Guest guest Posted February 8, 2001 Report Share Posted February 8, 2001 - > Temera > who is feeling so positive at 5 AM!!! Way to go Temera, your doing great!!!! : ) Bev who wishes she could be more positive at 5am, but is doing much better at getting up in the morning and working out before work. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2001 Report Share Posted February 8, 2001 > My new motto of the year was " I am tired of being tired " and this year I am taking care of myself!!! > Great motto, Temera! You've really got the right attitude and determination to feel better, and I have no doubt you will succeed. Ann Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2001 Report Share Posted February 8, 2001 Thanks so much Anne Marie!! How could I not with all the support I get from you guys!!! Temera Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2001 Report Share Posted February 8, 2001 Thanks so much Anne Marie!! How could I not with all the support I get from you guys!!! Temera Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 Have you talked to your pediatrician. He is a bit old to not be eating any solid foods. Did he eat them and then stop. I breastfed all three of mine but weaning wasnot a problem. They were happy to stop because they liked food so much!! It may be a screaming match, which can be painful for you, but if you take away the breast he will not starve. He will eat something. I would talk to your pediatrician and get his/her suggestions. good luck, I am struggling with potty training, my will be 3 tomarrow, son. He is impossible and frankly is not interested in peeing in the pot!! temera Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 OK thanks > I did as you suggested and talked to the Pharmacy manager at > Walgreens, forget Eckerd's as we have strange people that work there > and they can't get anything right. I've used Walgreens for over 7 > years and was surprised with this problem. Hopefully this will clear > it up, we shall see. I am due to refill tomorrow and had doc write > the script for 15mg, 2 twice a day as the last time I had the 30 mg > Rx both Eckerds and Walgreens said they ordered it but when I called > they didn't have it, order did not go through etc. etc. ad > nauseaum..... Cross your fingers. > Jami, > I take hearings in Jax at the Soc. Security office...any where near > you? email me your phone # so the next time I'm that way we can do > lunch. > thanks all.. > Peggy/Fl > > > > Know someone who could profit from our list? Send our direct sign-up URL: /subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneregroups > Manage your subscription with several special email addresses: > chronic_pain-owneregroups - Sends email to the list owners > chronic_pain-subscribeegroups - Subscribe to the list through email > chronic_pain-unsubscribeegroups - Unsubscribe from the list > chronic_pain-normalegroups - Switch your subscription to normal > chronic_pain-digestegroups - Switch your subscription to digest > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 whats with all the conflict already. It scares me. I have never had problems with my prescriptions before. My Doc said she was ready to cause some real hary-carey....... Now I can relax. //they also apologized for the mix-up. The person at Walgreens who continues to treat me like a 1960's acid freak. Oh how I hate all of the accusatory looks ..I was never an acid dropper or a pot smoker....Darnn maybe I should have been. Well now I can move on to relax and use my energy for healing. Thanks for all of the support. Alice wseone56 in Southern CA. Los Angeles County ....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 I am looking for chats on chronic pain, could you help me with this? I have osto. arth. FMS, and burcitis. please RSVP sara200187@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2001 Report Share Posted March 21, 2001 How do i get in this group chat, i have found the page but nowhere to click on chat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2002 Report Share Posted February 4, 2002 Thank you , for the warm compliment, and congrats on the wedding ! : ) Robbie in FL, moderator chronic_pain. AS/ReA 18 + years, and still going... feralelf@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2002 Report Share Posted February 5, 2002 --- , I hope you have great fun at your wedding! will be looking forward to hearing from you upon your return! Darcy In chronic_pain@y..., " peach_1234 " <peach_1234@y...> wrote: > To Darcy, Ray, Robbie, and everyone else...thank you for > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2003 Report Share Posted April 23, 2003 > I know that the exercise Yuck! is good for me. There are lots and lots of things to do for exercise. I hate many and love some. Keep trying things. When you find something you really enjoy you will keep doing it. Your kids seeing you enjoy it will be more motivated themselves. - Dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2003 Report Share Posted April 23, 2003 Exercise is healing for me, not only the actual time spent but the results. The result of looking great is the best revenge, I have been walking miles daily with my 5 year old grandson riding his bike. What a great time of bonding we are having. He is the best company. we have been all over a University Campus, in neighborhoods, shopping centers and he learns about everything we are seeing. Vicki > > I know that the exercise Yuck! is good for me. > > There are lots and lots of things to do for exercise. I hate many > and love some. Keep trying things. When you find something you > really enjoy you will keep doing it. Your kids seeing you enjoy it > will be more motivated themselves. > > - Dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2003 Report Share Posted April 23, 2003 I remember doing that with my kids. Enjoy it, as they grow up, they would rather walk with their friends. Re: Thanks Exercise is healing for me, not only the actual time spent but the results. The result of looking great is the best revenge, I have been walking miles daily with my 5 year old grandson riding his bike. What a great time of bonding we are having. He is the best company. we have been all over a University Campus, in neighborhoods, shopping centers and he learns about everything we are seeing. Vicki > > I know that the exercise Yuck! is good for me. > > There are lots and lots of things to do for exercise. I hate many > and love some. Keep trying things. When you find something you > really enjoy you will keep doing it. Your kids seeing you enjoy it > will be more motivated themselves. > > - Dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2003 Report Share Posted September 27, 2003 In a message dated 9/26/2003 11:43:40 PM Eastern Daylight Time, jjrecla@... writes: > One of the saddist things I feel is those times when Mom truly > does understand what is going on around her, and when others often > do not realize the abilities of disabled person. At times it > really takes me back and I truly wonder, " Is Mom as bad as I think > she is " ? or am I just thinking it is truly worse than it seems. > Dear Joanne: Yes, they keep their mental abilities a good part of the time. They are able to figure out a lot that is not said. Unfortunatelly at other times, the dementia takes over and they have delusions, halucinations, agitation, etc. We tried to keep my dad's environment as he had always known it, maintain his status in the family, but it was very sad. It is very nice to come to this site and share our experiences. My dad is gone for almost six weeks, and I enjoy to be able to share and help, if I can, it gives me peace. God bless you, Josie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2003 Report Share Posted September 27, 2003 In a message dated 9/26/2003 11:43:40 PM Eastern Daylight Time, jjrecla@... writes: > One of the saddist things I feel is those times when Mom truly > does understand what is going on around her, and when others often > do not realize the abilities of disabled person. At times it > really takes me back and I truly wonder, " Is Mom as bad as I think > she is " ? or am I just thinking it is truly worse than it seems. > Dear Joanne: Yes, they keep their mental abilities a good part of the time. They are able to figure out a lot that is not said. Unfortunatelly at other times, the dementia takes over and they have delusions, halucinations, agitation, etc. We tried to keep my dad's environment as he had always known it, maintain his status in the family, but it was very sad. It is very nice to come to this site and share our experiences. My dad is gone for almost six weeks, and I enjoy to be able to share and help, if I can, it gives me peace. God bless you, Josie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2003 Report Share Posted September 27, 2003 Joanne, Your message was very resonant for me. I find myself struggling with the idea of what is Mom able to do, what is good and right for me to do for her and what is she able and, in fact, needing to do for herself. Now as we get more involved in making choices about where she'll live and how to use the resources that she has for her care it becomes more and more complex. And in all that complexity are many amazing life lessons. Thanks for writing. One of the many reasons why it's so wonderful to have this group -- the feeling of knowing you are not going through it alone. > > > I don't say it often, but it is nice to come to this sight > and know that others truly do understand what this disease is all > about. Being into it and dealing with it for 3+ years has given > me new realizations about what is truly important and what I used > to think was important. I am alway glad to visit with anyone about > where we have been with this disease, and it isn't over until it is > over. One of the saddist things I feel is those times when Mom truly > does understand what is going on around her, and when others often > do not realize the abilities of disabled person. At times it > really takes me back and I truly wonder, " Is Mom as bad as I think > she is " ? or am I just thinking it is truly worse than it seems. > Have a nice day---and ask any questions; there are many of us willing > to touch on a subject if we have been there. To each and every > one of you out there, have a nice day, and remember to remember > you know and then. Joanne in Oregon > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 Hi, Virginia, It is so wonderful that you found our group! Your English is fabulous! It is an added bonus that we have Josie. I have no idea what she told you, but I am sure it was nice. Now ya''ll better not be telling secrets to each other about the rest of us! I am so sorry about your husband. You are so brave to have been fighting this battle all by yourself. I hope you will post often and let us know how things are going. I am sending big hugs and strength your way. Piper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 Thank you , this is really becoming a global group. Josie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 I was telling someone about the group and I said that there were members all round the world. Then I corrected myself because everything is in English which makes things a bit difficult for non English speaking people. Well you just made me think again. I don't think it's impolite to welcome people in their own language. I think it's great! Re: Thanks Dear : Thank you, I felt so impolite by writing my message and no translation, but I had to go to an appointment and didn't have time for it. Unfortunatelly I only have the two languages. I better get going on the translation. I read your post to Jan. Here in Miami we are at 84 degrees F., about 27 degrees C, which is perfect for me. Norway must be really, really cold by now! I don't mind the cold as much as the cold humidity, and cannot do without my sunshine!!! One full day of cloudiness makes me all blue! Your photos are magnificent. Good luck with your camera hunting for whales and other great creatures, have great trip, a hug, Josie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 Hi, Virginia, My dad takes a medicine for his rigidity called Sinemet( generic form is Carbidopa/Levodopa). It has worked very well for him. However, each patient responds to medicines very differently. Some people in the group have had good experiences with it, and some have not. Hang in there! Hugs, Piper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 Welcome to the group Virginia. I'm so sorry that you had to go through all that to get a proper diagnosis. I'm hoping that some day in the near future anyone can walk into a doctor's office anywhere in the world and that doctor will know about LBD. Courage Thanks >Hello: > >First, I want to excuse me for my " english " , I hope you can understand me. I'm spanish, I live in the Balear island of Ibiza. My husband was diagnosed of Parkinson 7 years ago, I tried to get information about PD in the Web, as musch that I readed I realized that he had not PD. There's only one neurologist in the island, when I told him that he had not the same reactions with Synemet than normal PD (on-off)... he treated as I had psycological problems pretending to know more than a doctor. > >I took my husband to Barcelona, we visited a neurologist specialised in PD, after one hour with my husband, he said that could be AMS, not sure, the diagnosis sure was only possible post morten. > > Come back to Ibiza doctor with the inform, he said that for him was a PD, that's all. He did not any examination. This kind of doctors think that if you're diagnosed with PD or LBD is the same, because you're going to die. > >After one year he was getting worse, I decided again to go to a private neurologist at Barcelona's Clinic Teknon. It was a shock for me, they did an " apomorphine test " , a neuropsycological test, and after four days he was diagnosed LBD. >I learn from the Web about LBD, I started to understand many things. > >He cannot move now, he sleeps most of the day, falls, so many thinks that when I read your emails I recognised. For the last two years I've not neurologist, I don't want to visit again the Ibiza neurologist (he cannot fly ), I've only a general doctor (I give her information from the Web about LBD) >Now he takes Synemet twice a day (breakfast, lunch), Syntron for the blood (he had two tromboflebitis), Exelon twice, Zypresa at night, antidepression... > >He's 73, I'm 48 and we've a 18 years old daughter, she's studing in Barcelona's university. I've an ecuatorian boy at home, that takes care of him when I'm working, the weekend I'm alone with him. It's hard. > >I want to thank you for all the help that you bring me in your emails, it was a hard way for us to know what we were living. > >Again thanks to all of you. > > >Virginia Maldonado. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2003 Report Share Posted November 1, 2003 Dear Virginia: Your husband's fall reminded me of my dad. He fell a lot and because he was taking blood thinners, also bled a lot. He became very depressed everytime he fell. He thought it was his fault and that he did something wrong, like not pay enough attention, that resulted in his fall. It is part of the disease to become very depressed all the time. My dad cried everytime he became emotional, whether happy or sad. We also had a difficult time with his crying, since he had always been very strong and stoic. My mother helped him a great deal just by being there for him. They had always been very much in love, but he became so attached to her that he sat next to her holding her hand as much as he could. My mom complained that she could not do anything at home. She gave up her painting and just kept him company. She read the newspaper to him, since he could no longer maintain his attention span long enough to read anything. They sat and watched television, but he could not follow the programs. He slept a lot, and that was when my mom was able to do what she needed to do. Even taking a shower was worrisome for her, in case he started moving around and fell. They had some live in help, but the first person was a big problem. Later we had a Colombian lady who was wonderful and very efficient, but my dad did not last long after they hired her. I was thinking about my parents this morning and realized that my mother made my father as happy as he could be just by being with him and treating him with the love and devotion that she did. That is all he could be given, and all that he needed. You have been battling this disease for a long time. You are doing a great job and giving your husband excellent care. I hope you find the help you are seeking. I wish I could be of more help. We are here to do what we can, you have my support and my prayers. Un abrazo, Josie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2003 Report Share Posted November 1, 2003 Dear Virginia: Your husband's fall reminded me of my dad. He fell a lot and because he was taking blood thinners, also bled a lot. He became very depressed everytime he fell. He thought it was his fault and that he did something wrong, like not pay enough attention, that resulted in his fall. It is part of the disease to become very depressed all the time. My dad cried everytime he became emotional, whether happy or sad. We also had a difficult time with his crying, since he had always been very strong and stoic. My mother helped him a great deal just by being there for him. They had always been very much in love, but he became so attached to her that he sat next to her holding her hand as much as he could. My mom complained that she could not do anything at home. She gave up her painting and just kept him company. She read the newspaper to him, since he could no longer maintain his attention span long enough to read anything. They sat and watched television, but he could not follow the programs. He slept a lot, and that was when my mom was able to do what she needed to do. Even taking a shower was worrisome for her, in case he started moving around and fell. They had some live in help, but the first person was a big problem. Later we had a Colombian lady who was wonderful and very efficient, but my dad did not last long after they hired her. I was thinking about my parents this morning and realized that my mother made my father as happy as he could be just by being with him and treating him with the love and devotion that she did. That is all he could be given, and all that he needed. You have been battling this disease for a long time. You are doing a great job and giving your husband excellent care. I hope you find the help you are seeking. I wish I could be of more help. We are here to do what we can, you have my support and my prayers. Un abrazo, Josie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2003 Report Share Posted November 1, 2003 Hi, My husband takes Synemet -twice a day- since 7 years now. Yesterday morning I found him on the floor, blood on the nose, hand... We've been at the hospital, nothing is broken. After he slepts most of the day. I didn't hear nothing, when I found him the blood was dry. He cannot sleep well without Zypresa. He's very depress, sometimes cries, is hard to see. I try to make him know that I'm with him, sometimes I feel that he's gone and just touching his hand I try to get him back. I hope today he will be better. Sincerely, Virginia Maldonado. ----- From: ppark4915@... To: LBDcaregivers Sent: Thursday, October 30, 2003 9:16 PM Subject: Re: Thanks Hi, Virginia, My dad takes a medicine for his rigidity called Sinemet( generic form is Carbidopa/Levodopa). It has worked very well for him. However, each patient responds to medicines very differently. Some people in the group have had good experiences with it, and some have not. Hang in there! Hugs, Piper Quote Link to comment Share on other sites More sharing options...
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