Guest guest Posted August 16, 2006 Report Share Posted August 16, 2006 Hi Sue, has Botox injected into the muscles that control the opening of the lower jaw, masseter and pytergoid. He has problems swallowing and the injections make it easier for him to swallow. Does see a speech therapist? There are speech therapist that also specialize in swallowing issues. Call the doctor,you aren't over reacting. Good luck. Pat and , CPBS ryansmom0801 wrote: Hi all! We just had 's 5th round of Botox injections last week. For the first time, he had his parotid and sub-mandibular salivary glands injected, in addition to his usual sites (quads, gastrocs, pecs, biceps, etc). We have already noticed a dramatic decrease in his drooling, however we have also noticed that he seems to cough a bit when he's eating and drinking, and his swallow seems harder and a little delayed. He still has what seems like plenty of saliva, so I dont think that is the cause. We have had problems in the past with his eating and drinking being difficult up to a week after anesthesia. In speaking to the Drs and his therapists about it previously, they said it was common and not to worry. I related it more to the intubation thing than to effects from the drugs. The problem with that theory is that, though he was sedated and fairly heavily for this procedure, he was not intubated. He has not had post-procedure issues related to Botox in the past, but also had never been quite so heavily sedated during a procedure. He usually doesn't go out totally, just gets kind of stoned looking with his eyes rolling back in his head, etc. This time he was out and out for almost an hour afterward too. I understand the reason for the larger dose, I know I would want to be asleep if needles were coming at my face. Normally once we get home, he's fine, but this time he was so out of it. He barely ate or drank, and he even vomitted once which he never does. By the next day he was better, though a bit cranky. Tomorrow will be a week since he had it done and I am really not seeing an improvement in the eating and drinking as yet. It seems as if he is having a little trouble coordinating the whole eat, drink, breathe, swallow patterns. I am becoming concerned that he could aspirate. I dont want to be an alarmist and call the Dr if this is just a typical reaction and he will get past it and be fine. She never mentioned this as a possible complication. Her biggest concern was that they could knick a facial nerve and cause him some temporary facial paralysis. They used ultrasound and EMG guidance to avoid that, and luckily they did. Just wondering if anyone else has had this done and if you experienced any feeding problems afterward? Any advice would be appreciated. Thanks. Sue Mom to Meghan(10) and (5) BFPP, microcephaly, moderate spastic quad CP --------------------------------- Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2006 Report Share Posted August 16, 2006 I’m sorry. But what is CPBS stand for? How often do they have to get the botox injections? _____ From: polymicrogyria [mailto:polymicrogyria ] On Behalf Of pat oneill Sent: Wednesday, August 16, 2006 2:05 PM To: polymicrogyria Subject: Re: Salivary gland Botox Hi Sue, has Botox injected into the muscles that control the opening of the lower jaw, masseter and pytergoid. He has problems swallowing and the injections make it easier for him to swallow. Does see a speech therapist? There are speech therapist that also specialize in swallowing issues. Call the doctor,you aren't over reacting. Good luck. Pat and , CPBS ryansmom0801 <Sue_Clearymsn (DOT) <mailto:Sue_Cleary%40msn.com> com> wrote: Hi all! We just had 's 5th round of Botox injections last week. For the first time, he had his parotid and sub-mandibular salivary glands injected, in addition to his usual sites (quads, gastrocs, pecs, biceps, etc). We have already noticed a dramatic decrease in his drooling, however we have also noticed that he seems to cough a bit when he's eating and drinking, and his swallow seems harder and a little delayed. He still has what seems like plenty of saliva, so I dont think that is the cause. We have had problems in the past with his eating and drinking being difficult up to a week after anesthesia. In speaking to the Drs and his therapists about it previously, they said it was common and not to worry. I related it more to the intubation thing than to effects from the drugs. The problem with that theory is that, though he was sedated and fairly heavily for this procedure, he was not intubated. He has not had post-procedure issues related to Botox in the past, but also had never been quite so heavily sedated during a procedure. He usually doesn't go out totally, just gets kind of stoned looking with his eyes rolling back in his head, etc. This time he was out and out for almost an hour afterward too. I understand the reason for the larger dose, I know I would want to be asleep if needles were coming at my face. Normally once we get home, he's fine, but this time he was so out of it. He barely ate or drank, and he even vomitted once which he never does. By the next day he was better, though a bit cranky. Tomorrow will be a week since he had it done and I am really not seeing an improvement in the eating and drinking as yet. It seems as if he is having a little trouble coordinating the whole eat, drink, breathe, swallow patterns. I am becoming concerned that he could aspirate. I dont want to be an alarmist and call the Dr if this is just a typical reaction and he will get past it and be fine. She never mentioned this as a possible complication. Her biggest concern was that they could knick a facial nerve and cause him some temporary facial paralysis. They used ultrasound and EMG guidance to avoid that, and luckily they did. Just wondering if anyone else has had this done and if you experienced any feeding problems afterward? Any advice would be appreciated. Thanks. Sue Mom to Meghan(10) and (5) BFPP, microcephaly, moderate spastic quad CP --------------------------------- Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2006 Report Share Posted August 16, 2006 Hi Sue, My daughter Riley had her third round of botox yesterday for her drooling. She also is sedated with anethesia to get the sub-mandibular glands. She has not experienced any problems with swallowing after the procedure, however our neurologist said that swallow problems were a possible side effect of the botox and to let him know if we saw any of it. So you probably do want to call your MD. If he is coughing with liquids, you may want to try a thicker liquid like nectar or a milkshake consistency. This may be tolerated (I am a dietitian and have worked with some swallow problems). That is also what our speech therapist recommended if we noticed riley coughing on liquids. You may need to give him softer foods until it passes. I cannot remember how long our neurologist said it may last but I want to say three months?? Anyway, hope this helps. christina > >Reply-To: polymicrogyria >To: polymicrogyria >Subject: Salivary gland Botox >Date: Wed, 16 Aug 2006 15:18:41 -0000 > >Hi all! > >We just had 's 5th round of Botox injections last week. For the >first time, he had his parotid and sub-mandibular salivary glands >injected, in addition to his usual sites (quads, gastrocs, pecs, >biceps, etc). > >We have already noticed a dramatic decrease in his drooling, however >we have also noticed that he seems to cough a bit when he's eating >and drinking, and his swallow seems harder and a little delayed. He >still has what seems like plenty of saliva, so I dont think that is >the cause. > >We have had problems in the past with his eating and drinking being >difficult up to a week after anesthesia. In speaking to the Drs and >his therapists about it previously, they said it was common and not >to worry. I related it more to the intubation thing than to effects >from the drugs. > >The problem with that theory is that, though he was sedated and >fairly heavily for this procedure, he was not intubated. He has not >had post-procedure issues related to Botox in the past, but also had >never been quite so heavily sedated during a procedure. > >He usually doesn't go out totally, just gets kind of stoned looking >with his eyes rolling back in his head, etc. This time he was out >and out for almost an hour afterward too. I understand the reason >for the larger dose, I know I would want to be asleep if needles >were coming at my face. Normally once we get home, he's fine, but >this time he was so out of it. He barely ate or drank, and he even >vomitted once which he never does. By the next day he was better, >though a bit cranky. > >Tomorrow will be a week since he had it done and I am really not >seeing an improvement in the eating and drinking as yet. It seems as >if he is having a little trouble coordinating the whole eat, drink, >breathe, swallow patterns. I am becoming concerned that he could >aspirate. > >I dont want to be an alarmist and call the Dr if this is just a >typical reaction and he will get past it and be fine. She never >mentioned this as a possible complication. Her biggest concern was >that they could knick a facial nerve and cause him some temporary >facial paralysis. They used ultrasound and EMG guidance to avoid >that, and luckily they did. > >Just wondering if anyone else has had this done and if you >experienced any feeding problems afterward? Any advice would be >appreciated. > >Thanks. >Sue >Mom to Meghan(10) and (5) BFPP, microcephaly, moderate spastic >quad CP > > > > _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2006 Report Share Posted August 17, 2006 CBPS,congenital bilateral perisylvian syndrome. CBPS and bilateral perisylvian polymicrogyria are the same thing just a different name. has botox injections every 3 months but the effects can last from 3 to 6 months it depends on the individual. Spranger wrote: I’m sorry. But what is CPBS stand for? How often do they have to get the botox injections? _____ From: polymicrogyria [mailto:polymicrogyria ] On Behalf Of pat oneill Sent: Wednesday, August 16, 2006 2:05 PM To: polymicrogyria Subject: Re: Salivary gland Botox Hi Sue, has Botox injected into the muscles that control the opening of the lower jaw, masseter and pytergoid. He has problems swallowing and the injections make it easier for him to swallow. Does see a speech therapist? There are speech therapist that also specialize in swallowing issues. Call the doctor,you aren't over reacting. Good luck. Pat and , CPBS ryansmom0801 <Sue_Clearymsn (DOT) <mailto:Sue_Cleary%40msn.com> com> wrote: Hi all! We just had 's 5th round of Botox injections last week. For the first time, he had his parotid and sub-mandibular salivary glands injected, in addition to his usual sites (quads, gastrocs, pecs, biceps, etc). We have already noticed a dramatic decrease in his drooling, however we have also noticed that he seems to cough a bit when he's eating and drinking, and his swallow seems harder and a little delayed. He still has what seems like plenty of saliva, so I dont think that is the cause. We have had problems in the past with his eating and drinking being difficult up to a week after anesthesia. In speaking to the Drs and his therapists about it previously, they said it was common and not to worry. I related it more to the intubation thing than to effects from the drugs. The problem with that theory is that, though he was sedated and fairly heavily for this procedure, he was not intubated. He has not had post-procedure issues related to Botox in the past, but also had never been quite so heavily sedated during a procedure. He usually doesn't go out totally, just gets kind of stoned looking with his eyes rolling back in his head, etc. This time he was out and out for almost an hour afterward too. I understand the reason for the larger dose, I know I would want to be asleep if needles were coming at my face. Normally once we get home, he's fine, but this time he was so out of it. He barely ate or drank, and he even vomitted once which he never does. By the next day he was better, though a bit cranky. Tomorrow will be a week since he had it done and I am really not seeing an improvement in the eating and drinking as yet. It seems as if he is having a little trouble coordinating the whole eat, drink, breathe, swallow patterns. I am becoming concerned that he could aspirate. I dont want to be an alarmist and call the Dr if this is just a typical reaction and he will get past it and be fine. She never mentioned this as a possible complication. Her biggest concern was that they could knick a facial nerve and cause him some temporary facial paralysis. They used ultrasound and EMG guidance to avoid that, and luckily they did. Just wondering if anyone else has had this done and if you experienced any feeding problems afterward? Any advice would be appreciated. Thanks. Sue Mom to Meghan(10) and (5) BFPP, microcephaly, moderate spastic quad CP --------------------------------- Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2006 Report Share Posted August 17, 2006 Thank you for the explanation. _____ From: polymicrogyria [mailto:polymicrogyria ] On Behalf Of pat oneill Sent: Thursday, August 17, 2006 2:42 AM To: polymicrogyria Subject: RE: Salivary gland Botox CBPS,congenital bilateral perisylvian syndrome. CBPS and bilateral perisylvian polymicrogyria are the same thing just a different name. has botox injections every 3 months but the effects can last from 3 to 6 months it depends on the individual. Spranger <MTAMM1WOWWAY (DOT) <mailto:MTAMM1%40WOWWAY.COM> COM> wrote: I’m sorry. But what is CPBS stand for? How often do they have to get the botox injections? _____ From: polymicrogyria@ <mailto:polymicrogyria%40yahoogroups.com> yahoogroups.com [mailto:polymicrogyria@ <mailto:polymicrogyria%40yahoogroups.com> yahoogroups.com] On Behalf Of pat oneill Sent: Wednesday, August 16, 2006 2:05 PM To: polymicrogyria@ <mailto:polymicrogyria%40yahoogroups.com> yahoogroups.com Subject: Re: Salivary gland Botox Hi Sue, has Botox injected into the muscles that control the opening of the lower jaw, masseter and pytergoid. He has problems swallowing and the injections make it easier for him to swallow. Does see a speech therapist? There are speech therapist that also specialize in swallowing issues. Call the doctor,you aren't over reacting. Good luck. Pat and , CPBS ryansmom0801 <Sue_Clearymsn (DOT) <mailto:Sue_Cleary%40msn.com> com> wrote: Hi all! We just had 's 5th round of Botox injections last week. For the first time, he had his parotid and sub-mandibular salivary glands injected, in addition to his usual sites (quads, gastrocs, pecs, biceps, etc). We have already noticed a dramatic decrease in his drooling, however we have also noticed that he seems to cough a bit when he's eating and drinking, and his swallow seems harder and a little delayed. He still has what seems like plenty of saliva, so I dont think that is the cause. We have had problems in the past with his eating and drinking being difficult up to a week after anesthesia. In speaking to the Drs and his therapists about it previously, they said it was common and not to worry. I related it more to the intubation thing than to effects from the drugs. The problem with that theory is that, though he was sedated and fairly heavily for this procedure, he was not intubated. He has not had post-procedure issues related to Botox in the past, but also had never been quite so heavily sedated during a procedure. He usually doesn't go out totally, just gets kind of stoned looking with his eyes rolling back in his head, etc. This time he was out and out for almost an hour afterward too. I understand the reason for the larger dose, I know I would want to be asleep if needles were coming at my face. Normally once we get home, he's fine, but this time he was so out of it. He barely ate or drank, and he even vomitted once which he never does. By the next day he was better, though a bit cranky. Tomorrow will be a week since he had it done and I am really not seeing an improvement in the eating and drinking as yet. It seems as if he is having a little trouble coordinating the whole eat, drink, breathe, swallow patterns. I am becoming concerned that he could aspirate. I dont want to be an alarmist and call the Dr if this is just a typical reaction and he will get past it and be fine. She never mentioned this as a possible complication. Her biggest concern was that they could knick a facial nerve and cause him some temporary facial paralysis. They used ultrasound and EMG guidance to avoid that, and luckily they did. Just wondering if anyone else has had this done and if you experienced any feeding problems afterward? Any advice would be appreciated. Thanks. Sue Mom to Meghan(10) and (5) BFPP, microcephaly, moderate spastic quad CP --------------------------------- Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2006 Report Share Posted August 17, 2006 Thanks Pat. does see a speech therapist, unfortunately his outpatient ST is on vacation this week. I did speak to the ST at his school last night. She said that they noticed the coughing and harder swallow as well. She said that she was asked to feed him lunch yesterday so she could see what was going on and that prompted her call to me. I have a call in to 's Dr now. Thanks again for the advice. Sue Mom to Meghan (10) and (5) BFPP, microcephaly, moderate spastic quad CP Quote Link to comment Share on other sites More sharing options...
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