Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 What foods is he eating on SCD and how old is he? viral or yeast flare, first month on SCD - what does all this mean? Hello everyone. I'm apologizing in advance for such a long post, but I'm so confused and don't want to leave anything out in case any of you can help. Thank you. Thank you! My son (28-months w/ Fragile X and PDD-NOS) started with the Specific Carbohydrate Diet almost a month ago. He's doing beautifully with it: improved communication and social skills, and having well formed stools pretty consistently for the first time in about a year (unbelievable joy!). The problem is, I think he's having either a yeast or viral flare right now, but I'm not sure which, and I don't know what to do. We've stopped a lot of our biomedical stuff while starting SCD, and now I'm not sure what to do next. Before starting SCD, he was GFCFSF and following the DAN protocol, which included a long list of vitamins, minerals, probiotics, enzymes, EFAs, MB-12 shots, Valtrex and Fluconazole. Just prior to beginning SCD, things were getting pretty bad: constant diarrhea and lots of signs that he was intolerant to something we were giving him (food, supplements, we couldn't figure it out). In desperation, we started SCD and stopped most of his supplements either because they were not SCD legal or we had a feeling they were causing problems. We continued only the B-12 shots, P-5-P (Vit. B6), liquid zinc, and S. Boulardi. The result was nearly overnight success! Yea! We also tried him back on enzymes a few days after starting, but quickly found out that those were not well tolerated either, so we stopped them. I've restarted the cod liver oil with success, and will soon be trying the probiotic goat's milk yogurt (fingers crossed). . . Things had been fairly stable and progressing nicely for the last three weeks, until he developed a rash on his face. At the same time, he began waking up a lot at night, being really really fussy and clingy during the day, and having more sensory defensiveness. I also noticed the bloated belly was back (had been gone since starting SCD) with gas and belching. I don't think this is just die off, because we made it through that in the first 10 days or so, and were back to happy days and nights again. I've been super strict about the diet - no infractions at all. We've been steady on the same foods for several days, so I really don't think the rash is a food reaction. The rash is the one so many parents have described: lots of little red pin prick spots scattered around in patches. I've seen this rash linger, fading and flaring on different parts of his body for the last 2 years - not usually on his face, mostly on his chest and back. It disappeared completely a few days after starting SCD, but now its back. I've always attributed this rash to a chronic Herpes-6 infection, which I believe my son first contracted when he had the Roseola virus at 12 months, and soon after began having occasional " drop attack " type seizures. He has not had a seizure since starting Valtrex, nor did he have one in the last month while off the Valtrex. Since beginning to read more from this and other groups, I've also wondered if this rash and other symptoms he's having from time to time are from yeast flaring. I'm still pretty confused about differentiating virus, yeast and bacterial flares. So, back to the current rash on his face . . . interestingly, while performing his oral motor therapy, I felt a rough patch inside his mouth that corresponded with the most concentrated area of rash on the outside of his face. This spot was clearly tender for him. I thought it may be some type of sore, but he wouldn't let me get a good look. Then, just as the rash on his face began to fade, a cold sore appeared on his upper lip just under his nose. He's never had a cold sore before. This is the first crystal clear evidence of the HHV6 virus I've seen. What should I take this cold sore to mean? Is this a good sign that his body is kicking out the virus? Or is this a bad sign that the virus is flaring and that we need to restart the Valtrex (and of course anti-yeast therapy). How does this relate to the rash if at all? Is this all a sign of virus, or is this both yeast and virus flaring? I don't think I can give him fluconazole (its sweet, so it probably has SCD-illegal additives), so I'm considering Candex and/or the BrainChild anti-yeast protocol. . . Any advice from those of you who've been through this already is greatly appreciated! Thanks! Kelley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 Sorry I just reread your post and it states his age. Knowing what foods he is eating and how they are prepared would be helpful in answering your questions. viral or yeast flare, first month on SCD - what > does > all this mean? > > > Hello everyone. I'm apologizing in advance for such a long post, but > I'm so confused and don't want to leave anything out in case any of > you can help. Thank you. Thank you! > > My son (28-months w/ Fragile X and PDD-NOS) started with the Specific > Carbohydrate Diet almost a month ago. He's doing beautifully with it: > improved communication and social skills, and having well formed > stools pretty consistently for the first time in about a year > (unbelievable joy!). The problem is, I think he's having either a > yeast or viral flare right now, but I'm not sure which, and I don't > know what to do. We've stopped a lot of our biomedical stuff while > starting SCD, and now I'm not sure what to do next. > > Before starting SCD, he was GFCFSF and following the DAN protocol, > which included a long list of vitamins, minerals, probiotics, enzymes, > EFAs, MB-12 shots, Valtrex and Fluconazole. > > Just prior to beginning SCD, things were getting pretty bad: constant > diarrhea and lots of signs that he was intolerant to something we were > giving him (food, supplements, we couldn't figure it out). > > In desperation, we started SCD and stopped most of his supplements > either because they were not SCD legal or we had a feeling they were > causing problems. We continued only the B-12 shots, P-5-P (Vit. B6), > liquid zinc, and S. Boulardi. The result was nearly overnight success! > Yea! We also tried him back on enzymes a few days after starting, but > quickly found out that those were not well tolerated either, so we > stopped them. I've restarted the cod liver oil with success, and will > soon be trying the probiotic goat's milk yogurt (fingers crossed). . . > > Things had been fairly stable and progressing nicely for the last > three weeks, until he developed a rash on his face. At the same time, > he began waking up a lot at night, being really really fussy and > clingy during the day, and having more sensory defensiveness. I also > noticed the bloated belly was back (had been gone since starting SCD) > with gas and belching. I don't think this is just die off, because we > made it through that in the first 10 days or so, and were back to > happy days and nights again. I've been super strict about the diet - > no infractions at all. We've been steady on the same foods for several > days, so I really don't think the rash is a food reaction. > > The rash is the one so many parents have described: lots of little red > pin prick spots scattered around in patches. I've seen this rash > linger, fading and flaring on different parts of his body for the last > 2 years - not usually on his face, mostly on his chest and back. It > disappeared completely a few days after starting SCD, but now its back. > > I've always attributed this rash to a chronic Herpes-6 infection, > which I believe my son first contracted when he had the Roseola virus > at 12 months, and soon after began having occasional " drop attack " > type seizures. He has not had a seizure since starting Valtrex, nor > did he have one in the last month while off the Valtrex. Since > beginning to read more from this and other groups, I've also wondered > if this rash and other symptoms he's having from time to time are from > yeast flaring. I'm still pretty confused about differentiating virus, > yeast and bacterial flares. > > So, back to the current rash on his face . . . interestingly, while > performing his oral motor therapy, I felt a rough patch inside his > mouth that corresponded with the most concentrated area of rash on the > outside of his face. This spot was clearly tender for him. I thought > it may be some type of sore, but he wouldn't let me get a good look. > Then, just as the rash on his face began to fade, a cold sore appeared > on his upper lip just under his nose. He's never had a cold sore > before. This is the first crystal clear evidence of the HHV6 virus > I've seen. > > What should I take this cold sore to mean? Is this a good sign that > his body is kicking out the virus? Or is this a bad sign that the > virus is flaring and that we need to restart the Valtrex (and of > course anti-yeast therapy). > > How does this relate to the rash if at all? Is this all a sign of > virus, or is this both yeast and virus flaring? > > I don't think I can give him fluconazole (its sweet, so it probably > has SCD-illegal additives), so I'm considering Candex and/or the > BrainChild anti-yeast protocol. . . > > Any advice from those of you who've been through this already is > greatly appreciated! > > Thanks! > Kelley > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 Kelley, My son just tonight got his first ever blister (age 5) on his face also under his nose. We just upped his Valtrex dose a few days ago so I think his is HHV6. I hope you find your answers. - Theresa > > Hello everyone. I'm apologizing in advance for such a long post, but > I'm so confused and don't want to leave anything out in case any of > you can help. Thank you. Thank you! > > My son (28-months w/ Fragile X and PDD-NOS) started with the Specific > Carbohydrate Diet almost a month ago. He's doing beautifully with it: > improved communication and social skills, and having well formed > stools pretty consistently for the first time in about a year > (unbelievable joy!). The problem is, I think he's having either a > yeast or viral flare right now, but I'm not sure which, and I don't > know what to do. We've stopped a lot of our biomedical stuff while > starting SCD, and now I'm not sure what to do next. > > Before starting SCD, he was GFCFSF and following the DAN protocol, > which included a long list of vitamins, minerals, probiotics, enzymes, > EFAs, MB-12 shots, Valtrex and Fluconazole. > > Just prior to beginning SCD, things were getting pretty bad: constant > diarrhea and lots of signs that he was intolerant to something we were > giving him (food, supplements, we couldn't figure it out). > > In desperation, we started SCD and stopped most of his supplements > either because they were not SCD legal or we had a feeling they were > causing problems. We continued only the B-12 shots, P-5-P (Vit. B6), > liquid zinc, and S. Boulardi. The result was nearly overnight success! > Yea! We also tried him back on enzymes a few days after starting, but > quickly found out that those were not well tolerated either, so we > stopped them. I've restarted the cod liver oil with success, and will > soon be trying the probiotic goat's milk yogurt (fingers crossed). . . > > Things had been fairly stable and progressing nicely for the last > three weeks, until he developed a rash on his face. At the same time, > he began waking up a lot at night, being really really fussy and > clingy during the day, and having more sensory defensiveness. I also > noticed the bloated belly was back (had been gone since starting SCD) > with gas and belching. I don't think this is just die off, because we > made it through that in the first 10 days or so, and were back to > happy days and nights again. I've been super strict about the diet – > no infractions at all. We've been steady on the same foods for several > days, so I really don't think the rash is a food reaction. > > The rash is the one so many parents have described: lots of little red > pin prick spots scattered around in patches. I've seen this rash > linger, fading and flaring on different parts of his body for the last > 2 years – not usually on his face, mostly on his chest and back. It > disappeared completely a few days after starting SCD, but now its back. > > I've always attributed this rash to a chronic Herpes-6 infection, > which I believe my son first contracted when he had the Roseola virus > at 12 months, and soon after began having occasional " drop attack " > type seizures. He has not had a seizure since starting Valtrex, nor > did he have one in the last month while off the Valtrex. Since > beginning to read more from this and other groups, I've also wondered > if this rash and other symptoms he's having from time to time are from > yeast flaring. I'm still pretty confused about differentiating virus, > yeast and bacterial flares. > > So, back to the current rash on his face . . . interestingly, while > performing his oral motor therapy, I felt a rough patch inside his > mouth that corresponded with the most concentrated area of rash on the > outside of his face. This spot was clearly tender for him. I thought > it may be some type of sore, but he wouldn't let me get a good look. > Then, just as the rash on his face began to fade, a cold sore appeared > on his upper lip just under his nose. He's never had a cold sore > before. This is the first crystal clear evidence of the HHV6 virus > I've seen. > > What should I take this cold sore to mean? Is this a good sign that > his body is kicking out the virus? Or is this a bad sign that the > virus is flaring and that we need to restart the Valtrex (and of > course anti-yeast therapy). > > How does this relate to the rash if at all? Is this all a sign of > virus, or is this both yeast and virus flaring? > > I don't think I can give him fluconazole (its sweet, so it probably > has SCD-illegal additives), so I'm considering Candex and/or the > BrainChild anti-yeast protocol. . . > > Any advice from those of you who've been through this already is > greatly appreciated! > > Thanks! > Kelley > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 I just wanted to add to this question... Can anyone provide a list of " symptoms " that may identify 1) viral burden 2) yeast infection 3) bacterial infection If possible please provide separate lists. Thanks! > > Sorry I just reread your post and it states his age. > Knowing what foods he is eating and how they are prepared would be helpful > in answering your questions. > > viral or yeast flare, first month on SCD - what > > does > > all this mean? > > > > > > Hello everyone. I'm apologizing in advance for such a long post, but > > I'm so confused and don't want to leave anything out in case any of > > you can help. Thank you. Thank you! > > > > My son (28-months w/ Fragile X and PDD-NOS) started with the Specific > > Carbohydrate Diet almost a month ago. He's doing beautifully with it: > > improved communication and social skills, and having well formed > > stools pretty consistently for the first time in about a year > > (unbelievable joy!). The problem is, I think he's having either a > > yeast or viral flare right now, but I'm not sure which, and I don't > > know what to do. We've stopped a lot of our biomedical stuff while > > starting SCD, and now I'm not sure what to do next. > > > > Before starting SCD, he was GFCFSF and following the DAN protocol, > > which included a long list of vitamins, minerals, probiotics, enzymes, > > EFAs, MB-12 shots, Valtrex and Fluconazole. > > > > Just prior to beginning SCD, things were getting pretty bad: constant > > diarrhea and lots of signs that he was intolerant to something we were > > giving him (food, supplements, we couldn't figure it out). > > > > In desperation, we started SCD and stopped most of his supplements > > either because they were not SCD legal or we had a feeling they were > > causing problems. We continued only the B-12 shots, P-5-P (Vit. B6), > > liquid zinc, and S. Boulardi. The result was nearly overnight success! > > Yea! We also tried him back on enzymes a few days after starting, but > > quickly found out that those were not well tolerated either, so we > > stopped them. I've restarted the cod liver oil with success, and will > > soon be trying the probiotic goat's milk yogurt (fingers crossed). . .. > > > > Things had been fairly stable and progressing nicely for the last > > three weeks, until he developed a rash on his face. At the same time, > > he began waking up a lot at night, being really really fussy and > > clingy during the day, and having more sensory defensiveness. I also > > noticed the bloated belly was back (had been gone since starting SCD) > > with gas and belching. I don't think this is just die off, because we > > made it through that in the first 10 days or so, and were back to > > happy days and nights again. I've been super strict about the diet - > > no infractions at all. We've been steady on the same foods for several > > days, so I really don't think the rash is a food reaction. > > > > The rash is the one so many parents have described: lots of little red > > pin prick spots scattered around in patches. I've seen this rash > > linger, fading and flaring on different parts of his body for the last > > 2 years - not usually on his face, mostly on his chest and back. It > > disappeared completely a few days after starting SCD, but now its back. > > > > I've always attributed this rash to a chronic Herpes-6 infection, > > which I believe my son first contracted when he had the Roseola virus > > at 12 months, and soon after began having occasional " drop attack " > > type seizures. He has not had a seizure since starting Valtrex, nor > > did he have one in the last month while off the Valtrex. Since > > beginning to read more from this and other groups, I've also wondered > > if this rash and other symptoms he's having from time to time are from > > yeast flaring. I'm still pretty confused about differentiating virus, > > yeast and bacterial flares. > > > > So, back to the current rash on his face . . . interestingly, while > > performing his oral motor therapy, I felt a rough patch inside his > > mouth that corresponded with the most concentrated area of rash on the > > outside of his face. This spot was clearly tender for him. I thought > > it may be some type of sore, but he wouldn't let me get a good look. > > Then, just as the rash on his face began to fade, a cold sore appeared > > on his upper lip just under his nose. He's never had a cold sore > > before. This is the first crystal clear evidence of the HHV6 virus > > I've seen. > > > > What should I take this cold sore to mean? Is this a good sign that > > his body is kicking out the virus? Or is this a bad sign that the > > virus is flaring and that we need to restart the Valtrex (and of > > course anti-yeast therapy). > > > > How does this relate to the rash if at all? Is this all a sign of > > virus, or is this both yeast and virus flaring? > > > > I don't think I can give him fluconazole (its sweet, so it probably > > has SCD-illegal additives), so I'm considering Candex and/or the > > BrainChild anti-yeast protocol. . . > > > > Any advice from those of you who've been through this already is > > greatly appreciated! > > > > Thanks! > > Kelley > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Hi , He's just beginning to progress to stage 2. We're going very slow. He's eating chicken, carrots, zucchini, bananas, applesauce, avocado and butternut squash and drinking diluted pear juice. Any ideas? Thanks! And thanks to others who've responded with suggestions. Kelley > > Sorry I just reread your post and it states his age. > Knowing what foods he is eating and how they are prepared would be helpful > in answering your questions. > > viral or yeast flare, first month on SCD - what > > does > > all this mean? > > > > > > Hello everyone. I'm apologizing in advance for such a long post, but > > I'm so confused and don't want to leave anything out in case any of > > you can help. Thank you. Thank you! > > > > My son (28-months w/ Fragile X and PDD-NOS) started with the Specific > > Carbohydrate Diet almost a month ago. He's doing beautifully with it: > > improved communication and social skills, and having well formed > > stools pretty consistently for the first time in about a year > > (unbelievable joy!). The problem is, I think he's having either a > > yeast or viral flare right now, but I'm not sure which, and I don't > > know what to do. We've stopped a lot of our biomedical stuff while > > starting SCD, and now I'm not sure what to do next. > > > > Before starting SCD, he was GFCFSF and following the DAN protocol, > > which included a long list of vitamins, minerals, probiotics, enzymes, > > EFAs, MB-12 shots, Valtrex and Fluconazole. > > > > Just prior to beginning SCD, things were getting pretty bad: constant > > diarrhea and lots of signs that he was intolerant to something we were > > giving him (food, supplements, we couldn't figure it out). > > > > In desperation, we started SCD and stopped most of his supplements > > either because they were not SCD legal or we had a feeling they were > > causing problems. We continued only the B-12 shots, P-5-P (Vit. B6), > > liquid zinc, and S. Boulardi. The result was nearly overnight success! > > Yea! We also tried him back on enzymes a few days after starting, but > > quickly found out that those were not well tolerated either, so we > > stopped them. I've restarted the cod liver oil with success, and will > > soon be trying the probiotic goat's milk yogurt (fingers crossed). . . > > > > Things had been fairly stable and progressing nicely for the last > > three weeks, until he developed a rash on his face. At the same time, > > he began waking up a lot at night, being really really fussy and > > clingy during the day, and having more sensory defensiveness. I also > > noticed the bloated belly was back (had been gone since starting SCD) > > with gas and belching. I don't think this is just die off, because we > > made it through that in the first 10 days or so, and were back to > > happy days and nights again. I've been super strict about the diet - > > no infractions at all. We've been steady on the same foods for several > > days, so I really don't think the rash is a food reaction. > > > > The rash is the one so many parents have described: lots of little red > > pin prick spots scattered around in patches. I've seen this rash > > linger, fading and flaring on different parts of his body for the last > > 2 years - not usually on his face, mostly on his chest and back. It > > disappeared completely a few days after starting SCD, but now its back. > > > > I've always attributed this rash to a chronic Herpes-6 infection, > > which I believe my son first contracted when he had the Roseola virus > > at 12 months, and soon after began having occasional " drop attack " > > type seizures. He has not had a seizure since starting Valtrex, nor > > did he have one in the last month while off the Valtrex. Since > > beginning to read more from this and other groups, I've also wondered > > if this rash and other symptoms he's having from time to time are from > > yeast flaring. I'm still pretty confused about differentiating virus, > > yeast and bacterial flares. > > > > So, back to the current rash on his face . . . interestingly, while > > performing his oral motor therapy, I felt a rough patch inside his > > mouth that corresponded with the most concentrated area of rash on the > > outside of his face. This spot was clearly tender for him. I thought > > it may be some type of sore, but he wouldn't let me get a good look. > > Then, just as the rash on his face began to fade, a cold sore appeared > > on his upper lip just under his nose. He's never had a cold sore > > before. This is the first crystal clear evidence of the HHV6 virus > > I've seen. > > > > What should I take this cold sore to mean? Is this a good sign that > > his body is kicking out the virus? Or is this a bad sign that the > > virus is flaring and that we need to restart the Valtrex (and of > > course anti-yeast therapy). > > > > How does this relate to the rash if at all? Is this all a sign of > > virus, or is this both yeast and virus flaring? > > > > I don't think I can give him fluconazole (its sweet, so it probably > > has SCD-illegal additives), so I'm considering Candex and/or the > > BrainChild anti-yeast protocol. . . > > > > Any advice from those of you who've been through this already is > > greatly appreciated! > > > > Thanks! > > Kelley > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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