Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 I know how this feels too. I've had CFS for 1 year. I just learned a few days ago that my employer is going to move ahead and replace me. I can stay on dissability insurance, but my job will not be there to return to if I should recover. Realizing that other people don't think you're going to recover is quite a shock to your sense of your own expected recovery. I've been on long term dissability for going on 8 months, all this time perfectly confident that inspite of all the statistics to the contray, I was going to recover fully. I don't want to loose this hope, just because others have lost it for me. So these are scarry times. I know I can't work right now -- I can't walk on my own for more than 20 yards --I use a wheel chair and a walker -- I can't remember what happened to me last night -- I can't read for more than just a few minutes -- but that doesn't stop me from believing that this will end and i will be a valuable worker once again. So,what do you think? Am I staving off the grieving process on something that is lost for good -- or am I on the path of perseverance by believing the health is attainable yet. I just started taking Valtrex -- this is an antiviral very closely related to the Valcyte they are doing the trial on at Stanford -- and I'm hoping for the best. God bless all, Nuwekerel > > I have had ME for about 18 months; this fall I nearly lost my job > because it was a rare day that I could remain sitting upright and > talking coherently. I have been using a GOGO scooter (THE BEST > investment) or a cane depending on how far I have to walk and have many > friends who help me with daily tasks. > > Luckily, under the care of Dr. Thoreson in Austin, TX, I have > started to improve. This morning was particularly good -- I was able > to eat breakfast, shower (seated), and get dressed before I needed to > lay down to rest. This is SO much better than " normal " for me that I > just had to tell someone who would really understand!!! > > shelanner > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 Yeah! That is good to hear! Hope you have many more good days ahead. shelanner wrote: I have had ME for about 18 months; this fall I nearly lost my job because it was a rare day that I could remain sitting upright and talking coherently. I have been using a GOGO scooter (THE BEST investment) or a cane depending on how far I have to walk and have many friends who help me with daily tasks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2007 Report Share Posted January 16, 2007 Hi Newekerel, Don't lose hope. People have recovered from this. Many health experts (notice I didn't say doctors who are really sickness experts and the third leading cause of death) believe that CFS happens when the body is in a state of malnourishment and/or overtoxicity. Do you have pain associated with this or just weakness? Do you have someone who prepares your food for you? What kind of job did you do before you got sick? Have you ever had toxin exposure or have you been around radiation excessively? Just using a cell phone will weaken the body. Some people are much less tolerant than others. Seeing as this isn't an alternative list, I'll stop right here but hopefully that gives you some food for thought. If you like, you can write to me personally and I can share some the stories I've collected over the years. Sharon > > I know how this feels too. I've had CFS for 1 year. I just learned a > few days ago that my employer is going to move ahead and replace me. I > can stay on dissability insurance, but my job will not be there to > return to if I should recover. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2012 Report Share Posted March 7, 2012 Hi All, Just thought I would share an fun little victory. I had to run an errand to Costco in the early afternoon and I didn't take time to eat my lunch before going, so I was a little worried that I would succumb the the siren song of Costco pizza or some other fast food. But I knew had a delicious lunch I had made for myself back a work, so I didn't get the pizza. I listened to what my body really wanted and went with that. The lunch here was a great as I thought it would be and even better was the feeling that I could say no to the thing that was only going to offer a short-time, greasy high. It's fun to see some progress in my evolving relationship with food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2012 Report Share Posted March 8, 2012 Congrats! Eldred > Hi All, > Just thought I would share an fun little victory. I had to run an errand to Costco in the early afternoon and I didn't take time to eat my lunch before going, so I was a little worried that I would succumb the the siren song of Costco pizza or some other fast food. But I knew had a delicious lunch I had made for myself back a work, so I didn't get the pizza. I listened to what my body really wanted and went with that. The lunch here was a great as I thought it would be and even better was the feeling that I could say no to the thing that was only going to offer a short-time, greasy high. It's fun to see some progress in my evolving relationship with food. > > > > > ------------------------------------ > > Copyright 2005-2007. A. s. All worldwide rights reserved.Yahoo! Groups Links > > > -- Raising money for Make-a-Wish! Donation page at http://wam300.org Quote Link to comment Share on other sites More sharing options...
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