Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 Sorry for the delay in getting back to everyone as we are doing battle with sore throats and colds in my part of the World ! Life just keeps intruding on my plans ! 8o) Thanks to everyone who has responded both on and offline . I appreciate your kind words and you make me realize that I've come to the right place. Let me see if I can answer some of your questions. We've apparently dealt with some kind of misdiagnosis or another for the last 5 to 7 years . We've had doctors call it everything from allergies to depression, to restless leg and every other esoteric disorder known to man and have been shuffled every direction imaginable ( aren't HMOs great ? ). I even had one guy want to remove her parathyroids due to supposed " rapid " bone loss. It was finally on yet another insurance and Dr switch that we got the fibro and osteoarthritis diagnosed, but the RA was either still being missed or had not reared its head up at this point,but looking back on it now , there's some things that happened that I'm nearly positive were RA flareups and just incorrectly diagnosed.Insurance kept blowing the extra bloodwork off. She finally got a Dr who knew how to get her tests around the bean counters and that's when we got the " RA dormant or in remission " diagnosis around a year ago (she corrected me on this from my original post). He also confirmed the original findings of the other Rheumy. She's been taking Naproxyn and Flexeril for the last few years for the fibro and osteo, along with the occasional cortisone injection for a bursitis-like condition in the shoulder area and rounds of prednisone, which I now refuse to let her take due to the fact that it gives us a visit from " Evil " and I half jokingly tell her Drs that if they insist on her taking it , they have to take her home with them. The Plaquinel was just started about a month ago around the same time as the start of the flareup and hasn't shown any signs of helping yet. although the flareup seems to ebb and flow. Not sure if it's the meds or the RA episode just running it's course at this point. The new generation injectables have not been discussed at this point. My wife has been a very active person up to this point and it breaks my heart to see her too tired and in too much pain to enjoy things she used to do. It's all she can do to go to work and back each day. She tries to keep on a brave face and stay away from the pain meds , altough I do talk her into the occasional Darvocet or Percocet to ease it for her. I'm going to cut this off as I have been more than long winded enough , but in the midst of all of this , I also became a full time caregiver (in our home) for both of my parents in July of 2003 . My Dad, who was cardiac/renal failure on dialysis died a year ago this month and my Mom is diabetic with a possible underlying CHF and is still living with us. We won't even start on the challenges that this has and continues to present. I just hope I've answered some of your questions and those of you that I owe an email should be hearing from me soon. Peace Ya'll ! Please remember the heroes and victims of 9/11 in your prayers today. Jim Quote Link to comment Share on other sites More sharing options...
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