From Ian

[Guest guest]

Hi Friends...Ian's posts haven't beeen coming through, so he asked me to post

this for him. I do believe he is getting posts though.

Love...

Tess

********************************************************************************\

***********

Hi Tess~

Thanks so much for asking! However, I'm not doing the best. I was just diagnosed

with Hepatitis-C! Ouch!

I've had either vision impairment or chronic infections or both since starting

Humira back in Oct. The vision impairment came first and then around the end of

Dec(95) I started getting eye infections and throat infections. It soon became

apparent that I had cataracts in both eyes and had to have surgery to put

implanted lenses in.

The throat infections have been diagnosed alternately as yeast infections

(thrush) and just a sore, severely inflamed throat - because it presents

differently at different times -- It finally turned into pneumonia and I just

spent a stint in the Hosp with 103+ temps.........My infectious disease

specialist has now seen the inflammation with white spots/lesions all over my

palate and throat. She is the first " Doctor " to actually see my throat in " full

blown " mode and she says it's not thrush - she thinks that Crohns is now in my

throat. She said she's never seen thrush that looked like that.

She also did some blood work to test me for HIV and for Hep-C -- HIV came back

NEGATIVE and the Hep-C came back positive. So, now it's Crohns in the Illium and

Chrohns in the throat, RA, Osteoporosis, cataracts, and symptoms that suggest

Diabetes (although the blood work does not)!! I'm thinking of changing my name

to Lucky!

Meanwhile I'm building skyscrapers every day and intend to work 12 hours on Sat

and Sun -- YIKES!! Don't figure does it? LOL ........My doctors can't figure it

out either. My crohns is in an advanced stage I've never seen before and I have

no pain at all. Whereas normally you would see small white spots on a

colonoscopy pic that would indicate a flare up of crohns -- And the daily pain

would be severe .. Now there are big swatches of white and a daily dose of 40mgs

of pred keeps me upright, working, and totally free of pain. My 30 years

experience with crohns has been turned on it's head! I should not be funtioning

at the level I am with that severe of a flare-up.

What will happen in my case, I believe, is that when I have money saved up. I'll

reduce my pred and trigger a partial obstruction of the bowel - in very short

order - and then I'll have my third resection surgery to remove the affected

part of the small intestine.

I'm being propped up by prednisone and you can only get away with that for so

long - if at all! For me, it's been the better part of 30 years with abnormally

high dosages of prednisone -- I'm playing a dangerous game but I don't know what

else to do.

Each surgery is more difficult because of the adhesions and the callous scaring

you have to go through. I've been opened up both ways - up and down and sideways

--- One more after this one and I'll have a regulation tic-tac-toe board on me!!

I'm exausted Tess -- I'll close for now.

Tell me how you're doing - OKAY?

IAN

Re: [ ] June

Hi June:

Thanks for the advice! I sure don't want to let any

of that precious Enbrel leak out if I can help it!

Kathe in CA

--- June Dixon <juner24@...<mailto:juner24@...>> wrote:

> Kathie & , I had a little leaking out when

> doing the Enbrel and I asked the nurse about. She

> said when you take the needle out, put the alcohol

> pad on the site, rub gently on and around the site

> and it helps keep the medicine from leaking out. I

> have been doing this since she told me about and it

> does work.

>

> Hugs, June

Terms of Service.

>

>

>

------------------------------------------------------------------------------

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

Kathe

" To ride a horse is to borrow freedom. "

__________________________________________________