Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 YOU WERE AWESOME!!!! It's so wonderful to have such a calm, cool and collected parent like you representing all of us. THANK YOU! Tammy Mike Bernoski wrote: Man! something like that is hard to do... I am not sure I took a breath for 5 minutes, and of course I only got 20% of my points checked off my list. Oh well, thank you for your prayers... Regards, Mike Bernoski *** The future belongs to those who believe *** in the beauty of their dreams... ________________________________ From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of Mara LaViola Sent: Wednesday, November 01, 2006 6:52 AM To: Texas-Autism-Advocacy Subject: Re: Update Mike - YOU WERE ABSOLUTELY PERFECT....did not see this until this morning - I prayed for you anyway --- but you did not need it -- you were fantastic...honestly, I was concerned -- if Imus went on a rampage it would be easy to get caught up in it - but he remained calm cause YOU set the tone - you were awesome Mike Bernoski <mike.bernoski@... <mailto:mike.bernoski%40sekureconnekt.com> > wrote: Hastert's office called me back and said they were unable to fit me in before the election. I resubmitted a request for between now and the start of the congressional session. Say a prayer for me to say the right thing on Imus at 6:29am our time in the morning... Regards, Mike Bernoski *** The future belongs to those who believe *** in the beauty of their dreams... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Thanks Tammy, I have already been flamed by the national biomed folks for not screaming " Vaccines are killing our children " and for mentioning the dreaded ABA word. I sometimes think the extremism represented in the autism community is its own worst enemy, and our opponents are laughing all the way to the bank... Regards, Mike Bernoski *** The future belongs to those who believe *** in the beauty of their dreams... ________________________________ From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of Todd Snively Sent: Wednesday, November 01, 2006 10:00 AM To: Texas-Autism-Advocacy Subject: RE: Update YOU WERE AWESOME!!!! It's so wonderful to have such a calm, cool and collected parent like you representing all of us. THANK YOU! Tammy Mike Bernoski <mike.bernoski@... <mailto:mike.bernoski%40sekureconnekt.com> > wrote: Man! something like that is hard to do... I am not sure I took a breath for 5 minutes, and of course I only got 20% of my points checked off my list. Oh well, thank you for your prayers... Regards, Mike Bernoski *** The future belongs to those who believe *** in the beauty of their dreams... ________________________________ From: Texas-Autism-Advocacy <mailto:Texas-Autism-Advocacy%40yahoogroups.com> [mailto:Texas-Autism-Advocacy <mailto:Texas-Autism-Advocacy%40yahoogroups.com> ] On Behalf Of Mara LaViola Sent: Wednesday, November 01, 2006 6:52 AM To: Texas-Autism-Advocacy <mailto:Texas-Autism-Advocacy%40yahoogroups.com> Subject: Re: Update Mike - YOU WERE ABSOLUTELY PERFECT....did not see this until this morning - I prayed for you anyway --- but you did not need it -- you were fantastic...honestly, I was concerned -- if Imus went on a rampage it would be easy to get caught up in it - but he remained calm cause YOU set the tone - you were awesome Mike Bernoski <mike.bernoski@... <mailto:mike.bernoski%40sekureconnekt.com> <mailto:mike.bernoski%40sekureconnekt.com> > wrote: Hastert's office called me back and said they were unable to fit me in before the election. I resubmitted a request for between now and the start of the congressional session. Say a prayer for me to say the right thing on Imus at 6:29am our time in the morning... Regards, Mike Bernoski *** The future belongs to those who believe *** in the beauty of their dreams... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Wow Mike, that makes me so sad that they would do that. Thanks again for your courage and the generosity of your time. S. Re: Update Mike - YOU WERE ABSOLUTELY PERFECT....did not see this until this morning - I prayed for you anyway --- but you did not need it -- you were fantastic...honestly, I was concerned -- if Imus went on a rampage it would be easy to get caught up in it - but he remained calm cause YOU set the tone - you were awesome Mike Bernoski <mike.bernoski@... <mailto:mike.bernoski%40sekureconnekt.com> <mailto:mike.bernoski%40sekureconnekt.com> > wrote: Hastert's office called me back and said they were unable to fit me in before the election. I resubmitted a request for between now and the start of the congressional session. Say a prayer for me to say the right thing on Imus at 6:29am our time in the morning... Regards, Mike Bernoski *** The future belongs to those who believe *** in the beauty of their dreams... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Could not agree more.......You have camps for: ABA vs. TEACH vs. floor time vs. whatever Tomatoes vs. Bernard GFCF vs. SCD Enzymes vs. diet vs. no diet biomedical vs. behavior .........etc. The bottom line is what works for one may not work for the other, and in my opinion Autism is caused by multiple things. It is a condition, a symptom of an underlining cause (so) that no one really knows for sure.... > I sometimes think the extremism represented in the autism community is > its own worst enemy, and our opponents are laughing all the way to the > bank... > > Regards, > > Mike Bernoski > > > > *** The future belongs to those who believe > *** in the beauty of their dreams... > > ________________________________ > > From: Texas-Autism-Advocacy > [mailto:Texas-Autism-Advocacy ] On Behalf Of Todd Snively > Sent: Wednesday, November 01, 2006 10:00 AM > To: Texas-Autism-Advocacy > Subject: RE: Update > > > > YOU WERE AWESOME!!!! It's so wonderful to have such a calm, cool and > collected parent like you representing all of us. THANK YOU! > Tammy > > Mike Bernoski <mike.bernoski@... > <mailto:mike.bernoski%40sekureconnekt.com> > wrote: > Man! something like that is hard to do... I am not sure I took a breath > for 5 minutes, and of course I only got 20% of my points checked off my > list. Oh well, thank you for your prayers... > > Regards, > > Mike Bernoski > > *** The future belongs to those who believe > *** in the beauty of their dreams... > > ________________________________ > > From: Texas-Autism-Advocacy > <mailto:Texas-Autism-Advocacy%40yahoogroups.com> > [mailto:Texas-Autism-Advocacy > <mailto:Texas-Autism-Advocacy%40yahoogroups.com> ] On Behalf Of Mara > LaViola > Sent: Wednesday, November 01, 2006 6:52 AM > To: Texas-Autism-Advocacy > <mailto:Texas-Autism-Advocacy%40yahoogroups.com> > Subject: Re: Update > > Mike - YOU WERE ABSOLUTELY PERFECT....did not see this until this > morning - I prayed for you anyway --- but you did not need it -- you > were fantastic...honestly, I was concerned -- if Imus went on a rampage > it would be easy to get caught up in it - but he remained calm cause YOU > set the tone - you were awesome > > Mike Bernoski <mike.bernoski@... > <mailto:mike.bernoski%40sekureconnekt.com> > <mailto:mike.bernoski%40sekureconnekt.com> > wrote: Hastert's office > called me back and said they were unable to fit me in > before the election. > > I resubmitted a request for between now and the start of the > congressional session. > > Say a prayer for me to say the right thing on Imus at 6:29am our time in > the morning... > > Regards, > > Mike Bernoski > > *** The future belongs to those who believe > *** in the beauty of their dreams... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Mike, I saw the Youtube video and saw you at the Autism Silent Protest in and appreciate all that you are doing for our ASD families. It does not surprize me that you have been " flamed " . This is something I slowly learned as I became more knowledgeable of Autism - biomed, ABA, different therapies, different groups, so on and on.......... Hey, I hope your company appreciates what you are doing. If you get any negative stuff there, please post or email off-line. I would just LOVE to express to your company your great American values and service as a spokesman for Autism. ********clip from previous post " I am also going to have to give back last weeks salary to my employer. " ******** I would also like to offer money if in anyway you actually have to " give back " any money. I sincerely mean it too. I also look forward to listening to Imus on MSNBC when I find the link........ :>) Mark Colditz Carrollton, Texas 19 year old, quiet Asperger son in the Autism spectrum Hastert's office > called me back and said they were unable to fit me in > before the election. > > I resubmitted a request for between now and the start of the > congressional session. > > Say a prayer for me to say the right thing on Imus at 6:29am our time in > the morning... > > Regards, > > Mike Bernoski > > *** The future belongs to those who believe > *** in the beauty of their dreams... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Just an observation but there are so many enviromental toxins as well as the ones in the vaccines. Our foods and the air we breathe just for example. I applaude Mike for standing up for all of us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 I just have to add something on this one. I urge everyone who is single-minded as to what they believe the " cause " of their child's autism might be, to PLEASE remember that we just sometimes DONT know everything. I do NOT disagree with anyone who believes their child's autism was created by vaccinations. I have 4 other family members, all male and all sons/grandsons of my aunt (my mother's sister). My daughter experienced severe problems breathing on her own after she was born, and this happened without warning as the pregnancy and birth were uneventful, and she went full-term (38 weeks). My daughter was pathetically behind on her vaccinations until last August. I mean really behind, as in did not have but the first round. Another thanks for Mike and all of you who have worked so hard trying to get something going in a positive direction. Much appreciated here in southeast Texas. > > Just an observation but there are so many enviromental toxins as well as the ones in the vaccines. Our foods and the air we breathe just for example. I applaude Mike for standing up for all of us. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 Thank you Mike! Anne -- Re: Update Mike - YOU WERE ABSOLUTELY PERFECT....did not see this until this morning - I prayed for you anyway --- but you did not need it -- you were fantastic...honestly, I was concerned -- if Imus went on a rampage it would be easy to get caught up in it - but he remained calm cause YOU set the tone - you were awesome Mike Bernoski <mike.bernoski@... <mailto:mike.bernoski%40sekureconnekt.com> > wrote: Hastert's office called me back and said they were unable to fit me in before the election. I resubmitted a request for between now and the start of the congressional session. Say a prayer for me to say the right thing on Imus at 6:29am our time in the morning... Regards, Mike Bernoski *** The future belongs to those who believe *** in the beauty of their dreams... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 HI Brett, I am one of the wifes that is dealing with a dragon infested husband and I thought I write and give you my point of view and how we feel at time! Maybe it will help.First of all: I would never ever leave my husband, I love hima and we are together in sickness and health. We only had 2 good years when I first met him and then he got sick and it was bad from the start. I been taking care of him now since 1999 and it has been a rollercoaster of a life. (I dont like rollercoasters) Sometimes I feel life has dealed us a rough blow and sometimes I dont know how to go on with it. But for Kim's sake I have too. By now I am on antidepressant " s and my health is going down fast too, but I have to go on. I get moody and sometimes even resentful and I am sure Kim feels like I am thinking about leaving. That thought has never entered my mind. If you love a person, and that person gets sick and badly sick, one feels the pain with that person and sometimes even more then the sick one itself. It is not easy on us wifes to watch the loved one hurting so sometime we come accross a little harsh. In order to not let Kim get to a point where he lets the sickness take over his life, I have to be hard and make him do things he does not want to do. That is not an easy thing to do for either one of us. I guess what I am trying to say is that sometimes things look different then what they really are. It is called " tough Love " and it is not the ideal thing for a marriage. Your wife has stuck it out for this long, I think she will stick it out all the way. I know I will, not because I have to, but because I love my husband. I pray you have a good day. Jenaka > > I haven't posted for a while so I thought I would check in. I went on medical leave in May and my long term disability and SSI were approved, for that I feel blessed. After leaving work I went into a deep depression and I was over medicating not on just the pain meds but also had a bad reaction to xanax and amitripilyne. My marriage has been rocky from the start but since I got stills it has got worse. I am getting counseling now but I fear it might be to late. We sold our house the end of Sep. and move to a apartment on the Puyallup river. > > Brett, from Puyallup WA. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 HI Brett, I am one of the wifes that is dealing with a dragon infested husband and I thought I write and give you my point of view and how we feel at time! Maybe it will help.First of all: I would never ever leave my husband, I love hima and we are together in sickness and health. We only had 2 good years when I first met him and then he got sick and it was bad from the start. I been taking care of him now since 1999 and it has been a rollercoaster of a life. (I dont like rollercoasters) Sometimes I feel life has dealed us a rough blow and sometimes I dont know how to go on with it. But for Kim's sake I have too. By now I am on antidepressant " s and my health is going down fast too, but I have to go on. I get moody and sometimes even resentful and I am sure Kim feels like I am thinking about leaving. That thought has never entered my mind. If you love a person, and that person gets sick and badly sick, one feels the pain with that person and sometimes even more then the sick one itself. It is not easy on us wifes to watch the loved one hurting so sometime we come accross a little harsh. In order to not let Kim get to a point where he lets the sickness take over his life, I have to be hard and make him do things he does not want to do. That is not an easy thing to do for either one of us. I guess what I am trying to say is that sometimes things look different then what they really are. It is called " tough Love " and it is not the ideal thing for a marriage. Your wife has stuck it out for this long, I think she will stick it out all the way. I know I will, not because I have to, but because I love my husband. I pray you have a good day. Jenaka > > I haven't posted for a while so I thought I would check in. I went on medical leave in May and my long term disability and SSI were approved, for that I feel blessed. After leaving work I went into a deep depression and I was over medicating not on just the pain meds but also had a bad reaction to xanax and amitripilyne. My marriage has been rocky from the start but since I got stills it has got worse. I am getting counseling now but I fear it might be to late. We sold our house the end of Sep. and move to a apartment on the Puyallup river. > > Brett, from Puyallup WA. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2006 Report Share Posted November 14, 2006 Jenaka Loved your letter to Brett .I wish my ex had felt as you do. She divorced me after I got stills. Did this about a year later. She left me with nothing to even get by with. It is nice to know there are good people that stand by there other half and believe in the vows better or worse. That covers it all including in sickness and health. I now have a woman in my life that is like that only she never got to know me before stills when I could do things and still work and enjoy life fuller then I do now days. Saddest part in it all is it is not only the wife/ husband but the kids and they seam to fair worse then any one other. My son is still hurting after it all and worries all the time about me. At lest we see each other may be once a year and talk all the time my daughter after two years now dose not talk to me at all in any way shape or form. This is just what her mother wanted. Her mother also told her I was cheating on here because I went out and started to date one month before the divorce was to be final but did not tell her she gave me no option for ever coming back even thou I begged her to go to go to family and individual concealing with me at lest one time each month. I beloved then and still do that the time to work on it (a Marriage) is before a divorce not after as I also let her know if she went ahead and finished it off then she was letting me know there was nothing to work on . That is just what she did as a two week later I got a letter that said she wanted every thing including all right to my kids taken from me blaming my stills and depression for the reasons. Well that is just what the judge gave her also every thing and me nothing but debt. This all came down because I got ill and could not work. What I also know now is I was nothing more then a pay check coming into the house. I also know she did some thing I never could have done and it is with great pleasure that I have some one in my life like that now and to read there are more out there like you and her. Thank you for letting us know yes it is not easy but some times doing what is right is neither easy nor popular Hugs all Marty Re: update HI Brett, I am one of the wifes that is dealing with a dragon infested husband and I thought I write and give you my point of view and how we feel at time! Maybe it will help.First of all: I would never ever leave my husband, I love hima and we are together in sickness and health. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2006 Report Share Posted December 2, 2006 Hey Lauri..they sometimes think about that with me too and then come back to Stills. Don't go..stay...let us know how you are. By the way. Do you have a positive ANA ? How high, if you know. I hope you feel bettter Liz NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2006 Report Share Posted December 2, 2006 Lauri, You are always welcome here, Stills diagnosis or not. Lupus is our cousin and many of the issues similar. What made him change the diagnosis to Lupus? I'm glad you are getting a second opinion. It can't hurt to have someone else weigh in. I know every time I see a new rheumy they check me for Lupus just to make sure my diagnosis is right. Let us know what's going on. Houston Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2007 Report Share Posted March 2, 2007 Sorry about your Grandma. Your family is in my thoughts. Love and gentle hugs Sharon xxoo > I have been offline for awhile wow 600 emails and at least few new > members welcome to the Island.I see alot of members who used to > be active checking in thats cool.I have been doing well,but > yesterday someone stole my Truck damn Bandits Cops still havent > found it .Ohh well im drivin in style they can keep it.My Grandma > is not doing well at the moment though,doctors dont think she will > be with us long but she proved them wrong before .Take care > everyone. d.Canada > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2007 Report Share Posted March 11, 2007 Hay Gail..how maddening !! Let me know how you do this week. Many hugs my friend Liz NJ <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2007 Report Share Posted December 5, 2007 ((())) Wish I knew what to say. My son does not have seizures so I don't understand that part of what you are going thought. BUT my heart does go out to you. I have different things that we deal with. Please know I will be praying for Mojo, you and your family. Kami " The Lord bless you and keep you; The Lord make His face shine upon you, And be gracious to you; The Lord lift up His countenance upon you, And give you peace. " numbers 6:24 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2007 Report Share Posted December 5, 2007 Kami Thank you for your kind words, opps (flood gates open again) I hope you are able to find the answers you need to sort out your difficulties. God Bless you and all your family To: polymicrogyria@...: jkdyers@...: Wed, 5 Dec 2007 16:07:43 -0800Subject: Re: update ((()))Wish I knew what to say. My son does not have seizures so I don't understand that part of what you are going thought. BUT my heart does go out to you. I have different things that we deal with. Please know I will be praying for Mojo, you and your family.Kami " The Lord bless you and keep you;The Lord make His face shine uponyou, And be gracious to you;The Lord lift up His countenance upon you, And give you peace. " numbers 6:24[Non-text portions of this message have been removed] _________________________________________________________________ Who's friends with who and co-starred in what? http://www.searchgamesbox.com/celebrityseparation.shtml Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2007 Report Share Posted December 5, 2007 so sorry to hear that you are going through this. I would be crying to if I was in your situation. It has to be so hard to deal with and see your child deal with it. Hope things get better. lisa166284 wrote: Hi all Just a quick email to keeo you up todate with Mojo. Well we are due to go back in to hospital again tomorrow! his seizures have becone so bad that he has to go into hospitsl sgsin!! I'm so tried of going back and forth and never getting any where, i just want to cry all the time!don't get me wrong this really is nothing new, he is consantly in and out of hopspital, but some days i really don't feel i can keep putting him throught this! he hardly sleeps because the seizure are sleep triggerd! (great eh!) he's so tired because of all the seizures and his schooling is being seriously effected and for that matter, so am I! were maxied out on the emergency meds. because were having to use it sooo often. he had 4 major fits yesterday plus several drop attacks, and repeated abcences. Sorry to moan but i needed to get it out of my system before i am awake at 3am again dealing with more seizures!! sorry if there are any typo's but this is the only time i can get the crying out without upsetting the rest of thr house and it's becoming harder to type through the tears.(DON'T WoRRY I'LL BE FINE I THE MORNING!) LOL i think we all have these days. But on a good note!! MERRY CHRISTMAS EVERYONE LETS HOPE THAT 2008 IS KIND TO US ALL!! Mom 2 Evan Left Spastic Hemiplegia 3yrs old, 6.5yrs nda and SM to 15.5yrs www.justinichfamily.blogspot.com --------------------------------- Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2007 Report Share Posted December 5, 2007 I'm so sorry you're going through all this. It just wears you down. I hope you get some rest, real rest, soon. I'll be thinking of you. Hugs and prayers, mom to 5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2007 Report Share Posted December 5, 2007 Hi , We all have those days, don't we? I will pray that God strenghtens you and renew you tonight. I always ask for wisdom on my son's treatment and I ask Him to guide me by my hand, He is the only One that really knows how each one of us feel and the only One who can confort and guide us. God Bless you. Deborah lisa166284 wrote: Hi all Just a quick email to keeo you up todate with Mojo. Well we are due to go back in to hospital again tomorrow! his seizures have becone so bad that he has to go into hospitsl sgsin!! I'm so tried of going back and forth and never getting any where, i just want to cry all the time!don't get me wrong this really is nothing new, he is consantly in and out of hopspital, but some days i really don't feel i can keep putting him throught this! he hardly sleeps because the seizure are sleep triggerd! (great eh!) he's so tired because of all the seizures and his schooling is being seriously effected and for that matter, so am I! were maxied out on the emergency meds. because were having to use it sooo often. he had 4 major fits yesterday plus several drop attacks, and repeated abcences. Sorry to moan but i needed to get it out of my system before i am awake at 3am again dealing with more seizures!! sorry if there are any typo's but this is the only time i can get the crying out without upsetting the rest of thr house and it's becoming harder to type through the tears.(DON'T WoRRY I'LL BE FINE I THE MORNING!) LOL i think we all have these days. But on a good note!! MERRY CHRISTMAS EVERYONE LETS HOPE THAT 2008 IS KIND TO US ALL!! --------------------------------- Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 That's great news & I hope no more hospitalizations for your . -- Marie A. Mom to Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2008 Report Share Posted June 21, 2008 -- Best of luck as you undertake this! I'm thinking of you and , and looking forward to hearing about his progress. Blessings, mom to 5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2009 Report Share Posted May 17, 2009 They wanted me to do treatment for Hep C before my transplant even though my cirrhosis was decompensated, but I wasn't stable enough to handle it at that time. Is your brother's cirrhosis compensated or decompensated? I don't remember if you said he had ascites (fluid in abdomen), varices, encephalopathy (confusion), or jaundice which would make his cirrhosis decompensated. I have a friend who did treatment two times while having compensated cirrhosis (last treatment in 2002), and it didn't work for her, but it seemed to help a little since she is still in pretty good shape and still compensated. Penny > > My sister emailed me about . She's called his social worker and told them about how he's still eating too much sodium. They are going to see if is cabable of learning about this, and also explain to our parents that sow sodium diet is not a sometimetimes thing and tell them places they could go to eat out. They usually eat out at least once a week. She told me that she does not believe will get a liver transplant because of other problems. The doctors still don't know if he also has MS or not. With Hep C Stage 4 and Cirrosis of the Liver, how long does a person usually live without treatment for Hep C? Do they treat Hep C prior to liver transplant if the patient also has cirrosis of the liver? also has an enlarged spleen. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2009 Report Share Posted May 17, 2009 They removed a large amount of liquid sometime ago, but not recently. He does have confusion. Not sure if it is compressed or not. The liquid removal is why they restricted his sodium. ---- preciouspenny3 wrote: > They wanted me to do treatment for Hep C before my transplant even though my cirrhosis was decompensated, but I wasn't stable enough to handle it at that time. Is your brother's cirrhosis compensated or decompensated? I don't remember if you said he had ascites (fluid in abdomen), varices, encephalopathy (confusion), or jaundice which would make his cirrhosis decompensated. I have a friend who did treatment two times while having compensated cirrhosis (last treatment in 2002), and it didn't work for her, but it seemed to help a little since she is still in pretty good shape and still compensated. > > Penny > > > > > > > > My sister emailed me about . She's called his social worker and told them about how he's still eating too much sodium. They are going to see if is cabable of learning about this, and also explain to our parents that sow sodium diet is not a sometimetimes thing and tell them places they could go to eat out. They usually eat out at least once a week. She told me that she does not believe will get a liver transplant because of other problems. The doctors still don't know if he also has MS or not. With Hep C Stage 4 and Cirrosis of the Liver, how long does a person usually live without treatment for Hep C? Do they treat Hep C prior to liver transplant if the patient also has cirrosis of the liver? also has an enlarged spleen. > > > > > > > ------------------------------------ > > It's a pleasure having you join in our conversations. We hope you have found the support you need with us. > > If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ > > Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2009 Report Share Posted May 18, 2009 hi Penny. you have been through so much the last couple of years. when you got your transplant in jan '08 why did your viral count seem so low? mine was 7,500,000 and my liver numbers were just a little above normal. is it because your old liver just gave up trying? is that de-compensating? how is your new liver? i know treatment is a drag but how are you feeling? sorry for so many questions. (((hugs))) Quote Link to comment Share on other sites More sharing options...
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