bad day

[Guest guest]

Yes, Elyce, we're here. Sending you a hug.

((((((((((Elyce))))))))))

- Edith

Moderator / WTO Lists

vwaluhh wrote:

> I am having such a terrible day today. And everyone I try to call is

> not home...Augggh!!

> I tried calling nada's attorney. After getting all my courage

> together..he's not there. So I left a message.

> I tried calling my sis in law (brother's wife)..she too was outcasted

> by nada...not home!! I haven't talked to her in 12 years.

> I tried calling my Aunt (nada's sis) hoping to talk to her a

> bit...not home!! She too was outcasted by nada.

> All this courage I have today and no one is home!!..LOL!

> But my list is always here.

>

> Elyse

>

[Guest guest]

Yes, Elyce, we're here. Sending you a hug.

((((((((((Elyce))))))))))

- Edith

Moderator / WTO Lists

vwaluhh wrote:

> I am having such a terrible day today. And everyone I try to call is

> not home...Augggh!!

> I tried calling nada's attorney. After getting all my courage

> together..he's not there. So I left a message.

> I tried calling my sis in law (brother's wife)..she too was outcasted

> by nada...not home!! I haven't talked to her in 12 years.

> I tried calling my Aunt (nada's sis) hoping to talk to her a

> bit...not home!! She too was outcasted by nada.

> All this courage I have today and no one is home!!..LOL!

> But my list is always here.

>

> Elyse

>

[Guest guest]

Hi ,

I'm sorry to hear your day has been awful. As far as your question

of noticing that we have other things wrong with us too. I was

healing from major back surgery and was in Tenn. selling my parents

estate for them and getting my mother moved when this hit me like a

brick..literally overnight! Prior to that I really felt rather well.

I think that once we get on that roller coaster of exhaustion because

of one or more symptoms of this nasty disease...it does cause

failures of other organs or additional problems to arise. I really

felt for you while reading your post because I also have the vertigo

and body " jerks " I call them because they are so hard and frequent

that they quite literally jerk me awake when I just ready to fall

out. I was hinged or locked at the point of just falling out and

couldn't. I am on meds to help me sleep and now another to calm down

these symptoms so I can get sleep. I find that the better the sleep

I get...the better I feel the next day.

I still try to be careful not to over exert myself and try to " store

up " some energy for the future. There was an article that spoke

about that very thing and maybe someone knows it and can re-post it

for you. I can't find it. I was so bad before that my house

literally had to go to the wayside and my husband would come home for

lunch to make sure I was still breathing.

Now I am so much better but still have the jerks along with other

symptoms that come with this disease but I " deal " with them much

better. I'm not one to push drugs but it sounds like you need some

real help if your going to have any serious healing or get part of

your life back that was lost before this started. I know I am! If

it takes meds to get me here..so be it. I am not grieving for

the " person " I once was but building strength to get back to where I

was before this happened to some degree.

God Bless you ,

I pray for much better days ahead for you!

/Dutchie

-- In CFAlliance , meshel badzgon

wrote:

>

> I had a bad day today. It's been a while since I have had a day

like this. It starts out where I am exhausted. I know I say that

fatigue isn't my worst symptom, but it sure was today. I could

barely stay awake as I walked my daughter to school. I can home and

curled up on the couch, unable to move to do anything else. The

house was a disaster, but there was nothing I could do about it.

>

>

[Guest guest]

,

I agree... we sure do! I've got some interesting news about myself

to share. I went to the doctor yesterday, and here is what happened.

She spent over an hour talking with me about all my complications.

She diagnosed me with " classic " migraines, and said they are flaring

up again because I'm in peri-menopause. I had these kind of

headaches as a child at the onset of puberty (I was an early-bloomer

at age 11!); and again when I was on birth-control pills. I never

was " diagnosed " with migraines... just like with everything else! I

told her the symptoms, and deliberately didn't " self-diagnose " like I

tend to do, and didn't use the word " migraine " but let HER tell ME

that they are migraines. She prescribed Fioricet that I should use

the next time I start to get the aura signalling the onset of the

migraine.

I spoke to her about my fainting spells that happen during the first

couple hours of my period, usually in the middle of the night, in the

bathroom, after a bowel movement. Interestingly, she said it is my

IBS that is causing this, complicated by the fact that I have Primary

Spasmodic Dysmenorrhea. This means that I have always had painful

periods, with no secondary cause, and exacerbated by the fact that I

am childless. For more info on Primary Dysmenorrhea, here is an

article:

http://www.healthy.net/scr/Article.asp?Id=1374#2

She explained another syndrome called Splenic-Flexure Syndrome, and

said that is often happening to me, also can be caused by hormones.

If you Google that term, there is some info on it, but not a whole

lot. It's mostly repetitive definitions.

The non-menstrual-related dizzy spells and vertigo I have been having

is because the anti-depressants that I've been taking for 6 weeks

lowers blood pressure. When I stand up after sitting or driving for

a long time, I get hypotension and my body tries to compensate which

is why the room spins or my vision goes black or I have to hold onto

a wall or something to get my bearings. Since this is the first

medication I've ever taken in my life, I had no idea that my BP was

being lowered.

Finally, we discovered that I've only been taking HALF a pill of

Trazodone, and it is not regulating my sleep. We agreed that I would

take a WHOLE pill (50 mg) for two weeks, and if I am still not

sleeping, then she wants me to switch to Elavil. She gave me a

prescription for Elavil already, just in case. I took the whole pill

of Trazodone last night, and I still woke up a few times, but I

noticed I slept more soundly.

K2

>

> Have you all noticed that most of us have a LOT of other things

wrong with us? Besides the ME, I have three types of migraine

headaches and kidney problems.

>

>

[Guest guest]

Well yesterday I went to the clinic for my asthma. We talked about the advair and she said that I dont fit the scope of the black box warnings, so I should not be concerned, she talked it over with the pulmonologist before she prescribed it for me. So I am feeling a little better. She also set me up to see the pulmo dr..it will be my first time. Also next week I am to do the ramut of pulmonary function tests..first time for that also. I am hoping that methacholine challenge is not a part of that...I guess I better clarify..as purposefully setting my lungs off will not impress me! While I was at the clinic she put me on augmentin to see if I have a hidden infection setting my asthma off..well I had a major reaction to it and ended up in the ER. I was in so much pain, I was given lots of pain and

nausea meds and eventually came home. I continue to vomit all night. Today I have a massive pain in my back. I am not sure if I tore something yesterday or if I am now fighting pneumonia. my peak flows are still 250 ish..but I dont want to get another antibiotic and go through what I went through yesterday! this is frustrating! any ideas?

Anita