Questions

[Guest guest]

A course in miracles for me,is a way of removing the

barriers(stressful untrue thoughts)to experience the love which we

already are.

It says the same as does,works just as the work leads you

to.Level 1 is used to refer to God,love,freedom,heaven-the

undifferiented oneness.Level 2 is the dream,nightmare,the stressful lies.

Yes,you could be better off not knowing this.In my humble view you

already " know " it ..without these particular words,he he he

> All,

>

> I wish (albeit, hopelessly *grin*) folks would provide the basic

> meaning or background of acronyms or discussed " belief systems " .

> That would be helpful.

>

> For example, what are these dang levels? How many are there? Should

> I care? *tee hee*

>

> For example, What is ACIM?

> -- All Charlie's In Mississippi?

> -- Attention! Carol Is Musing.

> -- Academy Center (for) Investigating Mind?

>

> And It's okay if I don't have a clue about what you are sharing.

> Sometimes, I suspect, I am better off that way! *smile*

>

> LOve :: Charlie

[Guest guest]

My son takes reglan, I know that there are some side effects etc,

but Evan seems to handle it pretty well. We are going for our 2nd

swallow study as Evan does aspirate and i think he aspirates during

drinking and also during reflux episodes. Good Luck

Mom 2 Evan 23 months, BPP spastic hemiplegia

-- In polymicrogyria , " masonsmom1222 "

wrote:

>

> Hello,

> My name is Chrissy, I am a young mom (23) of Mason. I don't post

on

> here very often but I read the messages and find them to be very

> helpful. Mason will be 2 on 12/22. He has bilateral frontial

> polymicrogyria in the back and the sides of his brain, we still

have

> to have another mri done to confirm this. He's pretty delayed, he

> can't hold his head up yet but we're still working on it and

hoping

> for the best. But he is the most smiley kid ever! Lately his

reflux

> has really been acting up. Its not too bad normally but when he

has

> a seizure (which occurs about once a day) his reflux gets so bad

that

> he screams for an hour after the seizure and I hate seeing him in

> pain like that. Does anyone else have problems with reflux after

> seizures?? Any sigestions? Mason is on zantac for the reflux but

I'm

> wondering if maybe there's a reflux med that he can take just when

he

> gets bad reflux because other than when he has seizures he doesn't

> seem to have bad reflux. We're taking him to have a swallow study

in

> a month and we're praying that he isn't asperating on his food,

but

> I'm also wondering if he's asperating when his reflux gets bad

> because he sounds really raspy when his reflux gets bad. If

anyone

> has any sigestions for me that would be great!

>

> Chrissy

> Mom to Mason (22 month old with bilateral frontal polymicrogyria)

>

[Guest guest]

Hello ,

I noticed that you wrote that your son is 23 months, same age as

Mason. What kind of things is Evan doing? Where are you guys from,

we're from the philadelphia area. Also, how did you find out that he

is aspirating while he has reflux because I'd like to have Mason

tested for that but he only has bad reflux when he has a seizure and

obviously that is unpredictable when thats going to happen. Does

your son get solid foods? Mason eats foods that are about a stage 3

baby food and he drinks from the bottle and sometimes takes a cup

with thicken liquids. I know he doesn't aspirate on liquids so far

cause we've had 2 tests done but his therapists recommended us

testing his solid foods to be sure because he doesn't chew very well

he mainly chews with his tongue. Sorry about all the questions I

just like to get another persons point of view and advise. Thanks

for your help.

Chrissy (Mom to Mason)

> >

> > Hello,

> > My name is Chrissy, I am a young mom (23) of Mason. I don't post

> on

> > here very often but I read the messages and find them to be very

> > helpful. Mason will be 2 on 12/22. He has bilateral frontial

> > polymicrogyria in the back and the sides of his brain, we still

> have

> > to have another mri done to confirm this. He's pretty delayed,

he

> > can't hold his head up yet but we're still working on it and

> hoping

> > for the best. But he is the most smiley kid ever! Lately his

> reflux

> > has really been acting up. Its not too bad normally but when he

> has

> > a seizure (which occurs about once a day) his reflux gets so bad

> that

> > he screams for an hour after the seizure and I hate seeing him in

> > pain like that. Does anyone else have problems with reflux after

> > seizures?? Any sigestions? Mason is on zantac for the reflux but

> I'm

> > wondering if maybe there's a reflux med that he can take just

when

> he

> > gets bad reflux because other than when he has seizures he

doesn't

> > seem to have bad reflux. We're taking him to have a swallow

study

> in

> > a month and we're praying that he isn't asperating on his food,

> but

> > I'm also wondering if he's asperating when his reflux gets bad

> > because he sounds really raspy when his reflux gets bad. If

> anyone

> > has any sigestions for me that would be great!

> >

> > Chrissy

> > Mom to Mason (22 month old with bilateral frontal polymicrogyria)

> >

>

[Guest guest]

stacy,hi my name is erica and i live in maine with my family jim my fiance and

our two children joey who is almost 7 with bilateral polymicroagyria,he does not

eat by himself,some fingerfoods mushes everything with his tongne still drinks

from a bottle,when he wants to hell drink from his cup.his main source of

nutrician is pediasure. he does roll over both ways.he walks with a walker in

schoolabout fifty % of the time.it is affecting about 75% of his brain,but he

knows his colors ,123's and what he likes and dislikes.He just became a tigercub

in boyscouts he loves it.he talks by using a vangaurd,computer.He is very well

aceppted in his school and community.he is now learning how to ride a special

bike that boyscouts leader made for him.cause he only sits up for about 5

minutes.then i have a daughter nicole who is almost 9.any who has any ? can

email or callI been though pretty much everything 1- erica,he also

goes horse back riding on tuesdays.

masonsmom1222 wrote: Hello ,

I noticed that you wrote that your son is 23 months, same age as

Mason. What kind of things is Evan doing? Where are you guys from,

we're from the philadelphia area. Also, how did you find out that he

is aspirating while he has reflux because I'd like to have Mason

tested for that but he only has bad reflux when he has a seizure and

obviously that is unpredictable when thats going to happen. Does

your son get solid foods? Mason eats foods that are about a stage 3

baby food and he drinks from the bottle and sometimes takes a cup

with thicken liquids. I know he doesn't aspirate on liquids so far

cause we've had 2 tests done but his therapists recommended us

testing his solid foods to be sure because he doesn't chew very well

he mainly chews with his tongue. Sorry about all the questions I

just like to get another persons point of view and advise. Thanks

for your help.

Chrissy (Mom to Mason)

> >

> > Hello,

> > My name is Chrissy, I am a young mom (23) of Mason. I don't post

> on

> > here very often but I read the messages and find them to be very

> > helpful. Mason will be 2 on 12/22. He has bilateral frontial

> > polymicrogyria in the back and the sides of his brain, we still

> have

> > to have another mri done to confirm this. He's pretty delayed,

he

> > can't hold his head up yet but we're still working on it and

> hoping

> > for the best. But he is the most smiley kid ever! Lately his

> reflux

> > has really been acting up. Its not too bad normally but when he

> has

> > a seizure (which occurs about once a day) his reflux gets so bad

> that

> > he screams for an hour after the seizure and I hate seeing him in

> > pain like that. Does anyone else have problems with reflux after

> > seizures?? Any sigestions? Mason is on zantac for the reflux but

> I'm

> > wondering if maybe there's a reflux med that he can take just

when

> he

> > gets bad reflux because other than when he has seizures he

doesn't

> > seem to have bad reflux. We're taking him to have a swallow

study

> in

> > a month and we're praying that he isn't asperating on his food,

> but

> > I'm also wondering if he's asperating when his reflux gets bad

> > because he sounds really raspy when his reflux gets bad. If

> anyone

> > has any sigestions for me that would be great!

> >

> > Chrissy

> > Mom to Mason (22 month old with bilateral frontal polymicrogyria)

> >

>

[Guest guest]

Hi a,

Its so reassuring to hear these things. Your son sounds like he's

doing great! I do have a few more questions to ask you though. Did

you ever have to have a swallow study done? Also how was the

transition from in home therapy to school therapy. Mason will be 3

next year and he will have to go to school then and I'm a little

worried that since I won't be there for his therapies that he be

neglected. You said he's in boyscotts, how did you get him into that

and what age did he start? Also is it for special needs children?

Sorry about all the questions, but sometimes it really helps talking

to someone who truely understands your situation.

Thanks for all your help,

Chrissy

Mom to Mason (Frontal bilateral polymicrogyria, cortical vision

impairment, seizure disorder)

> > >

> > > Hello,

> > > My name is Chrissy, I am a young mom (23) of Mason. I don't

post

> > on

> > > here very often but I read the messages and find them to be

very

> > > helpful. Mason will be 2 on 12/22. He has bilateral frontial

> > > polymicrogyria in the back and the sides of his brain, we still

> > have

> > > to have another mri done to confirm this. He's pretty delayed,

> he

> > > can't hold his head up yet but we're still working on it and

> > hoping

> > > for the best. But he is the most smiley kid ever! Lately his

> > reflux

> > > has really been acting up. Its not too bad normally but when he

> > has

> > > a seizure (which occurs about once a day) his reflux gets so

bad

> > that

> > > he screams for an hour after the seizure and I hate seeing him

in

> > > pain like that. Does anyone else have problems with reflux

after

> > > seizures?? Any sigestions? Mason is on zantac for the reflux

but

> > I'm

> > > wondering if maybe there's a reflux med that he can take just

> when

> > he

> > > gets bad reflux because other than when he has seizures he

> doesn't

> > > seem to have bad reflux. We're taking him to have a swallow

> study

> > in

> > > a month and we're praying that he isn't asperating on his food,

> > but

> > > I'm also wondering if he's asperating when his reflux gets bad

> > > because he sounds really raspy when his reflux gets bad. If

> > anyone

> > > has any sigestions for me that would be great!

> > >

> > > Chrissy

> > > Mom to Mason (22 month old with bilateral frontal

polymicrogyria)

> > >

> >

>

>

>

>

>

>

>

[Guest guest]

Hi a,

Its so reassuring to hear these things. Your son sounds like he's

doing great! I do have a few more questions to ask you though. Did

you ever have to have a swallow study done? Also how was the

transition from in home therapy to school therapy. Mason will be 3

next year and he will have to go to school then and I'm a little

worried that since I won't be there for his therapies that he be

neglected. You said he's in boyscotts, how did you get him into that

and what age did he start? Also is it for special needs children?

Sorry about all the questions, but sometimes it really helps talking

to someone who truely understands your situation.

Thanks for all your help,

Chrissy

Mom to Mason (Frontal bilateral polymicrogyria, cortical vision

impairment, seizure disorder)

> > >

> > > Hello,

> > > My name is Chrissy, I am a young mom (23) of Mason. I don't

post

> > on

> > > here very often but I read the messages and find them to be

very

> > > helpful. Mason will be 2 on 12/22. He has bilateral frontial

> > > polymicrogyria in the back and the sides of his brain, we still

> > have

> > > to have another mri done to confirm this. He's pretty delayed,

> he

> > > can't hold his head up yet but we're still working on it and

> > hoping

> > > for the best. But he is the most smiley kid ever! Lately his

> > reflux

> > > has really been acting up. Its not too bad normally but when he

> > has

> > > a seizure (which occurs about once a day) his reflux gets so

bad

> > that

> > > he screams for an hour after the seizure and I hate seeing him

in

> > > pain like that. Does anyone else have problems with reflux

after

> > > seizures?? Any sigestions? Mason is on zantac for the reflux

but

> > I'm

> > > wondering if maybe there's a reflux med that he can take just

> when

> > he

> > > gets bad reflux because other than when he has seizures he

> doesn't

> > > seem to have bad reflux. We're taking him to have a swallow

> study

> > in

> > > a month and we're praying that he isn't asperating on his food,

> > but

> > > I'm also wondering if he's asperating when his reflux gets bad

> > > because he sounds really raspy when his reflux gets bad. If

> > anyone

> > > has any sigestions for me that would be great!

> > >

> > > Chrissy

> > > Mom to Mason (22 month old with bilateral frontal

polymicrogyria)

> > >

> >

>

>

>

>

>

>

>

[Guest guest]

chrissey hi, when joey turned 3 ,he went off to preschool him self .he showed

intrest inthe community action bus that was taking some other kids to the same

school,he would cry when he saw his friends get on the bus.it took me awhile to

figure it out.but I decided to try putting him on the bus,but rode with him,he

did just the oppisite of what i thought he would,he loved it, so then i followed

the bus for a few days he did great.he decided he was a big boy.about the

therapies make sure you get aschedule of what he does while he is there .how

does he tell if he likes,smiling or looking at it. is very alert so i took

him to walmart and picked up a wiggles backpack. you should be able to pop in at

any time to see what your little man is up to. does he color what does he do or

like to do. when joey discoverd paints they made that a part of his program.

where do you live. can i have # I can call you with out it costing anything for

me. he is doing alot of gaging the past

couple of days, notreally aspirating ,but alot of drooling we was referred to

apedatric surgen for an evauation. he does eat one meal a day the rest of pedia

sure by bottle. a and 6 1/2, does he have alot of siezures.

masonsmom1222 wrote: Hi a,

Its so reassuring to hear these things. Your son sounds like he's

doing great! I do have a few more questions to ask you though. Did

you ever have to have a swallow study done? Also how was the

transition from in home therapy to school therapy. Mason will be 3

next year and he will have to go to school then and I'm a little

worried that since I won't be there for his therapies that he be

neglected. You said he's in boyscotts, how did you get him into that

and what age did he start? Also is it for special needs children?

Sorry about all the questions, but sometimes it really helps talking

to someone who truely understands your situation.

Thanks for all your help,

Chrissy

Mom to Mason (Frontal bilateral polymicrogyria, cortical vision

impairment, seizure disorder)

> > >

> > > Hello,

> > > My name is Chrissy, I am a young mom (23) of Mason. I don't

post

> > on

> > > here very often but I read the messages and find them to be

very

> > > helpful. Mason will be 2 on 12/22. He has bilateral frontial

> > > polymicrogyria in the back and the sides of his brain, we still

> > have

> > > to have another mri done to confirm this. He's pretty delayed,

> he

> > > can't hold his head up yet but we're still working on it and

> > hoping

> > > for the best. But he is the most smiley kid ever! Lately his

> > reflux

> > > has really been acting up. Its not too bad normally but when he

> > has

> > > a seizure (which occurs about once a day) his reflux gets so

bad

> > that

> > > he screams for an hour after the seizure and I hate seeing him

in

> > > pain like that. Does anyone else have problems with reflux

after

> > > seizures?? Any sigestions? Mason is on zantac for the reflux

but

> > I'm

> > > wondering if maybe there's a reflux med that he can take just

> when

> > he

> > > gets bad reflux because other than when he has seizures he

> doesn't

> > > seem to have bad reflux. We're taking him to have a swallow

> study

> > in

> > > a month and we're praying that he isn't asperating on his food,

> > but

> > > I'm also wondering if he's asperating when his reflux gets bad

> > > because he sounds really raspy when his reflux gets bad. If

> > anyone

> > > has any sigestions for me that would be great!

> > >

> > > Chrissy

> > > Mom to Mason (22 month old with bilateral frontal

polymicrogyria)

> > >

> >

>

>

>

>

>

>

>

[Guest guest]

Normally nothing. You might get some energy from it, or it may find

something you didn't know you had ..

Dave

cookpollybd wrote:

> I am wondering what will happen if I run a program for a condition I

> don't have.

>

> Yesterday morning I sent a sort of detailed overview, but have not got

> a no response from moderator, nor has it been posted.

>

> Polly

>

[Guest guest]

dear all,

i am reading a book callled ` the book of questions'

there is no particular theme or subject, but an eclectic collection of

questions.

i will once in a while mail a question and seek your enlightened responses.

here is the first :

if you could wake up tomorrow having gained any one ability or quality, what

would it be ?

tarvinder 76

---------------------------------

Unlimited freedom, unlimited storage. Get it now

[Guest guest]

Tarvinderji, are you preparing for a Miss India Contest?

:-D

Ravin '82

On Mon, May 12, 2008 at 8:02 AM, tarvinder singh uberoi <

drtarvinder@...> wrote:

>

>

> dear all,

>

> i am reading a book callled ` the book of questions'

>

> there is no particular theme or subject, but an eclectic collection of

>

> questions.

>

> i will once in a while mail a question and seek your enlightened

> responses.

>

> here is the first :

>

>

> if you could wake up tomorrow having gained any one ability or quality,

> what would it be ?

>

>

> tarvinder 76

>

>

>

> ---------------------------------

> Unlimited freedom, unlimited storage. Get it now

>

>

[Guest guest]

Well,It would..be...

The ability..to Garner..all the resources,..to eradicate Blindness...by

2010..!!

Well,an Eye Surgeon's dream..at the moment..I must say..

Oops.Tarvinderji!!..Did I have...to say, " Goodmorning Judges " ..and stand..in a

particular way,with hand on my hips...like they all do,before,.answering these

questions??

Bye.

Shyam(84)

Re: questions

Tarvinderji, are you preparing for a Miss India Contest?

:-D

Ravin '82

On Mon, May 12, 2008 at 8:02 AM, tarvinder singh uberoi <

drtarvinder@...> wrote:

>

>

> dear all,

>

> i am reading a book callled ` the book of questions'

>

> there is no particular theme or subject, but an eclectic collection of

>

> questions.

>

> i will once in a while mail a question and seek your enlightened

> responses.

>

> here is the first :

>

>

> if you could wake up tomorrow having gained any one ability or quality,

> what would it be ?

>

>

> tarvinder 76

>

>

>

> ---------------------------------

> Unlimited freedom, unlimited storage. Get it now

>

>

[Guest guest]

Shyam, if we did that the world would no longer need our services... and we

would never fit in anywhere else... heh heh! :-D

Ravin '82

On Mon, May 12, 2008 at 12:41 PM, shyamkamath

wrote:

> Well,It would..be...

> The ability..to Garner..all the resources,..to eradicate Blindness...by

> 2010..!!

> Well,an Eye Surgeon's dream..at the moment..I must say..

> Oops.Tarvinderji!!..Did I have...to say, " Goodmorning Judges " ..and

> stand..in a particular way,with hand on my hips...like they all

> do,before,.answering these questions??

>

> Bye.

> Shyam(84)

>

>

> Re: questions

>

> Tarvinderji, are you preparing for a Miss India Contest?

>

> :-D

>

> Ravin '82

>

> On Mon, May 12, 2008 at 8:02 AM, tarvinder singh uberoi <

> drtarvinder@... <drtarvinder%40yahoo.co.in>> wrote:

>

> >

> >

> > dear all,

> >

> > i am reading a book callled ` the book of questions'

> >

> > there is no particular theme or subject, but an eclectic collection of

> >

> > questions.

> >

> > i will once in a while mail a question and seek your enlightened

> > responses.

> >

> > here is the first :

> >

> >

> > if you could wake up tomorrow having gained any one ability or quality,

> > what would it be ?

> >

> >

> > tarvinder 76

> >

> >

> >

> > ---------------------------------

> > Unlimited freedom, unlimited storage. Get it now

> >

> >

[Guest guest]

I think, Pape, the one ability that I would want to have is the ability to

impress my wife.

That, I think, is nearly impossible.

Kishore Shah 1974

Re: questions

>

>

> dear all,

>

> i am reading a book callled ` the book of questions'

>

> there is no particular theme or subject, but an eclectic collection of

>

> questions.

>

> i will once in a while mail a question and seek your enlightened

> responses.

>

> here is the first :

>

>

> if you could wake up tomorrow having gained any one ability or quality,

> what would it be ?

>

>

> tarvinder 76

[Guest guest]

I remember first reading this one about 15 yrs ago-isnt it this little book that

has every ethical nightmare question to fox you-in fact it was the first

birthday gift along with the Art of Loving book that I gave Atul -we were not

even engaged then-so its got a sentimental spot on our bookshelf and I still

leaf thru it fron time to time and still struggle with the answers...

82

To: mgims@...: drtarvinder@...: Mon, 12 May 2008

03:32:03 +0100Subject: Re: questions

dear all,i am reading a book callled ` the book of questions'there is no

particular theme or subject, but an eclectic collection ofquestions.i will once

in a while mail a question and seek your enlightened responses.here is the first

:if you could wake up tomorrow having gained any one ability or quality, what

would it be ?tarvinder 76---------------------------------Unlimited freedom,

unlimited storage. Get it now[Non-text portions of this message have been

removed]

_________________________________________________________________

All new Live Search at Live.com

http://clk.atdmt.com/UKM/go/msnnkmgl0010000006ukm/direct/01/

[Guest guest]

yes monica,

it indeed is that little book,

i am also re-re- re- reading it

just that this time , i seek enlightment from the many BUDDHAS , in this group

tarvinder

Sinha wrote:

I remember first reading this one about 15 yrs ago-isnt it this little book that

has every ethical nightmare question to fox you-in fact it was the first

birthday gift along with the Art of Loving book that I gave Atul -we were not

even engaged then-so its got a sentimental spot on our bookshelf and I still

leaf thru it fron time to time and still struggle with the answers...

82

To: mgims@...: drtarvinder@...: Mon, 12 May 2008

03:32:03 +0100Subject: Re: questions

dear all,i am reading a book callled ` the book of questions'there is no

particular theme or subject, but an eclectic collection ofquestions.i will once

in a while mail a question and seek your enlightened responses.here is the first

:if you could wake up tomorrow having gained any one ability or quality, what

would it be ?tarvinder 76---------------------------------Unlimited freedom,

unlimited storage. Get it now[Non-text portions of this message have been

removed]

__________________________________________________________

All new Live Search at Live.com

http://clk.atdmt.com/UKM/go/msnnkmgl0010000006ukm/direct/01/

[Guest guest]

Dear Dr. Tarvinder,

????????????????????????? Do you also have a similar kind of attachment with the

book as that of ? Did you get my email?

Gursharan-82

Re: questions

dear all,i am reading a book callled ` the book of questions'there is no

particular theme or subject, but an eclectic collection ofquestions.i will once

in a while mail a question and seek your enlightened responses.here is the first

:if you could wake up tomorrow having gained any one ability or quality, what

would it be ?tarvinder 76---------------------------------Unlimited freedom,

unlimited storage. Get it now[Non-text portions of this message have been

removed]

__________________________________________________________

All new Live Search at Live.com

http://clk.atdmt.com/UKM/go/msnnkmgl0010000006ukm/direct/01/

[Guest guest]

my doctor mentioned something about gargling is that to reduce the risk of a fungal infection? I take asephex for acid reflux and GERD disease, because I was getting asthma symptoms and finally noticed for my urge of dairy had been reduced, and the acid reflux stopped, aparently asthma and GERD go hand in hand. Can you explain to me the narrowing of the esophagus? I have to keep on adjusting my portions of food and liquid.

I see the medicine go into the chamber from my Symbicort sometimes if I am aware I can test it other times I can't.

Questions

I have a few this evening:I was at the GI's office yesterday and we spoke about me having troublegetting food to go down past where the heart is, He mentioned it could be afungal infection from the inhalers and of course a narrowing of theesophagus. Has anyone ever dealt with a Fungal infection in that area due toInhalers?Also, I opened a new container of Symbicort last night and could taste itagain, where as the other container was getting low I couldn't taste itanymore, yet I saw the spray go in the Chamber, what's up with that? Is thatnormal?Thanks, I feel so bummed out today and don't know why.Terry I know God will not give me anything I can't handle. I just wish that Hedidn't trust me so much. ~Mother Teddy Bear's Early Learning ProgramEstablished August of 1992____________ _________ _________ _________No viruses found in this outgoing

messageScanned by iolo AntiVirus 1.5.3.5http://www.iolo. com

[Guest guest]

Have they checked you for a hiatial hernia? My dad has that and his food will get stuck on the way down.

Cheryl Burton ncicheryl@...

Questions

I have a few this evening:I was at the GI's office yesterday and we spoke about me having troublegetting food to go down past where the heart is, He mentioned it could be afungal infection from the inhalers and of course a narrowing of theesophagus. Has anyone ever dealt with a Fungal infection in that area due toInhalers?Also, I opened a new container of Symbicort last night and could taste itagain, where as the other container was getting low I couldn't taste itanymore, yet I saw the spray go in the Chamber, what's up with that? Is thatnormal?Thanks, I feel so bummed out today and don't know why.Terry I know God will not give me anything I can't handle. I just wish that Hedidn't trust me so much. ~Mother Teddy Bear's Early Learning ProgramEstablished August of 1992____________ _________ _________ _________No viruses found in this outgoing

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[Guest guest]

I have never had a fungal infection like that before, sorry no help

there...

With the taste of the symbicort...From my experience, when you first

open an inhaler it seems to taste stronger. As the medicine gets lower

the taste starts to diminish. My guess...the concentration of the

medicine gets lower and therefor the taste starts to go away. I don't

know. I use this as a guide to tell when my rescue inhaler is getting

lower. When I don't get as strong of a taste, I open the inhaler to

check to see how light the canister feels so that I can order a refill

if necessary.

[Guest guest]

Kind of what I thought, thanks Robin

Terry

I know God will not give me anything I can't handle. I just wish that He

didn't trust me so much. ~Mother

Teddy Bear's Early Learning Program

Established August of 1992

Re: Questions

I have never had a fungal infection like that before, sorry no help there...

With the taste of the symbicort...From my experience, when you first open an

inhaler it seems to taste stronger. As the medicine gets lower the taste

starts to diminish. My guess...the concentration of the medicine gets lower

and therefor the taste starts to go away. I don't know. I use this as a

guide to tell when my rescue inhaler is getting lower. When I don't get as

strong of a taste, I open the inhaler to check to see how light the canister

feels so that I can order a refill if necessary.

------------------------------------

[Guest guest]

That is interesting. I haven't heard about having a fungus from an inhaler. What did he prescribe to get rid of it? I have GI issues too.

[Guest guest]

Nothing yet, as I have to have the Endoscope done first to rule it out. I can't do that until my mouth heals up when I have my wisdom tooth taken out on July 10th. So I'll let you guys know when I know

Terry I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teddy Bear's Early Learning ProgramEstablished August of 1992

From: asthma [mailto:asthma ] On Behalf Of Siobhan Kai O SheaSent: Wednesday, June 11, 2008 11:13 AMTo: asthma Subject: Re:Questions

That is interesting. I haven't heard about having a fungus from an inhaler. What did he prescribe to get rid of it? I have GI issues too.

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[Guest guest]

Terry, don't get me wrong, but I am THRILLED to hear of your

situation because I am sitting in the same place.

I introduced myself last week to this group while explaining that the

HFA inhaler had pretty much given me pneumonia/bronchitis/infection.

I did not mention the major GI problems very similar to yours that I

am having concurrently. My MD is refusing to recognize the link. The

entire health issue happened 100% coincidentally for me -- the link

is clear. I had no previous symptoms of any kind and my asthma had

been extremely well controlled for more than a decade. (I am a ten

mile per day hiker and runner!) So I am THRILLED to hear your GI guy

has some sense. The HFA change to my inhalers is also 100%

coincident. I'm certain it is the cause. It is the only change in my

life and the anaphylaxis I finally had in response to using the HFA

inhaler is pretty definitive.

Between the GP and the asthma specialist, I went through 10 days of

Zithromax, 14 days of Avelox, and some kind of injectable

antibiotics, all of which have not made a single dent in this system-

wide infection. Neither MD will bother to culture what is in my lungs

which is pretty much criminal negligence at this time. Both my asthma

specialist and my GP are completely failing to handle this illness.

The GP had an ultrasound of my upper GI tract done and says it is

clear -- " nothing to worry about " . However I am 'full' all the time,

feel serious restrictions near my heart, and my gallbladder hurts big-

time. I'm severely bloated all the time now after 9 weeks of this...

I don't seem to be digesting food properly at all without

supplements. I cough all the time, brown fuzzy crap comes up if I am

lucky. I cannot breathe and am near hospitalization, AND I AM REALLY

******** PISSED OFF.

At this point, I am treating myself. To hell with these guys... I

can't miss any more work and I'm going broke paying for worthless

medical care and medicine. I went and ordered Sporanox myself. I

think it will kill this *fungus* if I can keep the asthma from going

completely insane. It's touch and go right now but in four days on

Sporanox, the dark brown fuzz has lightened in colour considerably.

Since I've had this for 9 weeks now, it will likely take time to get

rid of...

Terry, I would love to know what your GI person finally decides.

I would also appreciate any serious referrals for a GP and a lung

specialist/asthma specialist in the Los Angeles area.

And -- I want Ventolin Rotacaps returned to the market NOW. (Is the

FDA paying any attention?)

-

>

> I have a few this evening:

> I was at the GI's office yesterday and we spoke about me having

trouble

> getting food to go down past where the heart is, He mentioned it

could be a

> fungal infection from the inhalers and of course a narrowing of the

> esophagus. Has anyone ever dealt with a Fungal infection in that

area due to

> Inhalers?

....

[Guest guest]

You can get thrush from steroid inhalers, like advair. My dr told us to rinse

our mouth out after use, He also said thrust can get into your

esopogus(spelling) and stomach if left untreated. I have had it a few

times(because I didn't follow doc instructions). I believe you can get it from

an antibiotic also...it is a yeast infection.

---- Siobhan Kai O Shea wrote:

> That is interesting. I haven't heard about having a fungus from an inhaler.

What did he prescribe to get rid of it? I have GI issues too.

>

[Guest guest]

What would the symptons of Thrush be if it got into your esophagus and stomach? That really scares me.

Cheryl Burton ncicheryl@...

Re: Re:Questions

You can get thrush from steroid inhalers, like advair. My dr told us to rinse our mouth out after use, He also said thrust can get into your esopogus(spelling) and stomach if left untreated. I have had it a few times(because I didn't follow doc instructions) . I believe you can get it from an antibiotic also...it is a yeast infection. ---- Siobhan Kai O Shea <kaikrishnayahoo (DOT) com> wrote: > That is interesting. I haven't heard about having a fungus from an inhaler. What did he prescribe to get rid of it? I have GI issues too. >