Guest guest Posted January 20, 2007 Report Share Posted January 20, 2007 Wow, after several months of hemming and hawing and trying Immuran, I finally started my Orencia 2 weeks ago. I had my second infusion yesterday. So far so good. I have had no adverse reactions, although I also have had no relief. I know that it takes time (don't they all!) but, this is the worst flare I have ever had. My pain sits around a 6-7 and my fatique around a 9-10. I am hopeful though that the Orencia will work. There isn't anything else out there for me right now. I can't even take prednisone for breakthrough pain because I have begun to develop cataracts with the small doses we used the first couple of years after my diagnosis. I am getting my Orencia infusions done at an Oncologists office. It is really relaxed and they are very efficient. I am there for less than an hour, 30 minutes of that is actually receiving the medication. The rest is waiting for a chair and getting hooked up and un-hooked up. I go straight from there to work. Not as convenient as doing the injections myself, but after the next injection it will only be once a month, and if it works it will be well worth it! Jeanine Florida Quote Link to comment Share on other sites More sharing options...
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