Guest guest Posted April 30, 2005 Report Share Posted April 30, 2005 Im not sure which is the more common of the two with DS but AML is the better kind for kids with DS. Im not exactly sure what the survival rates are so dont quote me but its something like 90%+ for AML and 78% for ALL. Its strange as it is completely backwards from typical kids. Hugs > Does anyone know which type of leukemia is more common with DS? Is it AML or ALL? Are the treatment success rates the same for both types? > Just curious. > > sp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 I am 46 and was dx 13 years ago. Terri [ ] Curiosity Question Hi all, I have been learning a lot from all of your posting, thanks! Out of curiosity, how old is everyone? Age of diagnosis, years living w/RA? ps, I am 30. Thanks and enjoy the Labor Day holiday. -Parrish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 Curiosity Question Hi, I'm 59 and diagnosed at 49. I had a neck injury and it wasn't getting better. I was sent to a Rheumy and told along with the neck problem I have RA. He did mention one time that the neck problem could have triggered the RA. No one else in my family has ever had this problem. I lost an entire career to this disease. I was put on ssd. Lynn (MeMom) > Hi all, > > I have been learning a lot from all of your posting, > thanks! Out of curiosity, how old is everyone? Age of > diagnosis, years living w/RA? > > ps, I am 30. > > Thanks and enjoy the Labor Day holiday. > -Parrish > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 I've been on meds since my diagnosis, however, none seemed to work very well until Enbrel/Humira was started a few years ago. Every now and then, I try to eliminate some of the meds, but never seem to be able to. I'm in the " doughnut hole " right now with Medicare Part D which means that I have NO drug coverage right now. The last 3 months have cost about $550/month. I'm also on meds for my blood pressure and asthma. Sorry to go off and I'm sure everyone here is very familiar with drug costs, just getting fed up and don't know how much longer I can afford to pay these prices. Best wishes for a peaceful night for all. Joanne, IL [ ] Curiosity Question >> >> >> > Hi all, >> > >> > I have been learning a lot from all of your >> posting, >> > thanks! Out of curiosity, how old is everyone? Age >> of >> > diagnosis, years living w/RA? >> > >> > ps, I am 30. >> > >> > Thanks and enjoy the Labor Day holiday. >> > -Parrish >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 Oh, I forgot to mention that my RA started off much like yours. I remember when I had just one swollen finger. At first the RA went from joint to joint, like a barhopper, LOL. It wasn't bilateral, either. One joint would hurt for a day or two; then it would be some other one. Before long, however, every joint was hurting. Sue On Monday, September 4, 2006, at 04:36 PM, Parrish Blaszka wrote: > At random other > points during the summer I had swelling in my right > ankle (attributed it to a long distance rollerblading > episode) and elbow swelling. Otherwise, not much else. > My most affected areas are my index & middle finger on > my right hand. Swelling and stiff. However, no > limitations for use. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 I am 76 and was dx'd with rheumatism in 1977 then about 4 or 5 yrs ago was dx'd with RA. My lumbar area got so bad in 1999 that I had to retire from nursing. A low pressure has come in and every part of my body knows it especially the lumbar area. Joyce from Texas [ ] Re: Curiosity Question I am 41yo. I was dx'd at age 37 yo. So its been 4 yrs. Posted by: " Parrish Blaszka " _parrish_blaszka@... _ (mailto:parrish_blaszka@...?Subject=Re: Curiosity%20Question) _parrish_blaszka _ (parrish_blaszka) Mon Sep 4, 2006 2:19 am (PST) Hi all, I have been learning a lot from all of your posting, thanks! Out of curiosity, how old is everyone? Age of diagnosis, years living w/RA? ps, I am 30. Thanks and enjoy the Labor Day holiday. -Parrish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Hi. I'm Sally. I am 53 and was diagnosed at 40. --------------------------------- How low will we go? Check out Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.