Looking for Support

September 9, 2003

I know its very hard but there are so many ppl that have it so much worse than

we do. My dd is 3 and has Down syndrome and possible apraxia....sometimes its

just plain hard. ProEFA is a fish oil supplement that has been said to improve

speech and alotttt of ppl here have their kids on it....including mine. You can

go to the Nordic Natural site and check it out!

~Angie

May God Bless You As He Has Us

www.babiesonline.com/babies/s/sydniebrooke

mom to Sydnie (3, Ds), 3 angels in Heaven

http://www.earningforce.com/go.cgi?sydniesmom5

[ ] looking for support

Hello,

My name is keri...I have a daughter who is 2 1/2 years old and

is just being diagnosed with apraxia. We are devastated...she is such

a smart and bright child. She has no words at all but has perfect

fine motor and gross motor skills. This whole thing is just now

sinking in as to the severity of this speech delay. I guess I am

looking for some guidance from others who know what we are going

through. I am not familiar with most of what I am reading on this

sight and was wondering what the PRO EFA is and how it could maybe be

something for us to try. She is regressing in therapy rather than

making much progress...we are adding more therapy and I am personally

doing all the research I can so that I can give her the best help I

can. Thanks in advance for any advice that could be helpful.

September 9, 2003

Hello and welcome to the group!!

I remember how scared I was when my son, Lenny, was diagnosed with apraxia.

I listened to the kids on the talking page and cried. As wonderful as they

sounded, I wanted my son to sound " normal " one day. Two years have passed since

that time and Lenny's speech has progressed dramatically (especially over

this summer). He started Kindergarten (regular ed) this week and his teacher

and

para say they and the kids understand him 99% of the time. This is

incredible since last year 90% of his speech was unintelligible. I credit his

progress

on a wonderful developmental pediatrician, knowledgeable SLPs, ProEFA and

lots of sensory input (in his case, swimming). His speech doesn't sound

" normal "

but he slows down his speech and is now old enough to be aware of what he

needs to do to make intelligible speech. As much as I thought that wouldn't be

good enough two years ago, it is incredible to us today.

Lenny's younger brother, , has also been diagnosed as apraxic.

Unfortunately, my youngest, a girl, has also started to regress in her speech.

I

believe she is also apraxic although she has not been formally diagnosed.

Hang in there!!! They do get better. It is a long road but one well worth

the effort.

Email me privately if you need to talk.

Lynaugh

lynaughboyz@...

September 10, 2003

Hello Keri, my daughter was diagnosed with dyspraxia at the same age, and

i cried buckets for days. I look back now and i think what a waste of water!

But i do understand everthing your feeling. What you've got to do now is

read every bit of info, speak to as many people as possible[this site is a

good start] Prepare yourself for a long ,demanding but rewarding battle.I

hope that does not sound to scary,but i didn't do any of the above straight

away bacause i went along with what i was told by various " professionals "

And wasted a lot of valuable time. Your daughter is a good age, but i

suspect you may not see great progress for the first 12 months,dont give

up[i personaly think this was my lowest piont] I felt i was getting knowhere

fast for a long time, but just use this time to set the foundations of

speech, every bit of input will help even if it seems to be falling on

stoney ground. Try to do lots and lots of work at home through play daily if

poss. And the omega oils have been a godsend in our case. Oh yes, dont

forget time for the most important person in your childs progress,YOU. You

will be the best advocate she ever can have.So keep well. Jane.

[ ] looking for support

> Hello,

>

> My name is keri...I have a daughter who is 2 1/2 years old and

> is just being diagnosed with apraxia. We are devastated...she is such

> a smart and bright child. She has no words at all but has perfect

> fine motor and gross motor skills. This whole thing is just now

> sinking in as to the severity of this speech delay. I guess I am

> looking for some guidance from others who know what we are going

> through. I am not familiar with most of what I am reading on this

> sight and was wondering what the PRO EFA is and how it could maybe be

> something for us to try. She is regressing in therapy rather than

> making much progress...we are adding more therapy and I am personally

> doing all the research I can so that I can give her the best help I

> can. Thanks in advance for any advice that could be helpful.

>

October 4, 2005

Welcome Sharrie. Congratulations on your recent marriage. I hope you

have many years of happiness. I just moved to Florida

1 1/2 years ago after dreaming of it for many years also. I hope you

weren't in the path of any of the hurricanes. I'm in Naples and

have been lucky.

Did your joint pain start after the mono?

a

On Oct 4, 2005, at 2:31 PM, sharriedsb7 wrote:

> Hi

>

> My name is Sharrie, I was just Dx with RA along with several other

> medical problems all of which I was told about over this past long

> summer. I'm 43 newly married (2nd time)and have to girls aes 17 and

> 19. We all just moved to Florida (my life dream) a year ago this

> month. Since April I have been sick with one thing after another

> starting with Mono, then major female problems that I must address(I

> had no idea I even had any problems), than herniated discs neck and

> low back and while being treated for all these compounding problems

> and trying to find why I have been sooo tired and in sooo much pain

> in my hips, feet, hands a lab tech mentioned I should check for RA

> after watching my RHeum factor go up very quick everytime I went to

> the Dr and so I went to a specialist and now this is the latest to

> add to my list. Needless to say I have been very depressed and could

> use some support.

> Thanx for listening(reading) my sob story!!!

> We all have one but sometimes it helps to share them

>

> Sharrie

>

October 4, 2005

Welcome to the group, Sharrie! Sorry to hear that you've had such a rough

time.

Mononucleosis can cause a rheumatoid factor (RF) test to be positive. I'm

assuming you saw a rheumatologist and that he or she based the diagnosis on

more than the positive RF.

Hope you will be feeling much better very soon.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Looking for support