Guest guest Posted February 2, 2007 Report Share Posted February 2, 2007 >where do u live in nys....... > I've been a member for awile but never really was . I would look here > but never did participate. I found out that I need to stay connected to > others with the same medical and life situations. so, here I am . I > live in sw ny state where my Rhumey is at least 50 miles away and in > the winter, I never can get there so, basically for the last month or > two I'm w/o meds. I've been on so many and the only two that work is > celebrex and I did start Remicade treatments which worked , up till I > couldn't get there . I'm on a mission to get a rhumatologist in my town > one way or another. It's not a small place and hard for me to believe > that there aren't alot of others around here who need one , too. Anyone > have any ideas where to start ? or any ideas on what I can do for pain > and my hands are terrible with swollen knuckles and feet . I'm just so > tired all the time and it's affecting everything I try to do. > Thanks > Debbie in NY > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 I live in town , NY . I was told by my rhuemy that an oncologist could do my remicade treatments but, it's the same story , the one that is here is too busy to take on another patient . I have called him every 6 months in case it changed but so far no luck....it's frustrating and i wonder if there's a way to start a petition to get one here . thanks Debbie > >where do u live in nys....... > > I've been a member for awile but never really was . I would look > here > > but never did participate. I found out that I need to stay > connected to > > others with the same medical and life situations. so, here I am . I > > live in sw ny state where my Rhumey is at least 50 miles away and > in > > the winter, I never can get there so, basically for the last month > or > > two I'm w/o meds. I've been on so many and the only two that work > is > > celebrex and I did start Remicade treatments which worked , up till > I > > couldn't get there . I'm on a mission to get a rhumatologist in my > town > > one way or another. It's not a small place and hard for me to > believe > > that there aren't alot of others around here who need one , too. > Anyone > > have any ideas where to start ? or any ideas on what I can do for > pain > > and my hands are terrible with swollen knuckles and feet . I'm just > so > > tired all the time and it's affecting everything I try to do. > > Thanks > > Debbie in NY > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 Debbie, Sorry to say, but there are only around 5000 rheumatologists in the entire United States. That's why in some areas they are hard to come by. Not an MD [ ] Re: Rha and Lupus >I live in town , NY . I was told by my rhuemy that an oncologist > could do my remicade treatments but, it's the same story , the one > that is here is too busy to take on another patient . I have called > him every 6 months in case it changed but so far no luck....it's > frustrating and i wonder if there's a way to start a petition to get > one here . > thanks > Debbie >> >where do u live in nys....... >> > I've been a member for awile but never really was . I would look >> here >> > but never did participate. I found out that I need to stay >> connected to >> > others with the same medical and life situations. so, here I am . > I >> > live in sw ny state where my Rhumey is at least 50 miles away and >> in >> > the winter, I never can get there so, basically for the last > month >> or >> > two I'm w/o meds. I've been on so many and the only two that work >> is >> > celebrex and I did start Remicade treatments which worked , up > till >> I >> > couldn't get there . I'm on a mission to get a rhumatologist in > my >> town >> > one way or another. It's not a small place and hard for me to >> believe >> > that there aren't alot of others around here who need one , too. >> Anyone >> > have any ideas where to start ? or any ideas on what I can do for >> pain >> > and my hands are terrible with swollen knuckles and feet . I'm > just >> so >> > tired all the time and it's affecting everything I try to do. >> > Thanks >> > Debbie in NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2007 Report Share Posted February 6, 2007 I am about 70 Miles from my Rhumey one way. Is there a way you can work out with your Dr to get your meds so you would have refills in the winter so you dont have to get out of the house and drive that far on the bad day's! My Dr. Gives me 3 month's at a time. It would be of help to you So you would not be in pain. if it is sometime you can not give your self if you have a dr in your town that the Rhumey will work with . I have done that before too. One thing I do is when I go to any of my DR's I have then send a report to all my other Dr's so they no what is going on and what the other has done. > > >where do u live in nys....... > > > I've been a member for awile but never really was . I would look > > here > > > but never did participate. I found out that I need to stay > > connected to > > > others with the same medical and life situations. so, here I am . > I > > > live in sw ny state where my Rhumey is at least 50 miles away and > > in > > > the winter, I never can get there so, basically for the last > month > > or > > > two I'm w/o meds. I've been on so many and the only two that work > > is > > > celebrex and I did start Remicade treatments which worked , up > till > > I > > > couldn't get there . I'm on a mission to get a rhumatologist in > my > > town > > > one way or another. It's not a small place and hard for me to > > believe > > > that there aren't alot of others around here who need one , too. > > Anyone > > > have any ideas where to start ? or any ideas on what I can do for > > pain > > > and my hands are terrible with swollen knuckles and feet . I'm > just > > so > > > tired all the time and it's affecting everything I try to do. > > > Thanks > > > Debbie in NY > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.