Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 It would be great if school districts and regional centers could at the very least post this information, but I'm sure this is fraught with red-tape and legal issues. What bothers me is you don't even see a mention of DAN or biomedical issues at many of the large Autism organizations - such as ASA, where people may initially turn for information or help. I think focusing here would yield NUMEROUS parents/children.Just a thought.Nora Middleton I was thinking of ways for Defeat Autism Now! et al., to reach new families. Speech, OT centers and the such, parent groups, etc. Where else do we families with a child with autism hang out in numbers? Please email me at autismbook1 Thanks. Stan Oh and for whoever said viruses (and other infections) are not associated with certain cases of autism has not reviewed the medical literature well. This is one of the more recent publications... J Neurosci Res. 2007 Apr;85(5):1143-8. Links Evidence for Mycoplasma ssp., Chlamydia pneunomiae, and human herpes virus-6 coinfections in the blood of patients with autistic spectrum disorders. Nicolson GL, Gan R, Nicolson NL, Haier J. The Institute for Molecular Medicine, Huntington Beach, California 92647, USA. gnicolsonimmed (DOT) org We examined the blood of 48 patients from central and southern California diagnosed with autistic spectrum disorders (ASD) by using forensic polymerase chain reaction and found that a large subset (28/48 or 58.3%) of patients showed evidence of Mycoplasma spp. infections compared with two of 45 (4.7%) age-matched control subjects (odds ratio = 13.8, P < 0.001). Because ASD patients have a high prevalence of one or more Mycoplasma spp. and sometimes show evidence of infections with Chlamydia pneumoniae, we examined ASD patients for other infections. Also, the presence of one or more systemic infections may predispose ASD patients to other infections, so we examined the prevalence of C. pneumoniae (4/48 or 8.3% positive, odds ratio = 5.6, P < 0.01) and human herpes virus-6 (HHV-6, 14/48 or 29.2%, odds ratio = 4.5, P < 0.01) coinfections in ASD patients. We found that Mycoplasma-positive and -negative ASD patients had similar percentages of C. pneumoniae and HHV-6 infections, suggesting that such infections occur independently in ASD patients. Control subjects also had low rates of C. pneumoniae (1/48 or 2.1%) and HHV-6 (4/48 or 8.3%) infections, and there were no coinfections in control subjects. The results indicate that a large subset of ASD patients shows evidence of bacterial and/or viral infections (odds ratio = 16.5, P < 0.001). The significance of these infections in ASD is discussed in terms of appropriate treatment. © 2007 Wiley-Liss, Inc. PMID: 17265454 Nora Middletontikigal@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 I usually meet the people I help at school, in the mall, at playgrounds and grocery stores. I also get referrals from our ABA company.CherylI was thinking of ways for Defeat Autism Now! et al., to reach new families.Speech, OT centers and the such, parent groups, etc.Where else do we families with a child with autism hang out in numbers?Please email me at autismbook1Thanks.StanOh and for whoever said viruses (and other infections) are not associated with certaincases of autism has not reviewed the medical literature well.This is one of the more recent publications...J Neurosci Res. 2007 Apr;85(5):1143-8. LinksEvidence for Mycoplasma ssp., Chlamydia pneunomiae, and human herpes virus-6 coinfections in the blood of patients with autistic spectrum disorders.Nicolson GL, Gan R, Nicolson NL, Haier J.The Institute for Molecular Medicine, Huntington Beach, California 92647, USA. gnicolsonimmed (DOT) orgWe examined the blood of 48 patients from central and southern California diagnosed with autistic spectrum disorders (ASD) by using forensic polymerase chain reaction and found that a large subset (28/48 or 58.3%) of patients showed evidence of Mycoplasma spp. infections compared with two of 45 (4.7%) age-matched control subjects (odds ratio =13.8, P < 0.001). Because ASD patients have a high prevalence of one or more Mycoplasma spp. and sometimes show evidence of infections with Chlamydia pneumoniae, we examined ASD patients for other infections. Also, the presence of one or more systemic infections may predispose ASD patients to other infections, so we examined the prevalence of C. pneumoniae (4/48 or 8.3% positive, odds ratio = 5.6, P < 0.01) and human herpes virus-6 (HHV-6, 14/48 or 29.2%, odds ratio = 4.5, P < 0.01) coinfections in ASD patients. We found that Mycoplasma-positive and -negative ASD patients had similar percentages of C. pneumoniae and HHV-6 infections, suggesting that such infections occur independently in ASD patients. Control subjects also had low rates of C. pneumoniae (1/48 or 2.1%) and HHV-6 (4/48 or 8.3%) infections, and there were no coinfections in control subjects. The results indicate that a large subset of ASD patients shows evidence of bacterial and/or viral infections (odds ratio = 16.5, P < 0.001). Thesignificance of these infections in ASD is discussed in terms of appropriate treatment. © 2007 Wiley-Liss, Inc.PMID: 17265454 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 I am VERY passionate about getting the word out about recovering children from autism, about DAN! and biomedical treatments. I have made and handed out a small business sized cards with my favourite websites for parents of children with autism.I have placed them everywhere. (At playgroups, therapy, hospitals, clinics, libraries, restraunts, school,,,,I mean everywhere.) I have even stuck them on all windshields of cars at Wal-Mart. On the front is says, Children with Autism Can be Cured..... big letters.....on the back was a list of my favourite websites, including Stans (of course). I also went to the bingo hall and did the same thing there after my mom had told me that she had mentioned that her grandsons had autism while at bingo one day. She said that there were three other ladies at the table that either had a grandchild with autism or knew a child with autism. Grandparents are always looking for ways to help their grandchildren and they love to talk. I also put the cards on the shelving at the Wal-Mart and the Toys R Us, in the the train aisle, Lego aisle, tractor aisle and in the dinosaur aisle. I have even slipped a few into boxes of toys that are not shrink wrapped and boxes of diapers. After reading McCarthy's book, I have thought about leaving them near escalators. We have a local support group but it is not well attended so there isn't much contact that way so this is the best I can do for now to get the word out. I am also putting the information attached to most of my emails to family and friends. If everyone did a little bit of this the word would get out. I think most people know someone with a child with autism. PS I hope no one thinks I am crazy for doing this. I was just so shocked that not one doctor gave me any information about the biomedical and REAL treatments for autism that I felt passionate about getting the word out. The word has saved my children. Reaching New Families >I was thinking of ways for Defeat Autism Now! et al., to reach new >families. > > Speech, OT centers and the such, parent groups, etc. > > Where else do we families with a child with autism hang out in numbers? > > Please email me at autismbook1@... > > Thanks. > > Stan > > Oh and for whoever said viruses (and other infections) are not associated > with certain > cases of autism has not reviewed the medical literature well. > > This is one of the more recent publications... > > J Neurosci Res. 2007 Apr;85(5):1143-8. Links > Evidence for Mycoplasma ssp., Chlamydia pneunomiae, and human herpes > virus-6 > coinfections in the blood of patients with autistic spectrum disorders. > > Nicolson GL, Gan R, Nicolson NL, Haier J. > > The Institute for Molecular Medicine, Huntington Beach, California 92647, > USA. > gnicolson@... > > We examined the blood of 48 patients from central and southern California > diagnosed with > autistic spectrum disorders (ASD) by using forensic polymerase chain > reaction and found > that a large subset (28/48 or 58.3%) of patients showed evidence of > Mycoplasma spp. > infections compared with two of 45 (4.7%) age-matched control subjects > (odds ratio = > 13.8, P < 0.001). Because ASD patients have a high prevalence of one or > more Mycoplasma > spp. and sometimes show evidence of infections with Chlamydia pneumoniae, > we > examined ASD patients for other infections. Also, the presence of one or > more systemic > infections may predispose ASD patients to other infections, so we examined > the > prevalence of C. pneumoniae (4/48 or 8.3% positive, odds ratio = 5.6, P < > 0.01) and > human herpes virus-6 (HHV-6, 14/48 or 29.2%, odds ratio = 4.5, P < 0.01) > coinfections > in ASD patients. We found that Mycoplasma-positive and -negative ASD > patients had > similar percentages of C. pneumoniae and HHV-6 infections, suggesting that > such > infections occur independently in ASD patients. Control subjects also had > low rates of C. > pneumoniae (1/48 or 2.1%) and HHV-6 (4/48 or 8.3%) infections, and there > were no > coinfections in control subjects. The results indicate that a large subset > of ASD patients > shows evidence of bacterial and/or viral infections (odds ratio = 16.5, P > < 0.001). The > significance of these infections in ASD is discussed in terms of > appropriate treatment. © > 2007 Wiley-Liss, Inc. > > PMID: 17265454 > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 That is great, and no, not crazy have you had anyone contact you through those cards? Natasa > > I am VERY passionate about getting the word out about recovering children > from autism, about DAN! and biomedical treatments. > > I have made and handed out a small business sized cards with my favourite > websites for parents of children with autism.I have placed them everywhere. > (At playgroups, therapy, hospitals, clinics, libraries, restraunts, > school,,,,I mean everywhere.) > > I have even stuck them on all windshields of cars at Wal-Mart. On the front > is says, Children with Autism Can be Cured..... big letters.....on the back > was a list of my favourite websites, including Stans (of course). I also > went to the bingo hall and did the same thing there after my mom had told me > that she had mentioned that her grandsons had autism while at bingo one day. > She said that there were three other ladies at the table that either had a > grandchild with autism or knew a child with autism. Grandparents are always > looking for ways to help their grandchildren and they love to talk. > > I also put the cards on the shelving at the Wal-Mart and the Toys R Us, in > the the train aisle, Lego aisle, tractor aisle and in the dinosaur > aisle. I have even slipped a few into boxes of toys that are not shrink > wrapped and boxes of diapers. > > After reading McCarthy's book, I have thought about leaving them near > escalators. > > We have a local support group but it is not well attended so there isn't > much contact that way so this is the best I can do for now to get the word > out. I am also putting the information attached to most of my emails to > family and friends. > > If everyone did a little bit of this the word would get out. I think most > people know someone with a child with autism. > > > > PS I hope no one thinks I am crazy for doing this. I was just so shocked > that not one doctor gave me any information about the biomedical and REAL > treatments for autism that I felt passionate about getting the word out. The > word has saved my children. > > > > > > > > > > Reaching New Families > > > >I was thinking of ways for Defeat Autism Now! et al., to reach new > >families. > > > > Speech, OT centers and the such, parent groups, etc. > > > > Where else do we families with a child with autism hang out in numbers? > > > > Please email me at autismbook1@... > > > > Thanks. > > > > Stan > > > > Oh and for whoever said viruses (and other infections) are not associated > > with certain > > cases of autism has not reviewed the medical literature well. > > > > This is one of the more recent publications... > > > > J Neurosci Res. 2007 Apr;85(5):1143-8. Links > > Evidence for Mycoplasma ssp., Chlamydia pneunomiae, and human herpes > > virus-6 > > coinfections in the blood of patients with autistic spectrum disorders. > > > > Nicolson GL, Gan R, Nicolson NL, Haier J. > > > > The Institute for Molecular Medicine, Huntington Beach, California 92647, > > USA. > > gnicolson@... > > > > We examined the blood of 48 patients from central and southern California > > diagnosed with > > autistic spectrum disorders (ASD) by using forensic polymerase chain > > reaction and found > > that a large subset (28/48 or 58.3%) of patients showed evidence of > > Mycoplasma spp. > > infections compared with two of 45 (4.7%) age-matched control subjects > > (odds ratio = > > 13.8, P < 0.001). Because ASD patients have a high prevalence of one or > > more Mycoplasma > > spp. and sometimes show evidence of infections with Chlamydia pneumoniae, > > we > > examined ASD patients for other infections. Also, the presence of one or > > more systemic > > infections may predispose ASD patients to other infections, so we examined > > the > > prevalence of C. pneumoniae (4/48 or 8.3% positive, odds ratio = 5.6, P < > > 0.01) and > > human herpes virus-6 (HHV-6, 14/48 or 29.2%, odds ratio = 4.5, P < 0.01) > > coinfections > > in ASD patients. We found that Mycoplasma-positive and -negative ASD > > patients had > > similar percentages of C. pneumoniae and HHV-6 infections, suggesting that > > such > > infections occur independently in ASD patients. Control subjects also had > > low rates of C. > > pneumoniae (1/48 or 2.1%) and HHV-6 (4/48 or 8.3%) infections, and there > > were no > > coinfections in control subjects. The results indicate that a large subset > > of ASD patients > > shows evidence of bacterial and/or viral infections (odds ratio = 16.5, P > > < 0.001). The > > significance of these infections in ASD is discussed in terms of > > appropriate treatment. © > > 2007 Wiley-Liss, Inc. > > > > PMID: 17265454 > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Stan, Nora, Cheryl, ...Somewhere that families with a child with autism DON't hang out, but refer to: would be ¡ WikiPedia Autism ! soon to be joined by Google knol...?The present entry in Wikipedia is quaint, but the best answer is more likely to be to educate them than ignore them. Education could be in the form of suggesting links or references for their articles. Inspiration could be in the form of offering modern alternative versions to their key articles as well as to Google knol...I was thinking of ways for Defeat Autism Now! et al., to reach new families. Speech, OT centers and the such, parent groups, etc. Where else do we families with a child with autism hang out in numbers? Please email me at autismbook1@... Thanks. Stan From Wikipedia:Autism is a brain development disorder that impairs social interaction and communication, and causes restricted and repetitive behavior, all starting before a child is three years old. This set of signs distinguishes autism from milder autism spectrum disorders (ASD) such as Asperger syndrome.Autism is highly heritable, although the genetics of autism are complex and it is generally unclear which genes are responsible.[1] In rare cases, autism is strongly associated with agents that cause birth defects.[2] Other proposed causes, such as childhood vaccines, are controversial and the vaccine hypotheses lack convincing scientific evidence.[3] Most recent reviews estimate a prevalence of one to two cases per 1,000 people for autism, and about six per 1,000 for ASD, with ASD averaging a 4.3:1 male-to-female ratio. The number of people known to have autism has increased dramatically since the 1980s, at least partly due to changes in diagnostic practice; the question of whether actual prevalence has increased is unresolved.[4]Autism affects many parts of the brain; how this occurs is poorly understood. Parents usually notice signs in the first two years of their child's life. Early intervention may help children gain self-care and social skills, although few of these interventions are supported by scientific studies. There is no cure.[5] With severe autism, independent living is unlikely; with milder autism, there are some success stories for adults,[6] and an autistic culture has developed, with some seeking a cure and others believing that autism is a condition rather than a disorder.[7] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 What a great idea! It is a true grass-roots effort to reach everyone! Also, great thinking to put down some appropriate websites. We all know that when you Google you can get some crazy stuff. I actually teared up while reading it as I thought about what hope it can bring to other parents. Congratulations to you for being such an advocate for children!! Good luck to you and your child!! > > I am VERY passionate about getting the word out about recovering children > from autism, about DAN! and biomedical treatments. > > I have made and handed out a small business sized cards with my favourite > websites for parents of children with autism.I have placed them everywhere. > (At playgroups, therapy, hospitals, clinics, libraries, restraunts, > school,,,,I mean everywhere.) > > I have even stuck them on all windshields of cars at Wal-Mart. On the front > is says, Children with Autism Can be Cured..... big letters.....on the back > was a list of my favourite websites, including Stans (of course). I also > went to the bingo hall and did the same thing there after my mom had told me > that she had mentioned that her grandsons had autism while at bingo one day. > She said that there were three other ladies at the table that either had a > grandchild with autism or knew a child with autism. Grandparents are always > looking for ways to help their grandchildren and they love to talk. > > I also put the cards on the shelving at the Wal-Mart and the Toys R Us, in > the the train aisle, Lego aisle, tractor aisle and in the dinosaur > aisle. I have even slipped a few into boxes of toys that are not shrink > wrapped and boxes of diapers. > > After reading McCarthy's book, I have thought about leaving them near > escalators. > > We have a local support group but it is not well attended so there isn't > much contact that way so this is the best I can do for now to get the word > out. I am also putting the information attached to most of my emails to > family and friends. > > If everyone did a little bit of this the word would get out. I think most > people know someone with a child with autism. > > > > PS I hope no one thinks I am crazy for doing this. I was just so shocked > that not one doctor gave me any information about the biomedical and REAL > treatments for autism that I felt passionate about getting the word out. The > word has saved my children. > > > > > > > > > > Reaching New Families > > > >I was thinking of ways for Defeat Autism Now! et al., to reach new > >families. > > > > Speech, OT centers and the such, parent groups, etc. > > > > Where else do we families with a child with autism hang out in numbers? > > > > Please email me at autismbook1@... > > > > Thanks. > > > > Stan > > > > Oh and for whoever said viruses (and other infections) are not associated > > with certain > > cases of autism has not reviewed the medical literature well. > > > > This is one of the more recent publications... > > > > J Neurosci Res. 2007 Apr;85(5):1143-8. Links > > Evidence for Mycoplasma ssp., Chlamydia pneunomiae, and human herpes > > virus-6 > > coinfections in the blood of patients with autistic spectrum disorders. > > > > Nicolson GL, Gan R, Nicolson NL, Haier J. > > > > The Institute for Molecular Medicine, Huntington Beach, California 92647, > > USA. > > gnicolson@... > > > > We examined the blood of 48 patients from central and southern California > > diagnosed with > > autistic spectrum disorders (ASD) by using forensic polymerase chain > > reaction and found > > that a large subset (28/48 or 58.3%) of patients showed evidence of > > Mycoplasma spp. > > infections compared with two of 45 (4.7%) age-matched control subjects > > (odds ratio = > > 13.8, P < 0.001). Because ASD patients have a high prevalence of one or > > more Mycoplasma > > spp. and sometimes show evidence of infections with Chlamydia pneumoniae, > > we > > examined ASD patients for other infections. Also, the presence of one or > > more systemic > > infections may predispose ASD patients to other infections, so we examined > > the > > prevalence of C. pneumoniae (4/48 or 8.3% positive, odds ratio = 5.6, P < > > 0.01) and > > human herpes virus-6 (HHV-6, 14/48 or 29.2%, odds ratio = 4.5, P < 0.01) > > coinfections > > in ASD patients. We found that Mycoplasma-positive and -negative ASD > > patients had > > similar percentages of C. pneumoniae and HHV-6 infections, suggesting that > > such > > infections occur independently in ASD patients. Control subjects also had > > low rates of C. > > pneumoniae (1/48 or 2.1%) and HHV-6 (4/48 or 8.3%) infections, and there > > were no > > coinfections in control subjects. The results indicate that a large subset > > of ASD patients > > shows evidence of bacterial and/or viral infections (odds ratio = 16.5, P > > < 0.001). The > > significance of these infections in ASD is discussed in terms of > > appropriate treatment. © > > 2007 Wiley-Liss, Inc. > > > > PMID: 17265454 > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 one potential (big) problem with wiki entries is that you would get scores of biomed-hostile and plenty-time-on-their-hands neurodiverse people complaining, allerting, erasing, editing, reporting... whatever they do to take useful stuff off the pages... anything that relates to treating autism is very vulnerable there. not meaning to sound negative but for anyone wishing to go down that route - be prepared and chose your words carefully so that they cannot be reported as 'unsubstantiated claims'. I remember reading loads on transfer factor on wiki at one time, then it started to get talked about a lot on autism boards, parents loving it etc, next thing you know most of the entry is gone from wiki, saying ' not enough reliable information' etc... coincience maybe ... natasa > > Stan, Nora, Cheryl, ... > > Somewhere that families with a child with autism DON't hang out, > but refer to: would be ¡ WikiPedia Autism ! soon to be joined by > Google knol...? > > The present entry in Wikipedia is quaint, but the best answer is more > likely to be to educate them than ignore them. Education could be in > the form of suggesting links or references for their articles. > Inspiration could be in the form of offering modern alternative > versions to their key articles as well as to Google knol... > > > > I was thinking of ways for Defeat Autism Now! et al., to reach new > > families. > > > > Speech, OT centers and the such, parent groups, etc. > > > > Where else do we families with a child with autism hang out in > > numbers? > > > > Please email me at autismbook1@... > > > > Thanks. > > > > Stan > > From Wikipedia: > > Autism is a brain development disorder that impairs social > interaction and communication, and causes restricted and repetitive > behavior, all starting before a child is three years old. This set of > signs distinguishes autism from milder autism spectrum disorders > (ASD) such as Asperger syndrome. > Autism is highly heritable, although the genetics of autism are > complex and it is generally unclear which genes are responsible.[1] > In rare cases, autism is strongly associated with agents that cause > birth defects.[2] Other proposed causes, such as childhood vaccines, > are controversial and the vaccine hypotheses lack convincing > scientific evidence.[3] Most recent reviews estimate a prevalence of > one to two cases per 1,000 people for autism, and about six per 1,000 > for ASD, with ASD averaging a 4.3:1 male-to-female ratio. The number > of people known to have autism has increased dramatically since the > 1980s, at least partly due to changes in diagnostic practice; the > question of whether actual prevalence has increased is unresolved.[4] > Autism affects many parts of the brain; how this occurs is poorly > understood. Parents usually notice signs in the first two years of > their child's life. Early intervention may help children gain self- > care and social skills, although few of these interventions are > supported by scientific studies. There is no cure.[5] With severe > autism, independent living is unlikely; with milder autism, there are > some success stories for adults,[6] and an autistic culture has > developed, with some seeking a cure and others believing that autism > is a condition rather than a disorder.[7] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 , I love the idea of business cards with all this info that you can hand to people. I've scrambled for paper and pencil twice this week so people could write down a website I've recommended or my phone number. I think I'm going to do this! I recommended to Stan a few weeks ago during one of his idea gathering polls that DAN! make little info cards that explains the basics of what they do so that it could be handed to our pediatricians, teachers, etc. It would be so much easier than going through the whole " some kids are recovering from autism, and we are taking the biomedical approach..blah blah... " that we have to go through every time we meet someone new who is supposed to be helping us with our kids. To give them enough info so that they understand would take the whole appointment time! I'm definitely going to give your business card idea a try! Thanks! Kari > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 ...........We have a local support group but it is not well attended so there isn't much contact that way so this is the best I can do for now to get the word out. I am also putting the information attached to most of my emails to family and friends...... , LOVE your ideas - FABULOUS! I would like to do this, too. You're crazy ...like a FOX!! I wish we had a local group - I might and not be aware! Stan, YMCAs, churches, any organization or business providing music, dance, gymnastics, crafts, day care, midwives, doulas - I wonder if someplace like Medela (breastpumps) or a natural baby food supplier would be willing to back us on a corporate level?? Not with $$ but with even something on their website?? Thinking out loud... bumper stickers? HEY! " Proud Parent of a Child Recovered from ________! " Could be autism, apraxia, mercury, whatever the case may be.... I'll see you in Malta, NY! Darlene > Reaching New Families > > > >I was thinking of ways for Defeat Autism Now! et al., to reach new > >families. > > > > Speech, OT centers and the such, parent groups, etc. > > > > Where else do we families with a child with autism hang out in numbers? > > > > Please email me at autismbook1@... > > > > Thanks. > > > > Stan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 That reminds me of another place:pharmacies!!!Cheryl..........We have a local support group but it is not well attended sothere isn't much contact that way so this is the best I can do for nowto get the word out. I am also putting the information attached tomost of my emails to family and friends......,LOVE your ideas - FABULOUS! I would like to do this, too. You're crazy ...like a FOX!! I wish we had a local group - I might and not be aware!Stan,YMCAs, churches, any organization or business providing music, dance, gymnastics, crafts, day care, midwives, doulas - I wonder if someplace like Medela (breastpumps) or a natural baby food supplier would be willing to back us on a corporate level?? Not with $$ but with even something on their website?? Thinking out loud... bumper stickers? HEY! "Proud Parent of a Child Recovered from ________!" Could be autism, apraxia, mercury, whatever the case may be....I'll see you in Malta, NY!Darlene> Reaching New Families> > > >I was thinking of ways for Defeat Autism Now! et al., to reach new > >families.> >> > Speech, OT centers and the such, parent groups, etc.> >> > Where else do we families with a child with autism hang out innumbers?> >> > Please email me at autismbook1@...> >> > Thanks.> >> > Stan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 I didnt put my name on the cards. I only put the message on the front and the websites on the back. I thought I may have been bombarded with calls if I did that. (perhaps even some unwanted calls) I would love to help parents directly, but I am still sort of overwhelmed with helping my own set of twins. One is recovered and the other one is SO SO SO much better. He just has some language delays that are obvious and a few mild behaviours that may seem sort of typical for a four year old. But as selfish as it may seem, I am not that available (nor qualified) to help out more than providing information. I spend a lot of time with my twins, their brothers, and reading posts on lists, that I am sort of out of time. There will be a time when helping others is where I will focus most of my energy and that will probably be when I feel comfortable with s progress. For now, getting The Word out, I hope will help. Reaching New Families >> >> >> >I was thinking of ways for Defeat Autism Now! et al., to reach new >> >families. >> > >> > Speech, OT centers and the such, parent groups, etc. >> > >> > Where else do we families with a child with autism hang out in > numbers? >> > >> > Please email me at autismbook1@... >> > >> > Thanks. >> > >> > Stan >> > >> > Oh and for whoever said viruses (and other infections) are not > associated >> > with certain >> > cases of autism has not reviewed the medical literature well. >> > >> > This is one of the more recent publications... >> > >> > J Neurosci Res. 2007 Apr;85(5):1143-8. Links >> > Evidence for Mycoplasma ssp., Chlamydia pneunomiae, and human herpes >> > virus-6 >> > coinfections in the blood of patients with autistic spectrum > disorders. >> > >> > Nicolson GL, Gan R, Nicolson NL, Haier J. >> > >> > The Institute for Molecular Medicine, Huntington Beach, California > 92647, >> > USA. >> > gnicolson@... >> > >> > We examined the blood of 48 patients from central and southern > California >> > diagnosed with >> > autistic spectrum disorders (ASD) by using forensic polymerase chain >> > reaction and found >> > that a large subset (28/48 or 58.3%) of patients showed evidence of >> > Mycoplasma spp. >> > infections compared with two of 45 (4.7%) age-matched control > subjects >> > (odds ratio = >> > 13.8, P < 0.001). Because ASD patients have a high prevalence of one > or >> > more Mycoplasma >> > spp. and sometimes show evidence of infections with Chlamydia > pneumoniae, >> > we >> > examined ASD patients for other infections. Also, the presence of > one or >> > more systemic >> > infections may predispose ASD patients to other infections, so we > examined >> > the >> > prevalence of C. pneumoniae (4/48 or 8.3% positive, odds ratio = > 5.6, P < >> > 0.01) and >> > human herpes virus-6 (HHV-6, 14/48 or 29.2%, odds ratio = 4.5, P < > 0.01) >> > coinfections >> > in ASD patients. We found that Mycoplasma-positive and -negative ASD >> > patients had >> > similar percentages of C. pneumoniae and HHV-6 infections, > suggesting that >> > such >> > infections occur independently in ASD patients. Control subjects > also had >> > low rates of C. >> > pneumoniae (1/48 or 2.1%) and HHV-6 (4/48 or 8.3%) infections, and > there >> > were no >> > coinfections in control subjects. The results indicate that a large > subset >> > of ASD patients >> > shows evidence of bacterial and/or viral infections (odds ratio = > 16.5, P >> > < 0.001). The >> > significance of these infections in ASD is discussed in terms of >> > appropriate treatment. © >> > 2007 Wiley-Liss, Inc. >> > >> > PMID: 17265454 >> > >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 I just started a myspace to reach new people espeically the younger ones to share my sons story to hopefully PREVENT new cases. I have a college phych course that I am going to do to reach the younger ones who haven't YET had kids. lets save the next gereration, and treat the one already here and heal our kids! Recovering from Autism is a marathon NOT a sprint, but FULLY possible! Read more about it on my Blogs athttp://www.myspace.com/christelking Reaching New Families> > > >I was thinking of ways for Defeat Autism Now! et al., to reach new > >families.> >> > Speech, OT centers and the such, parent groups, etc.> >> > Where else do we families with a child with autism hang out in numbers?> >> > Please email me at autismbook1@...> >> > Thanks.> >> > Stan> >> > Oh and for whoever said viruses (and other infections) are not associated > > with certain> > cases of autism has not reviewed the medical literature well.> >> > This is one of the more recent publications...> >> > J Neurosci Res. 2007 Apr;85(5):1143-8. Links> > Evidence for Mycoplasma ssp., Chlamydia pneunomiae, and human herpes > > virus-6> > coinfections in the blood of patients with autistic spectrum disorders.> >> > Nicolson GL, Gan R, Nicolson NL, Haier J.> >> > The Institute for Molecular Medicine, Huntington Beach, California 92647, > > USA.> > gnicolson@...> >> > We examined the blood of 48 patients from central and southern California > > diagnosed with> > autistic spectrum disorders (ASD) by using forensic polymerase chain > > reaction and found> > that a large subset (28/48 or 58.3%) of patients showed evidence of > > Mycoplasma spp.> > infections compared with two of 45 (4.7%) age-matched control subjects > > (odds ratio => > 13.8, P < 0.001). Because ASD patients have a high prevalence of one or > > more Mycoplasma> > spp. and sometimes show evidence of infections with Chlamydia pneumoniae, > > we> > examined ASD patients for other infections. Also, the presence of one or > > more systemic> > infections may predispose ASD patients to other infections, so we examined > > the> > prevalence of C. pneumoniae (4/48 or 8.3% positive, odds ratio = 5.6, P < > > 0.01) and> > human herpes virus-6 (HHV-6, 14/48 or 29.2%, odds ratio = 4.5, P < 0.01) > > coinfections> > in ASD patients. We found that Mycoplasma-positive and -negative ASD > > patients had> > similar percentages of C. pneumoniae and HHV-6 infections, suggesting that > > such> > infections occur independently in ASD patients. Control subjects also had > > low rates of C.> > pneumoniae (1/48 or 2.1%) and HHV-6 (4/48 or 8.3%) infections, and there > > were no> > coinfections in control subjects. The results indicate that a large subset > > of ASD patients> > shows evidence of bacterial and/or viral infections (odds ratio = 16.5, P > > < 0.001). The> > significance of these infections in ASD is discussed in terms of > > appropriate treatment. ©> > 2007 Wiley-Liss, Inc.> >> > PMID: 17265454> >> >> >> >> >> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 *jumping up and down* I have a myspace page, too! www.myspace/cheryllowranceCherylOn Jan 18, 2008, at 4:18 PM, Christel King wrote:I just started a myspace to reach new people espeically the younger ones to share my sons story to hopefully PREVENT new cases. I have a college phych course that I am going to do to reach the younger ones who haven't YET had kids. lets save the next gereration, and treat the one already here and heal our kids! Recovering from Autism is a marathon NOT a sprint, but FULLY possible! Read more about it on my Blogs athttp://www.myspace.com/christelking Reaching New Families> > > >I was thinking of ways for Defeat Autism Now! et al., to reach new > >families.> >> > Speech, OT centers and the such, parent groups, etc.> >> > Where else do we families with a child with autism hang out in numbers?> >> > Please email me at autismbook1@...> >> > Thanks.> >> > Stan> >> > Oh and for whoever said viruses (and other infections) are not associated > > with certain> > cases of autism has not reviewed the medical literature well.> >> > This is one of the more recent publications...> >> > J Neurosci Res. 2007 Apr;85(5):1143-8. Links> > Evidence for Mycoplasma ssp., Chlamydia pneunomiae, and human herpes > > virus-6> > coinfections in the blood of patients with autistic spectrum disorders.> >> > Nicolson GL, Gan R, Nicolson NL, Haier J.> >> > The Institute for Molecular Medicine, Huntington Beach, California 92647, > > USA.> > gnicolson@...> >> > We examined the blood of 48 patients from central and southern California > > diagnosed with> > autistic spectrum disorders (ASD) by using forensic polymerase chain > > reaction and found> > that a large subset (28/48 or 58.3%) of patients showed evidence of > > Mycoplasma spp.> > infections compared with two of 45 (4.7%) age-matched control subjects > > (odds ratio => > 13.8, P < 0.001). Because ASD patients have a high prevalence of one or > > more Mycoplasma> > spp. and sometimes show evidence of infections with Chlamydia pneumoniae, > > we> > examined ASD patients for other infections. Also, the presence of one or > > more systemic> > infections may predispose ASD patients to other infections, so we examined > > the> > prevalence of C. pneumoniae (4/48 or 8.3% positive, odds ratio = 5.6, P < > > 0.01) and> > human herpes virus-6 (HHV-6, 14/48 or 29.2%, odds ratio = 4.5, P < 0.01) > > coinfections> > in ASD patients. We found that Mycoplasma-positive and -negative ASD > > patients had> > similar percentages of C. pneumoniae and HHV-6 infections, suggesting that > > such> > infections occur independently in ASD patients. Control subjects also had > > low rates of C.> > pneumoniae (1/48 or 2.1%) and HHV-6 (4/48 or 8.3%) infections, and there > > were no> > coinfections in control subjects. The results indicate that a large subset > > of ASD patients> > shows evidence of bacterial and/or viral infections (odds ratio = 16.5, P > > < 0.001). The> > significance of these infections in ASD is discussed in terms of > > appropriate treatment. ©> > 2007 Wiley-Liss, Inc.> >> > PMID: 17265454> >> >> >> >> >> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 link not working natasa x > > > > > > I am VERY passionate about getting the word out about recovering > > children > > > from autism, about DAN! and biomedical treatments. > > > > > > I have made and handed out a small business sized cards with my > > favourite > > > websites for parents of children with autism.I have placed them > > everywhere. > > > (At playgroups, therapy, hospitals, clinics, libraries, restraunts, > > > school,,,,I mean everywhere.) > > > > > > I have even stuck them on all windshields of cars at Wal-Mart. On > > the front > > > is says, Children with Autism Can be Cured..... big letters.....on > > the back > > > was a list of my favourite websites, including Stans (of course). > > I also > > > went to the bingo hall and did the same thing there after my mom > > had told me > > > that she had mentioned that her grandsons had autism while at bingo > > one day. > > > She said that there were three other ladies at the table that > > either had a > > > grandchild with autism or knew a child with autism. Grandparents > > are always > > > looking for ways to help their grandchildren and they love to talk. > > > > > > I also put the cards on the shelving at the Wal-Mart and the Toys R > > Us, in > > > the the train aisle, Lego aisle, tractor aisle and in the > > dinosaur > > > aisle. I have even slipped a few into boxes of toys that are not > > shrink > > > wrapped and boxes of diapers. > > > > > > After reading McCarthy's book, I have thought about leaving > > them near > > > escalators. > > > > > > We have a local support group but it is not well attended so there > > isn't > > > much contact that way so this is the best I can do for now to get > > the word > > > out. I am also putting the information attached to most of my > > emails to > > > family and friends. > > > > > > If everyone did a little bit of this the word would get out. I > > think most > > > people know someone with a child with autism. > > > > > > > > > > > > PS I hope no one thinks I am crazy for doing this. I was just so > > shocked > > > that not one doctor gave me any information about the biomedical > > and REAL > > > treatments for autism that I felt passionate about getting the word > > out. The > > > word has saved my children. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Reaching New Families > > > > > > > > > >I was thinking of ways for Defeat Autism Now! et al., to reach new > > > >families. > > > > > > > > Speech, OT centers and the such, parent groups, etc. > > > > > > > > Where else do we families with a child with autism hang out in > > numbers? > > > > > > > > Please email me at autismbook1@ > > > > > > > > Thanks. > > > > > > > > Stan > > > > > > > > Oh and for whoever said viruses (and other infections) are not > > associated > > > > with certain > > > > cases of autism has not reviewed the medical literature well. > > > > > > > > This is one of the more recent publications... > > > > > > > > J Neurosci Res. 2007 Apr;85(5):1143-8. Links > > > > Evidence for Mycoplasma ssp., Chlamydia pneunomiae, and human > > herpes > > > > virus-6 > > > > coinfections in the blood of patients with autistic spectrum > > disorders. > > > > > > > > Nicolson GL, Gan R, Nicolson NL, Haier J. > > > > > > > > The Institute for Molecular Medicine, Huntington Beach, > > California 92647, > > > > USA. > > > > gnicolson@ > > > > > > > > We examined the blood of 48 patients from central and southern > > California > > > > diagnosed with > > > > autistic spectrum disorders (ASD) by using forensic polymerase > > chain > > > > reaction and found > > > > that a large subset (28/48 or 58.3%) of patients showed evidence > > of > > > > Mycoplasma spp. > > > > infections compared with two of 45 (4.7%) age-matched control > > subjects > > > > (odds ratio = > > > > 13.8, P < 0.001). Because ASD patients have a high prevalence of > > one or > > > > more Mycoplasma > > > > spp. and sometimes show evidence of infections with Chlamydia > > pneumoniae, > > > > we > > > > examined ASD patients for other infections. Also, the presence of > > one or > > > > more systemic > > > > infections may predispose ASD patients to other infections, so we > > examined > > > > the > > > > prevalence of C. pneumoniae (4/48 or 8.3% positive, odds ratio = > > 5.6, P < > > > > 0.01) and > > > > human herpes virus-6 (HHV-6, 14/48 or 29.2%, odds ratio = 4.5, P > > < 0.01) > > > > coinfections > > > > in ASD patients. We found that Mycoplasma-positive and -negative > > ASD > > > > patients had > > > > similar percentages of C. pneumoniae and HHV-6 infections, > > suggesting that > > > > such > > > > infections occur independently in ASD patients. Control subjects > > also had > > > > low rates of C. > > > > pneumoniae (1/48 or 2.1%) and HHV-6 (4/48 or 8.3%) infections, > > and there > > > > were no > > > > coinfections in control subjects. The results indicate that a > > large subset > > > > of ASD patients > > > > shows evidence of bacterial and/or viral infections (odds ratio = > > 16.5, P > > > > < 0.001). The > > > > significance of these infections in ASD is discussed in terms of > > > > appropriate treatment. © > > > > 2007 Wiley-Liss, Inc. > > > > > > > > PMID: 17265454 > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 Oops, I forgot a pretty important piece - the .com!www.myspace.com/cheryllowranceOn Jan 19, 2008, at 3:05 AM, natasa778 wrote:link not working :(natasa x> > >> > > I am VERY passionate about getting the word out about recovering> > children> > > from autism, about DAN! and biomedical treatments.> > >> > > I have made and handed out a small business sized cards with my> > favourite> > > websites for parents of children with autism.I have placed them> > everywhere.> > > (At playgroups, therapy, hospitals, clinics, libraries,restraunts,> > > school,,,,I mean everywhere.)> > >> > > I have even stuck them on all windshields of cars at Wal-Mart. On> > the front> > > is says, Children with Autism Can be Cured..... big letters.....on> > the back> > > was a list of my favourite websites, including Stans (of course).> > I also> > > went to the bingo hall and did the same thing there after my mom> > had told me> > > that she had mentioned that her grandsons had autism while atbingo> > one day.> > > She said that there were three other ladies at the table that> > either had a> > > grandchild with autism or knew a child with autism. Grandparents> > are always> > > looking for ways to help their grandchildren and they love totalk.> > >> > > I also put the cards on the shelving at the Wal-Mart and the ToysR> > Us, in> > > the the train aisle, Lego aisle, tractor aisle and in the> > dinosaur> > > aisle. I have even slipped a few into boxes of toys that are not> > shrink> > > wrapped and boxes of diapers.> > >> > > After reading McCarthy's book, I have thought about leaving> > them near> > > escalators.> > >> > > We have a local support group but it is not well attended so there> > isn't> > > much contact that way so this is the best I can do for now to get> > the word> > > out. I am also putting the information attached to most of my> > emails to> > > family and friends.> > >> > > If everyone did a little bit of this the word would get out. I> > think most> > > people know someone with a child with autism.> > >> > > > > >> > > PS I hope no one thinks I am crazy for doing this. I was just so> > shocked> > > that not one doctor gave me any information about the biomedical> > and REAL> > > treatments for autism that I felt passionate about getting theword> > out. The> > > word has saved my children.> > >> > >> > >> > >> > >> > >> > >> > >> > >> > > Reaching New Families> > >> > >> > > >I was thinking of ways for Defeat Autism Now! et al., to reachnew> > > >families.> > > >> > > > Speech, OT centers and the such, parent groups, etc.> > > >> > > > Where else do we families with a child with autism hang out in> > numbers?> > > >> > > > Please email me at autismbook1@> > > >> > > > Thanks.> > > >> > > > Stan> > > >> > > > Oh and for whoever said viruses (and other infections) are not> > associated> > > > with certain> > > > cases of autism has not reviewed the medical literature well.> > > >> > > > This is one of the more recent publications...> > > >> > > > J Neurosci Res. 2007 Apr;85(5):1143-8. Links> > > > Evidence for Mycoplasma ssp., Chlamydia pneunomiae, and human> > herpes> > > > virus-6> > > > coinfections in the blood of patients with autistic spectrum> > disorders.> > > >> > > > Nicolson GL, Gan R, Nicolson NL, Haier J.> > > >> > > > The Institute for Molecular Medicine, Huntington Beach,> > California 92647,> > > > USA.> > > > gnicolson@> > > >> > > > We examined the blood of 48 patients from central and southern> > California> > > > diagnosed with> > > > autistic spectrum disorders (ASD) by using forensic polymerase> > chain> > > > reaction and found> > > > that a large subset (28/48 or 58.3%) of patients showed evidence> > of> > > > Mycoplasma spp.> > > > infections compared with two of 45 (4.7%) age-matched control> > subjects> > > > (odds ratio => > > > 13.8, P < 0.001). Because ASD patients have a high prevalence of> > one or> > > > more Mycoplasma> > > > spp. and sometimes show evidence of infections with Chlamydia> > pneumoniae,> > > > we> > > > examined ASD patients for other infections. Also, the presenceof> > one or> > > > more systemic> > > > infections may predispose ASD patients to other infections, sowe> > examined> > > > the> > > > prevalence of C. pneumoniae (4/48 or 8.3% positive, odds ratio => > 5.6, P <> > > > 0.01) and> > > > human herpes virus-6 (HHV-6, 14/48 or 29.2%, odds ratio = 4.5, P> > < 0.01)> > > > coinfections> > > > in ASD patients. We found that Mycoplasma-positive and -negative> > ASD> > > > patients had> > > > similar percentages of C. pneumoniae and HHV-6 infections,> > suggesting that> > > > such> > > > infections occur independently in ASD patients. Control subjects> > also had> > > > low rates of C.> > > > pneumoniae (1/48 or 2.1%) and HHV-6 (4/48 or 8.3%) infections,> > and there> > > > were no> > > > coinfections in control subjects. The results indicate that a> > large subset> > > > of ASD patients> > > > shows evidence of bacterial and/or viral infections (odds ratio=> > 16.5, P> > > > < 0.001). The> > > > significance of these infections in ASD is discussed in terms of> > > > appropriate treatment. ©> > > > 2007 Wiley-Liss, Inc.> > > >> > > > PMID: 17265454> > > >> > > >> > > >> > > >> > > >> > > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 > > I just started a myspace to reach new people...... Where Christel? If we all add you to our friends word will spread faster! http://www.myspace.com/SantaMom8944 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 below Recovering from Autism is a marathon NOT a sprint, but FULLY possible! Read more about it on my Blogs athttp://www.myspace.com/christelking Re: Reaching New Families >> I just started a myspace to reach new people......Where Christel?If we all add you to our friends word will spread faster!http://www.myspace.com/SantaMom8944 No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.8/1235 - Release Date: 1/21/2008 9:39 AM Quote Link to comment Share on other sites More sharing options...
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