Dizziness

February 20, 2007

Could be hypoglycaemia. Cut your sugar.

Barbie

February 20, 2007

I have been experiencing lately too but don't know why. Very concerned.

Looking forward to other responses for possible reasons why.

Dizziness

Hello to all! I am brand new to the group, but have had fibro since

1993. I was diagnosed in 1995. Recently, I have been having dizzy

spells. I went through several tests for my heart and blood and all

checked out okay. Has anyone experienced this?

February 21, 2007

When you say dizzy, do you mean room spinning or black out seeing stars?

English

Re: Dizziness

I have been experiencing lately too but don't know why. Very concerned.

Looking forward to other responses for possible reasons why.

February 21, 2007

I get dizzy spells all the time. Firstly, it IS one of the symptoms of

both CFS and FM. Secondly, my doctor said that in my case it is low

blood pressure. Low BP is easy to detect, just take your blood

pressure regularly and keep track of it.

K2

> I have been experiencing lately too but don't know why. Very

concerned. Looking forward to other responses for possible reasons why.

>>

>

> Hello to all! I am brand new to the group, but have had fibro since

> 1993. I was diagnosed in 1995. Recently, I have been having dizzy

> spells. I went through several tests for my heart and blood and all

> checked out okay. Has anyone experienced this?

February 21, 2007

I was diagnosed with CFS and mild fibro in 2004 following a diagnosis of

Tardive Dyskenesia. I think that is what sent me over the edge. I had

been taking amphetamines prior to this which were supposedly to correct

the energy problems of depression. In any case, since amphetamines can

worsen or cause Tardive Dyskenesia (a movement disorder in my case

caused by a withdrawal from an antipsychotic I was taking not for

psychosis) I had to stop taking these. I haven't worked since. Right

from the beginning I have had severe dizziness, nausea, and

lightheadedness when standing and walking. I have been to a number of

specialists and everyone just ends up concluding it is the CFS as they

can't find any other cause. The symptoms definitely worsen the more

tired I get. At this point I have moderate fibro I guess, mostly in my

hands and arms making it hard to use them. I finally purchased a

scooter so that I can do stuff, when able, and not have to worry about

how sick I will get.

Sandrea

February 21, 2007

Wonder if the spells are due to the weather? Sometimes when the barometer is

changing I get dizzy spells (change of seasons, weather disturbances). Does

anyone else experience this?

February 21, 2007

Hi Sandrea, I just got a scooter too after 20 yrs. of pretty severe ME & fibro

(also MCS IBS, you name it!), I'm still getting used to it, but it is opening up

my life quite a bit. I'm still often too cog/impaired to use it though! But, on

good, sunny days, how lovely to do my shopping and errands and enjoy it, and not

be in bed for 3 days after. I wish I'd got one years ago. The main impediment is

people's attitude that I am " giving up " , even though I could only lurch about

with a cane and knee braces for about an hour x1/wk before a total crash...so,

scooter power to you! Aylwin

February 21, 2007

My dizziness is not blacking out. I don't even think it's the room

spinning. It's just a mild dizziness, especially when I move. It has

happenened only a few times so far. I feel unsteady and it is less if

I am sitting down. I have checked my BP when having one and it's

normal. (My cardiologist suggested this also.) Thank you. Crystal

February 21, 2007

K2,

I also have very low blood pressure and tend to black out easily, especially

upon standing. I find that by increasing my salt that it helps.

English

Re: Dizziness

I get dizzy spells all the time. Firstly, it IS one of the symptoms of

both CFS and FM. Secondly, my doctor said that in my case it is low

blood pressure. Low BP is easy to detect, just take your blood

pressure regularly and keep track of it.

K2

February 21, 2007

I also experience dizziness. Sometimes it seems it is just from low

blood pressure, other times it seems neurological. I often wonder

about this too!

February 21, 2007

I have lots of dizzy spells and Vertigo also, I hate it, it makes

you feel so sick, turning in bed is the worse as it feels like the

whole bed is moving and the whole room is spinning.

I haven't been allowed to drive for a year now, due to the FM

symptoms, frozen shoulders, cervical surgery (due to Spinal

Steonosis), dizziness and Vertigo.

It feels like all our independence has been stolen from us

The funny thing is that some doctors will not accept it as a FM/CFS

symptom.

Cheers everyone, lets just try to smile for a little while, we

cannot cry and be angry all the time even if we want to be.

>

> I also experience dizziness. Sometimes it seems it is just from

low

> blood pressure, other times it seems neurological. I often wonder

> about this too!

>

February 21, 2007

I have heard about this from others and experienced it myself....are you perhaps

on any medications that may have this as a side effect? Sometimes starting a

new med, changing dosages, or weaning off of a med can do this. And I know -

many of us are on or have tried so many different meds.

The steriod packs (prednisone) do this to me everytime. A friend of mine weaned

herself off of one of the SSRI (anti-depressants, but can be used in treatment

of FM/CFS type issues for many things ) a little too fast and was dizzy and

spacey - felt like she was in a tunnel was the way she described it.

How are you with drinking fluids? You could also be mildly dehydrated.

Just another thought or two if these possibilities haven't been mentioned by

others yet.

Kate

February 21, 2007

Dizzy by room spinning, pressure from neck to top of head, especially in frontal

region & very brief, maybe only seconds, impairment of hearing & vision. I've

been sick w/sinus infection, possible bronchitis & lots of stress since husband

abandoned me over a month ago.

Re: Dizziness

When you say dizzy, do you mean room spinning or black out seeing stars?

English

February 21, 2007

Low blood pressure can signify adrenal fatigue.

Barbie

February 21, 2007

my dizziness NEVER goes away since September, I dont know what to do. Seen so

many doctors already. Some say it is brain problem that does not show up on MRI.

Others say ear problem based on tests but treatments have failed.

Crystal Collopy wrote: My dizziness is not

blacking out. I don't even think it's the room

spinning. It's just a mild dizziness, especially when I move. It has

happenened only a few times so far. I feel unsteady and it is less if

I am sitting down. I have checked my BP when having one and it's

normal. (My cardiologist suggested this also.) Thank you. Crystal

February 22, 2007

Hi, !

Reading your email was like reading a page from my life. I am sorry

you experience this too. Is there anything you've found that helps

your dizziness? What medical tests have you had for it?

Thanks so much, P.J.

>

> I have lots of dizzy spells and Vertigo also, I hate it, it makes

> you feel so sick, turning in bed is the worse as it feels like the

> whole bed is moving and the whole room is spinning.

>

> I haven't been allowed to drive for a year now, due to the FM

> symptoms, frozen shoulders, cervical surgery (due to Spinal

> Steonosis), dizziness and Vertigo.

>

> It feels like all our independence has been stolen from us

>

> The funny thing is that some doctors will not accept it as a

FM/CFS

> symptom.

February 22, 2007

My doctor told me to eat more salt because of mine, too!

K2

> I also have very low blood pressure and tend to black out easily,

especially

> upon standing. I find that by increasing my salt that it helps.

>

February 22, 2007

I wanted to mention that when my awful ex-rheumatologist put me on mega-

doses of Vitamin D and calcium is when my dizziness began. It was so

bad I was afraid to drive or walk my dogs for fear of falling or

crashing the car.

I stopped the vit D & calcium, and now I just take whatever is already

in my multivitamin. She had prescribed Vit D & Calcium because she

insisted I DON'T have FM or CFS, and my pain was due to vitamin

deficiency. Well, it didn't help with the pain AT ALL, and I have

every symptom of FM and CFS, both. And I am not deficient in Vitamin D

or calcium -- never was. In fact, I am in less pain now than I was in

when I was taking the mega doses.

I digress.

Just wanted to point out that the Vit D made me dizzy. I still get

dizzy now from the low BP, but not like when I was on the Vit D. I was

falling off balance all the time and the room going black, severe

ringing in ears, fainting stuff like that. Somethin' to think about.

I thought mine was a neurological problem.

K2

> my dizziness NEVER goes away since September, I dont know what to do.

Seen so many doctors already. Some say it is brain problem that does

not show up on MRI. Others say ear problem based on tests but

treatments have failed.

>

February 22, 2007

I am so sorry, that has got to be the worst! I do the black out thing. do

you think the dizziness is associated w/ your sinuses or separate. I hope

your doctor can give you something that will help.

English

Re: Dizziness

Dizzy by room spinning, pressure from neck to top of head, especially in

frontal region & very brief, maybe only seconds, impairment of hearing &

vision. I've been sick w/sinus infection, possible bronchitis & lots of

stress since husband abandoned me over a month ago.

February 22, 2007

Hi, P.J!

What a relief to know that we're not alone, I'm sorry to hear you

have this lovely combination too, I do not wish these symptoms not

even to my worse enemy. And then I get people like my brother that

tells me " get over it, it's about time you start to get better, do

you want us to believe that you're still sick " . Those comments hurt

me so much, and there is nothing I can do to convince him that I'm

sick, I have tried to give him information about FM and the rest,

but he will not accept it. Why do people react so badly when someone

has been sick for a long time?

Never mind!

I had 2 MRI done and a cervical angiogram; the results on these 3

tests were mostly related to my cervical problems, the brain shows

normal. Some Drs said that vertigo is a Fibromyalgia Symptom and

there is nothing they can do to help it, some others don't believe

it's. I had also a test done to see if there was something wrong

with the crystals in my ears (never hear about this before), but

they were normal, during this test they shake your head so much,

that you feel really ill after.

The only thing I take for the dizziness is Stematil, I do not know

if you have it in the US.

Sorry it's a bit long.

Cheers

> I have lots of dizzy spells and Vertigo also, I hate it, it makes

> > you feel so sick

February 22, 2007

Salt would help the adrenals.

Barbie

February 23, 2007

Hi ,

I don't discuss my illnesses anymore, not even with my family. I've decided

that they either accept me as I am in a loving way as family should, or not -

their choice, or their loss. There is a treatment for dizziness, if you can lay

down flat. I tried it, and found some relief at first, but I cough if I lay

down past about 40 degrees (I sleep sitting up), so I couldn't do it. And I try

again from time to time, although my self-therapy now is just trying to lay flat

for a few minutes just to help clear my lungs. Let me know if you want to know

the treatment procedure.

Gore wrote: