Fw: Question on soft tissue pain

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From: " by way of ilena rose " <HGloryann@...>

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Sent: Friday, March 08, 2002 7:53 PM

Subject: Question on soft tissue pain

> Dearest Ilena: Will you please post this to the group? Thank you so

> much. :)Gloria Since having my saline implants replaced with silicone

> gels after a rupture in 1981, I have experienced episodes of pain in the

> soft tissue of my chest, shoulders. neck & arms. It feels like a bad

> sunburn that goes deep to the bones and/or a really bad bruise. Two weeks

> ago, my husband & I went to the Home & Patio Show, and I walked by a booth

> that had lots of popori and the first whiff threw me into an asthma-like

> attack. This is not unusual for me since I have had 5 attacks like it in

> the past 2 years and it turns into chronic bronchitis or pneumonia within

2

> days. As always, the doc put me on prednisone and antibiotics which helps

> tremendously, but .......A couple of days after I finished my prednisone,

I

> woke up with a severe headache, and the back of my neck from the base of

my

> skull was very sore to touch. The soreness got worse and slowly began

> traveling down to the soft tissues of my chest, back, upper arms. It

hurts

> to lay on my own body weight in bed and my husband says I moan or holler

> every time I move in my sleep. The soreness has worked its way down my

> hips, thighs and stops below the knee. Below my elbows, below my knees, my

> face and my hands are not sore. I do not have a ! rash and haven't had

one

> since I had 4 silicone granulomas removed in 1999. My implants were

> removed in 1994. I had a extracapsular rupture with disintegration of the

> left implant shell. My doctors act like they have never heard of this

type

> of thing, though one told me it sounds systemic & if I am not better by

> Monday, he will order some lab tests to look at some different things. I

> feel as though my body is toxic, and I do have some edema & take lasix for

> that. Of course, I, like many of you, hold a world class title for having

> FIBROMYALGIA (LOL), but I feel this is different. My whole body is tender

> and sore for the most part. My joints do not hurt right now. I have

tried

> to read & research what this might be but have not come up with anything.

> If anybody has this problem or knows what may be causing it, please let me

> know. Any information you can give me is greatly appreciated as well as

> suggestions for treatment. It is difficult to describe this painful

> condition, but I am sure that anyone who has it or has had it will know

> what I am trying to describe. My rash biopsies came back as " lymphocytic

> vasculitis " and I broke out in welts the day after having allergy testing

> done. The doc said it was a " lymphocytic " reaction. Perhaps this is

> lymphocytic, also??? I do have vascular problems, and MS-like symptoms

with

> lesions on my brain. The MS specialist told me that whatever I had was

> worse than MS, but had no answers for these weird things happening to me.

> Right now, my main diagnosis for the past 2 years is chronic pain

syndrome,

> but that is mainly due to herniated discs in my thoracic ! spine. IF YOU

> HAVE ANY INFORMATION OR SUGGESTIONS ON HOW TO RELIEVE THIS PAIN OR WHAT IS

> CAUSING IT, PLEASE SHARE YOUR THOUGHTS & KNOWLEDGE WITH ME. Thank you all

> so much..........:)Gloria

>

>