Guest guest Posted September 12, 2011 Report Share Posted September 12, 2011 She is in therapy and it is going well, so far. Hopefully it continues to get better. Today she said her tummy hurt at the bus stop and she thought she was going to throw up. I am sure it was anxiety. One thing she is handling well is, we have lice. When she first heard of lice, she was freaked out. Now she understands more and isnt too worried about it. She has figured out it is a major annoyance! OMG it is awful!!!!!! Both my girls and myself have it. UGH! We have been treating it (and our home) since Saturday morning. I THINK we have it under control, but it is such a pain and a big job! I am trying to keep my stress and complaints to myself! She has not freaked out about it, just says she is sick of washing her hair - so am I! Sharon ________________________________ To: Sent: Sunday, September 11, 2011 9:33 AM Subject: Re: update  Sounds a lot like social anxiety disorder....it can be treated with exposure and CBT, but untreated, it can be difficult due to the avoidance behaviors....we're dealing with this at our house. Bonnie > > > > My dd is 10, this has been our worst summer ever. As summer goes on, she is doing better. She has been taking horse back riding lessons and that has helped so much! My sister gave her lessons for her bday, therapy was not the intent, but it has done a lot. One huge thing is she can ride a 2 wheeler now, without training wheels. She could not do it before, was scared to try. But if she can ride and control a huge horse and be ok, she should be able to ride a > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2011 Report Share Posted September 13, 2011 Oh Sharon, knock on wood I never had lice here, but many of the teachers I knew years ago at a preschool would talk about the treatment for it, having it in their homes, etc. A lot of work! But hooray for your dd for handling it so well. Interesting how our kids can sooo dread, freak out, over some things and then handle the reality of it better. But glad she is, makes that part easier on you!! > > She is in therapy and it is going well, so far. Hopefully it continues to get better. Today she said her tummy hurt at the bus stop and she thought she was going to throw up. I am sure it was anxiety. > > One thing she is handling well is, we have lice. When she first heard of lice, she was freaked out. Now she understands more and isnt too worried about it. She has figured out it is a major annoyance! OMG it is awful!!!!!! Both my girls and myself have it. UGH! We have been treating it (and our home) since Saturday morning. I THINK we have it under control, but it is such a pain and a big job! I am trying to keep my stress and complaints to myself! She has not freaked out about it, just says she is sick of washing her hair - so am I! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2011 Report Share Posted September 14, 2011 Thank you. Her handling it well sure does help ease my stress in dealing with it. We have had late bed times - due to having to treat and comb through 3 heads of hair. And I am doing laundry non-stop. I have a home daycare and one of the school age girls (attends the same school as my dds) has lice, too. Fun times. Ugh. I just have a quick brag.  My OCDer is in 4th grade. They just had testing for reading levels at school. She tested at an 8th grade level, almost 9th grade! She is SOOO proud of herself! She was the highest in her class. Sharon ________________________________ To: Sent: Tuesday, September 13, 2011 8:43 PM Subject: Re: update  Oh Sharon, knock on wood I never had lice here, but many of the teachers I knew years ago at a preschool would talk about the treatment for it, having it in their homes, etc. A lot of work! But hooray for your dd for handling it so well. Interesting how our kids can sooo dread, freak out, over some things and then handle the reality of it better. But glad she is, makes that part easier on you!! > > She is in therapy and it is going well, so far. Hopefully it continues to get better. Today she said her tummy hurt at the bus stop and she thought she was going to throw up. I am sure it was anxiety. > > One thing she is handling well is, we have lice. When she first heard of lice, she was freaked out. Now she understands more and isnt too worried about it. She has figured out it is a major annoyance! OMG it is awful!!!!!! Both my girls and myself have it. UGH! We have been treating it (and our home) since Saturday morning. I THINK we have it under control, but it is such a pain and a big job! I am trying to keep my stress and complaints to myself! She has not freaked out about it, just says she is sick of washing her hair - so am I! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2011 Report Share Posted September 14, 2011 Sharon, well she should be proud, congrats to her!! plus highest in her class!! always tested high in that area too, and read a lot until OCD messed with his reading, sigh! Oh poor you, lice and a home daycare! I can only imagine the extra precautions and work you'll having to do between the two! > > Thank you. Her handling it well sure does help ease my stress in dealing with it. We have had late bed times - due to having to treat and comb through 3 heads of hair. And I am doing laundry non-stop. I have a home daycare and one of the school age girls (attends the same school as my dds) has lice, too. Fun times. Ugh. > > I just have a quick brag.  My OCDer is in 4th grade. They just had testing for reading levels at school. She tested at an 8th grade level, almost 9th grade! She is SOOO proud of herself! She was the highest in her class. > Sharon > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2011 Report Share Posted September 15, 2011 Thanks Chris. She has always done well in reading and math. She is doing some testing for math today and is excited about it. I would have been dreading it! I think my own are finally lice free. I have 2 of my daycare children (school age siblings) with it, so hopefully they are working as hard at home to get rid of it as I am here! I guess it could be worse than lice, no one is sick or missing school. Sharon ________________________________ To: Sent: Wednesday, September 14, 2011 3:39 PM Subject: Re: update  Sharon, well she should be proud, congrats to her!! plus highest in her class!! always tested high in that area too, and read a lot until OCD messed with his reading, sigh! Oh poor you, lice and a home daycare! I can only imagine the extra precautions and work you'll having to do between the two! > > Thank you. Her handling it well sure does help ease my stress in dealing with it. We have had late bed times - due to having to treat and comb through 3 heads of hair. And I am doing laundry non-stop. I have a home daycare and one of the school age girls (attends the same school as my dds) has lice, too. Fun times. Ugh. > > I just have a quick brag.  My OCDer is in 4th grade. They just had testing for reading levels at school. She tested at an 8th grade level, almost 9th grade! She is SOOO proud of herself! She was the highest in her class. > Sharon > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2011 Report Share Posted September 30, 2011 Carlton -- you can listen on your computer vs your ipod ... some times that's what I do when I'm doing 'boring things' like ironing or folding laundry!  ________________________________ To: " insideoutweightloss " <insideoutweightloss > Sent: Friday, September 30, 2011 2:02 PM Subject: Update  Hi. AAARGH! I found out yesterday that I will be without my laptop until the techies fix it. My skills could not convince it to boot up. Worst thing is that my old coal fired steam powered desktop seems utterly unable to synch my iPod. NO PODCASTS! I will be free for at least 2 weeks. I guess it is a chance to see if I can practice what I have been listening. I have heard all the podcasts up to date after the last 3 months or so of intensive listening. We will see what this does without the reinforcement of 's kind and gentle voice.  Carlton Larsen, Ba, Bgp Freelance Musician 426 Pinehouse Drive Saskatoon Sk S7K4X5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 BJ I am so sorry that you are having such a hard time. No words of advice right now, just hugs for you and ears to listen. I hope he will begin to see that this is no way to live and that he must decide to help himself before anyone else can help him. Are you able to get therapy or meds for yourself? Hang in there, (mom with OCD, 11.5 yo dd w/OCD, and 9 yo dd w/tics and possible OCD) Sent from my iPod > I haven't been in the group much because I feel so beat up that I felt I have nothing to contribute to help others. It seemed easier to stay away for a while. > > Some days, I find myself just play mind numbing computer games so I can " check out " in my own mind for a bit. More often than not, I don't even get out of my pajamas. I know depression has set in, but feel unmotivated to try to fight it. > > > > Since cutting our son's meds in half, due to severe reactions, things have spiraled out of control. Some days it's just downright overwhelming. > > Teenage behavior and OCD is a challenge, to be sure. > > We were up until 5 am last night, while he rolled and used toilet paper for 2 hours straight. Since the bathroom shares a wall with our bedroom, I could hear the rumble of the toilet paper the whole time. > > My response: It's OCD, maybe we can find a way for you to work on it. His response: It's not OCD. . It's logical. > > We've been up to see his therapist 3 times lately, since he has a break from college (still unable to go full time). I'd hoped he would listen to his therapist, because at age 19 there is nothing I can say that is " right " . > > They put together a plan to work on things, but he seems to have a really hard time following through on this lower dose of meds. So, OCD continues to control our home, and him. > > We had the dreaded talk, with his therapist, about what we do if he cannot take care of himself. . .Someday. . . . > > Disability was brought up, as a possibility in the future, which made me sick to my stomach. > > Increasing meds is not an option. ERP seems impossible for him at this point. And we continue the vicious cycle of OCD, which is taking us all to the brink. :~( > > Oddly, since lowering his meds, he is experiencing some symptoms of getting mentally lost at times. Not distracted by OCD thoughts, but just lost in his thoughts to the point that he loses track of time. . Sometimes for hours. So, possibly ADHD has been added to the list of OCD, GAD, possible Tourettes, and possible Aspergers. More labels. . Still the same problems with no solutions. > > I question why this " probably ADHD stuff " was not a problem on the higher dose of meds, but not sure anyone can know. > > I try to remind myself to be thankful he is at least not back on the sofa in the fetal position like he's been in the past. . Some of you probably remember that. But, this isn't easy either. > > I'm going through health issues of my own, trying to function, and the added weight of the combination of combative OCD, and combative teenage behavior, just pushes me over the edge at times. > > We are often sleep deprived, mostly due to OCD too, which never helps anything. > > Anyway, not meaning to drag others down, nor even expect anyone else to know the answers, but just needing to vent today, as another day goes by where I fight back the tears of trying to cope. > > Have I mentioned that I HATE OCD! <sigh> > > BJ > > > > > > > > > > > ------------------------------------ > > Our list archives feature may be accessed at: http://health.groups.yahoo.com/group// by scrolling down to the archives calendar . Our links may be accessed at http://health.groups.yahoo.com/group//links . Our files may be accessed at > http://health.groups.yahoo.com/group//files . > Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), and Tamar Chansky, Ph.D.( http://www.worrywisekids.org ) > You may ask a question of any of these mental health professionals by inserting the words " Ask Dr.(insert name) " in the subject line of a post to the list. Our list moderators are Castle, BJ, and Barb Nesrallah. You may contact the moderators at -owner . > OCDKidsLoop membership may be accessed at http://health.groups.yahoo.com/group/ocdkidsloop/ . > Our group and related groups are listed at http://health.groups.yahoo.com/group/ocdsupportgroups/links . IOCDF treatment providers list may be viewed at http://www.ocfoundation.info/treatment-providers-list.php . > NLM-NIH Drug Information Portal may be viewed at > http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp?APPLICATION_NAME=drugporta\ l . IOCDF recommended reading list may be accessed at http://www.ocfoundation.org/Books.aspx . IOCDF glossary of terms may be accessed at http://www.ocfoundation.org/glossary.aspx . IOCDF membership link may be accessed at http://www.ocfoundation.net/membership/ . Drugs.com pill identification wizard may be accessed at http://www.drugs.com/imprints.php . Mayo Clinic Drug and Herb Index may be accessed at http://www.mayoclinic.com/health/drug-information/DrugHerbIndex .Yahoo! Groups Links > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 BJ I am so sorry that you are having such a hard time. No words of advice right now, just hugs for you and ears to listen. I hope he will begin to see that this is no way to live and that he must decide to help himself before anyone else can help him. Are you able to get therapy or meds for yourself? Hang in there, (mom with OCD, 11.5 yo dd w/OCD, and 9 yo dd w/tics and possible OCD) Sent from my iPod > I haven't been in the group much because I feel so beat up that I felt I have nothing to contribute to help others. It seemed easier to stay away for a while. > > Some days, I find myself just play mind numbing computer games so I can " check out " in my own mind for a bit. More often than not, I don't even get out of my pajamas. I know depression has set in, but feel unmotivated to try to fight it. > > > > Since cutting our son's meds in half, due to severe reactions, things have spiraled out of control. Some days it's just downright overwhelming. > > Teenage behavior and OCD is a challenge, to be sure. > > We were up until 5 am last night, while he rolled and used toilet paper for 2 hours straight. Since the bathroom shares a wall with our bedroom, I could hear the rumble of the toilet paper the whole time. > > My response: It's OCD, maybe we can find a way for you to work on it. His response: It's not OCD. . It's logical. > > We've been up to see his therapist 3 times lately, since he has a break from college (still unable to go full time). I'd hoped he would listen to his therapist, because at age 19 there is nothing I can say that is " right " . > > They put together a plan to work on things, but he seems to have a really hard time following through on this lower dose of meds. So, OCD continues to control our home, and him. > > We had the dreaded talk, with his therapist, about what we do if he cannot take care of himself. . .Someday. . . . > > Disability was brought up, as a possibility in the future, which made me sick to my stomach. > > Increasing meds is not an option. ERP seems impossible for him at this point. And we continue the vicious cycle of OCD, which is taking us all to the brink. :~( > > Oddly, since lowering his meds, he is experiencing some symptoms of getting mentally lost at times. Not distracted by OCD thoughts, but just lost in his thoughts to the point that he loses track of time. . Sometimes for hours. So, possibly ADHD has been added to the list of OCD, GAD, possible Tourettes, and possible Aspergers. More labels. . Still the same problems with no solutions. > > I question why this " probably ADHD stuff " was not a problem on the higher dose of meds, but not sure anyone can know. > > I try to remind myself to be thankful he is at least not back on the sofa in the fetal position like he's been in the past. . Some of you probably remember that. But, this isn't easy either. > > I'm going through health issues of my own, trying to function, and the added weight of the combination of combative OCD, and combative teenage behavior, just pushes me over the edge at times. > > We are often sleep deprived, mostly due to OCD too, which never helps anything. > > Anyway, not meaning to drag others down, nor even expect anyone else to know the answers, but just needing to vent today, as another day goes by where I fight back the tears of trying to cope. > > Have I mentioned that I HATE OCD! <sigh> > > BJ > > > > > > > > > > > ------------------------------------ > > Our list archives feature may be accessed at: http://health.groups.yahoo.com/group// by scrolling down to the archives calendar . Our links may be accessed at http://health.groups.yahoo.com/group//links . Our files may be accessed at > http://health.groups.yahoo.com/group//files . > Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), and Tamar Chansky, Ph.D.( http://www.worrywisekids.org ) > You may ask a question of any of these mental health professionals by inserting the words " Ask Dr.(insert name) " in the subject line of a post to the list. Our list moderators are Castle, BJ, and Barb Nesrallah. You may contact the moderators at -owner . > OCDKidsLoop membership may be accessed at http://health.groups.yahoo.com/group/ocdkidsloop/ . > Our group and related groups are listed at http://health.groups.yahoo.com/group/ocdsupportgroups/links . IOCDF treatment providers list may be viewed at http://www.ocfoundation.info/treatment-providers-list.php . > NLM-NIH Drug Information Portal may be viewed at > http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp?APPLICATION_NAME=drugporta\ l . IOCDF recommended reading list may be accessed at http://www.ocfoundation.org/Books.aspx . IOCDF glossary of terms may be accessed at http://www.ocfoundation.org/glossary.aspx . IOCDF membership link may be accessed at http://www.ocfoundation.net/membership/ . Drugs.com pill identification wizard may be accessed at http://www.drugs.com/imprints.php . Mayo Clinic Drug and Herb Index may be accessed at http://www.mayoclinic.com/health/drug-information/DrugHerbIndex .Yahoo! Groups Links > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 Hi BJ, I am so, so sorry you are going through such pain right now. Nothing hurts worse than to see your child struggling so much. I do understand as a mother how things can become so exhausting and overwhelming it is easy to get depressed yourself. I pray that somehow there will be brighter days soon for you and your son and the OCD will loosen its grip on him so you can both enjoy OCD free days soon! I agree that I hate OCD too! To: From: kusminfam@... Date: Fri, 30 Dec 2011 19:51:32 -0500 Subject: Re: Update BJ I am so sorry that you are having such a hard time. No words of advice right now, just hugs for you and ears to listen. I hope he will begin to see that this is no way to live and that he must decide to help himself before anyone else can help him. Are you able to get therapy or meds for yourself? Hang in there, (mom with OCD, 11.5 yo dd w/OCD, and 9 yo dd w/tics and possible OCD) Sent from my iPod > I haven't been in the group much because I feel so beat up that I felt I have nothing to contribute to help others. It seemed easier to stay away for a while. > > Some days, I find myself just play mind numbing computer games so I can " check out " in my own mind for a bit. More often than not, I don't even get out of my pajamas. I know depression has set in, but feel unmotivated to try to fight it. > > > > Since cutting our son's meds in half, due to severe reactions, things have spiraled out of control. Some days it's just downright overwhelming. > > Teenage behavior and OCD is a challenge, to be sure. > > We were up until 5 am last night, while he rolled and used toilet paper for 2 hours straight. Since the bathroom shares a wall with our bedroom, I could hear the rumble of the toilet paper the whole time. > > My response: It's OCD, maybe we can find a way for you to work on it. His response: It's not OCD. . It's logical. > > We've been up to see his therapist 3 times lately, since he has a break from college (still unable to go full time). I'd hoped he would listen to his therapist, because at age 19 there is nothing I can say that is " right " . > > They put together a plan to work on things, but he seems to have a really hard time following through on this lower dose of meds. So, OCD continues to control our home, and him. > > We had the dreaded talk, with his therapist, about what we do if he cannot take care of himself. . .Someday. . . . > > Disability was brought up, as a possibility in the future, which made me sick to my stomach. > > Increasing meds is not an option. ERP seems impossible for him at this point. And we continue the vicious cycle of OCD, which is taking us all to the brink. :~( > > Oddly, since lowering his meds, he is experiencing some symptoms of getting mentally lost at times. Not distracted by OCD thoughts, but just lost in his thoughts to the point that he loses track of time. . Sometimes for hours. So, possibly ADHD has been added to the list of OCD, GAD, possible Tourettes, and possible Aspergers. More labels. . Still the same problems with no solutions. > > I question why this " probably ADHD stuff " was not a problem on the higher dose of meds, but not sure anyone can know. > > I try to remind myself to be thankful he is at least not back on the sofa in the fetal position like he's been in the past. . Some of you probably remember that. But, this isn't easy either. > > I'm going through health issues of my own, trying to function, and the added weight of the combination of combative OCD, and combative teenage behavior, just pushes me over the edge at times. > > We are often sleep deprived, mostly due to OCD too, which never helps anything. > > Anyway, not meaning to drag others down, nor even expect anyone else to know the answers, but just needing to vent today, as another day goes by where I fight back the tears of trying to cope. > > Have I mentioned that I HATE OCD! <sigh> > > BJ > > > > > > > > > > > ------------------------------------ > > Our list archives feature may be accessed at: http://health.groups.yahoo.com/group// by scrolling down to the archives calendar . Our links may be accessed at http://health.groups.yahoo.com/group//links . Our files may be accessed at > http://health.groups.yahoo.com/group//files . > Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), and Tamar Chansky, Ph.D.( http://www.worrywisekids.org ) > You may ask a question of any of these mental health professionals by inserting the words " Ask Dr.(insert name) " in the subject line of a post to the list. Our list moderators are Castle, BJ, and Barb Nesrallah. You may contact the moderators at -owner . > OCDKidsLoop membership may be accessed at http://health.groups.yahoo.com/group/ocdkidsloop/ . > Our group and related groups are listed at http://health.groups.yahoo.com/group/ocdsupportgroups/links . IOCDF treatment providers list may be viewed at http://www.ocfoundation.info/treatment-providers-list.php . > NLM-NIH Drug Information Portal may be viewed at > http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp?APPLICATION_NAME=drugporta\ l . IOCDF recommended reading list may be accessed at http://www.ocfoundation.org/Books.aspx . IOCDF glossary of terms may be accessed at http://www.ocfoundation.org/glossary.aspx . IOCDF membership link may be accessed at http://www.ocfoundation.net/membership/ . Drugs.com pill identification wizard may be accessed at http://www.drugs.com/imprints.php . Mayo Clinic Drug and Herb Index may be accessed at http://www.mayoclinic.com/health/drug-information/DrugHerbIndex .Yahoo! Groups Links > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2011 Report Share Posted December 30, 2011 Hi BJ, I am so, so sorry you are going through such pain right now. Nothing hurts worse than to see your child struggling so much. I do understand as a mother how things can become so exhausting and overwhelming it is easy to get depressed yourself. I pray that somehow there will be brighter days soon for you and your son and the OCD will loosen its grip on him so you can both enjoy OCD free days soon! I agree that I hate OCD too! To: From: kusminfam@... Date: Fri, 30 Dec 2011 19:51:32 -0500 Subject: Re: Update BJ I am so sorry that you are having such a hard time. No words of advice right now, just hugs for you and ears to listen. I hope he will begin to see that this is no way to live and that he must decide to help himself before anyone else can help him. Are you able to get therapy or meds for yourself? Hang in there, (mom with OCD, 11.5 yo dd w/OCD, and 9 yo dd w/tics and possible OCD) Sent from my iPod > I haven't been in the group much because I feel so beat up that I felt I have nothing to contribute to help others. It seemed easier to stay away for a while. > > Some days, I find myself just play mind numbing computer games so I can " check out " in my own mind for a bit. More often than not, I don't even get out of my pajamas. I know depression has set in, but feel unmotivated to try to fight it. > > > > Since cutting our son's meds in half, due to severe reactions, things have spiraled out of control. Some days it's just downright overwhelming. > > Teenage behavior and OCD is a challenge, to be sure. > > We were up until 5 am last night, while he rolled and used toilet paper for 2 hours straight. Since the bathroom shares a wall with our bedroom, I could hear the rumble of the toilet paper the whole time. > > My response: It's OCD, maybe we can find a way for you to work on it. His response: It's not OCD. . It's logical. > > We've been up to see his therapist 3 times lately, since he has a break from college (still unable to go full time). I'd hoped he would listen to his therapist, because at age 19 there is nothing I can say that is " right " . > > They put together a plan to work on things, but he seems to have a really hard time following through on this lower dose of meds. So, OCD continues to control our home, and him. > > We had the dreaded talk, with his therapist, about what we do if he cannot take care of himself. . .Someday. . . . > > Disability was brought up, as a possibility in the future, which made me sick to my stomach. > > Increasing meds is not an option. ERP seems impossible for him at this point. And we continue the vicious cycle of OCD, which is taking us all to the brink. :~( > > Oddly, since lowering his meds, he is experiencing some symptoms of getting mentally lost at times. Not distracted by OCD thoughts, but just lost in his thoughts to the point that he loses track of time. . Sometimes for hours. So, possibly ADHD has been added to the list of OCD, GAD, possible Tourettes, and possible Aspergers. More labels. . Still the same problems with no solutions. > > I question why this " probably ADHD stuff " was not a problem on the higher dose of meds, but not sure anyone can know. > > I try to remind myself to be thankful he is at least not back on the sofa in the fetal position like he's been in the past. . Some of you probably remember that. But, this isn't easy either. > > I'm going through health issues of my own, trying to function, and the added weight of the combination of combative OCD, and combative teenage behavior, just pushes me over the edge at times. > > We are often sleep deprived, mostly due to OCD too, which never helps anything. > > Anyway, not meaning to drag others down, nor even expect anyone else to know the answers, but just needing to vent today, as another day goes by where I fight back the tears of trying to cope. > > Have I mentioned that I HATE OCD! <sigh> > > BJ > > > > > > > > > > > ------------------------------------ > > Our list archives feature may be accessed at: http://health.groups.yahoo.com/group// by scrolling down to the archives calendar . Our links may be accessed at http://health.groups.yahoo.com/group//links . Our files may be accessed at > http://health.groups.yahoo.com/group//files . > Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), and Tamar Chansky, Ph.D.( http://www.worrywisekids.org ) > You may ask a question of any of these mental health professionals by inserting the words " Ask Dr.(insert name) " in the subject line of a post to the list. Our list moderators are Castle, BJ, and Barb Nesrallah. You may contact the moderators at -owner . > OCDKidsLoop membership may be accessed at http://health.groups.yahoo.com/group/ocdkidsloop/ . > Our group and related groups are listed at http://health.groups.yahoo.com/group/ocdsupportgroups/links . IOCDF treatment providers list may be viewed at http://www.ocfoundation.info/treatment-providers-list.php . > NLM-NIH Drug Information Portal may be viewed at > http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp?APPLICATION_NAME=drugporta\ l . IOCDF recommended reading list may be accessed at http://www.ocfoundation.org/Books.aspx . IOCDF glossary of terms may be accessed at http://www.ocfoundation.org/glossary.aspx . IOCDF membership link may be accessed at http://www.ocfoundation.net/membership/ . Drugs.com pill identification wizard may be accessed at http://www.drugs.com/imprints.php . Mayo Clinic Drug and Herb Index may be accessed at http://www.mayoclinic.com/health/drug-information/DrugHerbIndex .Yahoo! Groups Links > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2011 Report Share Posted December 31, 2011 (((hugs))) BJ! Sometimes " escape " (computer games, other) helps a bit. Have to keep that in mind with our kids too. LOL, I recall when the kids were young there was a video game, Tetris, and for a few weeks one time, I'd get home from work, change, and then play for at least 20 minutes; tell the kids, just wait, this is my way of relaxing, I don't have to think of anything else, concentrating on the game.... And it helped, sort of was preparing me for the evening demands I guess. Plus I did sit and play some games later in the middle school years while in the room with at bedtime, waiting for him to finally succeed in getting to bed and settling down. Sort of kept me mentally/emotionally uninvolved, though if you can recall those posts here, I would be like " it's 1:00am, can you try to be done SOON?!?! " Some nights more supportive than others, lol. Do you think he's " checking out " in some way when getting lost in his thoughts? Daydreaming or maybe just randomly thinking stuff? I still think you need to get some " noise " for your bedroom, like a fan or something to cover up hearing Josh while you're in bed. Could put it right by the wall your bedroom shares with the bathroom. I use a fan because of the ringing in my ears, but find it helps with not hearing clearly the kids in the house too since they're up later. Did the therapist mention the future " disability " part with Josh there? Wondering what Josh thought of that. Just some scattered thoughts of my own this morning! > > I haven't been in the group much because I feel so beat up that I felt I have nothing to contribute to help others. It seemed easier to stay away for a while. > > Some days, I find myself just play mind numbing computer games so I can " check out " in my own mind for a bit. More often than not, I don't even get out of my pajamas. I know depression has set in, but feel unmotivated to try to fight it. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2011 Report Share Posted December 31, 2011 (((hugs))) BJ! Sometimes " escape " (computer games, other) helps a bit. Have to keep that in mind with our kids too. LOL, I recall when the kids were young there was a video game, Tetris, and for a few weeks one time, I'd get home from work, change, and then play for at least 20 minutes; tell the kids, just wait, this is my way of relaxing, I don't have to think of anything else, concentrating on the game.... And it helped, sort of was preparing me for the evening demands I guess. Plus I did sit and play some games later in the middle school years while in the room with at bedtime, waiting for him to finally succeed in getting to bed and settling down. Sort of kept me mentally/emotionally uninvolved, though if you can recall those posts here, I would be like " it's 1:00am, can you try to be done SOON?!?! " Some nights more supportive than others, lol. Do you think he's " checking out " in some way when getting lost in his thoughts? Daydreaming or maybe just randomly thinking stuff? I still think you need to get some " noise " for your bedroom, like a fan or something to cover up hearing Josh while you're in bed. Could put it right by the wall your bedroom shares with the bathroom. I use a fan because of the ringing in my ears, but find it helps with not hearing clearly the kids in the house too since they're up later. Did the therapist mention the future " disability " part with Josh there? Wondering what Josh thought of that. Just some scattered thoughts of my own this morning! > > I haven't been in the group much because I feel so beat up that I felt I have nothing to contribute to help others. It seemed easier to stay away for a while. > > Some days, I find myself just play mind numbing computer games so I can " check out " in my own mind for a bit. More often than not, I don't even get out of my pajamas. I know depression has set in, but feel unmotivated to try to fight it. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2011 Report Share Posted December 31, 2011 Thanks, . Just having someplace to vent, with others who understand, helps. I've been in this " funk " for months and can't seem to shake it. I can't take any of the meds because of my heart, so that's off the table. Therapy. . Well, even the kid's therapist has said that I need to let him suffer the consequences of his actions. . And that's true. . The problem lies in him living in our house. We all suffer the consequences of his actions. The house isn't big enough for us not to all pay the price when he stays up and makes noise. He says he tries to be quiet, and he probably does, but he's like a bull in a china closet, and I'm a light sleeper. . Not a good combination. Then there is my own stuff I'm going through, which has no " medical " answer. I just have to wait for things to pass and improve, which they will sooner or later.. . . In the past, we went through our own crisis at different times so I was able to cope better. This time we are going through our individual stuff at the same time and it has made it a lot harder. I hope he sees it's no way to live either, but for the most part he is in defense mode. I think it is partly his age that makes it so. He justifies and defends OCD a lot right now. The things that worked in the past, aren't working now. And raising meds is out of the question, the one thing that I'm pretty sure could help. He wouldn't be willing to anyway, and at his age, I can't make him. He's lost 70 pounds, , since lowering his medication. I think he is afraid he will gain it back if he raises his dosage again. . Another thing that isn't a possibility due to him being on Celexa and the new warnings with that med. He would have to change meds, which he also refuses to do. Thanks for listening. BJ > > > I haven't been in the group much because I feel so beat up that I felt I have nothing to contribute to help others. It seemed easier to stay away for a while. > > > > Some days, I find myself just play mind numbing computer games so I can " check out " in my own mind for a bit. More often than not, I don't even get out of my pajamas. I know depression has set in, but feel unmotivated to try to fight it. > > > > > > > > Since cutting our son's meds in half, due to severe reactions, things have spiraled out of control. Some days it's just downright overwhelming. > > > > Teenage behavior and OCD is a challenge, to be sure. > > > > We were up until 5 am last night, while he rolled and used toilet paper for 2 hours straight. Since the bathroom shares a wall with our bedroom, I could hear the rumble of the toilet paper the whole time. > > > > My response: It's OCD, maybe we can find a way for you to work on it. His response: It's not OCD. . It's logical. > > > > We've been up to see his therapist 3 times lately, since he has a break from college (still unable to go full time). I'd hoped he would listen to his therapist, because at age 19 there is nothing I can say that is " right " . > > > > They put together a plan to work on things, but he seems to have a really hard time following through on this lower dose of meds. So, OCD continues to control our home, and him. > > > > We had the dreaded talk, with his therapist, about what we do if he cannot take care of himself. . .Someday. . . . > > > > Disability was brought up, as a possibility in the future, which made me sick to my stomach. > > > > Increasing meds is not an option. ERP seems impossible for him at this point. And we continue the vicious cycle of OCD, which is taking us all to the brink. :~( > > > > Oddly, since lowering his meds, he is experiencing some symptoms of getting mentally lost at times. Not distracted by OCD thoughts, but just lost in his thoughts to the point that he loses track of time. . Sometimes for hours. So, possibly ADHD has been added to the list of OCD, GAD, possible Tourettes, and possible Aspergers. More labels. . Still the same problems with no solutions. > > > > I question why this " probably ADHD stuff " was not a problem on the higher dose of meds, but not sure anyone can know. > > > > I try to remind myself to be thankful he is at least not back on the sofa in the fetal position like he's been in the past. . Some of you probably remember that. But, this isn't easy either. > > > > I'm going through health issues of my own, trying to function, and the added weight of the combination of combative OCD, and combative teenage behavior, just pushes me over the edge at times. > > > > We are often sleep deprived, mostly due to OCD too, which never helps anything. > > > > Anyway, not meaning to drag others down, nor even expect anyone else to know the answers, but just needing to vent today, as another day goes by where I fight back the tears of trying to cope. > > > > Have I mentioned that I HATE OCD! <sigh> > > > > BJ > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > Our list archives feature may be accessed at: http://health.groups.yahoo.com/group// by scrolling down to the archives calendar . Our links may be accessed at http://health.groups.yahoo.com/group//links . Our files may be accessed at > > http://health.groups.yahoo.com/group//files . > > Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), and Tamar Chansky, Ph.D.( http://www.worrywisekids.org ) > > You may ask a question of any of these mental health professionals by inserting the words " Ask Dr.(insert name) " in the subject line of a post to the list. Our list moderators are Castle, BJ, and Barb Nesrallah. You may contact the moderators at -owner . > > OCDKidsLoop membership may be accessed at http://health.groups.yahoo.com/group/ocdkidsloop/ . > > Our group and related groups are listed at http://health.groups.yahoo.com/group/ocdsupportgroups/links . IOCDF treatment providers list may be viewed at http://www.ocfoundation.info/treatment-providers-list.php . > > NLM-NIH Drug Information Portal may be viewed at > > http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp?APPLICATION_NAME=drugporta\ l . IOCDF recommended reading list may be accessed at http://www.ocfoundation.org/Books.aspx . IOCDF glossary of terms may be accessed at http://www.ocfoundation.org/glossary.aspx . IOCDF membership link may be accessed at http://www.ocfoundation.net/membership/ . Drugs.com pill identification wizard may be accessed at http://www.drugs.com/imprints.php . Mayo Clinic Drug and Herb Index may be accessed at http://www.mayoclinic.com/health/drug-information/DrugHerbIndex .Yahoo! Groups Links > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2011 Report Share Posted December 31, 2011 Thanks, . Just having someplace to vent, with others who understand, helps. I've been in this " funk " for months and can't seem to shake it. I can't take any of the meds because of my heart, so that's off the table. Therapy. . Well, even the kid's therapist has said that I need to let him suffer the consequences of his actions. . And that's true. . The problem lies in him living in our house. We all suffer the consequences of his actions. The house isn't big enough for us not to all pay the price when he stays up and makes noise. He says he tries to be quiet, and he probably does, but he's like a bull in a china closet, and I'm a light sleeper. . Not a good combination. Then there is my own stuff I'm going through, which has no " medical " answer. I just have to wait for things to pass and improve, which they will sooner or later.. . . In the past, we went through our own crisis at different times so I was able to cope better. This time we are going through our individual stuff at the same time and it has made it a lot harder. I hope he sees it's no way to live either, but for the most part he is in defense mode. I think it is partly his age that makes it so. He justifies and defends OCD a lot right now. The things that worked in the past, aren't working now. And raising meds is out of the question, the one thing that I'm pretty sure could help. He wouldn't be willing to anyway, and at his age, I can't make him. He's lost 70 pounds, , since lowering his medication. I think he is afraid he will gain it back if he raises his dosage again. . Another thing that isn't a possibility due to him being on Celexa and the new warnings with that med. He would have to change meds, which he also refuses to do. Thanks for listening. BJ > > > I haven't been in the group much because I feel so beat up that I felt I have nothing to contribute to help others. It seemed easier to stay away for a while. > > > > Some days, I find myself just play mind numbing computer games so I can " check out " in my own mind for a bit. More often than not, I don't even get out of my pajamas. I know depression has set in, but feel unmotivated to try to fight it. > > > > > > > > Since cutting our son's meds in half, due to severe reactions, things have spiraled out of control. Some days it's just downright overwhelming. > > > > Teenage behavior and OCD is a challenge, to be sure. > > > > We were up until 5 am last night, while he rolled and used toilet paper for 2 hours straight. Since the bathroom shares a wall with our bedroom, I could hear the rumble of the toilet paper the whole time. > > > > My response: It's OCD, maybe we can find a way for you to work on it. His response: It's not OCD. . It's logical. > > > > We've been up to see his therapist 3 times lately, since he has a break from college (still unable to go full time). I'd hoped he would listen to his therapist, because at age 19 there is nothing I can say that is " right " . > > > > They put together a plan to work on things, but he seems to have a really hard time following through on this lower dose of meds. So, OCD continues to control our home, and him. > > > > We had the dreaded talk, with his therapist, about what we do if he cannot take care of himself. . .Someday. . . . > > > > Disability was brought up, as a possibility in the future, which made me sick to my stomach. > > > > Increasing meds is not an option. ERP seems impossible for him at this point. And we continue the vicious cycle of OCD, which is taking us all to the brink. :~( > > > > Oddly, since lowering his meds, he is experiencing some symptoms of getting mentally lost at times. Not distracted by OCD thoughts, but just lost in his thoughts to the point that he loses track of time. . Sometimes for hours. So, possibly ADHD has been added to the list of OCD, GAD, possible Tourettes, and possible Aspergers. More labels. . Still the same problems with no solutions. > > > > I question why this " probably ADHD stuff " was not a problem on the higher dose of meds, but not sure anyone can know. > > > > I try to remind myself to be thankful he is at least not back on the sofa in the fetal position like he's been in the past. . Some of you probably remember that. But, this isn't easy either. > > > > I'm going through health issues of my own, trying to function, and the added weight of the combination of combative OCD, and combative teenage behavior, just pushes me over the edge at times. > > > > We are often sleep deprived, mostly due to OCD too, which never helps anything. > > > > Anyway, not meaning to drag others down, nor even expect anyone else to know the answers, but just needing to vent today, as another day goes by where I fight back the tears of trying to cope. > > > > Have I mentioned that I HATE OCD! <sigh> > > > > BJ > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > Our list archives feature may be accessed at: http://health.groups.yahoo.com/group// by scrolling down to the archives calendar . Our links may be accessed at http://health.groups.yahoo.com/group//links . Our files may be accessed at > > http://health.groups.yahoo.com/group//files . > > Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), and Tamar Chansky, Ph.D.( http://www.worrywisekids.org ) > > You may ask a question of any of these mental health professionals by inserting the words " Ask Dr.(insert name) " in the subject line of a post to the list. Our list moderators are Castle, BJ, and Barb Nesrallah. You may contact the moderators at -owner . > > OCDKidsLoop membership may be accessed at http://health.groups.yahoo.com/group/ocdkidsloop/ . > > Our group and related groups are listed at http://health.groups.yahoo.com/group/ocdsupportgroups/links . IOCDF treatment providers list may be viewed at http://www.ocfoundation.info/treatment-providers-list.php . > > NLM-NIH Drug Information Portal may be viewed at > > http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp?APPLICATION_NAME=drugporta\ l . IOCDF recommended reading list may be accessed at http://www.ocfoundation.org/Books.aspx . IOCDF glossary of terms may be accessed at http://www.ocfoundation.org/glossary.aspx . IOCDF membership link may be accessed at http://www.ocfoundation.net/membership/ . Drugs.com pill identification wizard may be accessed at http://www.drugs.com/imprints.php . Mayo Clinic Drug and Herb Index may be accessed at http://www.mayoclinic.com/health/drug-information/DrugHerbIndex .Yahoo! Groups Links > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2011 Report Share Posted December 31, 2011 Thanks, . I welcome your prayer. (((Hugs))) I'm always sorry when others understand because I know that means they are in, or have been in the same place, at some point. Mental illness sucks! So many people don't know, and they judge us, not having a clue what we are enduring. BJ > > > > > I haven't been in the group much because I feel so beat up that I felt I have nothing to contribute to help others. It seemed easier to stay away for a while. > > > > > > Some days, I find myself just play mind numbing computer games so I can " check out " in my own mind for a bit. More often than not, I don't even get out of my pajamas. I know depression has set in, but feel unmotivated to try to fight it. > > > > > > > > > > > > Since cutting our son's meds in half, due to severe reactions, things have spiraled out of control. Some days it's just downright overwhelming. > > > > > > Teenage behavior and OCD is a challenge, to be sure. > > > > > > We were up until 5 am last night, while he rolled and used toilet paper for 2 hours straight. Since the bathroom shares a wall with our bedroom, I could hear the rumble of the toilet paper the whole time. > > > > > > My response: It's OCD, maybe we can find a way for you to work on it. His response: It's not OCD. . It's logical. > > > > > > We've been up to see his therapist 3 times lately, since he has a break from college (still unable to go full time). I'd hoped he would listen to his therapist, because at age 19 there is nothing I can say that is " right " . > > > > > > They put together a plan to work on things, but he seems to have a really hard time following through on this lower dose of meds. So, OCD continues to control our home, and him. > > > > > > We had the dreaded talk, with his therapist, about what we do if he cannot take care of himself. . .Someday. . . . > > > > > > Disability was brought up, as a possibility in the future, which made me sick to my stomach. > > > > > > Increasing meds is not an option. ERP seems impossible for him at this point. And we continue the vicious cycle of OCD, which is taking us all to the brink. :~( > > > > > > Oddly, since lowering his meds, he is experiencing some symptoms of getting mentally lost at times. Not distracted by OCD thoughts, but just lost in his thoughts to the point that he loses track of time. . Sometimes for hours. So, possibly ADHD has been added to the list of OCD, GAD, possible Tourettes, and possible Aspergers. More labels. . Still the same problems with no solutions. > > > > > > I question why this " probably ADHD stuff " was not a problem on the higher dose of meds, but not sure anyone can know. > > > > > > I try to remind myself to be thankful he is at least not back on the sofa in the fetal position like he's been in the past. . Some of you probably remember that. But, this isn't easy either. > > > > > > I'm going through health issues of my own, trying to function, and the added weight of the combination of combative OCD, and combative teenage behavior, just pushes me over the edge at times. > > > > > > We are often sleep deprived, mostly due to OCD too, which never helps anything. > > > > > > Anyway, not meaning to drag others down, nor even expect anyone else to know the answers, but just needing to vent today, as another day goes by where I fight back the tears of trying to cope. > > > > > > Have I mentioned that I HATE OCD! <sigh> > > > > > > BJ > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > Our list archives feature may be accessed at: http://health.groups.yahoo.com/group// by scrolling down to the archives calendar . Our links may be accessed at http://health.groups.yahoo.com/group//links . Our files may be accessed at > > > http://health.groups.yahoo.com/group//files . > > > Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), and Tamar Chansky, Ph.D.( http://www.worrywisekids.org ) > > > You may ask a question of any of these mental health professionals by inserting the words " Ask Dr.(insert name) " in the subject line of a post to the list. Our list moderators are Castle, BJ, and Barb Nesrallah. You may contact the moderators at -owner . > > > OCDKidsLoop membership may be accessed at http://health.groups.yahoo.com/group/ocdkidsloop/ . > > > Our group and related groups are listed at http://health.groups.yahoo.com/group/ocdsupportgroups/links . IOCDF treatment providers list may be viewed at http://www.ocfoundation.info/treatment-providers-list.php . > > > NLM-NIH Drug Information Portal may be viewed at > > > http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp?APPLICATION_NAME=drugporta\ l . IOCDF recommended reading list may be accessed at http://www.ocfoundation.org/Books.aspx . IOCDF glossary of terms may be accessed at http://www.ocfoundation.org/glossary.aspx . IOCDF membership link may be accessed at http://www.ocfoundation.net/membership/ . Drugs.com pill identification wizard may be accessed at http://www.drugs.com/imprints.php . Mayo Clinic Drug and Herb Index may be accessed at http://www.mayoclinic.com/health/drug-information/DrugHerbIndex .Yahoo! Groups Links > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2011 Report Share Posted December 31, 2011 Oh yes. . Computer games have always been his escape too. It was a way for him to turn his mind off. Recently, there is one game that OCD is affecting to the point that he can't play it. That's was heartbreaking for him because it ruined his " escape " place. Yes. . .I remember those posts. I thought you had the patience of Job, Chris. I'm now having those conversations with Josh as I knock on the bathroom door, but it's 3, 4 or 5 am.. . . " Can you come out yet? " , " Are you done yet? " , " Can you try to hurry? " . I usually get a big, audible, frustrated sigh noise, then a surly comment that let's me know he wants to be left alone. Yeah. . I get that, but I need sleep too. I have a fan going, but with the bathroom sharing a wall with our bedroom, and he's clunking around in there, there's no drowning that out. :~( Hubby goes to sleep on our single bed in our extra room, so he can get enough sleep to stay awake while he's commuting to work. His therapist and I have both encouraged him to go use the half bathroom at the other end of the house, but he goes in his bathroom " believing " he will just be a few minutes. Then he gets stuck, can't come out (in the middle of it all), and takes hours. <sigh> I'm a horribly light sleeper too, and that doesn't help at all. Made worse lately by " my age " . And due to my Fibromyalgia, I can't sleep on our sofa. . Too painful. Complications on top of complications. I don't know what is going on with his " getting lost " stuff, Chris. I've pondered it a lot. He used to do that a lot when he was really young, but he was checked for ADD/ADHD and they said " no " . I think the psychologist chalked it up to his age, and I even thought he was young and an only child so. . . ..<shrug>. It seemed to go away, but he was medicated for his OCD, so it seems the meds were masking it. I haven't seen him experience this in years, but as I said, he's been on meds for years. Now that the dosage is lower, he is experiencing it again. But, strangely, he is able to stay focused when he needs to, like with homework from college. He does complain of noise distracting him when trying to take tests though. But, despite that, he gets straight A's on his tests and usually finishes before anyone else. So, I'm completely puzzled. I think there could be some daydreaming going on, but for hours and to the point that he forgets he should be showering, or using the bathroom - then exiting the room, seems excessive. I've considered taking him back to the psychiatrist, but for $300 an hour, and we just lost our insurance. . Well, basically it turned into catastrophic insurance (not good). . .We will be paying for all of our medical bills now, unless we are hospitalized. So, not an option. And I'm guessing he will just get another " definite, rather than supposed " label out of it. Yes, the " disability " was discussed right in front of Josh, after I told him of my fears of Josh not being able to take care of himself. I worry about it, since he has no siblings, and we aren't going to live forever. . . . Josh didn't say anything about it on the way home. I didn't ask because he's a teen and you never know what you are going to get when you ask them a question. I hope it doesn't come to that for him. I'd like him to live as normal a life as possible, if he can. I guess that is what we all hope for our kids. BJ > > > > I haven't been in the group much because I feel so beat up that I felt I have nothing to contribute to help others. It seemed easier to stay away for a while. > > > > Some days, I find myself just play mind numbing computer games so I can " check out " in my own mind for a bit. More often than not, I don't even get out of my pajamas. I know depression has set in, but feel unmotivated to try to fight it. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2011 Report Share Posted December 31, 2011 Oh yes. . Computer games have always been his escape too. It was a way for him to turn his mind off. Recently, there is one game that OCD is affecting to the point that he can't play it. That's was heartbreaking for him because it ruined his " escape " place. Yes. . .I remember those posts. I thought you had the patience of Job, Chris. I'm now having those conversations with Josh as I knock on the bathroom door, but it's 3, 4 or 5 am.. . . " Can you come out yet? " , " Are you done yet? " , " Can you try to hurry? " . I usually get a big, audible, frustrated sigh noise, then a surly comment that let's me know he wants to be left alone. Yeah. . I get that, but I need sleep too. I have a fan going, but with the bathroom sharing a wall with our bedroom, and he's clunking around in there, there's no drowning that out. :~( Hubby goes to sleep on our single bed in our extra room, so he can get enough sleep to stay awake while he's commuting to work. His therapist and I have both encouraged him to go use the half bathroom at the other end of the house, but he goes in his bathroom " believing " he will just be a few minutes. Then he gets stuck, can't come out (in the middle of it all), and takes hours. <sigh> I'm a horribly light sleeper too, and that doesn't help at all. Made worse lately by " my age " . And due to my Fibromyalgia, I can't sleep on our sofa. . Too painful. Complications on top of complications. I don't know what is going on with his " getting lost " stuff, Chris. I've pondered it a lot. He used to do that a lot when he was really young, but he was checked for ADD/ADHD and they said " no " . I think the psychologist chalked it up to his age, and I even thought he was young and an only child so. . . ..<shrug>. It seemed to go away, but he was medicated for his OCD, so it seems the meds were masking it. I haven't seen him experience this in years, but as I said, he's been on meds for years. Now that the dosage is lower, he is experiencing it again. But, strangely, he is able to stay focused when he needs to, like with homework from college. He does complain of noise distracting him when trying to take tests though. But, despite that, he gets straight A's on his tests and usually finishes before anyone else. So, I'm completely puzzled. I think there could be some daydreaming going on, but for hours and to the point that he forgets he should be showering, or using the bathroom - then exiting the room, seems excessive. I've considered taking him back to the psychiatrist, but for $300 an hour, and we just lost our insurance. . Well, basically it turned into catastrophic insurance (not good). . .We will be paying for all of our medical bills now, unless we are hospitalized. So, not an option. And I'm guessing he will just get another " definite, rather than supposed " label out of it. Yes, the " disability " was discussed right in front of Josh, after I told him of my fears of Josh not being able to take care of himself. I worry about it, since he has no siblings, and we aren't going to live forever. . . . Josh didn't say anything about it on the way home. I didn't ask because he's a teen and you never know what you are going to get when you ask them a question. I hope it doesn't come to that for him. I'd like him to live as normal a life as possible, if he can. I guess that is what we all hope for our kids. BJ > > > > I haven't been in the group much because I feel so beat up that I felt I have nothing to contribute to help others. It seemed easier to stay away for a while. > > > > Some days, I find myself just play mind numbing computer games so I can " check out " in my own mind for a bit. More often than not, I don't even get out of my pajamas. I know depression has set in, but feel unmotivated to try to fight it. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2011 Report Share Posted December 31, 2011 BJ, Is there a possibility of depression (for Josh)? 20+ years ago when my OCD was much worse, I became seriously depressed. I would pace or sit on the couch or edge of the bed without moving, just going over and over in my mind how miserable I was. So, I was not " vacant " but may well have appeared that way to others. Often too, I felt I did not have the strength to complete my compulsions , but I was not able to say well " then I'll just skip them. " I had very little awareness of time passing when I was lost in my thoughts or performing compulsions. Don't know if any of this is what is happening with Josh, but it might be worth considering. Have you ever read Judith Rapoport's The Boy Who Couldn't Stop Washing? It is probably dated now, but it was the first popular book (by a noted research psychiatrist) about OCD and does a very good job of explaining what is going on for the individual with OCD. I read my copy, underlined things that seemed particularly relevant to me and then asked my parents to read it. Cruel perhaps, but I couldn't begin to describe in my own words what was happening to me. I even considered suicide for a time because I did not think I could continue to live like that...but needless to say, I am very glad (even on a bad day) that I never tried to follow through! Hope you start feeling better physically and mentally, yourself. Thinking of you at this time and hoping the New Year will be the start of better things for youand your family. (mom w/OCD, 11.5 yo dd w/OCD, 9 yo dd w/tics and possible OCD) ________________________________ To: Sent: Saturday, December 31, 2011 4:04 PM Subject: Re: Update Oh yes. . Computer games have always been his escape too. It was a way for him to turn his mind off. Recently, there is one game that OCD is affecting to the point that he can't play it. That's was heartbreaking for him because it ruined his " escape " place. Yes. . .I remember those posts. I thought you had the patience of Job, Chris. I'm now having those conversations with Josh as I knock on the bathroom door, but it's 3, 4 or 5 am.. . . " Can you come out yet? " , " Are you done yet? " , " Can you try to hurry? " . I usually get a big, audible, frustrated sigh noise, then a surly comment that let's me know he wants to be left alone. Yeah. . I get that, but I need sleep too. I have a fan going, but with the bathroom sharing a wall with our bedroom, and he's clunking around in there, there's no drowning that out. :~( Hubby goes to sleep on our single bed in our extra room, so he can get enough sleep to stay awake while he's commuting to work. His therapist and I have both encouraged him to go use the half bathroom at the other end of the house, but he goes in his bathroom " believing " he will just be a few minutes. Then he gets stuck, can't come out (in the middle of it all), and takes hours. <sigh> I'm a horribly light sleeper too, and that doesn't help at all. Made worse lately by " my age " . And due to my Fibromyalgia, I can't sleep on our sofa. . Too painful. Complications on top of complications. I don't know what is going on with his " getting lost " stuff, Chris. I've pondered it a lot. He used to do that a lot when he was really young, but he was checked for ADD/ADHD and they said " no " . I think the psychologist chalked it up to his age, and I even thought he was young and an only child so. . . ..<shrug>. It seemed to go away, but he was medicated for his OCD, so it seems the meds were masking it. I haven't seen him experience this in years, but as I said, he's been on meds for years. Now that the dosage is lower, he is experiencing it again. But, strangely, he is able to stay focused when he needs to, like with homework from college. He does complain of noise distracting him when trying to take tests though. But, despite that, he gets straight A's on his tests and usually finishes before anyone else. So, I'm completely puzzled. I think there could be some daydreaming going on, but for hours and to the point that he forgets he should be showering, or using the bathroom - then exiting the room, seems excessive. I've considered taking him back to the psychiatrist, but for $300 an hour, and we just lost our insurance. . Well, basically it turned into catastrophic insurance (not good). . .We will be paying for all of our medical bills now, unless we are hospitalized. So, not an option. And I'm guessing he will just get another " definite, rather than supposed " label out of it. Yes, the " disability " was discussed right in front of Josh, after I told him of my fears of Josh not being able to take care of himself. I worry about it, since he has no siblings, and we aren't going to live forever. . . . Josh didn't say anything about it on the way home. I didn't ask because he's a teen and you never know what you are going to get when you ask them a question. I hope it doesn't come to that for him. I'd like him to live as normal a life as possible, if he can. I guess that is what we all hope for our kids. BJ > > > > I haven't been in the group much because I feel so beat up that I felt I have nothing to contribute to help others. It seemed easier to stay away for a while. > > > > Some days, I find myself just play mind numbing computer games so I can " check out " in my own mind for a bit. More often than not, I don't even get out of my pajamas. I know depression has set in, but feel unmotivated to try to fight it. > > > > > ------------------------------------ Our list archives feature may be accessed at: http://health.groups.yahoo.com/group// by scrolling down to the archives calendar . Our links may be accessed at http://health.groups.yahoo.com/group//links . Our files may be accessed at http://health.groups.yahoo.com/group//files . Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), and Tamar Chansky, Ph.D.( http://www.worrywisekids.org ) You may ask a question of any of these mental health professionals by inserting the words " Ask Dr.(insert name) " in the subject line of a post to the list. Our list moderators are Castle, BJ, and Barb Nesrallah. You may contact the moderators at -owner . OCDKidsLoop membership may be accessed at http://health.groups.yahoo.com/group/ocdkidsloop/ . Our group and related groups are listed at http://health.groups.yahoo.com/group/ocdsupportgroups/links . IOCDF treatment providers list may be viewed at http://www.ocfoundation.info/treatment-providers-list.php . NLM-NIH Drug Information Portal may be viewed at http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp?APPLICATION_NAME=drugporta\ l . IOCDF recommended reading list may be accessed at http://www.ocfoundation.org/Books.aspx . IOCDF glossary of terms may be accessed at http://www.ocfoundation.org/glossary.aspx . IOCDF membership link may be accessed at http://www.ocfoundation.net/membership/ . Drugs.com pill identification wizard may be accessed at http://www.drugs.com/imprints.php . Mayo Clinic Drug and Herb Index may be accessed at http://www.mayoclinic.com/health/drug-information/DrugHerbIndex .Yahoo! Groups Links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2011 Report Share Posted December 31, 2011 BJ, Is there a possibility of depression (for Josh)? 20+ years ago when my OCD was much worse, I became seriously depressed. I would pace or sit on the couch or edge of the bed without moving, just going over and over in my mind how miserable I was. So, I was not " vacant " but may well have appeared that way to others. Often too, I felt I did not have the strength to complete my compulsions , but I was not able to say well " then I'll just skip them. " I had very little awareness of time passing when I was lost in my thoughts or performing compulsions. Don't know if any of this is what is happening with Josh, but it might be worth considering. Have you ever read Judith Rapoport's The Boy Who Couldn't Stop Washing? It is probably dated now, but it was the first popular book (by a noted research psychiatrist) about OCD and does a very good job of explaining what is going on for the individual with OCD. I read my copy, underlined things that seemed particularly relevant to me and then asked my parents to read it. Cruel perhaps, but I couldn't begin to describe in my own words what was happening to me. I even considered suicide for a time because I did not think I could continue to live like that...but needless to say, I am very glad (even on a bad day) that I never tried to follow through! Hope you start feeling better physically and mentally, yourself. Thinking of you at this time and hoping the New Year will be the start of better things for youand your family. (mom w/OCD, 11.5 yo dd w/OCD, 9 yo dd w/tics and possible OCD) ________________________________ To: Sent: Saturday, December 31, 2011 4:04 PM Subject: Re: Update Oh yes. . Computer games have always been his escape too. It was a way for him to turn his mind off. Recently, there is one game that OCD is affecting to the point that he can't play it. That's was heartbreaking for him because it ruined his " escape " place. Yes. . .I remember those posts. I thought you had the patience of Job, Chris. I'm now having those conversations with Josh as I knock on the bathroom door, but it's 3, 4 or 5 am.. . . " Can you come out yet? " , " Are you done yet? " , " Can you try to hurry? " . I usually get a big, audible, frustrated sigh noise, then a surly comment that let's me know he wants to be left alone. Yeah. . I get that, but I need sleep too. I have a fan going, but with the bathroom sharing a wall with our bedroom, and he's clunking around in there, there's no drowning that out. :~( Hubby goes to sleep on our single bed in our extra room, so he can get enough sleep to stay awake while he's commuting to work. His therapist and I have both encouraged him to go use the half bathroom at the other end of the house, but he goes in his bathroom " believing " he will just be a few minutes. Then he gets stuck, can't come out (in the middle of it all), and takes hours. <sigh> I'm a horribly light sleeper too, and that doesn't help at all. Made worse lately by " my age " . And due to my Fibromyalgia, I can't sleep on our sofa. . Too painful. Complications on top of complications. I don't know what is going on with his " getting lost " stuff, Chris. I've pondered it a lot. He used to do that a lot when he was really young, but he was checked for ADD/ADHD and they said " no " . I think the psychologist chalked it up to his age, and I even thought he was young and an only child so. . . ..<shrug>. It seemed to go away, but he was medicated for his OCD, so it seems the meds were masking it. I haven't seen him experience this in years, but as I said, he's been on meds for years. Now that the dosage is lower, he is experiencing it again. But, strangely, he is able to stay focused when he needs to, like with homework from college. He does complain of noise distracting him when trying to take tests though. But, despite that, he gets straight A's on his tests and usually finishes before anyone else. So, I'm completely puzzled. I think there could be some daydreaming going on, but for hours and to the point that he forgets he should be showering, or using the bathroom - then exiting the room, seems excessive. I've considered taking him back to the psychiatrist, but for $300 an hour, and we just lost our insurance. . Well, basically it turned into catastrophic insurance (not good). . .We will be paying for all of our medical bills now, unless we are hospitalized. So, not an option. And I'm guessing he will just get another " definite, rather than supposed " label out of it. Yes, the " disability " was discussed right in front of Josh, after I told him of my fears of Josh not being able to take care of himself. I worry about it, since he has no siblings, and we aren't going to live forever. . . . Josh didn't say anything about it on the way home. I didn't ask because he's a teen and you never know what you are going to get when you ask them a question. I hope it doesn't come to that for him. I'd like him to live as normal a life as possible, if he can. I guess that is what we all hope for our kids. BJ > > > > I haven't been in the group much because I feel so beat up that I felt I have nothing to contribute to help others. It seemed easier to stay away for a while. > > > > Some days, I find myself just play mind numbing computer games so I can " check out " in my own mind for a bit. More often than not, I don't even get out of my pajamas. I know depression has set in, but feel unmotivated to try to fight it. > > > > > ------------------------------------ Our list archives feature may be accessed at: http://health.groups.yahoo.com/group// by scrolling down to the archives calendar . Our links may be accessed at http://health.groups.yahoo.com/group//links . Our files may be accessed at http://health.groups.yahoo.com/group//files . Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), and Tamar Chansky, Ph.D.( http://www.worrywisekids.org ) You may ask a question of any of these mental health professionals by inserting the words " Ask Dr.(insert name) " in the subject line of a post to the list. Our list moderators are Castle, BJ, and Barb Nesrallah. You may contact the moderators at -owner . OCDKidsLoop membership may be accessed at http://health.groups.yahoo.com/group/ocdkidsloop/ . Our group and related groups are listed at http://health.groups.yahoo.com/group/ocdsupportgroups/links . IOCDF treatment providers list may be viewed at http://www.ocfoundation.info/treatment-providers-list.php . NLM-NIH Drug Information Portal may be viewed at http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp?APPLICATION_NAME=drugporta\ l . IOCDF recommended reading list may be accessed at http://www.ocfoundation.org/Books.aspx . IOCDF glossary of terms may be accessed at http://www.ocfoundation.org/glossary.aspx . IOCDF membership link may be accessed at http://www.ocfoundation.net/membership/ . Drugs.com pill identification wizard may be accessed at http://www.drugs.com/imprints.php . Mayo Clinic Drug and Herb Index may be accessed at http://www.mayoclinic.com/health/drug-information/DrugHerbIndex .Yahoo! Groups Links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2011 Report Share Posted December 31, 2011 I considered that, (depression)because he's dealt with it before when his OCD was pretty bad. As bad as things are, they aren't that bad this time, yet. I pray it doesn't get that bad again. I asked him if he was depressed, and he said no. But, I wondered if he really knew. . You know? Depression doesn't always seem to come out as overwhelming sadness. He seems to be engaging in life, spending time with friends, enjoying life somewhat, and even laughing fairly regulary. He's eating fine, but does tend to oversleep, when he will finally go to bed. His therapist chalked that up to teen stuff. He says he just gets lost in his thoughts and forgets time. I don't know what he is thinking about. He didn't elaborate, and I'm learning that now that he is 19, not to ask. Asking makes him feel like I'm prying and makes him annoyed. Oh these teen years are so fun. . NOT! He did discuss it with his therapist though, so I'm thinking it probably isn't depression or he would have brought it up at the end of the appointment, anyway I hope so. That's one of the few books I haven't read. I will look for one. Thanks for the idea. And THANK you for your input. It's so nice to talk to someone who's been there. I worry so much about him. . About if he will be able to function as an adult. I keep hoping, but we are on the side of things worsening again now, and have been for a number of months. I just don't know. I guess time will tell. Maybe with more maturity. He still seems to lack that, even though he will be turning 20 in a few months. I sometimes wonder if I expect too much. I see friends of his, some younger, who seem to function better, but then again, they don't have the issues he does, so, maybe he is just going to require more time to get there. It's so hard to know. I really appreciate you taking the time to read this and write. Bless you. BJ > > BJ, > > Is there a possibility of depression (for Josh)? 20+ years ago when my OCD was much worse, I became seriously depressed. I would pace or sit on the couch or edge of the bed without moving, just going over and over in my mind how miserable I was. So, I was not " vacant " but may well have appeared that way to others. Often too, I felt I did not have the strength to complete my compulsions , but I was not able to say well " then I'll just skip them. " I had very little awareness of time passing when I was lost in my thoughts or performing compulsions. Don't know if any of this is what is happening with Josh, but it might be worth considering. Have you ever read Judith Rapoport's The Boy Who Couldn't Stop Washing? It is probably dated now, but it was the first popular book (by a noted research psychiatrist) about OCD and does a very good job of explaining what is going on for the individual with OCD. I read my copy, underlined things that > seemed particularly relevant to me and then asked my parents to read it. Cruel perhaps, but I couldn't begin to describe in my own words what was happening to me. I even considered suicide for a time because I did not think I could continue to live like that...but needless to say, I am very glad (even on a bad day) that I never tried to follow through! > > Hope you start feeling better physically and mentally, yourself. Thinking of you at this time and hoping the New Year will be the start of better things for youand your family. > > > (mom w/OCD, 11.5 yo dd w/OCD, 9 yo dd w/tics and possible OCD) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2011 Report Share Posted December 31, 2011 I considered that, (depression)because he's dealt with it before when his OCD was pretty bad. As bad as things are, they aren't that bad this time, yet. I pray it doesn't get that bad again. I asked him if he was depressed, and he said no. But, I wondered if he really knew. . You know? Depression doesn't always seem to come out as overwhelming sadness. He seems to be engaging in life, spending time with friends, enjoying life somewhat, and even laughing fairly regulary. He's eating fine, but does tend to oversleep, when he will finally go to bed. His therapist chalked that up to teen stuff. He says he just gets lost in his thoughts and forgets time. I don't know what he is thinking about. He didn't elaborate, and I'm learning that now that he is 19, not to ask. Asking makes him feel like I'm prying and makes him annoyed. Oh these teen years are so fun. . NOT! He did discuss it with his therapist though, so I'm thinking it probably isn't depression or he would have brought it up at the end of the appointment, anyway I hope so. That's one of the few books I haven't read. I will look for one. Thanks for the idea. And THANK you for your input. It's so nice to talk to someone who's been there. I worry so much about him. . About if he will be able to function as an adult. I keep hoping, but we are on the side of things worsening again now, and have been for a number of months. I just don't know. I guess time will tell. Maybe with more maturity. He still seems to lack that, even though he will be turning 20 in a few months. I sometimes wonder if I expect too much. I see friends of his, some younger, who seem to function better, but then again, they don't have the issues he does, so, maybe he is just going to require more time to get there. It's so hard to know. I really appreciate you taking the time to read this and write. Bless you. BJ > > BJ, > > Is there a possibility of depression (for Josh)? 20+ years ago when my OCD was much worse, I became seriously depressed. I would pace or sit on the couch or edge of the bed without moving, just going over and over in my mind how miserable I was. So, I was not " vacant " but may well have appeared that way to others. Often too, I felt I did not have the strength to complete my compulsions , but I was not able to say well " then I'll just skip them. " I had very little awareness of time passing when I was lost in my thoughts or performing compulsions. Don't know if any of this is what is happening with Josh, but it might be worth considering. Have you ever read Judith Rapoport's The Boy Who Couldn't Stop Washing? It is probably dated now, but it was the first popular book (by a noted research psychiatrist) about OCD and does a very good job of explaining what is going on for the individual with OCD. I read my copy, underlined things that > seemed particularly relevant to me and then asked my parents to read it. Cruel perhaps, but I couldn't begin to describe in my own words what was happening to me. I even considered suicide for a time because I did not think I could continue to live like that...but needless to say, I am very glad (even on a bad day) that I never tried to follow through! > > Hope you start feeling better physically and mentally, yourself. Thinking of you at this time and hoping the New Year will be the start of better things for youand your family. > > > (mom w/OCD, 11.5 yo dd w/OCD, 9 yo dd w/tics and possible OCD) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2012 Report Share Posted January 1, 2012 So sorry you're struggling now BJ. We are struggling as well. We hope to get some relief with meds, but we'll see. I hope things will work out for your son & hope the new year brings some positive changes...for all of us. Hate doesn't really begin to describe my feelings about OCD. (I also have been known to play computer games to escape reality for awhile. I hate to think where I'd be without that release.) Dot > > I haven't been in the group much because I feel so beat up that I felt I have nothing to contribute to help others. It seemed easier to stay away for a while. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2012 Report Share Posted January 2, 2012 So sorry, Dot. Knowing this (setbacks) is all part of the disorder doesn't always help. . .The angst of living with it is still there. I hope you also get relief with meds. They were very helpful, for a number of years, for our son before he started to not be able to tolerate them. I hope you have better luck. They work for most. Hugs, BJ > > > > I haven't been in the group much because I feel so beat up that I felt I have nothing to contribute to help others. It seemed easier to stay away for a while. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2012 Report Share Posted January 3, 2012 Hi Bj, I hope you are feeling a little better today. There is no way to explain what ocd does to our lives. If one more well meaning relative tells me not to baby him...cut the apron strings..hes just playing you, i think Im gonna flip a lid. No one gets it but us who have to live this nightmare. I know exxactly how you feel. I am so drained some days that I dont have the strength to deal. And then when my ds is not obsessing over something ridiculous, and all is quiet, he starts making noises and everyone starts fighting in my house. I cant believe i passed this on to him. I dont know how my daughter hasnt run away yet. She cries because she loves him and cant stand him at the same time. The doc tells me puberty makes ocd worse so im hoping to God this gets better, even a little! Any time you need to talk, email me...any time...mamafaerie@... By the way, I HATE OCD TOO! Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2012 Report Share Posted January 3, 2012 Isn't that the truth! I look back at how much our life has changed since the " puberty onset of this darn OCD " . We never have company over anymore - we are all so drained...but no one understands! We have pulled away from friends... The thing is, if I look back one year ago, things have much improved - They really have, I wonder how we survived those long nights! I guess the negative effects on the family are just OCD's colateral damage. > > Hi Bj, I hope you are feeling a little better today. There is no way to > explain what ocd does to our lives. If one more well meaning relative > tells me not to baby him...cut the apron strings..hes just playing you, > i think Im gonna flip a lid. No one gets it but us who have to live > this nightmare. I know exxactly how you feel. I am so drained some days > that I dont have the strength to deal. And then when my ds is not > obsessing over something ridiculous, and all is quiet, he starts making > noises and everyone starts fighting in my house. I cant believe i > passed this on to him. I dont know how my daughter hasnt run away yet. > She cries because she loves him and cant stand him at the same time. > The doc tells me puberty makes ocd worse so im hoping to God this gets > better, even a little! Any time you need to talk, email me...any > time...mamafaerie@... > By the way, I HATE OCD TOO! Jodi > Quote Link to comment Share on other sites More sharing options...
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