Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Good Morning everyone... I hope things are well in your world today. I am so sad to be reading the posts about mouth sores, flares and general pain. What a toll this disease takes on our bodies and our spirits. It was good to see humor coming out as well... Danni you have an amazing outlook on life and I enjoy reading your posts. I wanted to send out an update on my status perhaps to give a little hope to those still searching for the right medications to help. It's been three long years and I think we finally have it! I have been feeling the best I can remember this past week. I actually mopped my own floors and did my spring cleaning before summer officially kicks off. It's been a long frustrating road and I am not convinced this drug cocktail will work forever but am just bursting my button that's its working now. Here's what I am taking: Remicade 1050 mg every four weeks MTX 25mg injected once a week prednisone 5 mg daily, hoping to taper off completely this next week folic acid 1 mg daily Cymbalta 30 mg daily, this is the new anti-depressant that works on pain receptors as well as the seratonin aspect of depression, it's taken a month but I think it really makes a huge difference from Celexa. I have not had any percoset or vicodin for the last week which is HUGE for me since I was taking one or the other daily. Lunesta 3 mg at bedtime... it really does help me get deep sleep which I think also why I am feeling better. I am not advocating any of the above to anyone else!!! I don't want to get in trouble for giving medical advice. I just wanted to share what is working so well for me. I have gotten some great medication advice for you guys in the past and wanted to pass it on. I am also maintaining a fairly good diet based on lean protein, veggies and whole grains. I go to water exercise at least 3 times a week and yoga once. Oh, I also started cutting back on caffeine and that's contributing too I think. So, praise God, rub Buddha, dance with the druids..... I feel better!!!!! I am sending out healing vibes today to one and all and hope you have a beautiful Saturday. Take Care, Sam Quote Link to comment Share on other sites More sharing options...
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