Re: I think I need some help, or support Colleen

[Guest guest]

Hi Colleen:

Did your doctor take you off the Mtx or did you decide

to do it yourself? I have done that, thinking I did

not need this or that med, and have found out the hard

way that they really were helping. Could be that is

what has happened to you when you stopped the Mtx.

You should call your doctor and see what he thinks, or

if you could get a burst of Pred to help you through

this flare and get you on your feet again. I hope you

feel better soon - Take care -

Kathe in CA

--- Colleen <cmcpherson@...> wrote:

> I have been diagnoised with RA (2003) hypothyroid

> and Collgeous

> Colitis (2003) and high blood pressure 2005. I'm the

> one that sold

> her townhouse in . VA for a good profit and

> bought a great ranch

> home for 1/4 the price I sold my old house for, so I

> am not working.

> I found an internist that took me off one of the 3

> blood pressure

> durgs I was on, and my blood pressure has stayed ok.

> I went to a GYN

> and he strongly advised I go off of my

> " CombiPatches " which are

> female harmones because a greater chance of a stroke

> (anyone that

> are on these, please email me because I have a box +

> that I'd be

> glad to mail to you). So far so good. Then I saw my

> new Rhemey. I

> liked him ok, but because I'm on Asacol 400mg 4

> pills 3X's daily

> (for my colitis) he felt that being on Methotrexate

> pills (6 2.5mg

> 1X weekly) was overkill

> for inflamation. I am also on Humira weekly and I

> really haven't

> seen any difference with the methotrxate, other than

> it knocks me

> out of a day. I had been taking folic acid everyday,

> and at first he

> said he didn't think I should take folic acid the

> day I take the

> methotrexate. I would love to take the injectable,

> did in the

> beginning, but it's unavailable in this area and the

> area I moved

> from. OK, I said to the Rhemey, I would love to get

> off all the

> drugs I could, when I moved here, I was taking 26

> pills daily, an

> injection of Humira weekly and 6 2.5 pills of

> Methotrexate weekly.

> The last time I took Methotrexate was August 9th.

> Since then I

> thought all was ok. My blood pressure has been fine,

> I think I'm ok

> without the harmones, no hot flashes, no problems

> sleeping. Three

> days ago I woke more stiff than usual, I got up and

> hobbled to the

> kitchen and took my synthoid pill, fed the cats and

> went back to bed

> for a while. I finally got up about 10:30am, still

> very stiff,

> pushed myself to get some stuff done. Two days ago I

> was even more

> stiff, I guess that's the word. I took a shower, hot

> for about 20

> min. still hurt, but I tried to get the day started.

> I made it until

> 4 pm, fell asleep on my couch, woke at 9pm, stayed

> awake until after

> 11pm and then slept until 11:30am the next morning.

> This am I had about 12 hours sleep when I finally

> got up. I could

> hardley walk. Every muscle in my body hurt. I had

> injected the

> Hunira last night. I fed the cats and opened the

> blinds. My friends

> that I knew from here stopped by at almost noon and

> wanted me to go

> to a festival with them. I was still having a great

> deal of problems

> even walking. It was like I was an OLD lady. They

> stayed for about a

> half an hour, I went back to bed and woke at 6:30pm.

> I'm still tired

> and I still am sore all over my body. I'm thinking

> that my body is

> missing the Methotrexate, but I could be wrong. I

> have had flares

> before and this doesn't feel like one. I would

> appricate any

> suggestions or insight. I am going back to bed and I

> figure I will

> sleep until morning.

> Thanks for listening and gentle hugs to you all

> Colleen

>

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

--- In , Kathe Sabetzadeh <lv2ryd@...>

wrote:

>

> Hi Colleen:

>

> Did your doctor take you off the Mtx or did you decide

> to do it yourself? I have done that, thinking I did

> not need this or that med, and have found out the hard

> way that they really were helping. Could be that is

> what has happened to you when you stopped the Mtx.

> You should call your doctor and see what he thinks, or

> if you could get a burst of Pred to help you through

> this flare and get you on your feet again. I hope you

> feel better soon - Take care -

>

> Kathe in CA

>

..Kathe, thanks for your responce. My Rhemey took me off of my

Methotrexate because he felt the Asacol that I'm on for my colitis

was similiar drug type and maybe I didn't need bot. I knew I had to

have the Asacol because of past experiences, so he ask me to stop

the Methotrexate. I am planning on calling my new Rhemey tomorrow

morning and suggesting I begin Methotrextate again or he needs to

prescribe some Pred because I am really in bad shape. I literally

hurt all over!!

Colleen>