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My doctor put me on Oxycontin about 6 months ago.I am on a low-income

program through the drug company. I can't say enough good things about

it.For the first time in 23 years I have had days and nights without any

pain. It does make me sleepy so I don't take any if I'm going to be out

and around.I was worried about it but I have gained part of my life

back. I was prescribed 1-2 20 mgs. a.m. and p.m. It works best for me

to have 1 in the a.m. and 3 at night. I wake up after 10 or 11 hours of

sleep feeling great. Joyce (Namu M.M.)

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Joyce M-M,

Thanks for giving your positive input on oxycontin. Our members need to hear

that there IS pain relief that can give them back their life. I am so happy to

hear that it is working so well for you. How are your elbows doing? You were

considering replacements a while back and I've never talked to anyone that had

it done. a

----- Original Message -----

From: namu32@...

Sent: Wednesday, February 28, 2001 1:27 AM

Subject: [ ] Re:Oxycontin

My doctor put me on Oxycontin about 6 months ago.I am on a low-income

program through the drug company. I can't say enough good things about

it.For the first time in 23 years I have had days and nights without any

pain. It does make me sleepy so I don't take any if I'm going to be out

and around.I was worried about it but I have gained part of my life

back. I was prescribed 1-2 20 mgs. a.m. and p.m. It works best for me

to have 1 in the a.m. and 3 at night. I wake up after 10 or 11 hours of

sleep feeling great. Joyce (Namu M.M.)

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  • 2 weeks later...
Guest guest

I have taken my evening's dose of oxycontin and all i can say is YES, I

am high.But only because I don't hurt anywhere,not one single joint. I

would get more " high " from 2 drinks. I am very confused over the

controversy. This whole concern over painkillers or anti-depressants is

so stupid.When it gets down to quality of life and walking or limping

around,or being unable to turn over in bed, or not being able to get

down on the floor or up, showering,no more baths,unable to scratch one's

own back and on and on,even if we became addicted,SO WHAT?????

I am so tired of the b.s. we put up with.I am so lucky that I have a

compassionate doctor.And he does not just give these out freely. I am

watched carefully but he knows the destruction is already there and I

hurt. They started treating alcoholism as a disease,even heroin addicts

get methadone. Why are we less worthy??? Angry tonight for all of

you still hurting, Namu

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Guest guest

I also take Oxycontin - 40mg. It has been the only

pain med to actually help the pain in over a year. It

says it works 12 hrs, but I've found it works in

spurts over that 12 hrs for me. I take it and when it

starts to work I am pain free for a couple of hours

and then the pain returns and then it starts to work

again, etc. over the 12 hr period (well, maybe not

quite 12 hrs) I haven't had the nausea, but maybe

that's because I'm still on prednisone and eating like

crazy. I just started reducing the prednisone this

week and I'm already starting to feel worse. UGH.

But, my bloodwork came back normal at my last rheumy

visit (March 1) for the first time in a year and she

wants me to get off the prednisone if possible. I

dread the flaring already. I am taking the Oxycontin

because I have SEVERE chest pain which nobody has

discovered the reason for. My gp says it's

chostocondritis, but the rheumy says " no inflammation

- no chosto) She says possibly it's in the soft

tissues - ie: possible fibromyalgia - but she hasn't

given me any medication for that except a muscle

relaxer which hasn't helped. She wrote a prescription

for physical therapy, but my insurance won't cover and

I have NO money because I haven't worked in months and

no disability either. I'm not sure I could stand the

physical therapy anyway because I can't even stand to

touch my chest myself.

For others on oxycontin, I have a question... Do you

find it keeps you awake if you take it late in the

evening? I have found that it keeps me awake - so it

is a trade off - painfree on oxy and no sleep or pain

and sleep. I also find that taking my Enbrel shot

late in the evening keeps me awake. Maybe I'm just

weird. Seems like medicines take longer to start

working on me, but the effects sometimes last longer

too.

I've had a bad day because I had to travel to an appt.

and riding always makes me feel horrible. I slept

almost the entire way there and back (approx 4 hr

round trip). I was afraid I wasn't going to stay awake

for my appt.

Jan - I wish you luck with the oxcontin. It has made a

world of difference for my pain. I agree with Namu

that your dosage seems low, but maybe it is all you

need. I know I am on so many drugs now that I want to

take the least amount that will produce the desired

results.

Alecia

__________________________________________________

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Guest guest

Alecia; Thanks for the info. The dr. said the 10 mg. was a starting dose and

I have to work my way up to the proper dosage. So we will see, still haven't

gotten it filled yet, No money, you know how that goes.... Sorry you are

having such a bad time. No one understands the pain unless they suffer it. I

tried PT when the fibro first hit and it almost killed me...Couldn't stand

the pressure or the pain.. Seems like everything is always a trade off. I am

really looking forward to spring and summer, the cold weather just aggravates

everything and dreary days make it worse. Hope you have a great weekend.

Thanks for your encouragement.

Jan

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  • 1 year later...
Guest guest

This drug when taken as prescribed can be very affective for chronic pain it seems that those who are abusing it, crush it and then snort or shoot it up. This is bad news for people who have really chronic pain because if the abuse continues the DEA and FDA may make it harder to get a prescription for it. It is relatively safe if taken as prescribed. Read on.

Oxycodone hydrochloride (OxyContin) (July 30, 2001)

Reason for posting The US Food and Drug Administration (FDA) has issued stronger warnings and precautions about when to prescribe the long-acting opioid oxycodone hydrochloride (OxyContin) because a growing number of reports indicate that the drug is being abused. The drug Oxycodone is an opioid analgesic that is approximately twice as potent as an equivalent dose of morphine when taken orally. OxyContin is approved for the treatment of moderate and severe pain. The medication is typically dosed every 12 hours because the intact tablet works on a controlled-release principle. The FDA says abusers are circumventing this by crushing the pills and either injecting or snorting the resulting powder. At least 100 deaths have been linked to the drug in the US. A letter was sent to US physicians on July 18, 2001, saying that the drug should not be used as a prn medication nor to treat mild or temporary pain or pain that develops in the immediate postoperative period (http://www.fda.gov/medwatch/safety/2001/oxycontin.htm). An overdose may be characterized by respiratory depression, extreme somnolence and coma, muscle flaccidity, cold and clammy skin and, occasionally, bradycardia and hypotension; severe overdose may lead to apnea, circulatory collapse, cardiac arrest and death. For other adverse effects, consult the product monograph. Physicians are reminded of the potential for abuse, misuse and diversion of oxycodone. In Canada oxycodone exists in regular oral, controlled-release oral and combination preparations sold under various trade-names: OxyContin, Supeudol, Endocet, Oxycocet, Percocet, Percocet-Demi, Endodan, Oxycodan, Percodan, and Percodan-Demi.

What to do Appropriate pain management is to be stressed, and OxyContin should be reserved for expected moderate or severe persistent pain. Physicians should be aware of the potential for abuse of this specific preparation, and stress to patients that the drug is to be swallowed whole and not chewed or crushed, because this can release potentially lethal amounts of the medication. The opioid antagonist naloxone HCl is a specific antidote against opioid-induced respiratory depression. However, in individuals physically dependent on opioids, opioid antagonists should be used with caution (see monograph for details) because of the potential for serious acute withdrawal syndrome. — Dr. Wooltorton, eCMAJ

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  • 2 years later...

Funny you should mention oxycontin, I've been on it for the last 3 years,

and even though it has a bad reputation if not taken correctly...I was just

diagnosed recently, and have been taken oxycontin for the pain in my feet,

but now everything comes together, and I take one in the morning and wait to

decide whether I have to go to the bathroom that bad or wait for the

medicine to take affect. It has worked wonders for me, and just today I was

approved by Purdue to get my presciptions for free, which were costing me

over 500.00 per month. (when I say approved, I have gotten the info faxed

to my dr. from Perdue, saw him this morning, he signed it (knowing I am

responsible and it definitely helps me). I still need to send in the proper

forms I.D, tax info, etc. then it will be delivered every month to my door.

I can't believe there is help out there, just a matter of searching. I have

had symtoms of cmt1 for at least 7 years though, just didn't know until the

nerve conduction test which put 2 and 2 and 2 and2 together. I have a

stomach problem and have tried Vioxx, Celebrex, everything under the sun,

but it felt like my stomach was bleeding. If I had a choice, of course I

wouldn't want to be on such a strong medication, but what works for some

doesn't work for others. My dosage is alot more than yours, and I function

perfectly, but I am embarrassed to let anyone know I'm even taking it,,so I

don't. It definitely has to be taken as scheduled, not something you want

to take more of one minute and then run out. It's time released and like I

said it works for me, but I'm sure alot of people are against it. I also am

taking the vitamins everyone has been talking about, but my pain is so bad,

vitamins don't always work. Just be careful and if you have anymore

questions feel free to ask. Take care...

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I have been on Oxycontin for two years. It is the only medication that stops

the pain in my hands, I feel like a new person and capable of doing and

trying. I wish you the same success as I have found please let me know.

Joyce

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