Hope Floats....so does you know what!!!!

January 26, 2007

I am having such a terrible time right now! This is probably the

worst flare Ihave had since last year. It has been almost a week now

and I managed to get my Rhuemy to call in a pain med to get me

through till I get up to see her!! She is just being so non commital

to me; MAKES ME WANNA SCREAM!! In fact that is all I have been doing

since they put me on Vicodin. Screaming at the kids I am soo

grumpy!!! I have never had a med react that way with me?? But at the

same time beteewn all the screaming I am crying becuase I am in soo

much pain. So I continue to take the pain med. I did get an appt with

her on Monday; but we ALL know that those red hot swollen joints are

going to be " normal " on appt day!! I am also working on second and

third opinions at 's Hopkins and U of Penn. So hopefully I will

find some help. I am so tired of her pushing me off and telling me to

just take the Plaquenil and things will settle and then keep putting

my prednisone up UP UP UP!! She now has me on 30 mg!!! I have been on

it almost a yr and I will never get off of it now. AND she has me

walking with a cane! I am having a hard time with that since my hands

are soo sore too. I need to get off of here so I can do my favorite

activity right now....LAY DOWN AND REST!! Hehehe that must be a joke

with a four and six yr old in the house and me here alone. Thanks to

you all who read this and is still reading this and not thinking what

a wacko!!! I am beginning to question my own sainity; not a good

thing huh??

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