New to group and need help adding supplements (antivirals, etc)

January 6, 2008

Hi,

I have been lurking today after being accepted as a member. You are

all so wonderful and helpful and I cannot wait to become more active

here. I want to start by giving my daughters bio and then list my

questions.

My 3 1/2 yo dd (pdd) has been receiving therapy since she was 32

months old. First from early intervention. Now from School. She has

been receiving speech, ot, pt and is in an ABA classroom 5 days a

week for 2 hrs 45 minutes.

Since October she has been seeing a pediatric chiropractor regularly

including cranial work (has greatly helped my dd's brain fluids move

more freely. upon initial exam her brain fluids were sort of

stagnant). They also help with finding the right supplements and

guiding when adding new ones. =)

We have rececived our formal diagnosis from a develpmental team of

PDD-NOS. A nuerologist diagnosed Autism (she doesn't use PDD).

We have a referral in three months to see a gastrenologist. Her poops

are all over the place. Not diahreah not runny. Just sometimes

mushy/loose. Sometimes they are regular. Some mornings in the last

few months she just has a bowel burst after waking up. Full of mush

and almost oozing out of her diaper. I have not been able to tell

really if its one food in particular that causes it to be like that.

One great thing we are waiting for the final approval.....my daughter

has initially been accepted into the Autism Waiver program in the

state of MA. Its a three year pilot program. She will receive up to

$25,000 for services (more info best found on the MA/DMR website).

its an awesome program where only 80 kids that applies out of

thousands were accepted. We will know within the next three weeks!!!

SOOOOO exciting.

My daughter is considered high functioning. She has made amazing

progress since August. She now has ALOT of eye contact. Responds to

her name and sometimes to commands. She is a labeler. she does some

echolalia. Has alot of words however cannot make sentences right now.

She can sometimes put some words together like Mama Eat hungry. Mama

see show....we are slowly making progress. In August she could not

put two words together. one big area that needs work is playing with

toys functionally. Its so hard for her to do a knob puzzle, mr potato

head, building blocks. things like that but we do it every day to

build her skills.At home I do alot with her.....alot learned from

early intervention.... she recently ran to me when i picked her up

from preschool...her first time!!!! she is very visual and has a

great sense of humor. She has started playing with Little leaps game

for the tv and actually responds to the commands to push the buttons

to interact. this game really holds her attention. overall she is

very loving. she really connects with her baby brother and older

brother.

she is obsessed with my computer so i am starting to look for some

computer games for her besides fisher price online games that she is

now bored with. (any suggestions? I see some at chilrens hospital

boston website that look good)

I am looking into videos. Right now she loves Braincandy and baby

bumblee bee. (any suggestions? anyone use the teach2talk videos? or

anything else?)

Since august I have kept therapies isolated...sort of made sure there

was a good enough space in between so I could see what really worked

for her. I know GFCF works for her (now sleeps through the

night..woohoo). I have tested some foods and have a list of some

known food intolerances. I know supplements help her as I've seen the

great improvements. I know chiro works for her.

I would like to see improvement in the following areas:

Hand biting/growling while doing it. scratching everyone when

irritated. (was told zinc supplement might help this)

Rocking especially in the car seat and highchair.

Screaming when we get to a red light or stop in the car.

lately gets irritated by the overhead light in the car when its on.

would like to see better improvement in listening, speech, etc.. all

the other usuall areas.

stop looping words..like just saying the same thing over and

over...bed, bed, bed even though when i do her request and take her

there its not really what she wanted.

Now I am ready to move on to more supplements. I have been watching

your threads and trying to make sense of what new supplements I need.

My 3 1/2 yo DD has autism/PDD-NOS is 3ft 1 " weighs about 35 lbs.

I need to add supplements to

these areas but have questions:

1. Natural Antifungal - Oregano Oil, Saccharomyces Boulardii or Candex

~How do you decide which one is best? I want the most natural one

with least known side affects. Next what brand/seller would you

recommend and what dosage?

2. Baterial: would Three-Lac fall under this? we are currently using

that.

3. natural viral therapy: Olive leaf extract (OLE)

- is this one good? how to administer?

I have read some people post GSE is this grapefruit seed extract?

What is that used for? I am very intersted in this supplement too.

What order is best for giving all supplements?

Here is what we give or will be giving once some trials arrive this

week

Mutli vitamin/ supernu thera trial is on its way

cod liver oil (right now we are giving Nordic Naturals Artic cod

liver oil...my dd doesn't seem to have a soy allergy. I have tested a

few times and not seen any reaction but I have read that the e

vitamin in the oil is from soy so i am not sure if I want to

switch...hard decision as it was hard enough finding one that had the

right dha-epa ratio i wanted).

threelac (one packet a day ...was giving it in the am but read i

should switch to pm)

amino support by kirkman (awaiting trial size)

EnZym-Complete II DPP-IV Isogest® Formula by Kirkamn (awaiting trial

size)

Kirkman's Hypoallergenic Zinc Capsules (Bio-Max Series) (awaiting

order)

Maybe I need more than what is listed but I'm not sure.LMK what you

think.

Thank you!!!

Bonnie of Leominster, MA

January 7, 2008

Hi Bonnie,

I live in Andover, MA.

Hand biting, yes, most likely zinc. The car light is probably because of the

flickering and it’s so close to her eyes. She probably has vestibular

issues to be crying at stop lights. Always wants the car to be moving, rocking

her. Sensory integration might help this as well as food intolerance removal.

The diet, and chiro/craino stuff is a great start but while you are moving into

the supplement area the most important thing is starting one supplement at a

time. Many kids are sensitive to certain supplements and in order for you to

see which one is affecting her, at least a week in between is best. As for

listening and speech, I’m still working on those myself, but for

attention I have the best luck with OPC-3 which has pine bark extract,

grapeseed extract, bilberry extract, etc also MB-12 injections help with

attention. For speech my son has made progress with 3 things but still has a

long way to go, 1st MB-12 injections, Valtrex/antifungal protocal,

and DMG (in order to do DMG you need a sufficient amount of B6 in the system).

For bacteria OLO is good for bacteria/fungal as well as Goldenseal. But most

of these you do not want to use for long periods of time. Rotation and breaks

are best with those. You also really need a good probiotic on board. I rotate

Kirkman’s probio gold, and Klaire labs therbiotic. GSE (grapefruit seed

extract) is an antifungal and antibacterial. Most important thing to remember

is go slow and observe your child. Getting them tested by a DAN physician would

really help you figure out where she is and how much yeast she may have as well

as find out food intolerances and mineral imbalances.

As for the computer, there are many

online things she can do. PBS.org has a ton of games on there, so does Nick

Jr. My son loves these and they are free. When she starts to be interested in

letters and beginning phonics the best free website is www.starfall.com. I like the baby bumble

bee videos as well. I know someone whose son started talking with one of

them. He never said anything in sentence form and only a few words but after

watching those videos he started saying “The girl is walking across the

room” LOL!! One of my therapists is working with a little 3 yr old and

using the teach to talk videos and it’s going really well.

Concentrating on the gut first is

your best bet! Good luck,

From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of richbon1099

Sent: Monday, January 07, 2008

12:45 AM

To: mb12 valtrex

Subject: New to

group and need help adding supplements (antivirals, etc)