New Member

[Guest guest]

A 9 mm nodule is of the size that might be shrunk with suppression. Do not believe the provider directories about docs being in network. They are padded with docs who have long since left the network. And BCBS is one of the worst for this. Call and ask. I do not know much about Dr. Pucillo, but in general, the alternative type docs are better for folks with Hashi than the endos. wrote: I appreciate all the advice from everybody. My insurance is blue cross PPO and

I live in the Houston area. I am ready to make another appointment but want to make sure I get somebody who will help me. My primary care doc referred me to see an endo but will not give me treatment either. The size of the nodule is 0.9 cm which is relatively small. The left side of my thyroid is definitely fuller than the right side.I noticed Dr.Pucillo and Dr. are both on my plan. Any suggestions.> Hi everyone!> I'm a 25 year old male recently diagnosed with hashimotos. My story > starts last February when I began to have a sore and funny feeling

> in my throat. I also developed tingling in my hands and feet at > times and am easily fatigued. The skin on my face is also very dry > most of the time. An ultrasound of my thyroid revealed a nodule on > the left side of my thyroid. To make a long story short I have been > to a well respected endo and have been told that nothing can be done > until my tsh reaches about 10. He confirmed that I have autoimmune > thyroid disease and wants me to follow up every 6 months with lab > work until I need medication. I've learned to tolerate the symptoms > even though I don't feel good at times. Well, from what I've seen > this isn't anything new. > I'm looking forward to being a part of the group and hope to learn > new things about thyroid disease. Thanks for the membership.> > Here are my lab values by the way.>

TPO autoantibodies 269 (range <60)> TSH 3.54 (0.34-5.60)> Total T4 7.5 (6.1-12)> T7 6.9 (6-13)> T3 uptake 37 (32-48)

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[Guest guest]

I'm also willing to pay out of pocket for somebody who is reasonably priced.Jan wrote: A 9 mm nodule is of the size that might be shrunk with suppression. Do not believe the provider directories about docs being in network. They are padded with docs who have long since left the network. And BCBS is one of the worst for this. Call and ask. I do not know much about Dr. Pucillo, but in general, the alternative type docs are better for folks with Hashi than the endos. wrote: I appreciate all the advice from everybody. My insurance is blue cross PPO and I live in the Houston area. I am ready to make another appointment but want to make sure I get somebody who will help me. My primary care doc referred me to see an endo but will not give me treatment either. The size of the nodule is 0.9 cm which is relatively small. The left side of my thyroid is definitely fuller than the right side.I noticed Dr.Pucillo and Dr. are both on my plan. Any suggestions.> Hi everyone!> I'm a 25 year old male recently diagnosed with hashimotos. My story > starts last February when I began to have a sore and funny feeling > in my throat. I also developed tingling in my hands and feet at > times and am easily fatigued. The skin on my face is also very dry > most of the time. An ultrasound of my thyroid revealed a nodule on > the left side of my thyroid. To make a long story short I have been > to a well respected endo and have been told that nothing can be done > until my tsh reaches about 10. He confirmed that I have autoimmune > thyroid disease and wants me to follow up every 6 months with lab > work until I need medication. I've learned to tolerate the symptoms > even though

I don't feel good at times. Well, from what I've seen > this isn't anything new. > I'm looking forward to being a part of the group and hope to learn > new things about thyroid disease. Thanks for the membership.> > Here are my lab values by the way.> TPO autoantibodies 269 (range <60)> TSH 3.54 (0.34-5.60)> Total T4 7.5 (6.1-12)> T7 6.9 (6-13)> T3 uptake 37 (32-48) Yahoo! DSL Something to write home about. Just $16.99/mo. or less

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[Guest guest]

That TSH is too high for a great many people, but it is unquestionably

waaayyy too high for a Hashi's patient. The reason for this is that the

Hashi's gland shouldn't be making it's own thyroid hormone at all, just

should turn into a " bystander " , while the TSH is suppressed to keep it from

functioning on it's own. It is the production of the thyroid hormone

directly in and on the gland that causes those antibodies to really " munch

down " on your thyroid. Doctors who are desperate to keep a Hashi's

patient's TSH " within normal range " , so called, have absolutely NO

understanding of the nature of this disease at all. With a nodule there,

TSH needs to be suppressed, more or less. Also, you have not had the two

most important tests, the Free T3 and the Free T4. The Hashi's gland will

self destruct with a TSH like that, and you will feel like absolute h#ll

with it. And BTW, that " deal with it " doctor sounds so much like one in

Houston that my daughter has had two visits with. I think she's finally

going to take my advice, I think. Vivian it is. Orzeck is who

she's been seeing.

New Member

> Hi everyone!

> I'm a 25 year old male recently diagnosed with hashimotos. My story

> starts last February when I began to have a sore and funny feeling

> in my throat. I also developed tingling in my hands and feet at

> times and am easily fatigued. The skin on my face is also very dry

> most of the time. An ultrasound of my thyroid revealed a nodule on

> the left side of my thyroid. To make a long story short I have been

> to a well respected endo and have been told that nothing can be done

> until my tsh reaches about 10. He confirmed that I have autoimmune

> thyroid disease and wants me to follow up every 6 months with lab

> work until I need medication. I've learned to tolerate the symptoms

> even though I don't feel good at times. Well, from what I've seen

> this isn't anything new.

> I'm looking forward to being a part of the group and hope to learn

> new things about thyroid disease. Thanks for the membership.

>

> Here are my lab values by the way.

> TPO autoantibodies 269 (range <60)

> TSH 3.54 (0.34-5.60)

> Total T4 7.5 (6.1-12)

> T7 6.9 (6-13)

> T3 uptake 37 (32-48)

[Guest guest]

The very best doc for Hashi is in Lubbock, but he just got dumped by BCBS. If you have an out-of-network benefit, you might consider seeing him. I think you live just south of Houston. I would try Pucillo first. The alternative type docs generally do better for Hashi patients than the endos. Some of them have nutritional and hormonal protocols that are helpful in reducing antibodies. wrote: I'm also willing to pay out of pocket for somebody who is reasonably priced.Jan wrote: A 9 mm nodule is of the size that might be shrunk with suppression. Do not believe the provider directories about docs being in network. They are padded with docs who have long since left the network. And BCBS is one of the worst for this. Call and ask. I do not know much about Dr. Pucillo, but in general, the alternative type docs are better for folks with Hashi than the endos. wrote: I appreciate all the advice from everybody. My insurance is blue cross PPO and I live in the Houston area. I am ready to make another appointment but want to make sure I get somebody who will help me. My primary care doc referred me to see an endo but will not give me treatment either. The size of the nodule is 0.9 cm which is relatively small. The left side of my thyroid is definitely fuller than the right side.I noticed Dr.Pucillo and Dr. are both on my plan. Any suggestions.> Hi everyone!> I'm a

25 year old male recently diagnosed with hashimotos. My story > starts last February when I began to have a sore and funny feeling > in my throat. I also developed tingling in my hands and feet at > times and am easily fatigued. The skin on my face is also very dry > most of the time. An ultrasound of my thyroid revealed a nodule on > the left side of my thyroid. To make a long story short I have been > to a well respected endo and have been told that nothing can be done > until my tsh reaches about 10. He confirmed that I have autoimmune > thyroid disease and wants me to follow up every 6 months with lab > work until I need medication. I've learned to tolerate the symptoms > even though I don't feel good at times. Well, from what I've seen > this isn't anything new. > I'm looking forward to being a part of the group and hope

to learn > new things about thyroid disease. Thanks for the membership.> > Here are my lab values by the way.> TPO autoantibodies 269 (range <60)> TSH 3.54 (0.34-5.60)> Total T4 7.5 (6.1-12)> T7 6.9 (6-13)> T3 uptake 37 (32-48)

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[Guest guest]

Welcome, ! You know you are in a room full of ladies, don't you?

Listen to Jan and - they know of what they speak. Most of us here who

have found helpful treatment have not found it with endos, however

well-respected they might be by other players in the AMA. Let them

pontificate at banquets well attended by others of their ilk. We need

rational treatment for our disordered thyroids rather than treatment by

someone who writes in medical journals about theoretical treatments and why

they ought to work in the real world. I understand Houston has a dearth of

helpful doctors in this area but do try the alternative ones. Or schedule a

couple of road trips a year. The rule of thumb is, they must order TSH,

Free T3, Free T4 and the correct antibodies tests on you - fairly regularly

as they are ordering your treatment. At the same time, they cannot go

strictly by those tests.

As I understand Hashi's - which I do not seem to have myself - your numbers

are not as important as your symptoms - or even all that reliable. And you

will be far, far healthier if you follow your symptoms regardless of your

TSH - but bringing that TSH way down should be the end your doctor pursues.

I know of no rational reason for him to take a 'wait and see' attitude with

this unless he just desires to see what an untreated Hashimotos patient

looks like. " Well, isn't that interesting. Who knew the human body would

do THAT? I will have to take good notes on this one. Could be useful in my

next well-recieved paper. Nurse! Walk Mr. Brown out, take his money and

schedule him again in six weeks so I can see whether or not he turns green. "

Deep six this guy, and without delay.

Terijo

[Guest guest]

, Houston is pretty big. Where abouts do you live?

wrote:

I'm also willing to pay out of pocket for

somebody who is reasonably priced.

Jan wrote:

A 9 mm nodule is of

the size that might be shrunk with suppression.

Do not believe the

provider directories about docs being in network. They are padded with

docs who have long since left the network. And BCBS is one of the worst

for this. Call and ask.

I do not know much

about Dr. Pucillo, but in general, the alternative type docs are better

for folks with Hashi than the endos.

wrote:

I appreciate all the advice from everybody. My insurance

is blue

cross PPO and I live in the Houston area. I am ready to make

another appointment but want to make sure I get somebody who will

help me. My primary care doc referred me to see an endo but will not

give me treatment either.

The size of the nodule is 0.9 cm which is relatively small. The left

side of my thyroid is definitely fuller than the right side.

I noticed Dr.Pucillo and Dr. are both on my plan. Any

suggestions.

> Hi everyone!

> I'm a 25 year old male recently diagnosed with hashimotos. My

story

> starts last February when I began to have a sore and funny feeling

> in my throat. I also developed tingling in my hands and feet at

> times and am easily fatigued. The skin on my face is also very

dry

> most of the time. An ultrasound of my thyroid revealed a nodule

on

> the left side of my thyroid. To make a long story short I have

been

> to a well respected endo and have been told that nothing can be

done

> until my tsh reaches about 10. He confirmed that I have

autoimmune

> thyroid disease and wants me to follow up every 6 months with lab

> work until I need medication. I've learned to tolerate the

symptoms

> even though I don't feel good at times. Well, from what I've seen

> this isn't anything new.

> I'm looking forward to being a part of the group and hope to learn

> new things about thyroid disease. Thanks for the membership.

>

> Here are my lab values by the way.

> TPO autoantibodies 269 (range <60)

> TSH 3.54 (0.34-5.60)

> Total T4 7.5 (6.1-12)

> T7 6.9 (6-13)

> T3 uptake 37 (32-48)

Yahoo!

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DSL Something to write home about. Just $16.99/mo. or less

-- Carole L. Henning

carole_henning@...

[Guest guest]

I live in on the southeast side of houston. Actually in the middle between houston and galveston. I'll go get my ft3 and ft4 done next week.Carole Henning wrote: , Houston is pretty big. Where abouts do you live? wrote: I'm also willing to pay out of pocket for somebody who is reasonably priced.Jan wrote: A 9 mm nodule is of the size that might be shrunk

with suppression. Do not believe the provider directories about docs being in network. They are padded with docs who have long since left the network. And BCBS is one of the worst for this. Call and ask. I do not know much about Dr. Pucillo, but in general, the alternative type docs are better for folks with Hashi than the endos. wrote: I appreciate all the advice from everybody. My insurance is blue cross PPO and I live in the

Houston area. I am ready to make another appointment but want to make sure I get somebody who will help me. My primary care doc referred me to see an endo but will not give me treatment either. The size of the nodule is 0.9 cm which is relatively small. The left side of my thyroid is definitely fuller than the right side.I noticed Dr.Pucillo and Dr. are both on my plan. Any suggestions.> Hi everyone!> I'm a 25 year old male recently diagnosed with hashimotos. My story > starts last February when I began to have a sore and funny feeling > in my throat. I also developed tingling in my hands and feet at > times and am easily fatigued. The skin on my face is also very dry > most of the time. An ultrasound of my thyroid revealed a nodule on > the left side of my thyroid. To make a long story short I have been > to a well respected endo and have been told that nothing can be done > until my tsh reaches about 10. He confirmed that I have autoimmune > thyroid disease and wants me to follow up every 6 months with lab > work until I need medication. I've learned to tolerate the symptoms > even though I don't feel good at times. Well, from what I've

seen > this isn't anything new. > I'm looking forward to being a part of the group and hope to learn > new things about thyroid disease. Thanks for the membership.> > Here are my lab values by the way.> TPO autoantibodies 269 (range <60)> TSH 3.54 (0.34-5.60)> Total T4 7.5 (6.1-12)> T7 6.9 (6-13)> T3 uptake 37 (32-48) Yahoo! DSL Something to write home about. Just $16.99/mo. or less Yahoo! DSL Something to write home about. Just $16.99/mo. or less -- Carole L. Henning carole_henning@...

Yahoo! for Good - Make a difference this year.

[Guest guest]

I live in Clear Lake. Is that near you? You said you had an endo you

were not happy with. Can you tell me the name so that I can avoid

him/her and have my other hypo friends avoid? Also 2 of my hypo friends

are guys, so you are not alone.

wrote:

I live in on the southeast side of houston. Actually in the

middle between houston and galveston.

I'll go get my ft3 and ft4 done next week.

Carole Henning

wrote:

,

Houston is pretty big. Where abouts do you live?

wrote:

I'm also willing to pay out of pocket for

somebody who is reasonably priced.

Jan

wrote:

A 9 mm nodule

is of the size that might be shrunk with suppression.

Do not believe

the provider directories about docs being in network. They are padded

with docs who have long since left the network. And BCBS is one of the

worst for this. Call and ask.

I do not know

much about Dr. Pucillo, but in general, the alternative type docs are

better for folks with Hashi than the endos.

wrote:

I appreciate all the advice from everybody. My insurance

is blue

cross PPO and I live in the Houston area. I am ready to make

another appointment but want to make sure I get somebody who will

help me. My primary care doc referred me to see an endo but will not

give me treatment either.

The size of the nodule is 0.9 cm which is relatively small. The left

side of my thyroid is definitely fuller than the right side.

I noticed Dr.Pucillo and Dr. are both on my plan. Any

suggestions.

> Hi everyone!

> I'm a 25 year old male recently diagnosed with hashimotos. My

story

> starts last February when I began to have a sore and funny feeling

> in my throat. I also developed tingling in my hands and feet at

> times and am easily fatigued. The skin on my face is also very

dry

> most of the time. An ultrasound of my thyroid revealed a nodule

on

> the left side of my thyroid. To make a long story short I have

been

> to a well respected endo and have been told that nothing can be

done

> until my tsh reaches about 10. He confirmed that I have

autoimmune

> thyroid disease and wants me to follow up every 6 months with lab

> work until I need medication. I've learned to tolerate the

symptoms

> even though I don't feel good at times. Well, from what I've seen

> this isn't anything new.

> I'm looking forward to being a part of the group and hope to learn

> new things about thyroid disease. Thanks for the membership.

>

> Here are my lab values by the way.

> TPO autoantibodies 269 (range <60)

> TSH 3.54 (0.34-5.60)

> Total T4 7.5 (6.1-12)

> T7 6.9 (6-13)

> T3 uptake 37 (32-48)

Yahoo!

DSL Something to write home about. Just $16.99/mo. or less

Yahoo!

DSL Something to write home about. Just $16.99/mo. or less

-- Carole L. Henning carole_henning@...

Yahoo! for Good - Make

a difference this year.

-- Carole L. Henning

carole_henning@...

[Guest guest]

> I know of no rational reason for him to take a 'wait and see' attitude

with

> this unless he just desires to see what an untreated Hashimotos patient

> looks like. " Well, isn't that interesting. Who knew the human body would

> do THAT? I will have to take good notes on this one. Could be useful in

my

> next well-recieved paper. Nurse! Walk Mr. Brown out, take his money and

> schedule him again in six weeks so I can see whether or not he turns

green. "

>

> Deep six this guy, and without delay.

>

> Terijo

Ha ha, Terijo, I just love this one, if it weren't so darn sad!

[Guest guest]

You could probably use a slightly larger dose of Armour.lulu4six wrote: Hi All,I am Joni. After going to five different doctors, the fifth one diagnoised me as having a thyroid problem.Here are the results of my second lab test:Cortisol 24.3T3, Total - 138 60-181T-4, Free - 1.0 .08-1.8TSH - .78 .40-5.50I go to Dr. Brown, in Magnolia. I live in the Woodlands.I'm new to all this thyroid stuff and just would like some input and help in adjusting to what is going on in my body.I take .15 armour, I was taking 30

but had trouble breathing.Progesterine Cream -1/2cc at bedtimePro-Omega fish oil - 1000mgPro Cortisol - 2 before bed, Ultra Proventive X - 1 twice a dayI have lost over 30lbs in the last 4 months. Thanks in advance for any help!!!Joni

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[Guest guest]

Hi Vicky, Welcome to the group My name is Pickle and I live in Lufkin. My sisters name is Vickie also. I am seeing my new doctor today and getting the results of all my tests she ran a couple of weeks ago. I also had an ultrasound. Sh etold me by email she had several issues to dicuss with me so we will see what she has to say.

Nice to meet you,

New Member

Hi ya'all, My name is Vicky and I live in Alvarado. That is about 15 miles south of Ft.Worth. I have just gone to a endo last Thursday. He took my blood to see if I am in fact Hypo. I feel as though I am. I took the temp test for days, did the blood presure test and also the bright light to the eyes test. And all indicate that I am. I have already ordered my Armour and started taking a grain a day. Just in case he says that I am not hypo. Or if he won't prescribe me the Armour. My sister takes the Armour. Plus I have read to much bad about the synthectics (spelling). I won't get to see the dr for my results until May 25th. and I want to get better now... especially my weight!!! I want to be able to get back into my size 3 rockies before my birthday July 17th. I am currently weighing 157. Would like to get down to 140. Also I am married and I don't have any I mean ANY desire for him if you know what I mean. I thought maybe by getting on my Bio-identical hormones that that would help, but it didn't... and he is getting very impatient. God I hope the thyroid helps.... Well any advice you all can give I will be open to. Thanks, Vicky

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.392 / Virus Database: 268.5.6/339 - Release Date: 5/14/2006

[Guest guest]

Hi ! nice to meet you also... hope every thing goes well for you on your tests. I hope my tests confirm my suspensions of being hypo.. so that I'll have something to blame this on. Vickyl & jpickle wrote: Hi Vicky, Welcome to the group My name is Pickle and I live in Lufkin. My sisters name is Vickie also. I am

seeing my new doctor today and getting the results of all my tests she ran a couple of weeks ago. I also had an ultrasound. Sh etold me by email she had several issues to dicuss with me so we will see what she has to say. Nice to meet you, New Member Hi ya'all, My name is Vicky and I live in Alvarado. That is about 15 miles south of Ft.Worth. I have just gone to a endo last Thursday. He took my blood to see if I am in fact Hypo. I feel as though I am. I took the temp test for days, did the blood presure test and also the bright light to the eyes test. And all indicate that I am. I have already ordered my Armour and started taking a grain a day. Just in case he says that I am not hypo. Or if he won't prescribe me the Armour. My sister takes the Armour. Plus I have read to much bad about the synthectics (spelling). I won't get to see the dr for my results until May 25th. and I want to get better now... especially my weight!!! I want to be able to get back into my size 3 rockies before my birthday July 17th. I am currently weighing 157. Would like to get down to 140.

Also I am married and I don't have any I mean ANY desire for him if you know what I mean. I thought maybe by getting on my Bio-identical hormones that that would help, but it didn't... and he is getting very impatient. God I hope the thyroid helps.... Well any advice you all can give I will be open to. Thanks, Vicky No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.392 / Virus

Database: 268.5.6/339 - Release Date: 5/14/2006

[Guest guest]

It is possible to be very hypo with normal numbers. It is also possible to have hypo-like symptoms from low ferritin (storage iron). Unfortunately, most docs, including endos, do not have a clue about this. Fortunately, we know a few docs who have a clue. If you do not get the help you need, email me privately and I will send you the names of the five docs we can count on. There used to be only four. Then one of the docs on our Armour list went hypo himself with "normal numbers" and put himself on Armour. He was a pretty good thyroid doc before, but he is now on his way to becoming a great one. Hypothyroid folks are the only people in the world who hate to hear the

word: "NORMAL". EEEEEEEEEEEEEEEEEEeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeekkkkkkkkkkk!!!!!!!! Vicky Hebbe wrote: Hi ! nice to meet you also... hope every thing goes well for you on your tests. I hope my tests confirm my suspensions of being hypo.. so that I'll have something to blame this on. Vickyl & jpickle wrote: Hi Vicky, Welcome to the group My name is Pickle and I live in Lufkin. My sisters name is Vickie also. I am seeing my new doctor today and getting the results of all my tests she ran a couple of weeks ago. I also had an ultrasound. Sh etold me by email she had several issues to dicuss with me so we

will see what she has to say. Nice to meet you, New Member Hi ya'all, My name is Vicky and I live in Alvarado. That is about 15 miles south of Ft.Worth. I have just gone to a endo last Thursday. He took my blood to see if I am in fact Hypo. I feel as though I am. I took the temp test for days, did the blood presure test and also the bright light to the eyes test. And all indicate that I am. I have already ordered my Armour and started taking a grain a day. Just in case he says that I am not hypo. Or if he won't prescribe me the Armour. My sister takes the Armour. Plus I have read to much bad about the synthectics (spelling). I won't get to see the dr for my results until May 25th. and I want to get better now... especially my weight!!! I want to be able to get back into my size 3 rockies before my birthday July 17th. I am currently weighing 157. Would like

to get down to 140. Also I am married and I don't have any I mean ANY desire for him if you know what I mean. I thought maybe by getting on my Bio-identical hormones that that would help, but it didn't... and he is getting very impatient. God I hope the thyroid helps.... Well any advice you all can give I will be open to. Thanks, Vicky

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[Guest guest]

Welcome, Vicki.

I am going to urge a little caution on you. Starting a full grain of Armour

all at once may be too ambitious even for someone who desperately needs it.

I would wait until the test results come back and see what they say. Also,

others may have mentioned, did he test for ferritin? I also think the light

test & the blood pressure test (lying down and then on sudden standing) are

adrenal tests, are they not?

Also, if you put yourself on Armour and THEN got tested, the test may not

reflect your true numbers, particularly if you took your Armour the morning

of the test. So you may have skewed your tests. If he even runs the right

ones in the first place.

The problem with taking thyroid hormone is that it may take 6 to 8 weeks to

really 'feel' the effect of the dose you are taking, whatever it is. So, if

your adrenals are stressed, or if you have low ferritin, EVEN IF you do need

the Armour, this dose may make you feel hyperthyroid which is extremely

uncomfortable at the least. If you do NOT need the Armour, same thing.

There ARE good thyroid doctors out there who you can work with. Don't try

one at random and assume you won't find any help from doctors if he doesn't

pan out. See the advice to the woman afraid her prospective doctor won't

prescribe Armour. Call and ask! Ask what tests they run, too and what

numbers they consider definitive - and when they will ignore the numbers and

treat your symptoms.

If you insist on starting the Armour on your own - at least play it safe and

try .25 grain for the first six to eight weeks, rather than a full grain.

Terijo

[Guest guest]

She can ask what meds they prescribe or what tests they order, but docs are wise not to reveal the fact that they may be willing to look beyond the tests for treatment, as they may be making themselves vulnerable to board actions.Terijo wrote:There ARE good thyroid doctors out there who you can work with. Don't tryone at random and assume you won't find any help from doctors if he doesn'tpan out. See the advice to the woman afraid her prospective doctor won'tprescribe Armour. Call and ask! Ask what tests they run, too and whatnumbers they consider definitive - and when they will ignore the numbers andtreat your symptoms.

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[Guest guest]

Welcome,

My name is Debbie and I am 30, I would be interested

in hearing more as I am stuck in the phase of not

getting help because my doc tells me that Fibro is a

catagory for general aches and pains also and is very

hard to get along with, how do I go about finding a

good doc, I am on state med right now as I cannot work

and am awaiting appearance with judge for disability.

Deb

[Guest guest]

Welcome, ,

Great intro! As to your question, someone else may be better informed,

but my understanding is that since ours is a diagnosis of exclusion, if

you have rheumatoid arthritis, that will supersede any other related new

diagnosis. But if you've been diagnosed with FM for so long, I would

think that you can have both. Maybe?

Sikes

Carol wrote:

>

> Hi everyone i just joined a couple of days ago. I am 40, will be 41

> next month. I found out in 1995 that i had fibromyalgia while in

> texas. I was told by a couselor that fibro is just some name stuck

> on everyday aches and pains by quacks. Of course i never saw that

> counselor again. For most of my youth and life i suffered from

> cluster headaches, bad migraines that lasted for days, various

> stomach problems, bladder problems, weak muscles and joints,

> irritable bowel and lots of female problems. I endured years of

> needless dnc's and test from ob/gyn, finally had to have tubes tied

> and then hysterectomy. All of my problems linked back to either the

> fibromyalgia or the drugs my mom was given in the 60 " s before she

> conceived me. Drugs that caused abnormalities and problems with

> children, especially female babies. All for something that was

> suppose to help prevent miscarriages and make it more likely for the

> mother to carry to term. As time passed and more was learned about

> fibro, things began to get some better. I take daily maintenance

> meds, try to get plenty of sleep, not skip meals and watch stress

> levels. I developed chronic fatigue after the fibromyalgia and the

> doctor told me that although only 1 out of every 5 people with

> chronic fatigue have fibro, that 4 out of 5 people with fibromyalgia

> will have or develop chronic fatigue syndrome. The fibromyalgia was

> the catelyst for my migraines, interstitial cystitus, ibs, female

> problems and cfs. yet for so many years it wasn't even recognized as

> a problem or legitimate health disorder or illness. I have learned

> there are some foods that help, and some that hurt. Caffeine helps,

> as long as i don't drink it too late. The narcotics and pain pills

> only kept me bedridden and loopy. Learning to deal with the pain,

> except it and take one day at a time helped more. But people that

> don't have don't care and think you're just lazy. No support groups

> where i live either. Now to top it all off i have osteoarthritus,

> osteoporosis, and copd. My doctor sent me to a specialist who say i

> am developing rheumatoid arthritus and now i have diabetes. I was

> once told you can't have both rheumatoid and fibromyalgia, it's

> either one or the other. Has ANY one else ever heard that?

>

>

[Guest guest]

Welcome ! I look forward to hearing more from you.

English

[Guest guest]

Hi I'm New to my name is Antoinette, I am caring for my 13yr old son the

past 3yrs suffering from ME. I have another 2 sons 19, Conor 15 and of

course my husband .

We live in Belfast and the support here for ME sufferers is very poor

especially for children.

I would welcome any advice from you all, as times have been very difficult,

has been housebound almost 2yrs.

Looking forward to hearing from someone

Antoinette

[Guest guest]

Welcome , you've come to the right place. Aylwin

[Guest guest]

Welcome to the group . I am Sandrea. I am single and live with

3 dogs and 3 cats. I was diagnosed with CFS about 3 years ago and fibro

more recently. I haven't worked since May 2004 and stay home mostly. I

was a librarian and prior to that a speech therapist. I have found the

folks in this group very friendly and hope you will as well.

Sandrea

[Guest guest]

Tina,

Welcome to the group. I'm kind of new here myself, I've only been

here a week or so.

I'm 46, divorced (but in love with a great guy named, Dean) I live in

south Florida with my 83 year old mother. I've had FM, CFS/ME for

the last 29 years, in a wheelchair for the last 15 years. I've also

got IBS, RLS, Heart problems, panic attacks, migraines, the

typical " associated illnesses " for a FM'er.

I hope you like the group as much as I do.

Best Wishes,

Misty

Patient & Founder

FM/CFS/ME Resources

[Guest guest]

>Thankyou !

Welcome ! I look forward to hearing more from you.

>

> English

>

[Guest guest]

Hi Antoinette, Welcome to the group! I just wanted to say that my son had

ME for 3 years, ages 10 to 13, and he was also housebound, had to carry him

to the loo. We had a lot of problems with doctors saying he was a " shirker " ,

even though he was very ill. I have it too, more than ever after 20 years.

But the GOOD news is, that my son, Pablo, completely recovered and is a fine

strong, healthy young man at 25. Pediatric cases do have a far greater

chance of recovery than adults do.

There is information out there, though I am not the most scientific to tell

you where to look. But others here are sharper than I. I know how hard it

can be, so I wanted to share a positive story with you. I wish for you, your

son and family a good outcome and happier days ahead.

Take Care, Aylwin

[Guest guest]

Welcome Antoinette,

This is a great group. I hope you find the same kind of support that I have

here.

I am English and I think I have been suffering from CFS for over 20yrs

but finally diagnosed 3 years ago.

English