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Re: Digest Number 725

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Hi,

>My dr recommended yesterday bone density measuring to me in spite I

>am too young for this dg. (his words).

I was just 40 when I got a scan that showed low bone density. Started with a

slight build, and a family history of osteoporosis; then on top no exercise

to build bone density..

But even so, the insurance co didn't want to pay. Eventually did (they were

in their " be nice and maybe he won't sue us for everything else " phase at

the time I think - anyway stopped being 'nice' [strictly a relative term]

after that)

------------

re: O2 sources

>(I don't know what she looked under in the yellow pages, but may have

>been " industrial " O2) and found that you can buy " aviator's O2 " without

>a script and they told her its the exact same thing as medical O2, and

>LOTS cheaper to boot. She's renting a huge tank (said it was about 5ft

>tall,

>she had to have her dad come over to help get it in her house). I think

>that huge tank rents for about $10 or $20/month (my little medical O2

>tank rents for $75/month) and refills are about $35 (refills on my little

>tank are $14

Welding supply cos are usually a good source, and cheapest if they have the

good grade.

One thing about renting tanks = some companies have a peculiar policy where

they charge $X per week the tank, BUT if you sell it to somebody else (wife

or hubby for instance), that person can get the whole amount back when

turning them in (since they haven't run a week yet).

Also - IMPORTANT - if you get large tanks, get some kind of safety tie-down

or tip-proof base. If one of those tanks tips over and knocks the valve off,

it becomes an unguided missile that will go through walls (plural) before

stopping - also gives a small explosion effect (blows windows etc) from the

pressure surge.

One kind is a webbing clamp that you attach to a wall - needs to be mounted

securely to a wall, & not a piece of furniture. Another is a special base

that the tank can set in, which is wide and heavy enough to prevent tipping.

Both should be available from whoever supplies the gas.

Jerry

______________________________________________________

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  • 2 weeks later...
Guest guest

In a message dated 3/14/00 3:09:10 AM Central Standard Time,

rheumaticonelist writes:

> I was lonely for you all over the weekend and it was very quiet on the

> list. I wrote in lots of little letters, and I noticed that a record

> number of people unsubscribed.

> Perhaps there is a message in there for me :-)

> Gloria

No message at all Gloria...as for myself, I've been occupied with other stuff

lately.....just hang in there..this list seems to ebb and flow but there is a

core group of people that are always there and ready to help.

Steve

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I loved your idea of sharing recipes, . I am encouraging my 16 year

old son to follow the diet too, with a little bread included at supper time,

and am finding it hard to keep him wanting to stay on the program.

I will be finished the Zithromycin today for the ear, throat and gland

infection and I feel the best that I have felt in years. I'm so afraid this

will end within a few days when the Zithromycin gradually disappears from my

system. I still have some pain in my individual joints. I don't mean that. I

am talking of just 'feeling well'. You all probably know what I'm talking

about. I haven't felt well for so long that I had about given up the hope

that I would ever feel this good again.

So what is going on? Could there have been an underlying illness all along?

I don't think it would be cured so easily in just one week of medicine.

Could this antibiotic be reacting with the doxy? Also last week I didn't

have my usual metholtrexate shot. Could this be a factor too?

Sus

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Hi Sus,

Dr. Franco prescribed Zithromax for me, in addition to the Minocin. In some

cases, he will use Zithromax tablets instead of the Clindamycin IVs, which

are recommended for this therapy. I take 250mg of Zithromax, twice a day on

Tuesdays and Saturdays. I take the Minocin, 100mg twice a day on Mondays,

Wednesdays, and Fridays. This routine has worked very well for me for the

past two years.

take care,

Connie

> From: " Sus " <msmartin2@...>

>

>

> I will be finished the Zithromycin today for the ear, throat and gland

> infection and I feel the best that I have felt in years.

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I second that Steve! Hang around everybody! I just heard from my absent pal in

new england and she's just been busy thank goodness. I really kinda have gotten

used to you all as friends, so Hi Miss Gloria.. you can ring my email anytime!

T.

N51SK@... wrote:

> From: N51SK@...

>

> In a message dated 3/14/00 3:09:10 AM Central Standard Time,

> rheumaticonelist writes:

>

> > I was lonely for you all over the weekend and it was very quiet on the

> > list. I wrote in lots of little letters, and I noticed that a record

> > number of people unsubscribed.

> > Perhaps there is a message in there for me :-)

> > Gloria

> No message at all Gloria...as for myself, I've been occupied with other stuff

> lately.....just hang in there..this list seems to ebb and flow but there is a

> core group of people that are always there and ready to help.

> Steve

>

> ------------------------------------------------------------------------

> DON'T HATE YOUR RATE!

> Get a NextCard Visa, in 30 seconds! Get rates as low as

> 0.0% Intro or 9.9% Fixed APR and no hidden fees.

> Apply NOW!

> 1/2120/0/_/532797/_/953076061/

> ------------------------------------------------------------------------

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Guest guest

Hi Sus,

Why not continue on the azithromycin if you felt benefit? Sounds like it was

getting rid of something you don't need. Perhaps if you explain how you've felt

to your doctor, he will prescribe it again?

Chris.

>

>I will be finished the Zithromycin today for the ear, throat and gland

>infection and I feel the best that I have felt in years. I'm so afraid this

>will end within a few days when the Zithromycin gradually disappears from my

>system. I still have some pain in my individual joints. I don't mean that.

I

>am talking of just 'feeling well'. You all probably know what I'm talking

>about. I haven't felt well for so long that I had about given up the hope

>that I would ever feel this good again.

>

>So what is going on? Could there have been an underlying illness all along?

>I don't think it would be cured so easily in just one week of medicine.

>Could this antibiotic be reacting with the doxy? Also last week I didn't

>have my usual metholtrexate shot. Could this be a factor too?

>

>Sus

>

>

>------------------------------------------------------------------------

>DON'T HATE YOUR RATE!

>Get a NextCard Visa, in 30 seconds! Get rates as low as

>0.0% Intro or 9.9% Fixed APR and no hidden fees.

>Apply NOW!

>1/2120/0/_/532797/_/953062177/

>------------------------------------------------------------------------

>

>

>

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  • 10 months later...

try using spell check I did (just kidding)

" Ode to the Spell Checker! " - Rated PG

> > >

> > > Eye halve a spelling chequer

> > > It came with my pea sea

> > > It plainly marques four my revue

> > > Miss steaks eye kin knot sea.

> > >

> > > Eye strike a key and type a word

> > > And weight four it two say

> > > Weather eye am wrong oar write

> > > It shows me strait a weigh.

> > >

> > > As soon as a mist ache is maid

> > > It nose bee fore two long

> > > And eye can put the error rite

> > > Its rare lea ever wrong.

> > >

> > > Eye have run this poem threw it

> > > I am shore your pleased two no

> > > Its letter perfect awl the weigh

> > > My chequer tolled me sew.

----- Original Message -----

From: <cat926@...>

<egroups>

Sent: Wednesday, January 24, 2001 8:30 PM

Subject: Re: [] Digest Number 725

> LOL!!! Forgive my blotched spelling.....Its the keyboard sticking

> agin....

> Cat

>

>

>

>

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  • 9 months later...

The Center for Autism and Related Disorders (CARD)is pleased to conduct a

day-long conference, entitled " Effective Treatments for Autism " , from

9:30am-5:00pm on November 30th, 2001 in San Diego. Topics will include

Autism and Diagnosis by Doreen Granpeesheh, Ph. D., as well as presentations

discussing ABA, DTT, Visual Alternatives, Socialization, and Advanced

Programs.

The cost is $20.00 per person. If you are interested in attending, please

contact

the CARD San Diego office at(858) 278-6603.

The Center for Autism and Related Disorders will post the Conference

schedule for 2002 in a couple of weeks.

Thank you for your questions

Sebastien Bosch, Ph.D., BCBA

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  • 4 months later...
Guest guest

hi my mom scribed to this site e-mailing some of you I am her daughter my e-mail is scooby63064@... I have sad news she has passed away saturday decieding to take her own life thank you all that e- mailed her.

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Guest guest

I'm so terribly sorry to hear about your Mom. We will miss her being with us. Do you mind sharing with us why your Mom decided to go? I understand how it is to be suicidal as I have lived this way for three years.

You have my deepest sympathy.

Sincerely,

-Marie

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  • 2 years later...

Dear ,

God Bless you for all that you have been going through.

" Did you ever try to be face down in a car. "

That is a loaded question and I just had to laugh!:)

You are still in our prayers! Get well keep us posted. But rest those eyes! We

are not going anywhere and will still be here when you get well.

Stop drinking that soda pop! Gas bubble? Did you ever wonder how you got it???

hee! Just kidding you!~Besides doesn't it have much sodium (pressure).

Love

Jeanetta

Well you wrote:

Bernard <leslieiowan@...> wrote:

Jeanetta

I had my eye surgery on Monday Aug 9th. All went well with the surgery. My

eye was not cooperating like it should have. It bleed alot on the white of my

eye. I rode 60miles to have the surgery and 60 miles back home. The eye pressure

was up and I had to have diamox pills to get it down. On the way home we stopped

to eat lunch. My diet coke was horrible and I remembered some talk on how some

pills effected the carbonation of pop. Boy were they right. Every thing went

okay on mon and Tues had to go back to SA for checkup. Another 120miles. Did you

ever try to be face down in a car. Just doesnot work. Wed had dr appt here in

Kerrville. That day everything was bad. Eye pressure way up and some of the gas

bubble had gotten into the front of the eye. He had to drain the eye and give me

more Diamox. Pressure went down. Back to face down for the rest of the time. Had

to see dr for the next three days.

I still have the gas bubble in my eye and can not tell if things are okay yet.

Can not see well out the that eye and what I do see is double. Will have to go

back to work on monday and see the Dr next friday. I want to thank every one for

praying for me. I sure missed not being able to read my e-mail and talk to

everyone. Hopefully when the gas bubble is gone I will be able to see like

before.

Congrulations to everyone who took and passed the test.

Will let everyone know how my eye gets.

Thanks

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  • 1 month later...

Grandiflorum is soft and sweet, and smells best at dawn throughout the

early morning, which is when it is harvested for processing. Sambac smells

best at night, after 11 PM or so, and that is when it is harvested. You can

visit 's site http://whitelotusaromatics.com for more info on

jasmine harvesting.

Anya,

's writings on the subject are wonderful. But I am puzzled about

one thing. I have a jasmine sambac and a jasmine grandiflorum and I've noted

that the latter becomes more fragrant in the evenings, particularly sultry

evenings. Not only more fragrant, but more 'alive', as if the flowers fill out

and come awake at night (like Datura). Also I find the fragrance

'intoxicating', whereas the sambac is less exotic, and more reminescent (to me)

of

daylight, less 'mysterious'. This is exactly the opposite I recall of what

(and others) have observed. Curious. Dorian

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  • 11 months later...

Hi ,

I was hit with the autism bomb at age 18 months, became nonverbal, and was diagnosed with strong autistic tendencies, atypical development, and psychotic at age 2 and a half in 1964.  Refusing a recommendation for institutionalization my parents applied what we now call early intervention until age 4 when I began to learn how to speak again.  In today's terms their IE could be called a home-based early intervention emphasizing music, movement, sensory integration, narration, and imitation. 

It's hard to determine if biomedical intervention would have helped at that time because it did not exist.

The autism spectrum is broad and deep ranging from more severe situations (often referred to as low functioning) where we have people who are nonverbal to what we call high functioning or Aspergers with IQs in the genious plus range. However, we must be careful even with the terms low and high functioning. There are people who are nonverbal but communicate more eloquently then I could ever hope to via other means and others who may have rediculously high IQ scores, are better at verbal communication then most people, but somehow, are so challenged by social interaction that it is clear that won't be able to work in a standard office environment.

In a message dated 9/9/05 13:09:35, EOHarm writes:

Hi ,

Reading your post it struck me that you don't seem to have autism.  Or rather I would never had known it from your post.  My grandson (age 9) regressed (lost acquired verbal and social skills, and behavior became autistic) into autism after his last round of shots (age 23 months) that contained mercury.  He has moderate to severe autism, is nonverbal except for severe verbal stimming and echolaia, and a limited single word vocabulary.  Socially and academically he is low functioning and I fear for his future.  There is no doubt in my mind that he is mercury poisoned as are thousands of others.

C.

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  • 1 year later...

I think for some of us a nervous breakdown is putting it mildly. We have a friend who was tested for a number of diseases including ALS and MS because of his severe symptoms. Over the months he was getting progressively worse until he luckily found a doctor who took him off of lipitor.

You know the rest of the story......he is slowly improving and it will take a long time but hopefully he will recover totally. But this is someone who along with his family were preparing for the worse and needless to said close to really losing it.........as someone who has been down that road I think we can all relate to nervous breakdown when our bodies suddenly turn against us and we can no longer do what we used to.........then add the memory problems and we really fall apart. At one time I thought I was developing alzhemiers(sp) and was afraid to tell my family.

Happy Thanksgiving to all and may we find the energy to keep fighting these statins!!

Carol/Atlanta

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-Do not feel lonesome. I was so messed up on lipitor. I hurt so bad

everywhere and could barely move. I became afraid of people and was

seeing a shrink. I was even affraid to go there. It got so bad I was

even affraid to see my own family. I got to where I did not really

even want a family. I could not read. I could not type. No memory

short or long. I even forgot how to play guitar. After being off for

several mths. I started to remember songs a little at a time. I still

feel very strange and wonder about things alot. I only started to be

able to type again about 4 mts ago. Only thing that helped me so far

is CO-Q10 and Carnitine. I still have so much pain in my arms that if

I strain even a little it feels like my arm were torn off. Nervous

breakdown I am there just not as bad. I consider myself semi-

retarded. I was completly retarded. I took it for 2 years. been off

now for 15 mts. I question if I will ever be ok again. Part of my

nightmare. Oh no one would even consider lipitor as a prob. And now

no MDs will acknowledge my syptoms to be rare but serious. I have to

fake fibromyalgia just to get treatment for the pain and numbness and

twitching. Unfortunetly a nervous breakdown is a Satin drug side

effect. in MO

-- In Lipitor , clowing990@... wrote:

>

> I think for some of us a nervous breakdown is putting it mildly.

We have a

> friend who was tested for a number of diseases including ALS and

MS because

> of his severe symptoms. Over the months he was getting

progressively worse

> until he luckily found a doctor who took him off of lipitor.

>

> You know the rest of the story......he is slowly improving and it

will take

> a long time but hopefully he will recover totally. But this is

someone who

> along with his family were preparing for the worse and needless to

said close

> to really losing it.........as someone who has been down that road

I think we

> can all relate to nervous breakdown when our bodies suddenly turn

against us

> and we can no longer do what we used to.........then add the

memory problems

> and we really fall apart. At one time I thought I was developing

> alzhemiers(sp) and was afraid to tell my family.

>

> Happy Thanksgiving to all and may we find the energy to keep

fighting these

> statins!!

> Carol/Atlanta

>

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On top of the classic muscle pain and memory lapses, I developed what

looked like a classic Parkinson's tremor in my left hand. Also, afraid

to say anything about it--fortunately, that was shortly before I heard

enough about statin side-effects to get off the Mevacor, and the tremor

totally disappeared pretty quickly.

Linden

Re: Digest Number 725

I think for some of us a nervous breakdown is putting it mildly.  We

have a friend who was tested for a number of diseases including ALS and

MS because of his severe symptoms.  Over the months he was getting

progressively worse until he luckily found a doctor who took him off of

lipitor.

 

You know the rest of the story......he is slowly improving and it will

take a long time but hopefully he will recover totally.  But this is

someone who along with his family were preparing for the worse and

needless to said close to really losing it.........as someone who has

been down that road I think we can all relate to nervous breakdown when

our bodies suddenly turn against us and we can no longer do what we

used to.........then add the memory problems and we really fall apart. 

At one time I thought I was developing alzhemiers(sp) and was afraid to

tell my family.

 

Happy Thanksgiving to all and may we find the energy to keep fighting

these statins!!

      Carol/Atlanta

I think for some of us a nervous breakdown is putting it mildly.  We

have a friend who was tested for a number of diseases including ALS and

MS because of his severe symptoms.  Over the months he was getting

progressively worse until he luckily found a doctor who took him off of

lipitor.

 

You know the rest of the story......he is slowly improving and it will

take a long time but hopefully he will recover totally.  But this is

someone who along with his family were preparing for the worse and

needless to said close to really losing it.........as someone who has

been down that road I think we can all relate to nervous breakdown when

our bodies suddenly turn against us and we can no longer do what we

used to.........then add the memory problems and we really fall apart. 

At one time I thought I was developing alzhemiers(sp) and was afraid to

tell my family.

 

Happy Thanksgiving to all and may we find the energy to keep fighting

these statins!!

      Carol/Atlanta

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