all my heart they could find something to help that does

not carry the side effects.

When I wake up I lay there for a while afraid to move, cause I do

not ever know when will be a pain day.

Luckily for me for now, the Enbrel seems to be working.

Kitt

--- In , " bp101_brat " <bp101_brat@...>

wrote:

>

> It is 3:30 am EST and I am sitting here just miserable as ever. I

am in

> the middle of a terrible flare and getting no relief even with my

> increase of prednisone. I am so tired of everyone telling me I

look

> good when inside I feel like I am dying. There is nothing anyone

can do

> and I know that; but I wish there was sometimes. I feel badly for

my

> girls they dont really understand what it means when " mommy is

having a

> bad day " . I am having trouble even getting out of bed; and the

simple

> fact that I can type right now is amazing!!! Does anyone have any

ideas

> of what I can do to relieve some of this pain and get some sleep.

I am

> so tired and just cant get any sleep with the pain in my joints

right

> now. I would appreicate any feedback possible.

> Thanks,

> aka *drama queen* LOL

>

[Guest guest]

I wish you well with the foam mattress. I hated it. It held my body heat and

was too warm for me to sleep on. I take a muscle relaxant at bed time to help

me sleep with less pain.

kitt021355 <kitt021355@...> wrote: I don't know if this works,

but, I was told to get one of those

memory foam mattresses, Walmart has them, and as soon as I can get

the money saved up, I am getting one for me. I already got the

memory foam pillows and I love them, and they do make a difference,

so I think the mattress will too.

I sometimes alternate a moist heating pad with an ice pack, and this

will help me a little.

I wish with all my heart they could find something to help that does

not carry the side effects.

When I wake up I lay there for a while afraid to move, cause I do

not ever know when will be a pain day.

Luckily for me for now, the Enbrel seems to be working.

Kitt

--- In , " bp101_brat " <bp101_brat@...>

wrote:

>

> It is 3:30 am EST and I am sitting here just miserable as ever. I

am in

> the middle of a terrible flare and getting no relief even with my

> increase of prednisone. I am so tired of everyone telling me I

look

> good when inside I feel like I am dying. There is nothing anyone

can do

> and I know that; but I wish there was sometimes. I feel badly for

my

> girls they dont really understand what it means when " mommy is

having a

> bad day " . I am having trouble even getting out of bed; and the

simple

> fact that I can type right now is amazing!!! Does anyone have any

ideas

> of what I can do to relieve some of this pain and get some sleep.

I am

> so tired and just cant get any sleep with the pain in my joints

right

> now. I would appreicate any feedback possible.

> Thanks,

> aka *drama queen* LOL

>

Raniolo

[Guest guest]

There is no one any fussier about their bed than I! I have Select Comfort and

it makes all the difference. Actually we have 2. One with the topper on it and

one without. The one with no topper I got so that I could have my own topper

and change it is needed. I have a memory foam topper on it but sad to say when

I bought it I did not know the difference in quality of memory foam. Even so I

love the bed. I also have an electric mattress bad, which is better than an

electric blanket. I turn it on before I go to bed and that warm bed is sooooo

delightful.

Betty

[ ] Re: Tired of being Sick and Sore

I already got the

memory foam pillows and I love them, and they do make a difference,

so I think the mattress will too.

[Guest guest]

I also have a Select Comfort bed and I wouldn't trade it for anything.

It's worth every penny. Whenever I have to sleep in a hotel bed, I

either get very little sleep or wake up in so much pain I hurt for days

afterwards.

> There is no one any fussier about their bed than I! I have Select

Comfort and it makes all the difference.

[Guest guest]

Yes the memory foam mattress toppers definitely do help... and another

help is those really soft tiny foam bead filled pillows...( kinda like

bean bags) I used one of those to put between my knees when I sleep on

my side they are almost weightless and work great as a cushion so the

tender knee joints don't hit each other.

>

> I don't know if this works, but, I was told to get one of those

> memory foam mattresses, Walmart has them, and as soon as I can get

> the money saved up, I am getting one for me. I already got the

> memory foam pillows and I love them, and they do make a