Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 Per a specialist at UCLA Med Center today... " Gee, I don't know...he doesn't look that bad to me...autism is it? Really? " Not a very fruitful appointment, but on the other hand, Matt really DOESN'T look that bad these days, though we are still far from out of the woods. Compared to four months ago or even four weeks ago...I am so damn grateful to all of you on this list. Where would I be without this list and those who take the time to answer posts... Matt 8/24/05, ASD diagnosis about six months ago, has gone from staring off into space, drooling on himself, and having crazy twitches, tics, and jerky movements and eating only carbs and starches or things with sugar on GFCF..to looking like an almost normal little boy. He begs for fruit, raw veggies, and chicken these days. He has moved form the lower 10 percentile to a healthier 50 percentile...27 lbs and 88 inches as of today. He has started to SAY: all done, no, more, go, baby for people, joo for drinks, apple for fruit,yeah-for yes, hewo - while playing with a telephone,and chicken, several animal names and sounds. He jargons. He says bye now....AND TODAY HE WAVED. He approaches children sometimes at the playground and likes to be near them. His stims are MUCH MUCH LESS. He no longer opens and closes doors and drawers hypnotically. He does not head bang, scream ALL the time...he kisses, answers to his name, follows very simple one or two word commands, tolerates being touched again, makes eye contact again...and has met all his Floortime one year goals in about three months. Most nights he sleeps through, and when he does not - thanks to this list - we have a clue WHY and strategies for jelping him. We met a family today whose child is almost 5. Their boy remains non verbal, has behaviors like Matt's when he has gut pain, yeast or bacterial issues, and his case history reads like a classic VIRAL kid's all the way. He will probably be heading to Dr. Goldberg soon, and the beginning to the end of much of his suffering, poor baby. They did not change his diet or attempt biomed bc of their ped's emphatic advice against it - they threw themselves into the proven therapies intead...they will be signing on to this site soon, as will five or six other families who have witnessed Matt's turn around. Thank all of you so much for Matt's progress so far and for your prompt generous responses to all the posts we have made. We would be that family we met today if not for this support. THANKS STAN for the calls and the courage to press on with the RXs and an anti infectious disease strategy. Love, The Earlys Quote Link to comment Share on other sites More sharing options...
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