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Re: Re: Fibromyalgia ??

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Hi and Sandy and Everyone

Yes I am very sensitive to heat and cold I no longer

allow myself to monitor the weather for barometric

pressure..if it goes past 30 (US measure) I am in for

pain severely. To my experience heat/cold very common

amongst FM/CFS patients. I asked if you would

describe tremors because in the past I found my own

" communication of symptoms " was not always accurate

for my doctor...I do experience tremors after pushing

myself for too long in any way..a few years ago was

frankly hooked on computer free games...until the

night I laid in bed shaking uncontrollably all over

for hours..learning how to manage myself/symptoms has

been just as difficult as the illnesses..are you

possibly still working? Do you have a calendar you

like by chance? Try writing daily physical activity,

and jotting down the " ranking " of the tremors...I did

a search for you the other day I put in Tremors with

Fibromyalgia and some discussions came up..and then I

crashed. :(

I have seen your kind notes and appreciate them and

most of all present to your physician with confidence

in the veracity of your symptoms..and with info in

hand as well

Hugs

Marie IL

--- sandra ford wrote:

> Hi

>

> I have tremors with fm, have noticed that its

> worse when i am trying to get to sleep and again

> when i awake, though i dont have it in one limb, its

> usually all over.

> Sometimes get tremors in the day when i am really

> tired.

> Plus have intolerence to heat and cold.

>

> sandy

>

> Sharon wrote:

>

> >

> > Have you or do you know any body that experiences

> tremours with

> > Fibromyalgia?

> >

>

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Oh Yes! Rhonda and Sharon and

Yes at times also annoying " tics " around right side of

mouth area and occasionally the right eyelid..used to

get absolute eye attacks as well " scotomas " they were

considered migraines of the eye seldom do I experience

them any longer and I was informed to consider it a

blessing I did not also experience the traditional

migraines that often come with the eye attacks..I do

consider that a blessing..in general my muscles

somewhere are either rock-hard, twitching,

hurting..varies. contributing factors for me appear

to be weather, activity, non-activity, and LACK OF

WATER in particular.

I cannot emphasize enough how drinking plenty of

Natural Spring Water (with its naturally occuring

minerals vs. purified drinking water whrer minerals

are added only for taste) lowered my overall pain

levels...I just cannot make it clear enough how water

helps me versus when I do not drink properly: 16.9 oz

upon awaking, after breakfast another 16.9, after

lunch 16.9, after dinner 16.9...

Drinking after the meal is key. Easier on the IBS as

well as trips to the bathroom. The meal absorbs a bit

of the water thereby it is not immediately running

from your body...if you drink too much water without

regard to timing and meals you can end up with muscle

spasms from dehydrating yourself. Well hope that

helps...it took me years to learn about the water

issue...

Hugs

Marie IL (US)

--- Rhonda Huffman

wrote:

> I get facial tremors around my eyes. I also get

> tremors in my hands and in my lower legs. Yes, I

> think this is a part of Fibromyalgia, but I haven't

> seen anything written about it from this board or

> any other for that matter.

>

> Rhonda

>

>

> Re: Fibromyalgia ??

>

>

>

> >

> > Have you or do you know any body that

> experiences tremours with

> > Fibromyalgia?

> >

>

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