Guest guest Posted August 14, 2006 Report Share Posted August 14, 2006 Hi all, My name is ,, i have recently run accross these group things on . I have been DX with Sjogrens syndrom, RA, Lupus- SLE, connective tissue diease, pulrasey, fatigue, etc. This has been a 6 year issue starting with pancrease issues to point of havign to get a feeding tube to be able o eat anything! No one understanding exactly why pancrease acting this way! I continued to get very sick till finally I was sent to a Rehummy doc and she did tons of test and found out what was going on! All while my hubby left and went thru divorce for custody, them playing up me getting sicker. DX came towards end of trial,, and judge of very very small country town decided due to taking morphine daily, I should not have custody of teenagers! They would be to active for me to handle! Even over 3 doctors letters stating that I was able to care for my children! I have not figured out how to deal with all the stress so you guessed it the lupus and sjogrens are getting worse daily! The ex quit paying our bills unbeknown to me, until they knocked on my door to take the house we were suppose to be selling and slpitting the profit. So rushed to find place to live, alone, in now area, I have 1 amazing great friend, no family, and trying to figure out how to deal with all this! I was approved for Social security disability first time thru applying for it! I have been told that is unheard of and it has been the only reason I have been able to get a place to live! I totally don't know what to do next, sitting here in house every day, day after day, alone and not one person really to talk to or share with. hoping to learn so much more and understand things better thru talking on the internet! WOW i have went on , I'm very sorry,,hope not to boring or whiny. I'm lost and scared , and alone, dr appt on sept first in 6 months,, had to wait for medicare to start before could see docs again! Judge also stopped his medical insurance before medicare could kick in, so had to stop taking most meds, except plaqinil, and pain meds! Thanks for you time and understanding I do hope all have a great day! Quote Link to comment Share on other sites More sharing options...
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