Re: Long time, lots of sleep

[Guest guest]

Burr,

Sorry to hear that you're having such a hard time. I don't know much

about spinal taps--hope someone in the group has some insight for you.

in Maine

>

> Hello all,

> Just wanted to check in. Last time I wrote I was going in for a

spinal tap and other things to do with my brain stem. I think

everything came out ok. Though since then I have not been well at

all. I have had constant headaches, vomiting, and the worse thing is

the dizziness. It is less today than it has been but I don't like it.

It seemed like everytime I turned over in bed or moved the room would

begin to spin. This did not help my other symptoms. I have also been

exhausted. I have been staying in bed not caring if I have eaten or

not. I would be awake for a few hours then asleep again. It is a

total opposite of my not being able to sleep at all and dosing for a

few minutes at a time. I am not sure of why or what to do. My

prayers go out to all of you. and hope you do well.

> Burr

>

> __________________________________________________

>

[Guest guest]

Hello Burr,

I'm so glad to hear that spinal tap turned out OK. I am sorry that you are

having a rough time of it though. How long has it been since you had the

tap? I wonder if this is a side effect or allergic reaction to the tap? If

memory serves me correctly, the symptoms of the tap are suppose to clear up

within 12 hours of having the tap. It's been a long time since I have had

one.

Have you called your Dr. to tell him/her about what you have been going

through? It might be wise to do this if you haven't already. It may be that

the tap wasn't on the right mark and this is causing the problem. You may

even need to go to the hospital if you are not improving.

Please keep us posted, Burr. Continuing prayers for you.

, Oregon

>

> Hello all,

> Just wanted to check in. Last time I wrote I was going in for a spinal tap

> and other things to do with my brain stem. I think everything came out ok.

> Though since then I have not been well at all. I have had constant

> headaches, vomiting, and the worse thing is the dizziness. It is less today

> than it has been but I don't like it.

> Burr

>

>

>

--

SPEEDY :-)

Meds:

MTX 15 mg; Prednisone 5mg; Leucovorin 5 mg; Armour Thyroid 60 mg

Supporters:

MSM; DHEA 25 mg; Omega3 fish oil 8 daily; Vit. C; Vit. D; B-Complex; Vit

B-12;

Lithium Ortate; Osteo Comlex; Glucosamine & Chondroitin; and Essential

Minerals, AND cALCIUM 1500 mg

" Love endures all things. "

[Guest guest]

,

I had the tap done on the 6th and things got worse. I talked to my doctor

yesterday and went in for xrays, ct, and mri. Apperently something happened and

I am have a lot of swelling and stuff where they did it. so they numbed me up.

They can't put me on any more pain medicine so they went straight to the sights

and numbed everything. I am supposed to try to lie still and go back on Monday.

Just one problem after another. well i am going to lie down. talk to you soon

thank you

Burr

KC wrote:

Hello Burr,

I'm so glad to hear that spinal tap turned out OK. I am sorry that you are

having a rough time of it though. How long has it been since you had the

tap? I wonder if this is a side effect or allergic reaction to the tap? If

memory serves me correctly, the symptoms of the tap are suppose to clear up

within 12 hours of having the tap. It's been a long time since I have had

one.

Have you called your Dr. to tell him/her about what you have been going

through? It might be wise to do this if you haven't already. It may be that

the tap wasn't on the right mark and this is causing the problem. You may

even need to go to the hospital if you are not improving.

Please keep us posted, Burr. Continuing prayers for you.

, Oregon

>

> Hello all,

> Just wanted to check in. Last time I wrote I was going in for a spinal tap

> and other things to do with my brain stem. I think everything came out ok.

> Though since then I have not been well at all. I have had constant

> headaches, vomiting, and the worse thing is the dizziness. It is less today

> than it has been but I don't like it.

> Burr

>

>

>

--

SPEEDY :-)

Meds:

MTX 15 mg; Prednisone 5mg; Leucovorin 5 mg; Armour Thyroid 60 mg

Supporters:

MSM; DHEA 25 mg; Omega3 fish oil 8 daily; Vit. C; Vit. D; B-Complex; Vit

B-12;

Lithium Ortate; Osteo Comlex; Glucosamine & Chondroitin; and Essential

Minerals, AND cALCIUM 1500 mg

" Love endures all things. "

[Guest guest]

Hi Burr,

Did your doctor mention anything about doing a blood patch after the

spinal (also known as a lumbar puncture)? It isn't uncommon to get a

very bad headache if the site doesn't clot and you have leakage of

cerebral spinal fluid (CSF). A blood patch comes from your own blood

and may have two benefits. One is to replace any CSF leakage, and the

other is to clot the site to stop the leakage. I'm glad to read

everything was okay, but a lumbar puncture always carries risks. You

may want to ask your doctor because your symptoms are not normal. I

hope you feel much better soon!

In Peace,

Barbara Gardner

Ventura, CA

>

> Hello all,

> Just wanted to check in. Last time I wrote I was going in for a

spinal tap and other things to do with my brain stem. I think

everything came out ok. Though since then I have not been well at

all. I have had constant headaches, vomiting, and the worse thing is

the dizziness.

[Guest guest]

Burr,

I'm sorry you are experiencing this. If I remember correctly, this could be

due to a leakage of spinal fluid. If you start to feel any worse go to the

ER A.S.A.P. It's called something but my memory right now is failing me.

Keep us posted on your condition. In the meantime, I'll be thinking of you

and continue praying.

, Oregon

>

> ,

> I had the tap done on the 6th and things got worse. I talked to my doctor

> yesterday and went in for xrays, ct, and mri. Apperently something happened

> and I am have a lot of swelling and stuff where they did it. so they numbed

> me up. They can't put me on any more pain medicine so they went straight to

> the sights and numbed everything. I am supposed to try to lie still and go

> back on Monday. Just one problem after another. well i am going to lie down.

> talk to you soon thank you

> Burr

>

>

--

SPEEDY :-)

Meds:

MTX 15 mg; Prednisone 5mg; Leucovorin 5 mg; Armour Thyroid 60 mg

Supporters:

MSM; DHEA 25 mg; Omega3 fish oil 8 daily; Vit. C; Vit. D; B-Complex; Vit

B-12;

Lithium Ortate; Osteo Comlex; Glucosamine & Chondroitin; and Essential

Minerals, AND cALCIUM 1500 mg

" Love endures all things. "

[Guest guest]

Here it is, Burr. What I couldn't think of.

Thanks Barbara for posting this--at the right moment.

, Oregon

>

> Hi Burr,

>

> Did your doctor mention anything about doing a blood patch after the

> spinal (also known as a lumbar puncture)? It isn't uncommon to get a

> very bad headache if the site doesn't clot and you have leakage of

> cerebral spinal fluid (CSF).

> In Peace,

> Barbara Gardner

> Ventura, CA

>

>

>

--

SPEEDY :-)

Meds:

MTX 15 mg; Prednisone 5mg; Leucovorin 5 mg; Armour Thyroid 60 mg

Supporters:

MSM; DHEA 25 mg; Omega3 fish oil 8 daily; Vit. C; Vit. D; B-Complex; Vit

B-12;

Lithium Ortate; Osteo Comlex; Glucosamine & Chondroitin; and Essential

Minerals, AND cALCIUM 1500 mg

" Love endures all things. "

[Guest guest]

, I have a morphine pump implant for my back that gave me massive

problems initially due to spinal fluid leaking. The pump is implanted in my

abdomen with a catheter into the base of my spine.

I had to lay flat-backed for 10-12 days before it healed. I think I may have

had a glimpse of Hell in that time. The pain in my spine was incomprehensible,

but the headache made that look like a walk in the park. Pain meds were damn

near totally ineffective and the only sense of relief I had is when I would

finally pass out for an hour or two out of sheer exhaustion. The back pain felt

as if I could literally feel every single lump, space & vertebrae screaming in

pain...and that was while lying still. I can't describe what it felt like to

move or be moved even an inch. I think I can name myself an expert (from

suffering) on ridiculously debilitating headaches as I have them almost

constantly, but that one by far was miles ahead of all of the others save one. I

would've gladly eaten a bullet if I had a gun on hand at that stage.

That was one of the worst things I have ever dealt with in my life, and

wouldn't wish it on anyone.

Kirk