(No subject)

March 10, 2001

sorry too busy for this. mc

March 10, 2001

Fw: (no subject)

----- Original Message -----From: Ladyislate@...Sent: Saturday, March 03, 2001 7:34 PMTo: Bosss316@...Subject: (no subject)Let's see if you send this back> > > >> > > >One day, when I was a freshman in high school, I saw a kid from my> > > >class> > > >was walking home from school. His name was . It looked like he> > > >was> > > >carrying all of his books. I thought to myself, "Why would anyone> > > >bring home> > > >all his books on a Friday? He must really be a nerd." I had quite a> > > >weekend> > > >planned (parties and a football game with my friends tomorrow> > > >afternoon), so> > > >I shrugged my shoulders and went on. As I was walking, I saw a bunch> > > >of kids> > > >running toward him. They ran at him, knocking all his books out of> > > >his arms> > > >and tripping him so he landed in the dirt. His glasses went flying,> > > >and I> > > >saw> > > >them land in the grass about ten feet from him. He looked up and I> > > >saw this> > > >terrible sadness in his eyes. My heart went out to him. So, I jogged> > > >over to> > > >him and as he crawled around looking for his glasses, and I saw a> > > >tear in> > > >his> > > >eye. As I handed him his glasses, I said, "Those guys are jerks. They> > > >really> > > >should get lives."> > > >> > > >He looked at me and said, "Hey thanks!" There was a big smile on his> > > >face. It was one of those smiles that showed real> > > >gratitude.> > > >> > > >I helped him pick up his books, and asked him where he lived. As it> > > >turned out, he lived near me, so I asked him why I had> > > >never seen him before. He said he had gone to private school before> > > >now.> > > >I would have never hung out with a private school kid before. We> > > >talked all> > > >the way home, and I carried some of his books. He turned out to be a> > > >pretty> > > >cool kid. I asked him if he wanted to play a little football with my> > > >friends.> > > >He said yes. We hung out all weekend and the more I got to know ,> > > >the> > > >more I> > > >liked him, and my friends thought the same of him.> > > >> > > >Monday morning came, and there was with the huge stack of books> > > >again. I stopped him and said, "Boy, you are gonna really build some> > > >serious> > > >muscles with this pile of books everyday!"> > > >> > > >He just laughed and handed me half the books.> > > >> > > >Over the next four years, and I became best friends. When we> > > >were> > > >seniors, we began to think about college. > > > >decided on town, and I was going to Duke. I knew that we would> > > >always be friends, that the miles would never be a problem. He was> > > >going to> > > >be a doctor, and I was going for business on a football scholarship.> > > >> > > > was valedictorian of our class. I teased him all the time about> > > >being a nerd. He had to prepare a speech for graduation. I was so> > > >glad it> > > >wasn't me having to get up there and speak. Graduation day, I saw> > > >. He> > > >looked great. He was one of those guys that really found himself> > > >during high> > > >school. He filled out and actually looked good in glasses. He had> > > >more dates> > > >than I had and all the girls loved him. Boy, sometimes I was jealous.> > > >> > > >Today was one of those days. I could see that he was nervous about> > > >his> > > >speech. So, I smacked him on the back and said, "Hey, big guy, you'll> > > >be> > > >great!"> > > >> > > >He looked at me with one of those looks (the really grateful one) and> > > >smiled. "Thanks," he said.> > > >> > > >As he started his speech, he cleared his throat, and began.> > > >"Graduation> > > >is a time to thank those who helped you make it through those tough> > > >years.> > > >Your parents, your teachers, your siblings, maybe a coach...but> > > >mostly your> > > >friends. I am here to tell all of you that being a friend to someone> > > >is the> > > >best gift you can give them. I am going to tell you a story."> > > >> > > >I just looked at my friend with disbelief as he told the story of the> > > >first day we met. He had planned to kill himself over the weekend. He> > > >talked> > > >of how he had cleaned out his locker so his Mom wouldn't have to do> > > >it later> > > >and was carrying his stuff home. He looked hard at me and gave me a> > > >little> > > >smile. "Thankfully, I was saved. My friend saved me from doing the> > > >unspeakable."> > > >> > > >I heard the gasp go through the crowd as this handsome, popular boy> > > >told> > > >us all about his weakest moment. I saw his Mom and dad looking at me> > > >and> > > >smiling that same grateful smile. Not until that moment did I realize> > > >it's> > > >depth.> > > >> > > >Never underestimate the power of your actions. With one small gesture> > > >you> > > >can change a person's life. For better or for worse. God puts us all> > > >in each> > > >other's lives to impact one another in some way. Look for God in> > > >others.> > > >> > > >You now have two choices, you can:> > > >> > > >1) Pass this on to your friends or> > > >2) Delete it and act like it didn't touch your heart.> > > >> > > >As you can see, I took choice number 1. "Friends are angels who lift> > > >us> > > >to our feet when our wings have trouble remembering how to fly."> > > >> > > >It's National Friendship Week. Show your friends how much you care.> > > >> > > >Eleanor Roosevelt wrote:> > > >> > > >Many people will walk in and out of your life,> > > >But only true friends will leave footprints in your heart.> > > >To handle yourself, use your head;> > > >To handle others, use your heart.> > > >Anger is only one letter short of danger.> > > >If someone betrays you once, it is his fault;> > > >If he betrays you twice, it is your fault> > > >Great minds discuss ideas;> > > >Average minds discuss events;> > > >Small minds discuss people.> > > >He who loses money, loses much;> > > >He, who loses a friend, loses much more;> > > >He, who loses faith, loses all.> > > >Beautiful young people are accidents of nature,> > > >But beautiful old people are works of art.> > > >Learn from the mistakes of others.> > > >You can't live long enough to make them all yourself.> > > >Friends, you and me....You brought another friend....> > > >And then there were 3. We started our group....> > > >Our circle of friends....And like that circle....> > > >There is no beginning or end..Yesterday is history.> > > >Tomorrow is mystery. Today is a gift.> > > >> > > >It's National Friendship Week. Show your friends how much you care.> > > >Send> > > >this to everyone you consider a FRIEND. If it comes back to you, then> > > >you'll> > > >know you have a circle of friends.> > > >> > > >WHEN YOU RECEIVE THIS LETTER, YOU'RE REQUESTED TO SEND IT TO AT LEAST> > > >10> > > >PEOPLE, INCLUDING THE PERSON WHO SENT IT TO YOU.> > > >> > >> > > _________________________________________________________________ <hr>Get your FREE download of MSN Explorer at <a href="http://explorer.msn.com">http://explorer.msn.com</a>

March 10, 2001

Tammy here is your letter back... It was very interesting... Thanks, )

Fw: (no subject)

----- Original Message -----From: Ladyislate@...Sent: Saturday, March 03, 2001 7:34 PMTo: Bosss316@...Subject: (no subject)Let's see if you send this back> > > >> > > >One day, when I was a freshman in high school, I saw a kid from my> > > >class> > > >was walking home from school. His name was . It looked like he> > > >was> > > >carrying all of his books. I thought to myself, "Why would anyone> > > >bring home> > > >all his books on a Friday? He must really be a nerd." I had quite a> > > >weekend> > > >planned (parties and a football game with my friends tomorrow> > > >afternoon), so> > > >I shrugged my shoulders and went on. As I was walking, I saw a bunch> > > >of kids> > > >running toward him. They ran at him, knocking all his books out of> > > >his arms> > > >and tripping him so he landed in the dirt. His glasses went flying,> > > >and I> > > >saw> > > >them land in the grass about ten feet from him. He looked up and I> > > >saw this> > > >terrible sadness in his eyes. My heart went out to him. So, I jogged> > > >over to> > > >him and as he crawled around looking for his glasses, and I saw a> > > >tear in> > > >his> > > >eye. As I handed him his glasses, I said, "Those guys are jerks. They> > > >really> > > >should get lives."> > > >> > > >He looked at me and said, "Hey thanks!" There was a big smile on his> > > >face. It was one of those smiles that showed real> > > >gratitude.> > > >> > > >I helped him pick up his books, and asked him where he lived. As it> > > >turned out, he lived near me, so I asked him why I had> > > >never seen him before. He said he had gone to private school before> > > >now.> > > >I would have never hung out with a private school kid before. We> > > >talked all> > > >the way home, and I carried some of his books. He turned out to be a> > > >pretty> > > >cool kid. I asked him if he wanted to play a little football with my> > > >friends.> > > >He said yes. We hung out all weekend and the more I got to know ,> > > >the> > > >more I> > > >liked him, and my friends thought the same of him.> > > >> > > >Monday morning came, and there was with the huge stack of books> > > >again. I stopped him and said, "Boy, you are gonna really build some> > > >serious> > > >muscles with this pile of books everyday!"> > > >> > > >He just laughed and handed me half the books.> > > >> > > >Over the next four years, and I became best friends. When we> > > >were> > > >seniors, we began to think about college. > > > >decided on town, and I was going to Duke. I knew that we would> > > >always be friends, that the miles would never be a problem. He was> > > >going to> > > >be a doctor, and I was going for business on a football scholarship.> > > >> > > > was valedictorian of our class. I teased him all the time about> > > >being a nerd. He had to prepare a speech for graduation. I was so> > > >glad it> > > >wasn't me having to get up there and speak. Graduation day, I saw> > > >. He> > > >looked great. He was one of those guys that really found himself> > > >during high> > > >school. He filled out and actually looked good in glasses. He had> > > >more dates> > > >than I had and all the girls loved him. Boy, sometimes I was jealous.> > > >> > > >Today was one of those days. I could see that he was nervous about> > > >his> > > >speech. So, I smacked him on the back and said, "Hey, big guy, you'll> > > >be> > > >great!"> > > >> > > >He looked at me with one of those looks (the really grateful one) and> > > >smiled. "Thanks," he said.> > > >> > > >As he started his speech, he cleared his throat, and began.> > > >"Graduation> > > >is a time to thank those who helped you make it through those tough> > > >years.> > > >Your parents, your teachers, your siblings, maybe a coach...but> > > >mostly your> > > >friends. I am here to tell all of you that being a friend to someone> > > >is the> > > >best gift you can give them. I am going to tell you a story."> > > >> > > >I just looked at my friend with disbelief as he told the story of the> > > >first day we met. He had planned to kill himself over the weekend. He> > > >talked> > > >of how he had cleaned out his locker so his Mom wouldn't have to do> > > >it later> > > >and was carrying his stuff home. He looked hard at me and gave me a> > > >little> > > >smile. "Thankfully, I was saved. My friend saved me from doing the> > > >unspeakable."> > > >> > > >I heard the gasp go through the crowd as this handsome, popular boy> > > >told> > > >us all about his weakest moment. I saw his Mom and dad looking at me> > > >and> > > >smiling that same grateful smile. Not until that moment did I realize> > > >it's> > > >depth.> > > >> > > >Never underestimate the power of your actions. With one small gesture> > > >you> > > >can change a person's life. For better or for worse. God puts us all> > > >in each> > > >other's lives to impact one another in some way. Look for God in> > > >others.> > > >> > > >You now have two choices, you can:> > > >> > > >1) Pass this on to your friends or> > > >2) Delete it and act like it didn't touch your heart.> > > >> > > >As you can see, I took choice number 1. "Friends are angels who lift> > > >us> > > >to our feet when our wings have trouble remembering how to fly."> > > >> > > >It's National Friendship Week. Show your friends how much you care.> > > >> > > >Eleanor Roosevelt wrote:> > > >> > > >Many people will walk in and out of your life,> > > >But only true friends will leave footprints in your heart.> > > >To handle yourself, use your head;> > > >To handle others, use your heart.> > > >Anger is only one letter short of danger.> > > >If someone betrays you once, it is his fault;> > > >If he betrays you twice, it is your fault> > > >Great minds discuss ideas;> > > >Average minds discuss events;> > > >Small minds discuss people.> > > >He who loses money, loses much;> > > >He, who loses a friend, loses much more;> > > >He, who loses faith, loses all.> > > >Beautiful young people are accidents of nature,> > > >But beautiful old people are works of art.> > > >Learn from the mistakes of others.> > > >You can't live long enough to make them all yourself.> > > >Friends, you and me....You brought another friend....> > > >And then there were 3. We started our group....> > > >Our circle of friends....And like that circle....> > > >There is no beginning or end..Yesterday is history.> > > >Tomorrow is mystery. Today is a gift.> > > >> > > >It's National Friendship Week. Show your friends how much you care.> > > >Send> > > >this to everyone you consider a FRIEND. If it comes back to you, then> > > >you'll> > > >know you have a circle of friends.> > > >> > > >WHEN YOU RECEIVE THIS LETTER, YOU'RE REQUESTED TO SEND IT TO AT LEAST> > > >10> > > >PEOPLE, INCLUDING THE PERSON WHO SENT IT TO YOU.> > > >> > >> > > _________________________________________________________________ <hr>Get your FREE download of MSN Explorer at <a href="http://explorer.msn.com">http://explorer.msn.com</a> Know someone who could profit from our list? Send our direct sign-up URL: /subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneregroupsManage your subscription with several special email addresses:chronic_pain-owneregroups - Sends email to the list owners chronic_pain-subscribeegroups - Subscribe to the list through email chronic_pain-unsubscribeegroups - Unsubscribe from the list chronic_pain-normalegroups - Switch your subscription to normal chronic_pain-digestegroups - Switch your subscription to digest

April 5, 2001

Hi ,

I too am looking for a chat room. After my computer crashed I lost all of my "favorites" and so, all my chat rooms. They were all chronic pain chats. I love this group and have been with this list for a few years. but I don't post often. Some times I need to "talk"

to someone instead of waiting for a return post. Let me know if you find any O.K.?

Krag52

Kathleen in California

April 11, 2001

Arthritis About.com Chat ChatSpace - FIBROHUGS Monitored Chat - Our Entire Site Listing http://fibrohugs.com/site_map.html check these out Krag, after months of going into them and chatting to myself, I found these two.

cheers, Sara

January 19, 2003

Hi Cpaguy,

OK, I did it for you this time but next time just go to:

http://www.yahoogroups.com/group/ModOasis

and you can switch to digest, no mail, or whatever.

- Edith

Moderator

Cpaguy123@... wrote:

>

> help

> off digest

>

> To get off the list, send a blank message to

ModOasis-unsubscribe . Send questions & amp; concerns to

ModOasis-owner . & quot;Stop Walking on Eggshells, & quot; a primer

for non-BPs can be ordered via 1-888-35-SHELL (). For the table of

contents, see http://www.BPDCentral.com

>

September 17, 2003

Sounds as if your dad is pretty smart....LOL.....keeps us guessing as to how

to deal with them

>

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: Re: (no subject)

>Date: Tue, 16 Sep 2003 22:49:13 -0000

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>FILETIME=[1090B800:01C37D19]

>

>My Dad actually went to the effort of going downstairs and flipping

>the breaker switch in order to keep the house at a balmy 84 degrees!

>When my hubby discovered it, Dad blamed the AC guy, saying he

>flipped it off due to the Ontario blackout. LOL.

>

> > > > > > >

> > > > > > > Courage suggested I poll the group about our lo with LBD

>and

> > > > > > headaches. It

> > > > > > > seems when there is lots of changes in my sister's life,

>like

> > > > > > moving her in with

> > > > > > > us on Fri, she has severe headaches.

> > > > > > > Has anyone elses lo been bothered with headaches?

> > > > > > >

> > > > > > > Jayn

> > > > > > > in S Ga

> > > > > > >

September 18, 2003

" Keeps us guessing " is an understatement!! It is completely

baffling! LOL... I guess its part of what makes this disease so

mysterious.

> > > > > > > >

> > > > > > > > Courage suggested I poll the group about our lo with

LBD

> >and

> > > > > > > headaches. It

> > > > > > > > seems when there is lots of changes in my sister's

life,

> >like

> > > > > > > moving her in with

> > > > > > > > us on Fri, she has severe headaches.

> > > > > > > > Has anyone elses lo been bothered with headaches?

> > > > > > > >

> > > > > > > > Jayn

> > > > > > > > in S Ga

> > > > > > > >

September 25, 2003

Or as we say " with friends like that you don't need any enemas! "

Thanks,

COurage

(no subject)

>

>Courage,

>With girlfriends like that you sure don't need any enemies!!!!!

>

>Jayn

>

September 25, 2003

Right on to Wal-Mart shopping! Sounds like you guys had a hoot and that's

all the matters. I hope and pray that some angel will come forward to help

you with building your sister her own room.

Courage

(no subject)

>

>Hello all,

>Haven't had much to post until the last 2 weeks!! I moved my 83 year old

>sister in with me Sept. 11 ( gosh I just realized what day it was) anyway

it has

>been so much easier for me, cause now I know how she is doing and being

able to

>visit with her at the same time. I know the time will come when it will not

>be visiting but caretaking.

>She has no short term memory. Can't remember living in the apartment for

>assisted living!!

>Could't remember she was going to be living here from now on, ask why I was

>bringing all her clothes in. ( Started her out upstairs but after a

couple

>of days realized that was not going to work, so gave her our bedroom and

moved

>upstairs.

>I know I need to be charting all of this but just haven't so far.

>She has had severe headaches everyday. Has to rest at least 3 to 4 hours

>every day, and even throws up from the headaches sometime.

>I went on line and found a web site about headaches someone sent to me, I

>think it was Courage but it could have been someone else.( I know have many

>senior moments) Some dr had done studies about bendryl easing headaches.

50 - 75

>mg.

>Guess what??? After everything I had tried that didn't do any good, it

>worked!!!!!!!!!!!

>She has had them everyday since she has been here. The symptom of being

cold,

>welll she freezes all the time. I told her I couldn't take off enough

cloths

>to stay cool but we could keep her warm. So she looks like someone in the

dead

>of winter all bundled up and I am in shorts or well.

>I do have a Courage trip to tell all of you about.

>The Tues after she had been moved in on Fri. I had to go into town, about

15

>min away. All of you I am sure knows that what ever you go into town for

you

>always have business at Wal Mart. It doesn't matter where I go or who I go

with

>someone always has to go to Wal Mart even when we went out to Wy a couple

of

>years ago when we stopped for anything it was always lets stop at Wal Mart.

>I told her she was going to have to drive the motorized shopping cart. This

>is a hoot.

>I thought about Courage while we were shopping. I decided we would have a

>good time and if others thought we had lost our minds, well that would be

ok.

>We ran into counters, knocked stuff of the shelves, almost ran into people,

>We would just laugh and tell them that this kind of shopping was new to us

and

>we were not good at it yet. Sometimes she would just turn into a shelf and

>things would go flying, I told her not to worry. I think she enjoyed the

outing

>but she was up tight I could tell.

>I am not going to proof read the above so if it doesn't make sense, try to

>fill in.

>Oh, her house has had a bid on it this week, looks like it will sell but

she

>will take a big lose on it. That will be a big thing off her mind.

>Pray we can find someone to build a room for her, she really wants to have

>her own room, she thinks she is in our way. We keep assuring her she is

not.

>I have been surprised at how really bad she is. I don't know if she was

>having the headaches before moving up here since she was my herself. I

can't really

>know, but I expect she was.

>Also she walks from her chair to the bathroom and is out of breath. Wonder

>about heart problems, and plan to get an appt for that soon. She has an

appt

>with a dr about the knees. She really has a had time getting up from

sitting,

>hopefully they will inject them again, she had that done a couple of years

ago

>and it really helped.

>Will keep all of you up to date, this post is so long, but it takes a long

>time for me to tell anything.

>MY SPELLING IS AWFUL, PLEASE FORGIVE ALL THE MISTAKES.

>

>JAYN IN

>S GA

>

September 25, 2003

ENEMAS!!!! ROFLMAO!!!!

> Or as we say " with friends like that you don't need any enemas! "

> Thanks,

> COurage

>

> (no subject)

>

> >

> >Courage,

> >With girlfriends like that you sure don't need any enemies!!!!!

> >

> >Jayn

> >

October 5, 2003

My brother had severe sleep apnea. He was DX at a sleep clinic.

There were no meds, just a harness-type thing that would go on his

head that held a small oxygen mask onto his nose. He hadn't sleep

that well in years. I would suggest getting it checked out ASAP. I

often wondered if that contributed to his early death from a heart

attack. He was only 45 years old. Please get checked out.

Beth L.

> To those writing about sleep apnea. My Mom use to breath , or

rather

> stop breathing at times during the night and I didn't think much

of it

> until I ran across an article about sleep apnea. Then I learned it

> really needed to be checked. I never did get it checked as we were

> dealing with so much. It sure doesn't hurt to check this out with

an

> MD.

>

> Donna

October 5, 2003

My brother had severe sleep apnea. He was DX at a sleep clinic.

There were no meds, just a harness-type thing that would go on his

head that held a small oxygen mask onto his nose. He hadn't sleep

that well in years. I would suggest getting it checked out ASAP. I

often wondered if that contributed to his early death from a heart

attack. He was only 45 years old. Please get checked out.

Beth L.

> To those writing about sleep apnea. My Mom use to breath , or

rather

> stop breathing at times during the night and I didn't think much

of it

> until I ran across an article about sleep apnea. Then I learned it

> really needed to be checked. I never did get it checked as we were

> dealing with so much. It sure doesn't hurt to check this out with

an

> MD.

>

> Donna

October 5, 2003

Peggy, my sister is not taking the benadryl anymore, the neurologist gave her

a percription for ultram12 1/2 mg to 25mg every 6 hours. So I backed off the

benadryl

It seems when she is really feeling bad is when she does all the sleeping.

The neurologist said the headaches may be coming from arthritis in the neck,

and to give her tylenol for arthritis, which I did, but it didn't help. The

25mg of ultram seems to do more than anything I have given her.

Yesterday was not a good day, but today she has not complained with a

headache so far---------. Has been up most of the day and acts like she feel as

good

as she usually does. It is such a mystery!!

She also breaks out in sweats for no reason.

The hallucinations did stop when she went on the aricept 10mg about 3 1/2

years ago.

I will keep you posted.

Jayn

in S GA

October 5, 2003

Thanks so much Coyote for sharing this with me. Now I know what's going on.

Courage

Re: (no subject)

>Hi Courage...I stop breathing altogether, too. It is very scary for

>someone else to watch (like my husband, and your daughter!). My

>husband even used to do tricks like plugging my nose to stop snoring

>and then he would freak, because I wouldnt respond by waking up, I

>would just stop breathing! Anyway, when you stop breathing at night,

>the body has this natural defense, it realizes the brain is being

>denied oxygen and that you are going to die if you dont get air and

>you suddenly (and noisily) take air in. Usually you hear a big

>**snort** when this happens. Your son in law would have to go to his

>family doctor and get a referral to a sleep doctor. Then he would

>have to spend a couple of nights in a sleep lab, the first one or

>two to watch his breathing on his own, then another one to try

>various strengths of air pressure from a machine. Then you get your

>own machine, called a CPAP --a snorkel-like apparatus that is

>programmed to force a certain air pressure through a mask that sits

>over your nose. You can't open your mouth while you sleep because of

>the air flowing through, but it forces your airway to stay open. The

>machines range from $1200-$2000, and OHIP will pay a small part of

>it (max $600 I think) but if he has coverage through where he works,

>that will usually pick up the remainder. Hope this helps!

>

>> >>

>> >> Hello to all,

>> >> My sister is sleeping a lot and I mean all night and probably 6-

>8

>> >hours a

>> >> day!!!! I am told my many she is probably depressed, but all she

>> >has is the awful

>> >> headaches.

>> >> So when she takes something for the headache or even if she

>> >doesn't she is

>> >> only up about 2 hours and then she is back in bed.

>> >> Also I read post that tells of their lo hallucinations. Ruth did

>> >this at the

>> >> very beginning of the diagnosis but has not had hallucinations

>> >for about a

>> >> year. Does this sound right?

>> >> Thanks to all

>> >>

>> >> Jayn in

>> >> S Ga

>> >>

October 5, 2003

Hi everyone:

My dad had sleep apnea as well. Best to all, Josie

October 5, 2003

Hi everyone:

My dad had sleep apnea as well. Best to all, Josie

October 5, 2003

In a message dated 10/5/2003 6:23:23 PM Eastern Daylight Time,

aschenbrenner2@... writes:

the body can convert glucose and

galactose ( which are readily available in the diet) into the other 6.

However it takes up a lot of minerals, vitamins, enzymes and energy to

do so.

Dear Ilse:

How about getting the vitamin and mineral supplements necessary until the 8

monosaccharides are more readily available?

My best to you, Josie

October 5, 2003

In a message dated 10/5/2003 6:23:23 PM Eastern Daylight Time,

aschenbrenner2@... writes:

the body can convert glucose and

galactose ( which are readily available in the diet) into the other 6.

However it takes up a lot of minerals, vitamins, enzymes and energy to

do so.

Dear Ilse:

How about getting the vitamin and mineral supplements necessary until the 8

monosaccharides are more readily available?

My best to you, Josie

October 5, 2003

hey Courage, I should also mention that Sleep Apnea affects the

person you are sleeping with because it disturbs their sleep too! My

husband was pretty grouchy for a while before I was dx and treated,

lol!

> >> >>

> >> >> Hello to all,

> >> >> My sister is sleeping a lot and I mean all night and

probably 6-

> >8

> >> >hours a

> >> >> day!!!! I am told my many she is probably depressed, but all

she

> >> >has is the awful

> >> >> headaches.

> >> >> So when she takes something for the headache or even if she

> >> >doesn't she is

> >> >> only up about 2 hours and then she is back in bed.

> >> >> Also I read post that tells of their lo hallucinations. Ruth

did

> >> >this at the

> >> >> very beginning of the diagnosis but has not had

hallucinations

> >> >for about a

> >> >> year. Does this sound right?

> >> >> Thanks to all

> >> >>

> >> >> Jayn in

> >> >> S Ga

> >> >>

October 5, 2003

Dear Jayn, here we go.. if someone is deficient in all 8 monosaccarides

that are crucial to life then the body takes up all its energy to make

them, because the body would rather be tired than dead. Being

miraculous creatures that we are, the body can convert glucose and

galactose ( which are readily available in the diet) into the other 6.

However it takes up a lot of minerals, vitamins, enzymes and energy to

do so. I know of quite a few chronic fatigue sufferers, who after

supplementing their diet with the other 6 monosaccarides so that the

body doesnt have to convert anymore, have had their chronic fatigue

lift within a few weeks. If your sister is always tired she might find

relief from that as well. At the same time she may find relief from the

arthritis ( as my mother in law does) and she may even find her

headaches go away. At least it is a totally non toxic alternative. It

would be a pity if she has to be on toxic drugs ( every drug has some

toxicity level) if perhaps she is merely deficient in something

natural. Maybe worth a try.

All the best Ilse

Begin forwarded message:

> From: jja52538@...

> Date: Mon Oct 6, 2003 4:20:55 AM Australia/Melbourne

> To: LBDcaregivers

> Subject: Re: Re: (no subject)

> Reply-To: LBDcaregivers

>

> Peggy, my sister is not taking the benadryl anymore, the neurologist

> gave her

> a percription for ultram12 1/2 mg to 25mg every 6 hours. So I backed

> off the

> benadryl

> It seems when she is really feeling bad is when she does all the

> sleeping.

> The neurologist said the headaches may be coming from arthritis in the

> neck,

> and to give her tylenol for arthritis, which I did, but it didn't

> help. The

> 25mg of ultram seems to do more than anything I have given her.

> Yesterday was not a good day, but today she has not complained with a

> headache so far---------. Has been up most of the day and acts like

> she feel as good

> as she usually does. It is such a mystery!!

> She also breaks out in sweats for no reason.

> The hallucinations did stop when she went on the aricept 10mg about 3

> 1/2

> years ago.

> I will keep you posted.

>

> Jayn

> in S GA

>

October 5, 2003