Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 PYROLURIA After a very very challenging 12 years (my son is now 19) he has been diagnosed with Pyroluria. He has autism, psychosis and a learning disability. Pyroluria is simply treated with natural supplements and NOT drugs. This is why it is so little recognised by the medical profession. Had anyone else heard of this? It is diagnosed by the a urine test. Elevated krypropyrroles in the urine give a clear answer. This disorder strips the body of Vitamin B6 and Zinc, therefore compromising brain function. Other symptoms can be physical, such as stretch marks on the skin, poor enamel on the teeth and white spots on the fingernails. Pyroluria can cause the most awful aggression, mood swings and even hallucinations.Best Wishes, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2012 Report Share Posted January 25, 2012 Dear , I thank you so much for this email! I had never heard of pyroluria before, never from any of my son 's numerous doctors, psychiatrists etc etc. Everything important, I have learned from other parents! Thank you all so much. I received the lab test for pyroluria and am even hopeful that my son has it! has autism, bipolar, adhd, aggression, and many other diagnoses. He has been on every kind of medication and currently takes 7! psychotropic meds, which don't help that much. I would love to get him off this medicine merry-go-round. Here's hoping..... Thanks again, Sherry Z To: "AutismBiomedGA " <AutismBiomedGA >; "asagreaterakron " <asagreaterakron >; "AutismBehaviorProblems " <AutismBehaviorProblems >; "abaparents " <abaparents >; "autism-georgia " <autism-georgia >; "autismaba " <autismaba >; "LosAngelesFamiliesforEffectiveAutismTreatment " <LosAngelesFamiliesforEffectiveAutismTreatment >; TXAutismgroup <texas-autism-advocacy > Sent: Friday, January 20, 2012 1:38 PMSubject: Fw: PYROLURIA and Autism PYROLURIA After a very very challenging 12 years (my son is now 19) he has been diagnosed with Pyroluria. He has autism, psychosis and a learning disability. Pyroluria is simply treated with natural supplements and NOT drugs. This is why it is so little recognised by the medical profession. Had anyone else heard of this? It is diagnosed by the a urine test. Elevated krypropyrroles in the urine give a clear answer. This disorder strips the body of Vitamin B6 and Zinc, therefore compromising brain function. Other symptoms can be physical, such as stretch marks on the skin, poor enamel on the teeth and white spots on the fingernails. Pyroluria can cause the most awful aggression, mood swings and even hallucinations.Best Wishes, Quote Link to comment Share on other sites More sharing options...
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