Re: MB12 spray burns nasal tissue?

[Guest guest]

Are you using a prescription formulation or the throat spray from online??

It was suggested to me (by my local " rescue angel " ) to use the mouth

spray in a nasal spray bottle for my daughter. I came here and asked

the group FIRST. They warned me that the throat spray will burn and

perhaps eventually damage nasal tissue due to the glycerine. One

cannot be substituted for the other. We are currently using

sublingual MB12 because we cannot find a doc yet willing to give her

the script. They have no knowledge in these matters. Thankfully, she

is responding to the sublingual but Stan has said very few children do

respond.

Darlene

>

> Hi everyone. We have administered the mb12 (no additives) spray 3 x's

> (1 nostril)in the past week to my 4 yr old. Each time we spray, his

> skin on the nose up to his forhead turns read for about an hour. It

> is only the side of the nose that gets sprayed. My husband took a dose

> before we started with my son and he said that it DID burn a bit. Can

> I cause harm to my son's nasal tissue by using the spray? Has this

> happened to anyone else? TIA,

>

[Guest guest]

Hi, I have tried the MB12 nasal spray about 4 times now with my 3 year old son and each time using one spray in one nostril a day, after about the 3rd or 4th day he gets a really bad nosebleed. I'm talking blood all over his face and hands. I'm going to try the sublingual and hope for the best. I emailed Stan about this but haven't heard back yet.

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[Guest guest]

Thanks for your reply. My gosh poor baby! I think

their is a bad burn of some kind. I'm surprised their

aren't more reports like ours.??? I searched the

archives and didn't find anything. Perhaps my search

was bad????

I'm holding off for now. I will ask my DAN! about this

as well. I'll keep you posted.

--- Costas wrote:

> Hi, I have tried the MB12 nasal spray about 4 times

> now with my 3 year old son and each time using one

> spray in one nostril a day, after about the 3rd or

> 4th day he gets a really bad nosebleed. I'm talking

> blood all over his face and hands. I'm going to try

> the sublingual and hope for the best.

> I emailed Stan about this but haven't heard back

> yet.

>

>

>

>

> ---------------------------------

> Looking for the perfect gift? Give the gift of

Flickr!

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[Guest guest]

We are using nasal spray from hopewell pharmacy. Which

sublinguals are you using? I went to whole foods

tonight and only found Jarrow's but didn't want it

because of the xylitol. Thanks for responding!

--- confi_8944 wrote:

> Are you using a prescription formulation or the

> throat spray from online??

>

> It was suggested to me (by my local " rescue angel " )

> to use the mouth

> spray in a nasal spray bottle for my daughter. I

> came here and asked

> the group FIRST. They warned me that the throat

> spray will burn and

> perhaps eventually damage nasal tissue due to the

> glycerine. One

> cannot be substituted for the other. We are

> currently using

> sublingual MB12 because we cannot find a doc yet

> willing to give her

> the script. They have no knowledge in these

> matters. Thankfully, she

> is responding to the sublingual but Stan has said

> very few children do

> respond.

>

> Darlene

>

>

>

>

> >

> > Hi everyone. We have administered the mb12 (no

> additives) spray 3 x's

> > (1 nostril)in the past week to my 4 yr old. Each

> time we spray, his

> > skin on the nose up to his forhead turns read for

> about an hour. It

> > is only the side of the nose that gets sprayed. My

> husband took a dose

> > before we started with my son and he said that it

> DID burn a bit. Can

> > I cause harm to my son's nasal tissue by using the

> spray? Has this

> > happened to anyone else? TIA,

> >

>

>

>

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[Guest guest]

Hi ,

I'm obviously curious about your report. Can you tell me what spray you used?

How it was

ordered (exact dosage and ingredients... (with folinic or without or???) and who

was the

pharmacy you got it from.

That would help us to respond to this better.

Thanks.

Stan

Now since I'm not always on the list I'll tell you few things that I have seen.

First, from a

compound pharmacy there is rarely (meaning I can't think of one that I am aware

of ) a

report that someone says it burns or describes it as such.

MB12 is naturally occuring in the body already and typically the ph balance of

the spray is

measured at the pharmacy.

I have observed people and read reports of folks who say they actually smell the

spray,

which is really interesting because a great majority do not smell anything from

the spray.

Some folks who are very nasally sensitive may have watery eyes for a few

minutes,

something like that but for a report of the nose to actually burn something

doesn't sound

particularly right.

There is one really good over the counter version that has a touch of potassium

in it and I

have seen some folks use that as a nasal spray (nasal spray grade MB12 with

potassium as

a preservative) and the potassium can cause a warm feeling for some... but those

folks

also lowed the amount of potassium and I haven't seen reports of that since.

Now, that said the description of your child's nose being read on the outside

all the way up

is not a typical report, or the burning in your husbands nose. It's the first

time I have seen

a report like that.

So that's what brings me to the questions I asked above. I would be first

looking at the

pharmacy and the particular ingredients and dosages.

MB12 itself is typically very (very) gentle on the nostril. Feels similar to

saline to me.

- Stan

>

> Hi everyone. We have administered the mb12 (no additives) spray 3 x's

> (1 nostril)in the past week to my 4 yr old. Each time we spray, his

> skin on the nose up to his forhead turns read for about an hour. It

> is only the side of the nose that gets sprayed. My husband took a dose

> before we started with my son and he said that it DID burn a bit. Can

> I cause harm to my son's nasal tissue by using the spray? Has this

> happened to anyone else? TIA,

>

[Guest guest]

Hi Stan,

What is the OTC MB12 spray you referred to? I would be interested in obtaining that, if I could.

Thanks!

Patty

To: mb12 valtrex From: stankurtz@...Date: Sun, 6 Jan 2008 17:16:25 +0000Subject: Re: MB12 spray burns nasal tissue?

Hi ,I'm obviously curious about your report. Can you tell me what spray you used? How it was ordered (exact dosage and ingredients... (with folinic or without or???) and who was the pharmacy you got it from.That would help us to respond to this better.Thanks.StanNow since I'm not always on the list I'll tell you few things that I have seen. First, from a compound pharmacy there is rarely (meaning I can't think of one that I am aware of ) a report that someone says it burns or describes it as such.MB12 is naturally occuring in the body already and typically the ph balance of the spray is measured at the pharmacy. I have observed people and read reports of folks who say they actually smell the spray, which is really interesting because a great majority do not smell anything from the spray. Some folks who are very nasally sensitive may have watery eyes for a few minutes, something like that but for a report of the nose to actually burn something doesn't sound particularly right.There is one really good over the counter version that has a touch of potassium in it and I have seen some folks use that as a nasal spray (nasal spray grade MB12 with potassium as a preservative) and the potassium can cause a warm feeling for some... but those folks also lowed the amount of potassium and I haven't seen reports of that since.Now, that said the description of your child's nose being read on the outside all the way up is not a typical report, or the burning in your husbands nose. It's the first time I have seen a report like that.So that's what brings me to the questions I asked above. I would be first looking at the pharmacy and the particular ingredients and dosages.MB12 itself is typically very (very) gentle on the nostril. Feels similar to saline to me.- Stan>> Hi everyone. We have administered the mb12 (no additives) spray 3 x's > (1 nostril)in the past week to my 4 yr old. Each time we spray, his > skin on the nose up to his forhead turns read for about an hour. It > is only the side of the nose that gets sprayed. My husband took a dose > before we started with my son and he said that it DID burn a bit. Can > I cause harm to my son's nasal tissue by using the spray? Has this > happened to anyone else? TIA, >

[Guest guest]

I am also interested in obtaining the OTC nasal spray.

Thanks,

Lynn

>> Hi

everyone. We have administered the mb12 (no additives) spray 3 x's >

(1 nostril)in the past week to my 4 yr old. Each time we spray, his

> skin on the nose up to his forhead turns read for about an hour.

It > is only the side of the nose that gets sprayed. My husband took

a dose > before we started with my son and he said that it DID burn

a bit. Can > I cause harm to my son's nasal tissue by using the

spray? Has this > happened to anyone else? TIA, >

>

[Guest guest]

It's more than just the color. My son was doing fine with it for about 3 weeks then refused to do it anymore. He says his nose burns. After a spray he would cry for a few minutes telling us it burns! After a while, you have to start believing your kid!! I had asked the group before what to do about the sensitivity and no one could respond. I'm not sure enough people have experimented with it enough to know what to do about that.I've got a years worth of RX and don't know what to do. thanks, Alice

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[Guest guest]

It might be where or who it is being compounded by (the pharmacy, call them). I

tried the

spray first before giving and it didn't burn and my son takes it and doesn't

complain about

it burning just doesn't like that it runs some time. Contact the pharmacy about

it and

maybe try it without the foliinc acid or even the Hydroxy B12 that we use, it is

milder from

we tried the MB12. HIH, I just was brainstorming to help as I know what it's

like trying to

figure it own with no help.

take Care,

Selena

>

> It's more than just the color. My son was doing fine with it for about 3 weeks

then

refused to do it anymore. He says his nose burns. After a spray he would cry for

a few

minutes telling us it burns! After a while, you have to start believing your

kid!! I had asked

the group before what to do about the sensitivity and no one could respond. I'm

not sure

enough people have experimented with it enough to know what to do about

that.I've got a

years worth of RX and don't know what to do.

> thanks,

> Alice

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with Yahoo! Search.

>

[Guest guest]

Stan,

Thank you so much for your reply. Our DAN! ordered

from Hopewell Pharmacy. The label only says-methylcob

nasal 12.5mg/ml. The liquid inside is red. I am going

to call Hopewell tomorrow just to be sure they do not

use other ingredients not listed on the label.

I know something must not be right here,because for

almost 2 yrs I never heard of this from the group. I

am stopping for now, but am anxious to be able to use

it on him.Thank you,

--- Stan Kurtz wrote:

> Hi ,

>

> I'm obviously curious about your report. Can you

> tell me what spray you used? How it was

> ordered (exact dosage and ingredients... (with

> folinic or without or???) and who was the

> pharmacy you got it from.

>

> That would help us to respond to this better.

>

> Thanks.

>

> Stan

>

> Now since I'm not always on the list I'll tell you

> few things that I have seen. First, from a

> compound pharmacy there is rarely (meaning I can't

> think of one that I am aware of ) a

> report that someone says it burns or describes it as

> such.

>

> MB12 is naturally occuring in the body already and

> typically the ph balance of the spray is

> measured at the pharmacy.

>

> I have observed people and read reports of folks who

> say they actually smell the spray,

> which is really interesting because a great majority

> do not smell anything from the spray.

> Some folks who are very nasally sensitive may have

> watery eyes for a few minutes,

> something like that but for a report of the nose to

> actually burn something doesn't sound

> particularly right.

>

> There is one really good over the counter version

> that has a touch of potassium in it and I

> have seen some folks use that as a nasal spray

> (nasal spray grade MB12 with potassium as

> a preservative) and the potassium can cause a warm

> feeling for some... but those folks

> also lowed the amount of potassium and I haven't

> seen reports of that since.

>

> Now, that said the description of your child's nose

> being read on the outside all the way up

> is not a typical report, or the burning in your

> husbands nose. It's the first time I have seen

> a report like that.

>

> So that's what brings me to the questions I asked

> above. I would be first looking at the

> pharmacy and the particular ingredients and dosages.

>

> MB12 itself is typically very (very) gentle on the

> nostril. Feels similar to saline to me.

>

> - Stan

>

>

> >

> > Hi everyone. We have administered the mb12 (no

> additives) spray 3 x's

> > (1 nostril)in the past week to my 4 yr old. Each

> time we spray, his

> > skin on the nose up to his forhead turns read for

> about an hour. It

> > is only the side of the nose that gets sprayed. My

> husband took a dose

> > before we started with my son and he said that it

> DID burn a bit. Can

> > I cause harm to my son's nasal tissue by using the

> spray? Has this

> > happened to anyone else? TIA,

> >

>

>

>

>

________________________________________________________________________________\

____

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http://www.yahoo.com/r/hs

[Guest guest]

I have been giving my son MB12 spray off and on for over a year now.

And I started using some also. For me, it wasnt' so bad upon initial

spray,(burning) but after using it for 3 or 4 days (1 spray daily) my

nasal passage was very irritated, burned and bled. I finally put the

two together. After eliminating the spray nose was fine. When started

back up again my nose was irritated. I wonder if I didn't need it and

I was " overdosing " I didn't feel much different with the spray.

Although I do credit MB12 as playing a big roll in my sons recovery.

Amber

> >

> > It's more than just the color. My son was doing fine with it for

about 3 weeks then

> refused to do it anymore. He says his nose burns. After a spray he

would cry for a few

> minutes telling us it burns! After a while, you have to start

believing your kid!! I had asked

> the group before what to do about the sensitivity and no one could

respond. I'm not sure

> enough people have experimented with it enough to know what to do

about that.I've got a

> years worth of RX and don't know what to do.

> > thanks,

> > Alice

> >

> >

> > ---------------------------------

> > Looking for last minute shopping deals? Find them fast with

Yahoo! Search.

> >

>

[Guest guest]

I have been giving my son MB12 spray off and on for over a year now.

And I started using some also. For me, it wasnt' so bad upon initial

spray,(burning) but after using it for 3 or 4 days (1 spray daily) my

nasal passage was very irritated, burned and bled. I finally put the

two together. After eliminating the spray nose was fine. When started

back up again my nose was irritated. I wonder if I didn't need it and

I was " overdosing " I didn't feel much different with the spray.

Although I do credit MB12 as playing a big roll in my sons recovery.

Amber

> >

> > It's more than just the color. My son was doing fine with it for

about 3 weeks then

> refused to do it anymore. He says his nose burns. After a spray he

would cry for a few

> minutes telling us it burns! After a while, you have to start

believing your kid!! I had asked

> the group before what to do about the sensitivity and no one could

respond. I'm not sure

> enough people have experimented with it enough to know what to do

about that.I've got a

> years worth of RX and don't know what to do.

> > thanks,

> > Alice

> >

> >

> > ---------------------------------

> > Looking for last minute shopping deals? Find them fast with

Yahoo! Search.

> >

>

[Guest guest]

One more thing. I have seen reports about bleeding after MB12. Some of them

could be

because the spray is red, but beyond that we have seen folks give their child

vitamin K and

it resolves the issue. Talk to your doctor of course, but you may want to

consider doing a

vitamin K trial.

So, in summary, MB12 shouldn't burn. If it does or seems to don't continue. If

it were my

child I would try it in myself just to be sure. If it does, call the pharmacy

and/or consider

switching. Don't keep the spray around more than 90 days (according to Coastal)

and keep

the spray refrigerated.

If we were to issolate the spray was prepared properly, had the right PH

balance, was

refrigerated properly and still burned I would be very interested in that.

MB12 naturally occurs all over the body and it comes from food and gut bacteria.

If a the

body was responding to it in a way that caused nasal passage burning... let's

just say that

would be interesting.

- Stan

> > >

> > > It's more than just the color. My son was doing fine with it for

> about 3 weeks then

> > refused to do it anymore. He says his nose burns. After a spray he

> would cry for a few

> > minutes telling us it burns! After a while, you have to start

> believing your kid!! I had asked

> > the group before what to do about the sensitivity and no one could

> respond. I'm not sure

> > enough people have experimented with it enough to know what to do

> about that.I've got a

> > years worth of RX and don't know what to do.

> > > thanks,

> > > Alice

> > >

> > >

> > > ---------------------------------

> > > Looking for last minute shopping deals? Find them fast with

> Yahoo! Search.

> > >

> >

>

[Guest guest]

I have seen a small number of posts on bleeding from administration of MB12 and

a little

vitamin K typically has taken care of it according to the reports of people

trying it. Your

Defeat Autism Now! doc should know about vitamin K and nose bleeds in kids with

autism. It does happen to subset of our kids.

Stan

>

> Hi, I have tried the MB12 nasal spray about 4 times now with my 3 year old son

and each

time using one spray in one nostril a day, after about the 3rd or 4th day he

gets a really

bad nosebleed. I'm talking blood all over his face and hands. I'm going to try

the

sublingual and hope for the best.

> I emailed Stan about this but haven't heard back yet.

>

>

>

>

> ---------------------------------

> Looking for the perfect gift? Give the gift of Flickr!

>

[Guest guest]

According to what you are telling me its just straight MB12 which typically is

pretty stable

by itself in the bottle. If the bottle is new I would ask them (or maybe

another pharmacy)

to test the PH. If it were my kid I would probably switch pharmacies and get a

script for

myself and try it before considering retrying it on my child.

I would work to issolate if it is the particular spray and/or pharmacy or if

there is a real

reaction. If it turns out to be a real reaction its a very interesting find and

it may help your

doctor.

Hypothetically if a child was reacting to mb12 nasally, how would he/she react

with MB12

in the gut through dietary and bacteria sources... and why is it happening,

right? Before

you go down that path of thinking I would talk to your doctor, talk to your

pharmacy, if it

were my I would try another pharmacy (not that there is anything wrong with

hopewell,

just trying to issolate what the problem is) and start with a script for myself

and go from

there.

I'm curious how this turns out. Keep us posted.

- Stan

> > >

> > > Hi everyone. We have administered the mb12 (no

> > additives) spray 3 x's

> > > (1 nostril)in the past week to my 4 yr old. Each

> > time we spray, his

> > > skin on the nose up to his forhead turns read for

> > about an hour. It

> > > is only the side of the nose that gets sprayed. My

> > husband took a dose

> > > before we started with my son and he said that it

> > DID burn a bit. Can

> > > I cause harm to my son's nasal tissue by using the

> > spray? Has this

> > > happened to anyone else? TIA,

> > >

> >

> >

> >

> >

>

>

>

>

________________________________________________________________________________\

____

> Never miss a thing. Make Yahoo your home page.

> http://www.yahoo.com/r/hs

>

[Guest guest]

Any folks with reports similar to this please bring them up. Also mention the

ingredients,

dosage, pharmacy, how old the bottle is, and if you are keeping it in the

refrigerator.

Thanks,

Stan

>

> It's more than just the color. My son was doing fine with it for about 3 weeks

then

refused to do it anymore. He says his nose burns. After a spray he would cry for

a few

minutes telling us it burns! After a while, you have to start believing your

kid!! I had asked

the group before what to do about the sensitivity and no one could respond. I'm

not sure

enough people have experimented with it enough to know what to do about

that.I've got a

years worth of RX and don't know what to do.

> thanks,

> Alice

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with Yahoo! Search.

>

[Guest guest]

Sorry to butt in here but Hopewell caught my attention. Folks on CK2

have had issues with them, the quality control kinds. They have sent

shots without adequate ice packs to a few. I believe they do resend

shots that sting, they may have cleaned up their act, this was a few

months ago. Nobody has complained recently. It does seem that the

pharmacies need to be extra vigilant since we have a population of

kids that even though verbal might not be able to tell what the

problem is.

Going through some detox myself I can fully appreciate the importance

of Ph control in our kids. Its amazing how much a little imbalance

can throw things off. Those Ph strips might be worth their weight in

gold for monitoring saliva and urine Ph.

Gayatri

> > > >

> > > > Hi everyone. We have administered the mb12 (no

> > > additives) spray 3 x's

> > > > (1 nostril)in the past week to my 4 yr old. Each

> > > time we spray, his

> > > > skin on the nose up to his forhead turns read for

> > > about an hour. It

> > > > is only the side of the nose that gets sprayed. My

> > > husband took a dose

> > > > before we started with my son and he said that it

> > > DID burn a bit. Can

> > > > I cause harm to my son's nasal tissue by using the

> > > spray? Has this

> > > > happened to anyone else? TIA,

> > > >

> > >

> > >

> > >

> > >

> >

> >

> >

> >

>

______________________________________________________________________

______________

> > Never miss a thing. Make Yahoo your home page.

> > http://www.yahoo.com/r/hs

> >

>

[Guest guest]

" Source Naturals " Methylcobalamin

Vitamin B-12 * Cherry Sublingual * 1 mg and 5 mg

http://www.sourcenaturals.com/products/GP1217/

Other Ingredients: mannitol, sorbitol, natural cherry flavor, stearic

acid, and magnesium stearate.

Does not contain yeast, dairy, egg, gluten, corn, soy or wheat OR

sugar, starch, salt preservatives, artificial color, flavor or fragrance.

Sidebar - thanks for making me look it up. I wasn't aware it came in

5mg! is just 3 so she sucks on it - not under her tongue.

She's up to 3 mg / day but if I can give her ONE of the 5 mg, thank

God! Couldn't figure how to fit more in the schedule, lol!

[Guest guest]

It's NOT a nasal spray. It's an orally used THROAT spray which some

people are putting in nose spray bottles and using inappropriately.

It isn't formulated for nasal passages.

If you simply want to use it as a throat spray here's the site:

http://www.holisticheal.com/store/product.php?productid=696 & cat=0 & page=1

Darlene

>> Hi

> everyone. We have administered the mb12 (no additives) spray 3 x's >

> (1 nostril)in the past week to my 4 yr old. Each time we spray, his

> > skin on the nose up to his forhead turns read for about an hour.

> It > is only the side of the nose that gets sprayed. My husband took

> a dose > before we started with my son and he said that it DID burn

> a bit. Can > I cause harm to my son's nasal tissue by using the

> spray? Has this > happened to anyone else? TIA, >

> >

>