sun

[Guest guest]

Hi Jenna,

Hmmmm, do you also thirst for blood....can you see your reflection in

the mirror....do religious crosses make you sick...like a vampire? Only

kidding. The sun hurts my eyes, but I do like to look at how it brightens

up the world around me.

Have you had stomach problems before with your Lyme? Is it possible one

of your meds is upsetting your stomach? Sorry to hear you are in a war with

someone, that can be extremely stressful, on top of Lyme a definite horror.

Hope you feel real good real soon,

Hugs,

Marta

>From: Turtlefeet6@...

>

>horrible as this may sound, I HATE THE SUN. when it is so warm, i get

sick,

>when i see the sun at all, i get sick, when i go in the sun, i get sick.

>sun, i love you, but i hate you. how is everyone doing? i must say i am

not

>so hot. my headaches and my stomach aches are close to being more than i

can

>bare. not only that, one of my " old " best friends and myself are in the

>middle of war; like i need the stress. life goes on, i know..but it is so

>hard for me to get better let alone when stuff like this is going on. i

hope

>you all are well. i am at a loss for words and feelings and thoughts right

>now. take care

>hugs and pinches

>jenna

[Guest guest]

jenna,

run from the stress ,,,,,,we can no longer handle it....it wears us

down......hope u start to feel better.......and any time u need to vent this

is the place ....we all understand each other....

Reid

[Guest guest]

My dermo also has told me to go out in the sun. And right now, I'm doing UVB

treatments, which has an amazingly positive effect on my skin. Clears the P

right up. I'm careful about the time in the sun, and protect my face,but I

do spend some time out there. SAD is a real thing. I live in Seattle, which

the winters are long and depressing. Some people I know have special lights

for light therapy..

[Guest guest]

,

Yes, Louise, gave me the address it's http://www.mopc.com/Scratch.htm

Thank-you Louise. I had heard about this web site but wasn't able to find

it. This is exactly the treatment I was talking about. Is this the only

place that does this?

Nanny

Moderator note:

The link didn't work w/out the .com so I added it. Hope it is the page you

wanted to show. Pat B

[Guest guest]

On April 13, Toil for Lyme wrote:

" Encephalitis and seizures were my first manifestations, and reasons for

seeing a neurologist.

I'm hypothyroid, too. Don't like cold, either. "

Dear Rose,

I think some of my first Lyme manifestations were grand mal seizures, severe,

gradual hearing loss & migraine headaches. That was many years ago.

Hugs,

a

[Guest guest]

> Well, the communion is over. Can you say YIPEE....

Yipee!! Boy, you've had such a busy year!

>We came home and I was so sick with migrane from my sinuss I

> took a migrane pill went to bed.

Henry's sinuses are still acting up bad. He even went deaf in one ear for a

day or so from fluid build-up. Now it's just that darn post-nasal drip

causing the sore throat and cough again. At least the Claratin is doing

*some* good and is working better than the Clarinex did.

> My diet is out of control. Despite all failed promises to myself I have

not

> lost. Most likely gained. I think it is time to rethink the whole diet

> thing. Maybe I am on wrong program.

So get back to basics! You love using the FoodMover and the BlastOff videos,

right? So why not just start again?!

Drag out the little binder with the 30 day meal & exercise plan & make up

your menu & grocery list for the week. Dust off the 3 videos that came with

it, too. Watch what you eat today, and make sure you get enough water in.

Hit the grocery store as soon as you can and shop for the week's meals. Hide

all the junk foods or throw them away.

Read the affirmations. Do the exercises to the best of your ability.

Write that journal. If you already wrote in the binder itself, take another

piece of paper to write tomorrow's and staple or tape it on the old page, or

make sure the page is the same size as the others and punch holes in it and

just stick the new sheets in.

To *do* it you have to take that first baby step. You have to *want* to do

it. You have to *start*.

[Guest guest]

In a message dated 4/18/2005 5:39:52 AM Eastern Standard Time,

writes:

Subject: Sunburned finger

RE: your sunburned finger--Well, I don't know if this is the same thing, but

right now I have what feels like a sunburn on my left hand that covers about

three hand knuckles and part of my thumb. I'm on 400 mg doxy currently and

didn't think I was really a Lyme patient until told that I was the one from

whom my two kids got it. So, I'm being treated. I thought it might be

cholinergic urticaria because I had that once. I looked up urticaria and it

might be an allergy to the drugs. The definition says it is a " release of

chemicals from mast cells in the skin that causes small blood vessels to

leak and results in tissue swelling. " Mine has been with me for only

about 5 days. It is hypersensitive to hot and cold. In fact, when I walk

outside in cooler temperatures, it feels like little ice pins are hitting

it. Conversely, if I run barely warm water over it, it feels like it's

burning. So...is it an allergy to my doxy? Is it a mini-herx from getting

the bugs out??? Don't know. Elaine

==

HELLO. I am on doxy and my hands are red and face is very red just from

walking into the house and to the car etc ...... from the last few very nice

days..... well, when a bit of cool breeze hits face it feels like what you

say,

COLD PIN PRICKS, I actually thought it was raining it felt like rain drops

hitting my face and hands.... there are dark red dots on nose where the

vessels broke as you describe above.... and when I walk into the warm room my

skin

feels on fire.... so most likely for anyone with similar problems it is

sunburn due to the medication making us way to sensitive and able to burn just

going to the car or get the mail etc...... and for me this is unusual as I can

be in sun for hours and not even get pink..... so must be the meds, I

learned now so I will be wearing ton of skin protection and also stay out of

sun..... best to all, c in vt

[Guest guest]

I am going through this problem now on only 200 mg of doxy a day. I reduced it

from 300 and because it is still severe...cold prickles, blisters and all....I'm

going to try reducing it to one for now and see if that makes a difference. I am

also on Biaxin...3 pills a day. It's like someone is holding a magnifying glass

over ones skin. And yes...it only takes going from the house to the car to get

badly burned

Margie T

FindItOnTheNet@... wrote:

==

HELLO. I am on doxy and my hands are red and face is very red just from

walking into the house and to the car etc ...... from the last few very nice

days..... well, when a bit of cool breeze hits face it feels like what you

say,

COLD PIN PRICKS, I actually thought it was raining it felt like rain drops

hitting my face and hands.... there are dark red dots on nose where the

vessels broke as you describe above.... and when I walk into the warm room my

skin

feels on fire.... so most likely for anyone with similar problems it is

sunburn due to the medication making us way to sensitive and able to burn just

going to the car or get the mail etc...... and for me this is unusual as I can

be in sun for hours and not even get pink..... so must be the meds, I

learned now so I will be wearing ton of skin protection and also stay out of

sun..... best to all, c in vt

[Guest guest]

Just FWIW, I'm having a hugely hard time in the sun

this year, and it's been kind of a gradual thing. I'm

on Enbrel, Pred, Skelaxin, Vicodin, Lamictal, ulcer

meds and probably some others I can't think of right

now, but it sure feels like it's the RA itself to me...

[Guest guest]

This is very empowering Sun. I agree with healing the body being in tune with healing the heart and mind. It's a spiritual journey to reach that ultimate goal. Great post.

Hugs,

There would be nothing to frighten you if you refused to be afraid. Gandhi

From: Sun Lee <sunloves@...> Sent: Mon, February 7, 2011 4:17:54 PMSubject: Re: explant docs again

,

I understand totally where you are coming from. When your body is so weak you just want to give in, but don't. Believe you are going to get better. When I was really sick everyone told me it was psychological, but I was feeling debilitated and sickness was real so I hated it when people told me that I was depresssed...etc. I was so healthy before I got the implant. The doctors wanted me to take depression medicine, but I was depressed because I was sick. When your body becomes weak you naturally become depressed. Sometimes our body controls our mind so we naturally become weak. This is when you have to fight back and think that you are going to beat it and get better. I just imagined all the things that I love doing when I was not sick over and over when I could't even move and I sat at home alone. I could not talk to anyone as no one likes to be around sick people. Things really

turned around when I met a acupuncturist who really wanted to cure me and really believed that he could. He gave me courage and I really wanted to get better. He gave me utmost attention. I was very fortunate. I totally trusted him and his treatment. It was my mind taking over my body. This is how some people can cure cancer. We do need therapy and everything because the implant did make us so weak and frail. However, we need to believe that we can beat this implant issue. Body is an amazing thing. I met a guy who had liver cancer which just spread to his entire body and it even went inside his spine. He was dying and the hospital gave up treatment. Cancer in the spine is one of the most painful (due to nerves) caner. He cried out loud every night and could not sleep because of the pain. But he cried out loud, I am going to beat you cancer! I am going

to live!! Miraculously his cancer went into remission and he didn't even get treatment. The guy is now almost 70 and healthy. When I saw him I knew why he was well. His attitude was magnetic and he had such strong desire for life. He loved his life. Our body has an amazing way of bouncing back! I believe this. Our body is controlled by our mind and our mind is controlled by our spirit. To be cured, we need to get deeper into the spritual side and not just the mind. Sometimes we let our body control our mind, but we must refuse this. Cells are damaged, but cells can repair itself and regenerate. Every night when we sleep they do this. Our mind controls all the cells in our body. It's difficult to be positive and really you need to get to the unconsious side of you to see what you are really thinking. Sometimes we may be trying to think positive on the

consicous side, but unconsicously we may be thinking negatively. I don't deny breast implant can damage our health as it did mine, but I believe our bodies can be repaired also. I think you will do well. Don't give up!

From: Lengyel <tracylengyel@...> Sent: Mon, February 7, 2011 11:53:02 AMSubject: RE: explant docs again

Hi Sun, I know attitude is a lot. But on the other hand, there can be a true energy crisis in the body in which the body will be weak because of that, not because of a weak mind. There is mitochondria in every cell of our body. The mitochondria turns food into energy, that then goes out into all our systems that need it, heart, muscle, brain, organs etc. The mitochondria gets damaged due to trauma, genetics, toxins etc. Also, we are robbing our systems of energy with the energy having to go to repairing or fighting our chest wall issues. So, cell renewal or cell damage. I know our cells are damaged due to these toxins, sometimes if the cells are so damaged there is no recovery or little, sometimes there can be more recovery. The ones in the clinic that are the most negative might just be the ones most

beaten down by disease, the weakening or damaging process may be more severe. It is harder to fight and sometimes impossible the more damage done to the body. It is easier to be positive if your feeling better, or stronger. People always said I am negative or depressed. Then I had 2 babies with a mitochondrial disease (people think this is rare but is not, you can have mitochondrial dysfunction which leaves you limited slightly or disease which is more severe). I believed the people that said I needed to change myself somehow with my thought process. I thought I was just depressed and grieving when they died. I had been through years of struggling mentally, then decided to give myself a secret lift with breast augmentation. I used dressing, makeup, looks, hair to help me out of my bad feelings and it is easier to feel bad when not taking care of

yourself. Then about a year after augmentation, I started getting sick sick sick. I have now accepted that since my babies had mitochondrial damage already, and it is most likely maternally inherited, that I was too weak already to handle these implants. I led a normal life before the implant though. But I know that some women with no weakness issues get very sick from them. So, I've accepted that I don't have enough energy and my body is weakened more from this fight, and know that my spirit will have to be strong to hopefully overcome this body sickness and carry me through. I feel these are evil which is another weakening tactic of these toxic bags. So, I believe my spirit will feel much cleaner after, and that will give me strength to strengthen my body, regardless of the true energy crisis that is going on

in many of us. I am relying on my soul to carry my body through since I have destroyed many cells. For you guys working hard on strengthening your system now, Tishcon coq10 is great, coq10 is the substance naturally produced by the body that carries the energy from enzyme to enzyme in the mitochondria and goes out to your body. Our body is a metabolic process and the toxins I'm sure interfere with the natural metabolic process. Thanks for your uplifting response-

From: sunloves@...Date: Mon, 7 Feb 2011 08:30:30 -0800Subject: Re: explant docs again

,

I think our body is so resilient and given the right circumstances it does bounce back and recover. It's just that we abused our body by getting the implants. If we give it love again it bounces back. I thought I would never get better. I could not even take few steps without getting breathless, but now I can walk miles. The breathlessness is due to weakened system (in TCM Qi dificiency) I think in order to get better, we need to first have the right mind and believe and live like we are already getting better. I used to be in bed all day too, but now I just go out and get busy. There are some days, I feel tired, but overall I am almost normal now. If you keep believing that breast implant will make you sick it will, but if you believe you can beat this implant than you can. Our cells listens to all our thoughts. Whatever we think our cells will just go by it. So if

you believe you can overcome the surgery all the cells in your body will belive this also and will react to it. You have to love life, love yourself and believe everything will go well and it will. The first step in healing is to change our attitude. People who always think about their sickness will be sick always. I worked in acupuncture clinic and the people who get better are very positive and want to get well. People who don't improve have deeply ingrained negative thoughts and don't really want to get better....they don't love themselves or their life. Unconsicously they want to be sick. I believe in some ways people who got the implant did not love themselves. Our body returns that negative energy back to us by becoming sick. Pour positive energy into yourself and think and believe in good thoughts.

Everything will go well.

Thanks

Sun

From: Lengyel <tracylengyel@...> Sent: Fri, February 4, 2011 10:35:14 AMSubject: RE: explant docs again

Thanks Sun. I forget a lot and I'm very tired to look back in history to see your story. I have breathlessness also. I am also so afraid of the trauma of surgery because I am so weak now. I sleep all day and can hardly take care of myself and feel like I'm dying also. Looks like we are in similar circumstances, just trying to get strength to make appointment for explant.

From: sunloves@...Date: Fri, 4 Feb 2011 08:41:34 -0800Subject: Re: explant docs again

No I am not yet. I was too skinny and sick to get explanted. With much effort I have regained weight and my symptoms have all disappeared and I have been feeling normal again just recently. I have been getting ready and had all my consultation and plan to soon. I am pretty much set on the PS. I am just afraid the trauma of the surgery may weaken me again as I just recently became normal and I am enjoying my health. I was living in seclusion as I had severe MCS with so many other symptoms and now I go out freely and I am eating normal. I could not even eat as my digestive system was messed up and I couldn't even take few steps without getting breathless. I had severe heart palpitations.....I had all kinds of symptoms. I really thought that I was dying. I did acupuncure + lots of herbs + lots of other things to get my health back. I love this freedom

now. I want to enjoy it bit more before surgery.

Thank you!

Sun

From: Lengyel <tracylengyel@...> Sent: Thu, February 3, 2011 9:19:02 PMSubject: RE: explant docs again

Sun....... were you explanted?

From: sunloves@...Date: Thu, 3 Feb 2011 08:35:44 -0800Subject: Re: explant docs again

When I was considering explant, I too thought that cancer breast surgeon would be a good candidate. I found a really good microsurgeon at UCLA and she said she can do the explant. She has been doing breast surgeries for tumor for many years. It's like removing a tumor so they would be good candidate.

From: Dede <DGRAHAMA@...> Sent: Thu, February 3, 2011 8:22:20 AMSubject: Re: explant docs again

I think everyone thinks they have to see a plastic

surgeon to have explant......but I am wondering about

a general surgeon ? ? or even thoracic surgeon, or

even a breast specialist surgeon....like one that does

cancer patients. Maybe checking around in the other specialities would be good.....Ya never know.

Plastic surgeons are generally tryin to sell their services " FOR " implants, so they are less likely to enjoy a negative implant patient.....( meaning explant without re-implant, or one ill from implants ) There are a handful that respects explantees and we know who they are.

They are pricey tho.

When the power of love

overcomes the love of power the world will know peace.

~ Jimi Hendrix

explant docs again

Hey all,,, I went to Hiatt for an explant consult and had to sit through him telling me silicone is everywhere you can't escape it and "if I would stop going on groups like those everything would be fine". Then I liked Leighton but I hate how he treated someone in past, and left silicone and valve tubes in her and Kolb had to fix it all. Then the estimate from Kolb is much higher than the others. SOOO, and Melmed is high too. Is there someone I'm not thinking of that is more affordable for explantation that has a good reputation for doing it right the first time????? My head is spinning. Thanks.