Guest guest Posted August 22, 2007 Report Share Posted August 22, 2007 Very interesting--I'd like to know what the general thoughts are from Dr. Dobyns, etc. I've wondered too, how many kids that we know who are lovely people but seem a little, hmmmm... Off? In some indefinable way? How many of those kids would really be helped by some of the more simple therapies that our kids have? How would a lay person know? Parents tend (in my experience) to not want anything to be wrong, esp if *your* kid is in " bad shape " so maybe it wouldn't even be worth bringing up. But hey, we can wonder, right? ;o) If you ever find out anything about this, I'd love to know about it. I wonder about this kid of stuff too. Everything is so much more connected than we think about, you know? , Mom to 5, 19 mo old Quinn, diffuse PMG, MSQ CP, Epilepsy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2007 Report Share Posted August 24, 2007 Hi Sue Nice idea, however from what I know about Autism (Which admittedly is not much) the overriding characteristic is the inability to make social contact with people and to follow ‘normal’ social protocols and from what I see with our kids the ability to make social contact is one of their great strengths. I have often wondered however, how many people are their out their with some form of pmg whose symptoms are so mild that they have never had an MRI or who have been diagnosed with some form of epilepsy of motor deficiency prior to the advent of MRI scanning… Maybe when MRI’s are more routine many more people will be included! Guy Papa to Thijn CBPS Observation Hello. I have been reading with interest about the many more mild cases of PMG than 's. Maybe doing a little wishful thinking that will someday be able to do some of the things these children are doing, like math and riding a bike. Also, I thought it interesting to note that many of the more mild cases were not diagnosed in infancy or even early childhood. Anyway, while reading of the things these kids can do, I noticed a lot of similarities in behaviors, sleep patterns, and attention spans. All of these characteristics can be plugged into and land somewhere on the autism spectrum. So I began to wonder... What if some or more of the kids diagnosed along the spectrum were actually PMG kids? What if this is more prevalent than we've been told? or that they even know? I know a couple of families dealing with autism and I don't believe either has had an MRI done for their child and I dont really think it is used as a tool in possible autism cases all that often. Since MRI is the only firm way to diagnose PMG, it is possible that at least some of these kids could be PMG kids. With the autism population expanding, and all of the media attention, funding and research that has followed, if PMG turned out to be more prevalent, we would then get more attention, funding and research done on our children's behalf. I wouldn't wish either diagnosis on anyone. However, if we had greater numbers, we would most certainly have more medical professionals looking into causes, treatments, prevention, etc...... Sorry for rambling, just my thoughts.... Sue Mom to Meghan(11) and (6) BFPP, mod spastic quad CP Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2012 Report Share Posted July 23, 2012 First of all, finding triggers is great. Now that you know that feeling bad about yourself triggers you to want to eat, you can start finding other ways to react when you notice yourself thinking that way. I find that recognizing the positive intent behind my actions really helps. (Just in time for Week 2! LOL!) Here, the positive intent behind eating is to make yourself feel better about feeling bad about your body. Which unfortunately is going to lead to more to feel bad about--but recognize the intent, not the action. So what will make you feel better about your body right now? I really like podcast #110--spreading love and self-acceptance to the parts of you that need it--and giving yourself some peace and calm in the present as well. I also find that when I feel that way, it's *really* important to wear something that makes me feel good. Sometimes it's because the color brightens my mood. Sometimes it's because I like the fit or the flow of the fabric. Sometimes I just really like the way I feel in it--even if I know all true fashion mavens are shaken their heads in disbelief. (Not to mention my daughters! LOL!) If you don't have anything like this, make it a priority!!!! It doesn't have to be an evening gown--a T shirt in just the right color will do. If you've spent the last few years building up an " unobjectionable " wardrobe whose chief purpose is to hide you, you may have to work on it gradually. Bit by bit, add things that make you happy, and release things that don't. OK, I have no idea why I went off on a clothing jag just now! I usually dive straight in to the " inner work " , and this is fairly external. But it's also a very easy first step you can take to make yourself feel better NOW. Not some time in the future when you've lost X pounds. What are some other things you like to do? What are things that make you happy? Make you smile? >________________________________ > >To: insideoutweightloss >Sent: Tuesday, July 24, 2012 3:31 AM >Subject: Observation > > > >I'm on the early stages of week 2 of Full-fillled. I > >noticed something recently that got me thinking if it sort of works as a trigger: 2 days ago, I was laying down and noticed that my stomach was sort of protruding in a way that it didn't 2 years ago. I didn't like it, but I didn't freak out or anything. But half an hour later, I was rummaging through the kitchen looking for all the extra tasty things that I could find. I've never thought about it before, but I think that what got that started was the fact that I was feeling sort of bad about myself. > >I noticed it again last night when I was feeling sort of bummed about the way I had been eating that day... next thing you know I'm having slice after slice of bread and butter. > >Does this ring a bell with anyone else? If so, how do you " redirect " yourself so you don't get into a sabotaging rut? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2012 Report Share Posted July 24, 2012 Louisa - YES! That definitely sounds familiar to me too! I had SUCH a good week last week, but I had family staying and so wasn't re-connecting with the podcast every day like usual. By the time my family left on Friday, I had the rest of the day off work and was at home alone - MAJOR trigger situation. Before I knew it, I had procured a whole stack of junk food and proceeded to plough through it over the course of the weekend. *sigh* I'm back on track now, and am thinking hard about what said below - I'm a loooong way away from podcast 110, but I really do need to find that peace and calm in the present. Chin up! Cxx > ** > > > First of all, finding triggers is great. Now that you know that feeling > bad about yourself triggers you to want to eat, you can start finding other > ways to react when you notice yourself thinking that way. > > I find that recognizing the positive intent behind my actions really > helps. (Just in time for Week 2! LOL!) Here, the positive intent behind > eating is to make yourself feel better about feeling bad about your body. > Which unfortunately is going to lead to more to feel bad about--but > recognize the intent, not the action. > > So what will make you feel better about your body right now? I really like > podcast #110--spreading love and self-acceptance to the parts of you that > need it--and giving yourself some peace and calm in the present as well. > > I also find that when I feel that way, it's *really* important to wear > something that makes me feel good. Sometimes it's because the color > brightens my mood. Sometimes it's because I like the fit or the flow of the > fabric. Sometimes I just really like the way I feel in it--even if I know > all true fashion mavens are shaken their heads in disbelief. (Not to > mention my daughters! LOL!) If you don't have anything like this, make it a > priority!!!! It doesn't have to be an evening gown--a T shirt in just the > right color will do. > > If you've spent the last few years building up an " unobjectionable " > wardrobe whose chief purpose is to hide you, you may have to work on it > gradually. Bit by bit, add things that make you happy, and release things > that don't. > > OK, I have no idea why I went off on a clothing jag just now! I usually > dive straight in to the " inner work " , and this is fairly external. But it's > also a very easy first step you can take to make yourself feel better NOW. > Not some time in the future when you've lost X pounds. > > What are some other things you like to do? What are things that make you > happy? Make you smile? > > > > >________________________________ > > > >To: insideoutweightloss > >Sent: Tuesday, July 24, 2012 3:31 AM > >Subject: Observation > > > > > > > > >I'm on the early stages of week 2 of Full-fillled. I > > > >noticed something recently that got me thinking if it sort of works as a > trigger: 2 days ago, I was laying down and noticed that my stomach was sort > of protruding in a way that it didn't 2 years ago. I didn't like it, but I > didn't freak out or anything. But half an hour later, I was rummaging > through the kitchen looking for all the extra tasty things that I could > find. I've never thought about it before, but I think that what got that > started was the fact that I was feeling sort of bad about myself. > > > >I noticed it again last night when I was feeling sort of bummed about the > way I had been eating that day... next thing you know I'm having slice > after slice of bread and butter. > > > >Does this ring a bell with anyone else? If so, how do you " redirect " > yourself so you don't get into a sabotaging rut? > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2012 Report Share Posted July 24, 2012 and Charlotte - thank you so much for your support and ideas! I'm going to check out podcast 110 tomorrow morning. , your idea about clothes actually hit home for me. I recently quit working in favor of spending more time at home so I haven't been wearing my fancy work clothes that I felt really good in. Maybe tomorrow I'll dress up a bit more than my usual yoga pants & tshirts of late. It would be nice for a change anyway. > > > ** > > > > > > First of all, finding triggers is great. Now that you know that feeling > > bad about yourself triggers you to want to eat, you can start finding other > > ways to react when you notice yourself thinking that way. > > > > I find that recognizing the positive intent behind my actions really > > helps. (Just in time for Week 2! LOL!) Here, the positive intent behind > > eating is to make yourself feel better about feeling bad about your body. > > Which unfortunately is going to lead to more to feel bad about--but > > recognize the intent, not the action. > > > > So what will make you feel better about your body right now? I really like > > podcast #110--spreading love and self-acceptance to the parts of you that > > need it--and giving yourself some peace and calm in the present as well. > > > > I also find that when I feel that way, it's *really* important to wear > > something that makes me feel good. Sometimes it's because the color > > brightens my mood. Sometimes it's because I like the fit or the flow of the > > fabric. Sometimes I just really like the way I feel in it--even if I know > > all true fashion mavens are shaken their heads in disbelief. (Not to > > mention my daughters! LOL!) If you don't have anything like this, make it a > > priority!!!! It doesn't have to be an evening gown--a T shirt in just the > > right color will do. > > > > If you've spent the last few years building up an " unobjectionable " > > wardrobe whose chief purpose is to hide you, you may have to work on it > > gradually. Bit by bit, add things that make you happy, and release things > > that don't. > > > > OK, I have no idea why I went off on a clothing jag just now! I usually > > dive straight in to the " inner work " , and this is fairly external. But it's > > also a very easy first step you can take to make yourself feel better NOW. > > Not some time in the future when you've lost X pounds. > > > > What are some other things you like to do? What are things that make you > > happy? Make you smile? > > > > > > > > >________________________________ > > > > > >To: insideoutweightloss > > >Sent: Tuesday, July 24, 2012 3:31 AM > > >Subject: Observation > > > > > > > > > > > > > >I'm on the early stages of week 2 of Full-fillled. I > > > > > >noticed something recently that got me thinking if it sort of works as a > > trigger: 2 days ago, I was laying down and noticed that my stomach was sort > > of protruding in a way that it didn't 2 years ago. I didn't like it, but I > > didn't freak out or anything. But half an hour later, I was rummaging > > through the kitchen looking for all the extra tasty things that I could > > find. I've never thought about it before, but I think that what got that > > started was the fact that I was feeling sort of bad about myself. > > > > > >I noticed it again last night when I was feeling sort of bummed about the > > way I had been eating that day... next thing you know I'm having slice > > after slice of bread and butter. > > > > > >Does this ring a bell with anyone else? If so, how do you " redirect " > > yourself so you don't get into a sabotaging rut? > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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